Pregnancy loss in rural ireland: An experience of disenfranchised grief

British Journal of Social Work

Volumn 44, Issue 8, 2014, Pages 2290-2306

  Mulvihill, Aileen ^a   Walsh, Trish ^b  

^a Departement of Bereavement Studies   (Ireland)

^b TRINITY COLLEGE DUBLIN   (Ireland)

Author keywords

Bereavement support; Disenfranchised grief; Irish social work; Pregnancy loss

Indexed keywords

EID: 84920553137     PISSN: 00453102     EISSN: 1468263X     Source Type: Journal    
DOI: 10.1093/bjsw/bct078     Document Type: Article

References (55)

1. Ardron, D. and Kendall, M. (2010) 'Patient and public involvement in health research: What is it, and why is it so important?', International Journal of Palliative Nursing, 16(4), pp. 160-2.
2. Bennett, S. M., Litz, B. T., Maguen, S. and Ehrenreich, J. T. (2008) 'An exploratory study of the psychological impact and clinical care of perinatal loss', Journal of Loss and Trauma, 13(10), pp. 485-510.
3. Central Statistics Office (CSO) (2012) This Is Ireland: Highlights from Census 2011, Part 1, Dublin, Stationery Office.
4. Conry, J. and Prinsloo, C. (2008) 'Mothers' access to supportive hospital services after the loss of a baby through stillbirth or neonatal death', Health SA Gesondheid, 13(2), pp. 14-24.
5. Cook, P., White, D. K. and Ross-Russell, R. I. (2002) 'Bereavement support following sudden and unexpected death: Guidelines for care', Archives of Disease in Childhood, 87(1), pp. 36-8.
6. Cresswell, J. W. (2009) Research Design: Qualitative, Quantitative and Mixed Method Approaches, 3rd edn, New York, Sage.
7. Cuisinier, M. C. J., Kuijpers, J. C., Hoogduin, C. A. L., de Graauw, C. P. H. M. and Janssen, H. J. E. M. (1993) 'Miscarriage and stillbirth: Time since the loss, grief intensity and satisfaction with care', European Journal of Obstetrics and Gynecology and Reproductive Biology, 52(3), pp. 163-8.
8. D'Agostino, N. M., Berlin-Romalis, D., Jovcevska, V. and Barrera, M. (2008) 'Bereaved parents' perspectives on their needs', Palliative and Supportive Care, 6(1), pp. 33-41.
9. Davis, D. L., Stewart, M. and Harman, R. J. (1988) 'Perinatal loss: Providing emotional support for bereaved parents', BIRTH, 15(4), pp. 242-6.
10. Dent, A., Condon, L., Blair, P. and Fleming, P. (1996) 'A study of bereavement care after a sudden and unexpected death', Archives of Disease in Childhood, 74(8), pp. 522-6.
11. Doka, K. (ed.) (1989) Disenfranchised Grief: Recognizing Hidden Sorrow, New York, Lexington Books.
12. Fenwick, J., Jennings, B., Downie, J., Butt, J. and Okanaga, M. (2007) 'Providing perinatal loss care: Satisfying and dissatisfying aspects for midwives', Women and Birth, 20(2), pp. 153-60.
13. Frost, M. and Condon, J. T. (1996) 'The psychological sequelae of miscarriage: A critical review of the literature', Australian and New Zealand Journal of Psychiatry, 30(1), pp. 54-62.
14. Gold, K. J., Dalton, V. K. and Schwenk, T. L. (2007) 'Hospital care for parents after perinatal death', Obstetrics and Gynecology, 109(5), pp. 1156-66.
15. Hazen, M. A. (2003) 'Societal and workplace responses to perinatal loss: Disenfanchised grief or healing connections', Human Relations, 56(2), pp. 147-66.
16. Health Services Executive (HSE) (2003) Admissions and Discharge Guidelines, Health Strategy Implementation Strategy, Dublin, Department of Health and Children, available online at www.dohc.ie/issues/health-strategy.
17. Horne, M. and O'Connor, E. (2005) 'A overview of the development of health-related social work in Ireland', in Kearney, N. and Skehill, C. (eds), Social Work in Ireland: Historical Perspectives, Dublin, Institute of Public Administration.
18. Hospice Friendly Hospitals (HFH) (2010) Quality Standards for End-of-Life Care in Hospitals: Making End-of-Life Care Central to Hospital Care, Dublin, Irish Hospice Foundation.
19. ISANDS(2007)ISANDS:Guidelines for Professionals, Ireland, Irish Stillbirth&Neonatal Death Society.
20. Jonas-Simpson, C. and McMahon, E. (2005) 'The language of loss when a baby dies prior to birth: Cocreating human experience', Nursing Science Quarterly, 18(2), pp. 124-30.
21. Kelleahear, A. (2005) Compassionate Cities: Public Health and End-of-Life Care, London, Routledge.
22. Lasker, J. N. and Toedter, L. J. (1994) 'Satisfaction with hospital care and interventions after pregnancy loss', Death Studies, 18(2), pp. 41-64.
23. Macdonald, M. E., Liben, S., Carnevale, F. A., Rennick, J. E., Wolf, S. L., Meloche, D. and Cohen, S. R. (2005) 'Parental perspectives on hospital staff members' acts of kindness and commemoration after a child's death', Pediatrics, 116(9), pp. 884-90.
24. Madden, D. (2006) Report of Dr. Deirdre Madden on Post Mortem Practice and Procedures, Dublin, Stationery Office.
25. Mahan, C. K. and Calica, J. (1997) 'Perinatal loss: Considerations in social work practice', Social Work in Health Care, 24(3), pp. 141-52.
26. Malacrida, C. (1999) 'Complicating mourning: The social economy of perinatal death', Qualitative Health Research, 9(4), pp. 504-19.
27. McClain, M. E. and Shaefer, S. J. M. (1996) 'Supporting families after sudden infant death', Journal of Psychosocial Nursing, 34(4), pp. 30-4.
28. McCoyd, J. L. M. and Shdaimah, C. S. (2007) 'Revisiting the benefits debate: Does qualitative social work research produce salubrious effects?', Social Work, 52(4), pp. 340-9.
29. McCreight, B. S. (2008) 'Perinatal loss: Aqualitative study in Northern Ireland', Omega, 57(1), pp. 1-19.
30. McDonnell, M., Cullen, A., Kiberd, B., Mehanni, M. and Matthews, T. (1999) 'A national model of care service for professionals dealing with sudden infant death', Irish Journal of Medical Science, 168(4), pp. 237-41.
31. McKeown, K., Haase, T. and Twomey, S. (2010) Resources and Facilities for End-of-Life Care in Hospitals in Ireland, Report 1, Dublin, Irish Hospice Foundation, available online at www.hospicefriendlyhospitals.net.
32. Meert, K. L., Briller, S. H., Schim, S. M., Thurston, C. and Kabel, A. (2009) 'Examining the needs of bereaved parents in the pediatric intensive care unit: A qualitative study', Death Studies, 33(8), pp. 712-40.
33. Miscarriage Association of Ireland, The (2012) About Miscarriage, available online at www.miscarriage.ie/aboutmiscarriage.html (accessed on 28 April, 2013).
34. Murphy, F. and Merrell, J. (2009) 'Negotiating the transition: Caring for women through the experience of early miscarriage', Journal of Clinical Nursing, 18(12), pp. 1583-91.
35. Neimeyer, R. (2006) Lessons of Loss: A Guide to Coping, Memphis, TN, Center for the Study of Loss and Transition.
36. Nichols, J. A. (1989) 'Perinatal death', in K. Doka (ed.), Disenfranchised Grief: Recognizing Hidden Sorrow, New York, Lexington, pp. 117-26.
37. NSWQB (2006) Social Work Posts in Ireland, Report No. 3, Dublin, NSWQB.
38. O'Driscoll, S. (2002) 'Responding to trauma and bereavement in an acute hospital', Eisteach, 15(Summer), pp. 5-11.
39. Oliver, L. E. (1999) 'Effects of a child's death on the marital relationship: A review', Omega, 39(3), pp. 197-227.
40. Radestad, I., Westerberg, A., Ekholm, A., Davidsson-Bremborg, A. and Erlandsson, K. (2011) 'Evaluation of care after stillbirth in Sweden based on mothers' gratitude', British Journal of Midwifery, 19(10), pp. 646-52.
41. Redman, C. (2003) 'Counselling in perinatal loss', British Journal of Midwifery, 11(12), pp. 731-4.
42. Sanchez, N. A. (2001) 'Mothers' perceptions of benefits of perinatal loss support offered at a major university hospital', Journal of Perinatal Education, 10(2), pp. 23-30.
43. Silverman, D. (2005) Doing Qualitative Research, 2nd edn, London, Sage.
44. Smith, J. A. and Osborn, M. (2007) 'Interpretative phenomenological analysis', in J. A. Smith (ed.), Qualitative Psychology: A Practical Guide to Research Methods, 2nd edn, London, Sage.
45. Sque, M., Long, T. and Payne, S. (2004) From Understanding to Implementation: Meeting the Needs of Families and Individuals Affected by Post Mortem Organ Retention, London, Department of Health, available online at http://eprints.soton.ac.uk/9789/1/finalexecutivesummary.pdf.
46. Stolberg, J. (2011) 'Leaving footprints on our hearts', Midwifery Digest, 21(1), pp. 7-13.
47. Stratton, K. and Lloyd, L. (2008) 'Hospital-based interventions at and following miscarriage: Literature to inform a research-practice initiative', Australian and New Zealand Journal of Obstetrics and Gynaecology, 48(1), pp. 5-11.
48. Van, P. and Meleis, A. I. (2003) 'Coping with grief after involuntary pregnancy loss: Perspectives of African American women', JOGNN, 32(1), pp. 28-39.
49. Wallerstedt, C. and Higgins, P. (1994) 'Perinatal circumstances that evoke differences in the grieving response', Journal of Perinatal Education, 3(2), pp. 35-40.
50. Walsh, T., Foreman, M. and Curry, P. (2007) Bereavement Care in Acute Hospitals: An Evaluation of the Beaumont Hospital Bereavement Care Service, Dublin, Trinity College School of Social Work and Social Policy.
51. Walsh, T., Foreman, M., Curry, P., O'Driscoll, S. and McCormack, M. (2008) 'Bereavement support in an acute hospital: An Irish model', Death Studies, 32(8), pp. 768-86.
52. Willis, M. (2009) Retained Organs Audit, Dublin, Department of Health & Children.
53. Wimpenny, P. and Costello, J. (eds) (2012) Grief, Loss and Bereavement: Evidence and Practice for Health and Social Care Practitioners, London, Routledge.
54. Wojnar, D. M., Swanson, K. M. and Adolfsson, A. S. (2011) 'Confronting the inevitable: A conceptual model of miscarriage for use in clinical practice and research', Death Studies, 35(4), pp. 536-58.
55. World Health Organisation (WHO) (2006) Neonatal and Perinatal Mortality: Country, Regional and Global Estimates, Geneva, WHO.