Caregivers' contributions to heart failure self-care: A systematic review

European Journal of Cardiovascular Nursing

Volumn 14, Issue 1, 2015, Pages 79-89

  Buck, Harleah G ^a   Harkness, Karen ^b,d   Wion, Rachel ^a   Carroll, Sandra L ^b,d   Cosman, Tammy ^d   Kaasalainen, Sharon ^b   Kryworuchko, Jennifer ^e   McGillion, Michael ^c   O'Keefe Mccarthy, Sheila ^c   Sherifali, Diana ^b   Strachan, Patricia H ^b   Arthur, Heather M ^b,d  

^a PENNSYLVANIA STATE UNIVERSITY   (United States)

^b MCMASTER UNIVERSITY   (Canada)

^c UNIVERSITY OF TORONTO   (Canada)

^d HAMILTON HEALTH SCIENCES   (Canada)

^e UNIVERSITY OF SASKATCHEWAN   (Canada)

Author keywords

chronic illness; Self care; self management; symptom management

Indexed keywords

ARTICLE; CAREGIVER SUPPORT; CLINICAL PRACTICE; HEALTH CARE SYSTEM; HEART FAILURE; HUMAN; OBSERVATIONAL METHOD; PATIENT CARE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; QUANTITATIVE STUDY; SELF CARE; SYSTEMATIC REVIEW; CAREGIVER; CHRONIC DISEASE; FEMALE; LONG TERM CARE; MALE; META ANALYSIS; NURSING; ORGANIZATION AND MANAGEMENT; PROCEDURES; PROGNOSIS; QUALITY CONTROL; SEVERITY OF ILLNESS INDEX; TREATMENT OUTCOME;

CAREGIVERS; CHRONIC DISEASE; FEMALE; HEART FAILURE; HUMANS; LONG-TERM CARE; MALE; PROGNOSIS; QUALITY CONTROL; SELF CARE; SEVERITY OF ILLNESS INDEX; TREATMENT OUTCOME;

EID: 84920998599     PISSN: 14745151     EISSN: 18731953     Source Type: Journal    
DOI: 10.1177/1474515113518434     Document Type: Article

References (82)

1. Godfrey CM, Harrison MB, Lysaght R, et al. Care of self-care by other-care of other: The meaning of self-care from research, practice, policy and industry perspectives. Int J Evid Based Healthc. 2011 ; 9: 3-24
2. Riegel B, Moser DK, Anker SD, et al. State of the science: Promoting self-care in persons with heart failure: A scientific statement from the American Heart Association. Circulation. 2009 ; 120: 1141-1163
3. Riegel B, Jaarsma T, Stromberg A. A middle-range theory of self-care of chronic illness. ANS Adv Nurs Sci. 2012 ; 35: 194-204
4. Lainscak M, Blue L, Clark AL, et al. Self-care management of heart failure: Practical recommendations from the Patient Care Committee of the Heart Failure Association of the European Society of Cardiology. Eur J Heart Fail. 2011 ; 13: 115-126
5. Riegel B, Dickson VV. A situation-specific theory of heart failure self-care. J Cardiovasc Nurs. 2008 ; 23: 190-196
6. Riegel B, Lee CS, Dickson VV. Self care in patients with chronic heart failure. Nat Rev Cardiol. 2012 ; 8: 644-654
7. Hunt SA, Abraham WT, Chin MH, et al. 2009 focused update incorporated into the ACC/AHA 2005 Guidelines for the Diagnosis and Management of Heart Failure in Adults: A report of the American College of Cardiology Foundation/American Heart Association Task Force on Practice Guidelines: Developed in collaboration with the International Society for Heart and Lung Transplantation. Circulation. 2009 ; 119: e391 - e479
8. McMurray JJ, Adamopoulos S, Anker SD, et al. ESC guidelines for the diagnosis and treatment of acute and chronic heart failure 2012: The Task Force for the Diagnosis and Treatment of Acute and Chronic Heart Failure 2012 of the European Society of Cardiology. Developed in collaboration with the Heart Failure Association (HFA) of the ESC. Eur J Heart Fail. 2012 ; 14: 803-869
9. Wagner EH, Austin BT, Von Korff M. Organizing care for patients with chronic illness. Milbank Q. 1996 ; 74: 511-544
10. Arnold JM, Liu P, Demers C, et al. Canadian Cardiovascular Society consensus conference recommendations on heart failure 2006: Diagnosis and management. Can J Cardiol ; 2006 ; 2006. 23.
11. Leventhal MJ, Riegel B, Carlson B, et al. Negotiating compliance in heart failure: Remaining issues and questions. Eur J Cardiovasc Nurs. 2005 ; 4: 298-307
12. Lee CS, Moser DK, Lennie TA, et al. Event-free survival in adults with heart failure who engage in self-care management. Heart Lung. 2011 ; 40: 12-20
13. Albert NM. Promoting self-care in heart failure: State of clinical practice based on the perspectives of healthcare systems and providers. J Cardiovasc Nurs. 2008 ; 23: 277-284
14. Chen J, Normand SL, Wang Y, et al. National and regional trends in heart failure hospitalization and mortality rates for Medicare beneficiaries, 1998-2008. JAMA. 2011 ; 306: 1669-1678
15. CIHI. Hospital Morbidity Database: The changing face of heart disease in Canada 2000. Figure 2-12. Heart and Stroke Foundation of Canada; 1996/7, http://publications.gc.ca/site/eng/87965/publication.html (accessed October 2008).
16. Fang J, Mensah GA, Croft JB, et al. Heart failure-related hospitalization in the U.S., 1979 to 2004. J Am Coll Cardiol. 2008 ; 52: 428-434
17. Ko DT, Alter DA, Austin PC, et al. Life expectancy after an index hospitalization for patients with heart failure: A population-based study. Am Heart J. 2008 ; 155: 324-331
18. Liao L, Allen LA, Whellan DJ. Economic burden of heart failure in the elderly. Pharmacoeconomics. 2008 ; 26: 447-462
19. World Health Organization. Chronic diseases, http://www.who.int/topics/chronic-diseases/en/ (2012, accessed 3 February 2012).
20. Dickson VV, Buck H, Riegel B. A qualitative meta-analysis of heart failure self-care practices among individuals with multiple comorbid conditions. J Card Fail. 2011 ; 17: 413-419
21. Dunbar SB, Clark PC, Quinn C, et al. Family influences on heart failure self-care and outcomes. J Cardiovasc Nurs. 2008 ; 23: 258-265
22. Wu JR, Moser DK, Lennie TA, et al. Factors influencing medication adherence in patients with heart failure. Heart Lung. 2008 ; 37: 8-16.
23. Simpson SH, Farris KB, Johnson JA, et al. Using focus groups to identify barriers to drug use in patients with congestive heart failure. Pharmacotherapy. 2000 ; 20: 823-829
24. Rich MW, Gray DB, Beckham V, et al. Effect of a multidisciplinary intervention on medication compliance in elderly patients with congestive heart failure. Am J Med. 1996 ; 101: 270-276
25. Sayers SL, Riegel B, Pawlowski S, et al. Social support and self-care of patients with heart failure. Ann Behav Med. 2008 ; 35: 70-79
26. Kang X, Li Z, Nolan MT. Informal caregivers' experiences of caring for patients with chronic heart failure: Systematic review and metasynthesis of qualitative studies. J Cardiovasc Nurs. 2011 ; 26: 386-394
27. Moher D, Liberati A, Tetzlaff J, et al. Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. J Clin Epidemiol. 2009 ; 62: 1006-1012
28. Liberati A, Altman DG, Tetzlaff J, et al. The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate health care interventions: Explanation and elaboration. Ann Intern Med. 2009 ; 151: 65-94
29. Kitko LA, Hupcey JE, Gilchrist JH, et al. Caring for a spouse with end-stage heart failure through implantation of a left ventricular assist device as destination therapy. Heart Lung. 2013 ; 42: 195-201
30. Stemler SE. A comparison of consensus, consistency, and measurement approaches to estimating interrater reliability. Practical Assessment, Research & Evaluation. 2004 ; 9: 66-78
31. Cohen J. A coefficient of agreement for nominal scales. Educ Psychol Meas. 1960 ; 20: 37-46
32. Miles MB, Huberman AM. Qualitative data analysis: A sourcebook of new methods: Sage Publications.. 1984 ;:
33. Noblit GW, Hare RD Meta-ethnography: Synthesizing qualitative studies. Newbury Park, CA: Sage ; 1988 :
34. Critical Appraisal Skills Programme. Making sense of evidence, http://www.casp-uk.net/find-appraise-act/appraising-the-evidence/ (2013, accessed 15 September 2013).
35. Pressler SJ, Gradus-Pizlo I, Chubinski SD, et al. Family caregiver outcomes in heart failure. Am J Crit Care. 2009 ; 18: 149-159
36. Gallagher R, Luttik M-L, Jaarsma T. Social support and self-care in heart failure. J Cardiovasc Nurs. 2011 ; 26: 439-445
37. Nauser JA, Bakas T, Welch JL. A new instrument to measure quality of life of heart failure family caregivers. J Cardiovasc Nurs. 2010 ; 26: 53-64
38. Bakas T, Pressler SJ, Johnson EA, et al. Family caregiving in heart failure. Nurs Res. 2006 ; 55: 180-188
39. Clark AM, McMurray JJ, Morrison CE, et al. A qualitative study of the contribution of pharmacists to heart failure management in Scotland. Pharm World Sci. 2005 ; 27: 453-458
40. Clark AM, Reid ME, Morrison CE, et al. The complex nature of informal care in home-based heart failure management. J Adv Nurs. 2008 ; 61: 373-383
41. Kaholokula JK, Saito E, Mau MK, et al. Pacific Islanders' perspectives on heart failure management. Patient Educ Couns. 2008 ; 70: 281-291
42. Sebern M, Riegel B. Contributions of supportive relationships to heart failure self-care. Eur J Cardiovasc Nurs. 2009 ; 8: 97-104
43. Sebern M. Shared care, elder and family member skills used to manage burden. J Adv Nurs. 2005 ; 52: 170-179
44. Sanford J, Townsend-Rocchicciolli J, Horigan A, et al. A process of decision making by caregivers of family members with heart failure. Res Theor Nurs Pract. 2011 ; 25: 55-70
45. Makdessi A, Harkness K, Luttik ML, et al. The Dutch Objective Burden Inventory: Validity and reliability in a Canadian population of caregivers for people with heart failure. Eur J Cardiovasc Nurs. 2011 ; 10: 234-240
46. Scott LD. Caregiving and care receiving among a technologically dependent heart failure population. ANS Adv Nurs Sci. 2000 ; 23: 82-97
47. Karmilovich SE. Burden and stress associated with spousal caregiving for individuals with heart failure. Prog Cardiovasc Nurs. 1994 ; 9: 33-38
48. Kaasalainen S, Strachan PH, Brazil K, et al. Managing palliative care for adults with advanced heart failure. Can J Nurs Res. 2011 ; 43: 38-57
49. Luttik ML, Blaauwbroek A, Dijker A, et al. Living with heart failure: Partner perspectives. J Cardiovasc Nurs. 2007 ; 22: 131-137
50. Luttik ML, Jaarsma T, Tijssen JG, et al. The objective burden in partners of heart failure patients: Development and initial validation of the Dutch Objective Burden Inventory. Eur J Cardiovasc Nurs. 2008 ; 7: 3-9
51. Piamjariyakul U, Smith CE, Werkowitch M, et al. Part I: Heart failure home management: Patients, multidisciplinary health care professionals and family caregivers' perspectives. Appl Nurs Res. 2012 ; 25: 239-245
52. Saunders MM. Perspectives from family caregivers receiving home nursing support: Findings from a qualitative study of home care patients with heart failure. Home Healthc Nurse. 2012 ; 30: 82-90
53. Hellesø R, Eines J, Fagermoen MS. The significance of informal caregivers in information management from the perspective of heart failure patients. J Clin Nurs. 2012 ; 21: 495-503
54. Witham MD, Fulton RL, Greig CA, et al. Efficacy and cost of an exercise program for functionally impaired older patients with heart failure: A randomized controlled trial. Circ Heart Fail. 2012 ; 5: 209-216
55. Hupcey JE, Fenstermacher K, Kitko L, et al. Achieving medical stability: Wives' experiences with heart failure. Clin Nurs Res. 2010 ; 19: 211-229
56. Hwang B, Fleischmann KE, Howie-Esquivel J, et al. Caregiving for patients with heart failure: Impact on patients' families. Am J Crit Care. 2011 ; 20: 431-441
57. Jaarsma T, Van Der Wal MH, Hogenhuis J, et al. Design and methodology of the COACH study: A multicenter randomised coordinating study evaluating outcomes of advising and counselling in heart failure. Eur J Heart Fail. 2004 ; 6: 227-233
58. Hwang B, Luttik ML, Dracup K, et al. Family caregiving for patients with heart failure: Types of care provided and gender differences. J Card Fail. 2010 ; 16: 398-403
59. Molloy GJ, Johnston DW, Witham MD. Family caregiving and congestive heart failure. Review and analysis. Eur J Heart Fail. 2005 ; 7: 592-603
60. Annema C, Luttik ML, Jaarsma T. Reasons for readmission in heart failure: Perspectives of patients, caregivers, cardiologists, and heart failure nurses. Heart Lung. 2009 ; 38: 427-434
61. Luttik ML, Jaarsma T, Lesman I, et al. Quality of life in partners of people with congestive heart failure: Gender and involvement in care. J Adv Nurs. 2009 ; 65: 1442-1451
62. Berg CA, Upchurch R. A developmental-contextual model of couples coping with chronic illness across the adult life span. Psychol Bull. 2007 ; 133: 920-954
63. Vellone E, Riegel B, Cocchieri A, et al. Validity and reliability of the caregiver contribution to self-care of heart failure index. J Cardiovasc Nurs. 2013 ; 28: 245-255
64. Ågren S, Evangelista L, Davidson T, et al. The Influence of chronic heart failure in patient-partner Dyads - a comparative study addressing issues of health-related quality of life. J Cardiovasc Nurs. 2011 ; 26: 65-73
65. Ågren S, Evangelista LS, Hjelm C, et al. Dyads affected by chronic heart failure: A randomized study evaluating effects of education and psychosocial support to patients with heart failure and their partners. J Card Fail. 2012 ; 18: 359-366
66. Trivedi RB, Piette J, Fihn SD, et al. Examining the interrelatedness of patient and spousal stress in heart failure: Conceptual model and pilot data. J Cardiovasc Nurs. 2012 ; 27: 24-32
67. Usher BM, Cammarata K. Heart failure and family caregiver burden: An update. Prog Cardiovasc Nurs. 2009 ; 24: 113-114
68. Aldred H, Gott M, Gariballa S. Advanced heart failure: Impact on older patients and informal carers. J Adv Nurs. 2005 ; 49: 116-124
69. Given CW, Given B, Stommel M, et al. The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Res Nurs Health. 1992 ; 15: 271-283
70. Bull MJ, Hansen HE, Gross CR. Differences in family caregiver outcomes by their level of involvement in discharge planning. Appl Nurs Res. 2000 ; 13: 76-82
71. Sebern MD, Woda A. Shared care dyadic intervention: Outcome patterns for heart failure care partners. West J Nurs Res. 2012 ; 34: 289-316
72. Imes CC, Dougherty CM, Pyper G, et al. Descriptive study of partners' experiences of living with severe heart failure. Heart Lung. 2011 ; 40: 208-216
73. Freydberg N, Strain L, Tsuyuki RT, et al. 'If he gives in, he will be gone... ': The influence of work and place on experiences, reactions and self-care of heart failure in rural Canada. Soc Sci Med. 2010 ; 70: 1077-1083
74. Harding R. Meeting the communication and information needs of chronic heart failure patients. J Pain Symptom Manage. 2008 ; 36: 149-156
75. Davidson PM, Macdonald P, Moser DK, et al. Cultural diversity in heart failure management: Findings from the DISCOVER study (Part 2). Contemp Nurse. 2007 ; 25: 50-61
76. Clark AM, Freydberg CN, McAlister FA, et al. Patient and informal caregivers' knowledge of heart failure: Necessary but insufficient for effective self-care. Eur J Heart Fail. 2009 ; 11: 617-621
77. Quinn C, Dunbar SB, Higgins M. Heart failure symptom assessment and management: Can caregivers serve as proxy?. J Cardiovasc Nurs. 2010 ; 25: 142-148
78. Trivedi RB. Examining the interrelatedness of patient and spousal stress in heart failure: Conceptual model and pilot data. J Cardiovasc Nurs. 2012 ; 27: 24-32
79. Molloy GJ, Johnston DW, Gao C, et al. Effects of an exercise intervention for older heart failure patients on caregiver burden and emotional distress. Eur J Cardiovasc Prev Rehabil. 2006 ; 13: 381-387
80. Yeh PM, Bull M. Use of the resiliency model of family stress, adjustment and adaptation in the analysis of family caregiver reaction among families of older people with congestive heart failure. Int J Older People Nurs. 2012 ; 7: 117-126
81. Bull MJ, Hansen HE, Gross CR. Predictors of elder and family caregiver satisfaction with discharge planning. J Cardiovasc Nurs. 2000 ; 14: 76-87
82. Bull MJ, Hansen HE, Gross CR. A professional-patient partnership model of discharge planning with elders hospitalized with heart failure. Appl Nurs Res. 2000 ; 13: 19-28