Convulsive status epilepticus and health-related quality of life in children with epilepsy

Neurology

Volumn 83, Issue 8, 2014, Pages 752-757

  Ferro, Mark A ^a   Chin, Richard F M ^b,c   Camfield, Carol S ^d   Wiebe, Samuel ^e   Levin, Simon D ^f,g   Speechley, Kathy N ^f,g  

^a MCMASTER UNIVERSITY   (Canada)

^b UNIVERSITY OF EDINBURGH   (United Kingdom)

^c ROYAL HOSPITAL FOR SICK CHILDREN   (United Kingdom)

^d DALHOUSIE UNIVERSITY   (Canada)

^e UNIVERSITY OF CALGARY   (Canada)

^f UNIVERSITY OF WESTERN ONTARIO   (Canada)

^g CHILDREN S HEALTH RESEARCH INSTITUTE   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ANTICONVULSIVE AGENT;

ARTICLE; BENIGN CHILDHOOD EPILEPSY; CHILD; CLINICAL ARTICLE; CLINICAL ASSESSMENT TOOL; CLINICAL FEATURE; CONTROLLED STUDY; CONVULSIVE STATUS EPILEPTICUS; DEMOGRAPHY; EPILEPTIC STATE; FEMALE; FOCAL EPILEPSY; FOLLOW UP; HUMAN; LINEAR REGRESSION ANALYSIS; MALE; PRESCHOOL CHILD; QUALITY OF LIFE; QUESTIONNAIRE; SCHOOL CHILD; SCORING SYSTEM; SEIZURE; ADOLESCENT; HEALTH STATUS; PATHOPHYSIOLOGY; RISK FACTOR;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; FEMALE; FOLLOW-UP STUDIES; HEALTH STATUS; HUMANS; MALE; QUALITY OF LIFE; QUESTIONNAIRES; RISK FACTORS; SEIZURES; STATUS EPILEPTICUS;

EID: 84920604604     PISSN: 00283878     EISSN: 1526632X     Source Type: Journal    
DOI: 10.1212/WNL.0000000000000710     Document Type: Article

References (25)

1. Guidelines for epidemiologic studies on epilepsy. Commission on Epidemiology and Prognosis, International League Against Epilepsy. Epilepsia 1993;34:592-596.
2. Singhi PD, Bansal U, Singhi S, Pershad D. Determinants of IQ profile in children with idiopathic generalized epilepsy. Epilepsia 1992;33:1106-1114.
3. Camfield P, Camfield C. Unprovoked status epilepticus: The prognosis for otherwise normal children with focal epilepsy. Pediatrics 2012;130:e501-e506.
4. Martinos MM, Yoong M, Patil S, et al. Early developmental outcomes in children following convulsive status epilepticus: A longitudinal study. Epilepsia 2013;54:1012-1019.
5. Chin RF, Neville BG, Peckham C, et al. Incidence, cause, and short-term outcome of convulsive status epilepticus in childhood: prospective population-based study. Lancet 2006;368: 222-229.
6. Pujar SS, Neville BG, Scott RC, Chin RF; North London Epilepsy Research Network. Death within 8 years after childhood convulsive status epilepticus: A populationbased study. Brain 2011;134:2819-2827.
7. Kriel RL, Cloyd JC, Hadsall RS, Carlson AM, Floren KL, Jones-Saete CM. Home use of rectal diazepam for cluster and prolonged seizures: efficacy, adverse reactions, quality of life, and cost analysis. Pediatr Neurol 1991;7:13-17.
8. Sillanpaa M, Shinnar S. Status epilepticus in a populationbased cohort with childhood-onset epilepsy in Finland. Ann Neurol 2002;52:303-310.
9. Spieth LE, Harris CV. Assessment of health-related quality of life in children and adolescents: An integrative review. J Pediatr Psychol 1996;21:175-193.
10. The PCORI methodology report [online]. Available at: http://www.pcori.org/research-we-support/research-methodologystandards. Accessed December 10, 2013.
11. Schachter SC. Epilepsy: quality of life and cost of care. Epilepsy Behav 2000;1:120-127.
12. Speechley KN, Ferro MA, Camfield CS, et al. Quality of life in children with new-onset epilepsy: A 2-year prospective cohort study. Neurology 2012;79:1548-1555.
13. Sabaz M, Lawson JA, Cairns DR, et al. Validation of the quality of life in childhood epilepsy questionnaire in American epilepsy patients. Epilepsy Behav 2003;4: 680-691.
14. Wyrwich KW, Tierney WM, Wolinsky FD. Further evidence supporting an SEM-based criterion for identifying meaningful intra-individual changes in health-related quality of life. J Clin Epidemiol 1999; 52:861-873.
15. Radloff LS. The CES-D Scale: A self-report depression scale for research in the general population. Appl Psychol Meas 1977;1:385-401.
16. Smilkstein G. The family APGAR: A proposal for a family function test and its use by physicians. J Fam Pract 1978; 6:1231-1239.
17. McCubbin HI, Thompson AI, McCubbin MA. FILE: Family Inventory of Life Events and Changes. Family Assessment: Resiliency, Coping and Adaptation Inventories for Research and Practice. Madison: University of Wisconsin Publishers; 1996.
18. Speechley KN, Sang X, Levin S, et al. Assessing severity of epilepsy in children: preliminary evidence of validity and reliability of a single-item scale. Epilepsy Behav 2008;13: 337-342.
19. Rubin DB. Multiple Imputation for Nonresponse in Surveys. New York: Wiley; 1987.
20. Ferro MA, Landgraf JM, Speechley KN. Factor structure of the Child Health Questionnaire Parent Form-50 and predictors of health-related quality of life in children with epilepsy. Qual Life Res 2013;22:2201-2211.
21. Austin JK, Perkins SM, Johnson CS, et al. Self-esteem and symptoms of depression in children with seizures: relationships with neuropsychological functioning and family variables over time. Epilepsia 2010;51:2074-2083.
22. Rodenburg R, Meijer AM, Dekovic M, Aldenkamp AP. Family factors and psychopathology in children with epilepsy: A literature review. Epilepsy Behav 2005;6: 488-503.
23. Berg AT, Shinnar S, Levy SR, et al. Two-year remission and subsequent relapse in children with newly diagnosed epilepsy. Epilepsia 2001;42:1553-1562.
24. Berg AT, Shinnar S, Levy SR, Testa FM. Status epilepticus in children with newly diagnosed epilepsy. Ann Neurol 1999;45:618-623.
25. Baca CB, Vickrey BG, Hays RD, Vassar SD, Berg AT. Differences in child versus parent reports of the child's health-related quality of life in children with epilepsy and healthy siblings. Value Health 2010;13:778-786.