Multiple sclerosis registries in Europe - Results of a systematic survey

Multiple Sclerosis Journal

Volumn 20, Issue 11, 2014, Pages 1523-1532

  Flachenecker, Peter ^a   Buckow, Karoline ^b   Pugliatti, Maura ^c   Kes, Vanja Bašić ^d   Battaglia, Mario A ^e   Boyko, Alexey ^g   Confavreux, Christian ^f   Ellenberger, David ^b   Eskic, Danica ^h   Ford, David ⁱ   Friede, Tim ^b   Fuge, Jan ^j   Glaser, Anna ^k   Hillert, Jan ^k   Holloway, Edward ^l   Ioannidou, Eva ^m   Kappos, Ludwig ⁿ   Kasilingam, Elisabeth ^o   Koch Henriksen, Nils ^p   Kuhle, Jens ⁿ   Lepore, Vito ^q   Middleton, Rod ^l   Myhr, Kjell Morton ^r   Orologas, Anastasios ^s   Otero, Susana ^t   Pitschnau Michel, Dorothea ^j   Rienhoff, Otto ^b   Sastre Garriga, Jaume ^t   Schyns Liharska, Tsveta ^o   Sutovic, Dragana ^u   Thalheim, Christoph ^o   Trojano, Maria ^v   Vlasov, Yan V ^g   Yaldizli, Özgür ⁿ   more..

^a Neurological Rehabilitation Center Quellenhof   (Germany)

^b UNIVERSITY MEDICAL CENTER GÖTTINGEN   (Germany)

^c UNIVERSITY OF SASSARI   (Italy)

^d SESTRE MILOSRDNICE UNIVERSITY HOSPITAL   (Croatia)

^e Liguria and Tuscany MS Register   (Italy)

^f UNIVERSITÉ DE LYON   (France)

^g All Russian MS Society   (Russian Federation)

^h Association of MS Societies of Croatia   (Croatia)

ⁱ SWANSEA UNIVERSITY   (United Kingdom)

^j German MS Society   (Germany)

^k KAROLINSKA INSTITUTE   (Sweden)

^l Lyfebulb   (United Kingdom)

^m Greek MS Society   (Greece)

ⁿ University Hospital   (Switzerland)

^o European Platform for Rehabilitation   (Belgium)

^p Mental Health Center Glostrup   (Denmark)

^q MARIO NEGRI INSTITUTE FOR PHARMACOLOGICAL RESEARCH   (Italy)

^r UNIVERSITY OF BERGEN   (Norway)

^s ARISTOTLE UNIVERSITY OF THESSALONIKI   (Greece)

^t HOSPITAL UNIVERSITARI VALL D HEBRON   (Spain)

^u Information Society of Serbia   (Serbia)

^v UNIVERSITY OF BARI   (Italy)

more..

Author keywords

Europe; Multiple sclerosis; registries

Indexed keywords

FINGOLIMOD; NATALIZUMAB;

CLINICAL TRIAL (TOPIC); COST EFFECTIVENESS ANALYSIS; CROATIA; DENMARK; EPIDEMIOLOGY; EUROPE; EXPANDED DISABILITY STATUS SCALE; FRANCE; GERMANY; GREECE; HEALTH CARE COST; HUMAN; ITALY; LONG TERM CARE; MULTIPLE SCLEROSIS; NORWAY; QUALITY CONTROL; REFERENCE DATABASE; REGISTER; REVIEW; RUSSIAN FEDERATION; SERBIA; SPAIN; SWEDEN; SWITZERLAND; TELEPHONE INTERVIEW; TOTAL QUALITY MANAGEMENT; UNITED KINGDOM; FACTUAL DATABASE; PATIENT SELECTION; QUESTIONNAIRE; STANDARDS; TREATMENT OUTCOME; ARTICLE; DISEASE REGISTRY; MEDICAL RESEARCH; OUTCOME ASSESSMENT; SYSTEMATIC REVIEW;

DATABASES, FACTUAL; EUROPE; HUMANS; MULTIPLE SCLEROSIS; PATIENT SELECTION; REGISTRIES; SURVEYS AND QUESTIONNAIRES; TREATMENT OUTCOME;

EID: 84921019368     PISSN: 13524585     EISSN: 14770970     Source Type: Journal    
DOI: 10.1177/1352458514528760     Document Type: Review

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