Attitudes, access and anguish: A qualitative interview study of staff and patients' experiences of diabetic retinopathy screening

BMJ Open

Volumn 4, Issue 12, 2014, Pages

  Hipwell, A E ^a   Sturt, J ^b   Lindenmeyer, A ^c   Stratton, I ^d   Gadsby, R ^e   O'Hare, P ^e   Scanlon, P H ^d  

^a UNIVERSITY OF WARWICK   (United Kingdom)

^b KING'S COLLEGE LONDON   (United Kingdom)

^c UNIVERSITY OF BIRMINGHAM   (United Kingdom)

^d CHELTENHAM GENERAL HOSPITAL   (United Kingdom)

^e UNIVERSITY OF WARWICK   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CLINICAL ARTICLE; DIABETIC RETINOPATHY; DOCTOR PATIENT RELATION; EYE EXAMINATION; EYE PAIN; EYE PHOTOGRAPHY; FEMALE; GENERAL PRACTITIONER; HEALTH CARE ACCESS; HEALTH CARE DELIVERY; HEALTH CARE PERSONNEL; HEALTH PERSONNEL ATTITUDE; HUMAN; KNOWLEDGE; MALE; MINORITY GROUP; MYDRIASIS; OPTOMETRY; PATIENT ATTITUDE; PATIENT SAFETY; PERSONAL EXPERIENCE; PRIMARY MEDICAL CARE; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; RURAL AREA; SCREENING; SEMI STRUCTURED INTERVIEW; SOCIAL ASPECT; THEMATIC ANALYSIS; TRAFFIC AND TRANSPORT; URBAN AREA; VISUAL DISORDER; ATTITUDE TO HEALTH; DIABETES MELLITUS; HEALTH SERVICE; INTERVIEW; MASS SCREENING; MENTAL STRESS; MIDDLE AGED; PAIN; PATHOLOGY; PHOTOGRAPHY; PRIMARY HEALTH CARE; RURAL POPULATION; UNITED KINGDOM; UTILIZATION; VISION DISORDERS;

MYDRIATIC AGENT;

DIABETES MELLITUS; DIABETIC RETINOPATHY; GREAT BRITAIN; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH PERSONNEL; HEALTH SERVICES; HEALTH SERVICES ACCESSIBILITY; HUMANS; INTERVIEWS AS TOPIC; MASS SCREENING; MIDDLE AGED; MYDRIATICS; PAIN; PATIENT ACCEPTANCE OF HEALTH CARE; PHOTOGRAPHY; PRIMARY HEALTH CARE; QUALITATIVE RESEARCH; RURAL POPULATION; STRESS, PSYCHOLOGICAL; TRANSPORTATION; VISION DISORDERS;

EID: 84920510236     PISSN: None     EISSN: 20446055     Source Type: Journal    
DOI: 10.1136/bmjopen-2014-005498     Document Type: Article

References (32)

1. WHO. Priorities and objectives - what do we want to achieve? 3.5.8 Diabetic retinopathy. Chapter in VISION 2020: The Right to Sight? 2004.
2. World Health Organization, ed. Prevention of blindness and visual impairment (WHA59.25). Geneva, 2006.
3. Resnikoff S, Pascolini D, Etya'ale D, et al. Global data on visual impairment in the year 2002. Bull World Health Organ 2004;82:844-51.
4. Scanlon P. The English national screening programme for sight-threatening diabeticretinopathy. J Med Screen 2008;15:1-4.
5. Raman R, Rani P, Reddi Rachepalle S, et al. Prevalence of diabetic retinopathy in India: Sankara Nethralaya Diabetic Retinopathy Epidemiology and Molecular Genetics Study report 2. Ophthalmology 2009;116:311-18.
6. Seyoum B, Mengistu Z, Berhanu P, et al. Retinopathy in patients of Tikur Anbessa Hospital diabetic clinic. Ethiop Med J 2001;39:123-31.
7. Tapp R, Shaw J, Harper C, et al. The prevalence of and factors associated with diabetic retinopathy in the Australian population. Diabetes Care 2003;26:1731-7.
8. Knudsen L, Lervang H, Lundbye-Christensen S, et al. The North Jutland County Diabetic Retinopathy Study: population characteristics. Br J Ophthalmol 2006;90:1404-9.
9. Wang F, Liang Y, Zhang F, et al. Prevalence of diabetic retinopathy in rural China: the Handan Eye Study. Ophthalmology 2009;116:461-7.
10. Scanlon P. Diabetic retinopathy screening - progress or lack of progress. In: Tombran-Tink J, Barnstable C, Gardner T, eds. Visual dysfunction in diabetes: the science of patient impairment and improvement. Springer, 2012:17-30.
11. Kocur I, Resnikoff S. Visual impairment and blindness in Europe and their prevention. Br J Ophthalmol 2002;86:716-22.
12. Hesse L, Grusser M, Hoffstadt K, et al. Population-based study of diabetic retinopathy in Wolfsburg. Ophthalmologe 2001;98:1065-8.
13. Bourne R, Stevens GA, White RA, et al. Causes of vision loss worldwide, 1990-2010: a systematic analysis. Lancet Glob Health 2013;1:e339-49. http://www.thelancet.com/journals/langlo/article/PIIS2214-109X(13)70113-X/fulltext.
14. Liew G, Michaelides M, Bunce C. A comparison of the causes of blindness certifications in England and Wales in working age adults (16-64 years), 1999-2000 with 2009-2010. BMJ Open 2014;4:e004015.
15. Viswanath K, McGavin DD. Diabetic retinopathy: clinical findings and management. Community Eye Health 2003;16:21-4.
16. Waqar S, Bullen G, Chant S, et al. Cost implications, deprivation and geodemographic segmentation analysis of non-attenders (DNA) in an established diabetic retinopathy screening programme. Diabetes Metab Syndr 2012;6:199-202. http://www.sciencedirect.com/science/article/pii/S1871402112001129
17. England PH. NHS Diabetic Eye Screening Programme, Statistics. 2013 (23 September 2013). http://diabeticeye.screening.nhs.uk/statistics
18. Gulliford MC, Dodhia H, Chamley M, et al. Socio-economic and ethnic inequalities in diabetes retinal screening. Diabet Med 2010;27:282-8.
19. Johnson M, Cross V, Scase M, et al. A review of evidence to evaluate effectiveness of intervention strategies to address inequalities in eye health care: a report to RNIB. De Montfort University, 2011 RNIB/CEP/01.
20. Sivaprasad S, Gupta B, Gulliford M, et al. Ethnic variations in the prevalence of diabetic retinopathy in people with diabetes attending screening in the United Kingdom (DRIVE UK). PLoS ONE 2012;7:e32182. http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0032182
21. Kliner M, Fell M, Gibbons C, et al. Diabetic retinopathy equity profile in a multi-ethnic, deprived population in Northern England. Eye 2012;26:671-722.
22. Eborall H, Davies R, Kinmonth A-L, et al. Patients' experiences of screening for type 2 diabetes: prospective qualitative study embedded in the ADDITION (Cambridge) randomised controlled trial. BMJ 2007;335:490.
23. Scanlon P, Carter S, Foy C, et al. Diabetic retinopathy and socioeconomic deprivation in Gloucestershire. J Med Screen 2008;15:118-21.
24. Kendall M, Murray S, Carduff E, et al. Use of multiperspective qualitative interviews to understand patients' and carers' beliefs, experiences, and needs. BMJ 2009;339:b4122.
25. van Eijk K, Bloma J, Gusseklooa J, et al. Diabetic retinopathy screening in patients with diabetes mellitus in primary care: incentives and barriers to screening attendance. Diabetes Res Clin Pract 2012;96:10-16.
26. Lewis K, Patel D, Yorston D, et al. A qualitative study in the United Kingdom of factors influencing attendance by patients with diabetes at ophthalmic outpatient clinics. Ophthalmic Epidemiol 2007;14:375-80.
27. Murgatroyd H, MacEwen C, Leese GP. Patients' attitudes towards mydriasis for diabetic eye disease screening. Scott Med J 2006;51:35-7.
28. Stratton I, Adler A, Aldington S, et al. A simple algorithm to estimate the time to development of sight-threatening diabetic retinopathy. Lancet 2012;380(S3):S69.
29. Stratton I, Aldington S, Taylor J, et al. A simple risk stratification for time to development of sight-threatening diabetic retinopathy. Diabetes Care 2013;36:580-5.
30. Scanlon PH, Malhotra R, Thomas G, et al. The effectiveness of screening for diabetic retinopathy by digital imaging photography and technician ophthalmoscopy. Diabet Med 2003;20:467-74.
31. Lindenmeyer A, Sturt J, Hipwell A, et al. How do primary care practices influence their patients' uptake of diabetic retinopathy screening? A qualitative case study. Br J Gen Pract 2014;64:e484-92.
32. NHS Diabetic Eye Screening Programme Newsletter. Working together to roll out new pathway. 2013.