Factors associated with family caregiver dissatisfaction with acute hospital care of older cognitively impaired relatives

Journal of the American Geriatrics Society

Volumn 62, Issue 12, 2014, Pages 2252-2260

  Whittamore, Kathy H ^a   Goldberg, Sarah E ^b   Bradshaw, Lucy E ^b   Harwood, Rowan H ^a,b  

^a QUEEN S MEDICAL CENTRE   (United Kingdom)

^b UNIVERSITY OF NOTTINGHAM   (United Kingdom)

Author keywords

aged; caregivers; delirium; dementia; general hospitals; satisfaction

Indexed keywords

ADULT; AGED; ARTICLE; BEHAVIOR DISORDER; CAREGIVER; CAREGIVER BURDEN; CAREGIVER DISSATISFACTION; CAREGIVER STRAIN INDEX; COGNITIVE DEFECT; DAILY LIFE ACTIVITY; DEATH; DELIRIUM; EMERGENCY HEALTH SERVICE; FEMALE; GENERAL HEALTH QUESTIONNAIRE; GENERAL HOSPITAL; GERIATRIC CARE; HEALTH CARE QUALITY; HEALTH STATUS; HOSPITAL CARE; HOSPITAL DISCHARGE; HUMAN; INTERPERSONAL COMMUNICATION; JOB SATISFACTION; MALE; MEDICAL SPECIALIST; MENTAL DISEASE; MENTAL HEALTH CENTER; PATIENT SATISFACTION; PSYCHOLOGICAL WELL BEING; RANDOMIZED CONTROLLED TRIAL (TOPIC); SECONDARY ANALYSIS; VERY ELDERLY; COGNITION DISORDERS; CONSUMER ATTITUDE; CONTROLLED STUDY; FAMILY; HOSPITALIZATION; HUMAN RELATION; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL; UNITED KINGDOM;

AGED; AGED, 80 AND OVER; CAREGIVERS; COGNITION DISORDERS; COMMUNICATION; CONSUMER BEHAVIOR; ENGLAND; FAMILY; FEMALE; HOSPITALIZATION; HOSPITALS, GENERAL; HUMANS; MALE; PATIENT DISCHARGE; PROFESSIONAL-FAMILY RELATIONS; QUALITY OF HEALTH CARE; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 84918796493     PISSN: 00028614     EISSN: 15325415     Source Type: Journal    
DOI: 10.1111/jgs.13147     Document Type: Article

References (46)

1. Prince M, Prina M, Guerchet M,. World Alzheimer Report 2013. Alzheimer's Disease International [on-line]. Available at http://www.alz.co.uk/research/WorldAlzheimerReport2013.pdf Accessed May 2, 2014.
2. Pinkert C, Holle B,. People with dementia in acute hospitals: Literature review of prevalence and reasons for hospital admission. Gerontol Geriatr 2012; 45: 728-734.
3. Goldberg SE, Whittamore KH, Harwood RH, et al. The prevalence of mental health problems among older adults admitted as an emergency to a general hospital. Age Ageing 2012; 41: 80-86.
4. Sampson EL, Blanchard MR, Jones L, et al. Dementia in the acute hospital: Prospective cohort study of prevalence and mortality. Br J Psychiatry 2009; 195: 61-66.
5. The Royal College of Psychiatrists. Who Cares Wins: Improving the Outcome for Older People Admitted to the General Hospital. London: Royal College of Psychiatrists, 2005 [on-line]. Available at http://www.rcpsych.ac.uk/PDF/WhoCaresWins.pdf Accessed May 2, 2014.
6. Whittamore KH, Goldberg SE, Gladman JR, et al. The diagnosis, prevalence and outcome of delirium in a cohort of older people with mental health problems on general hospital wards. Int J Geriatr Psychiatry 2014; 29: 32-40.
7. Alzheimer's Society. Counting the Cost. London: Alzheimer's Society, 2009 [on-line]. Available at http://www.alzheimers.org.uk/site/scripts/download-info.php?fileID=787 Accessed May 2, 2014.
8. Department of Health. NHS Outcomes Framework 2013-2014 [on-line]. Available at https://www.gov.uk/government/publications/nhs-outcomes-framework-2013-to-2014 Accessed May 2, 2014.
9. Goldberg S, Harwood R,. Experience of general hospital care in older patients with cognitive impairment: Are we measuring the most vulnerable patients' experience? BMJ Qual Saf 2013; 22: 977-980.
10. Francis R,. Independent Inquiry into Care Provided by Mid Staffordshire NHS Foundation Trust January 2005-March 2009. London: The Stationery Office, 2013 [on-line]. Available at http://www.midstaffspublicinquiry.com/ Accessed May 2, 2014.
11. Harwood RH, Porock D, King N, et al. Development of a specialist medical and mental health unit for older people in an acute general hospital. University of Nottingham Medical Crises in Older People discussion paper series. Issue 5, November 2010. ISSN 2044-4230 [on-line]. Available at http://nottingham.ac.uk/mcop/documents/papers/mcop-issn2044-4230-issue5.pdf Accessed May 2, 2014.
12. Harwood R, Goldberg S, Whittamore K, et al. Evaluation of a Medical and Mental Health Unit compared with standard care for older people whose emergency admission to an acute general hospital is complicated by concurrent 'confusion': A controlled clinical trial. Acronym: TEAM: Trial of an Elderly Acute care Medical and mental health unit. Trials 2011; 12: 123.
13. Goldberg SE, Bradshaw LE, Kearney FC, et al. Care in specialist medical and mental health unit compared with standard care for older people with cognitive impairment admitted to general hospital: Randomised controlled trial (NIHR TEAM trial). BMJ 2013; 347: f4132.
14. Department for Constitutional Affairs. Mental Capacity Act 2005: Code of Practice. London: The Stationery Office, 2007 [on-line]. Available at http://www.legislation.gov.uk/ukpga/2005/9/contents Accessed May 2, 2014.
15. Trzepacz PT, Mittal D, Torres R, et al. Validation of the Delirium Rating Scale-revised-98: Comparison with the delirium rating scale and the cognitive test for delirium. J Neuropsychiatry Clin Neurosci 2001; 13: 229-242.
16. Folstein MF, Folstein SE, McHugh PR,. 'Mini-mental state'. A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 1975; 12: 189-198.
17. Cummings JL, Mega M, Gray K, et al. The Neuropsychiatric Inventory: Comprehensive assessment of psychopathology in dementia. Neurology 1994; 44: 2308-2314.
18. Mahoney FI, Barthel DW,. Functional evaluation: The Barthel Index. Md State Med J 1965; 14: 61-65.
19. Robinson BC,. Validation of a caregiver strain index. J Gerontol 1983; 38: 344-348.
20. Goldberg D,. Manual of the General Health Questionnaire. Windsor: NFER Publishing Company, 1978.
21. Jurgens FJ, Clissett P, Gladman JR, et al. Why are family carers of people with dementia dissatisfied with general hospital care? A qualitative study BMC Geriatr 2012; 12: 1471-2318.
22. Volicer L, Hurley A, Blasi Z,. Scales for evaluation of end-of-life care in dementia. Alzheimer Dis Assoc Disord 2001; 15: 194-200.
23. Garratt E,. The Key Findings Report for the 2008 Inpatient Survey. Oxford: Picker Institute, 2009.
24. HCAPS Survey, 2012 [on-line]. Available at http://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/HospitalQualityInits/HospitalHCAHPS.html Accessed May 2, 2014.
25. Bridges J, Flatley M, Meyer J,. Older people's and relatives' experiences in acute care settings: Systematic review and synthesis of qualitative studies. Int J Nurs Stud 2010; 47: 89-107.
26. Simpson RG, Scothern G, Vincent M,. Survey of carer satisfaction with the quality of care delivered to in-patients suffering from dementia. J Adv Nurs 1995; 22: 517-527.
27. Van Horn E, Tesh A,. The effect of critical care hospitalization on family members: Stress and responses. Dimens Crit Care Nurs 2009; 19: 40-49.
28. Vydelingum V,. South Asian patients' lived experience of acute care in an English hospital: A phenomenological study. J Adv Nurs 2000; 32: 100-107.
29. Tadd W, Hillman A, Calnan M, et al. Right place-wrong person: Dignity in the acute care of older people. Qual Ageing Older Adults 2011; 12: 33-43.
30. Donnelly S, Battley J,. Relatives' experience of the moment of death in a tertiary referral hospital. Mortality 2010; 15: 81-100.
31. Verhaeghe S, van Zuuren F, Grypdonck M, et al. The focus of family members' functioning in the acute phase of traumatic coma. J Clin Nurs 2010; 19: 583-589.
32. Higgins I, Joyce T,. The immediate needs of relatives during the hospitalisation of acutely ill older relatives. Contemp Nurse 2007; 26: 208-220.
33. The Patient's Association. Patients Not Numbers, People Not Statistics, 2009 [on-line]. Available at http://www.patients-association.com/Portals/0/Public/Files/Research%20Publications/Patients%20not%20numbers,%20people%20not%20statistics.pdf Accessed May 2, 2014.
34. Gladman J, Porock D, Griffiths A, et al. Better Mental Health Care for Older People with Cognitive Impairment in General Hospital. Final Report NIHR Service Delivery and Organisation programme. Southampton: NIHR Health Services Delivery Research Programme, 2012 [on-line]. Available at http://www.nets.nihr.ac.uk/-data/assets/pdf-file/0004/85072/FR-08-1809-227.pdf Accessed September 24, 2014.
35. Cox CB,. Discharge planning for dementia patients: Factors influencing caregiver decisions and satisfaction. Health Soc Work 1996; 21: 97-104.
36. Thune-Boyle I, Sampson E, Jones L, et al. Challenges to improving end of life care of people with advanced dementia in the UK. Dementia 2010; 9: 259-284.
37. Trivedi SC, Subramanyam AA, Pinto C, et al. Neuropsychiatric symptoms in mild cognitive impairment: An analysis and its impact on caregiving. Indian J Psychiatry 2013; 55: 154-160.
38. Sorensen S, Duberstein P, Gill D, et al. Dementia care: Mental health effects, intervention strategies, and clinical implications. Lancet Neurol 2006; 5: 961-973.
39. Bradshaw LE, Goldberg SE, Schneider JM, et al. Carers for older people with co-morbid cognitive impairment in general hospital: Characteristics and psychological well-being. Int J Geriatr Psychiatry 2013; 28: 681-690.
40. Shankar KN, Hirschman KB, Hanlon AL, et al. Burden among caregivers of elders who were cognitively impaired at the time of hospitalization: A cross-sectional analysis. J Am Geriatr Soc 2014; 62: 276-284.
41. Cowdell F,. Care of older people with dementia in an acute hospital setting. Nurs Stand 2010; 24: 42-48.
42. Nufer TW, Spichiger E,. How family carers of people with dementia experienced their stay on an acute care facility and their own collaboration with professionals: A qualitative study. Pflege 2011; 24: 229-237.
43. Calnan M, Almond S, Smith N,. Ageing and public satisfaction with the health service: An analysis of recent trends. Soc Sci Med 2003; 57: 757-762.
44. Morris R, Morris L, Britton P,. Factors affecting the emotional wellbeing of the caregivers of dementia sufferers. Br J Psychiatry 1988; 153: 147-159.
45. Goldberg SE, Whittamore KH, Pollock K, et al. Caring for cognitively impaired older patients in the general hospital: Similarities and differences between a specialist medical and mental health unit and standard care wards. Int J Nurs Stud 2014; 51: 1332-1343.
46. Alzheimer Society Canada. All About Me [on-line]. Available at http://www.alzheimer.ca/~/media/Files/national/Core-lit-brochures/all-about-me-booklet-e.ashx Accessed September 24, 2014.