Mental health care policy: Recognizing the needs of minority siblings as caregivers

Contemporary Issues of Care

Volumn , Issue , 2012, Pages 51-72

  Earl, Tara R ^a  

^a UNIVERSITY OF PENNSYLVANIA   (United States)

Author keywords

Caregiving; Mental illness; Minority siblings

Indexed keywords

EID: 84917490751     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1300/J137v14n0l_03     Document Type: Chapter

References (59)

1. Adams, B. (1968). Kinship in an urban setting. Chicago, IL: Markham.
2. Baldessarini, R. J. et al. (2003). Lithium treatment and suicide risk in major affective disorders: Update and new findings. Journal of Clinical Psychiatry, 64 (Suppl 5), 44-52.
3. Bank, S. P., & Kahn, M. D. (1982). The sibling bond. NY: Basic Books.
4. Biegel, D., & Shultz, R. (1999). Caregiving and caregiver interventions in aging and mental illness. Family Relations, 48 (4), 345-353.
5. Bloom, B. L. (1984). Community mental health: A general introduction (2nd ed.). Monterey, CA: Brooks/Cole.
6. Cicirelli, V. G. (1989). Feelings of attachment to siblings and well-being in later life. Psychology and Aging, 4, 211-216.
7. Cicirelli, V. G. (1995). Sibling relationship across the life span. New York: Plenum.
8. Connidis, I. A. (1989). Siblings as friends in later life. American Behavioral Scientist, 33, 81-93.
9. Cook, J. A., Pickett, S. A., & Cohler, B. J. (1997). Families of Adults with Severe Mental Illness-The Next Generation of Research: Introduction. American Journal of Orthopsychiatry, 67, 172-176.
10. Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Text Revision (2000). Washington, DC, American Psychiatric Association, 2000.
11. Earl, T. R. (2003). Identifying the impact of knowledge development about schizophrenia among African American Caregiver siblings. Unpublished.
12. Goldman, H. (1982). Mental illness and family burden: A public health perspective. Hospital and Community Psychiatry, 33, 557-560.
13. Greenberg, J. S., Seltzer, M. M., & Greenley, J. R. (1993). Aging parents of adults with disabilities: The gratifications and frustrations of later-life caregiving. Gerontologist, 33, 542-550.
14. Greenberg, J. S., Kim, H. W., & Greenley, J. R. (1997). Factors associated with subjective burden in siblings of adults with severe mental illness. American Journal of Orthopsychiatry, 67, 231-241.
15. Greenberg, J. S., Seltzer, M. M., Orsmond, G. I., & Krauss, M. W. (1999). Siblings of adults with mental illness or mental retardation: Current involvement and expectation of future caregiving. Psychiatric Services, 50, 1214-1219.
16. Horwitz, A. V. (1993a). Adult siblings as sources of social support for the seriously mentally ill: A test of the Serial Model. Journal of Marriage and the Family, 55, 623-632.
17. Horwitz, A. V. (1993b). Siblings as caregivers for the seriously mentally ill. Milbank Quarterly, 71, 323-339.
18. Horwitz, A. V. (1994). Predictors of adult sibling social support for the seriously mentally ill: An exploratory study. Journal of Family Issues, 15(2), 272-289.
19. Horwitz, A. V., & Reinhard, S. C. (1992). Family management of labeled mental illness in a deinstitutionalized era. Perspectives on Social Problems, 4, 111-127.
20. Horwitz, A. V., & Reinhard, S. C. (1995). Ethnic differences in caregiving duties and burdens among parents and siblings of persons with severe mental illnesses. Journal of Health and Social Behavior, 36, 138-150.
21. Horwitz, A. V., Tessler, R., Fisher, G., & Gamache, G. (1992). The role of adult siblings in providing social support to the severely mentally ill. Journal of Marriage and the Family, 54, 233-241.
22. Jenkins, J. (1992). Sibling relationship in disharmonious homes: Potential difficulties and protective effects. in F. Boer & J. Dunn (Eds.), Children’s siblings relationships: Developmental and clinical issues. Hillside, NJ: Erlbaum.
23. Karp, D. A. (2003). The burden of sympathy: How families cope with mental illness. Australian & New Zealand Journal of Psychiatry, 37, 253-254.
24. Kessler, R., Abelson, J., & Zhao, S. (1998). The epidemiology of mental disorders. in J. Williams & K. Ell (Eds.), Advances in mental health research: Implications for practice. Washington, D.C.: NASW Press.
25. Kessler, R., Berglund, P., Zhao, S., Leaf, P., Kouzis, A., Bruce, M., Friendman, R., Grossier, R., Kennedy, C., Narrow, W., Kuehnel, T., Laska, E., Manderscheid, R., Rosenheck, R., Santoni, T., & Schneier, M. (1996). The l2-month prevalence and correlates of serious mental illness. in R. W. Manderscheid & M. A. Sonnenschein (Eds.), Mental Health, United States, 1996. DHHS Publication No. (SMA) 96-3098. Washington, D.C.: U.S. Government Printing Office.
26. Kessler, R., McGonagle, K., Zhao, S., Nelson, c., Hughes, M., Eshleman, S., Wittchen, H., & Kendler, K. (1994). Lifetime and 12-month prevalence of DSM -III -R psychiatric disorders in the United States: Results from the National Comorbidity Survey. Archives of General Psychiatry, 51, 8-19.
27. Landeen, J., Whelton, c., Dermer, S., Cardamone, J., Munroe-Blum, H., & Thornton, J. (1992). Needs of well siblings of persons with schizophrenia. Hospital and Community Psychiatry, 43, 266-269.
28. Lefley, H. P. (1987). Aging parents as caregivers of mentally ill adult children: An emerging social problem. Hospital and Community Psychiatry, 38, 1063-1070.
29. Lefley, H. P. (2003). Changing caregiving needs as persons with schizophrenia grow older. in C. I. Cohen (Ed.), Schizophrenia into later life: Treatment, research, and policy. (pp. 251-268). Washington, D.C.: American Psychiatric Publishing, Inc.
30. Lefley, H., & Hatfield, A. (1999). Helping parental caregivers and mental health consumers cope with parental aging and loss. Psychiatric Services, 50, 369-375.
31. Lidz, T. (1963). Parents whose children become schizophrenic. Journal of Nervous and Mental Disease, 172 (7), 408-411.
32. Lidz, T. (1973). The origin and treatment of schizophrenic disorders. New York: Basic.
33. Lidz, T. (1976). Commentary on ‘a critical review of recent adoption, twin, and family studies of schizophrenia: Behavioral genetics perspectives’. Schizophrenia Bulletin, 2 (3), 402-412.
34. Lidz, T., Fleck, S., Alanen, Y., & Cornilson, A. (1963). Schizophrenic patients and their siblings. Psychiatry, 26(1), 1-18.
35. Lidz, T., Fleck, S., Cornilson, A. (1966). Schizophrenia and the family. New York: International University.
36. Maltiades, H. B. & Pruncho, R. (2002). The effect of religious coping on caregi ving appraisals of mothers of adults with developmental disabilities. The Gerontologist, 42 (1), 82-91.
37. Marsh, D. T. (1992). Families and mental illness: New directions in professional practice. New York: Praeger.
38. Marsh, D. T. (1998). Serious mental illness and the family: The practitioner’s guide. New York: John Wiley & Sons.
39. Marsh, D. T., Appleby, N. F., Dickens, R. M., Owens, M., & Young, N. O. (1993a). Anguished voices: Impact of mental illness on siblings and children. Innovations & Research, 2, 25-34.
40. Marsh, D. T., Dickens, R. M., Koeske, RD., Yackovich, N. S., Wilson, J. M., Leichliter, J. S. et al. (1993b). Troubled journey: Siblings and children of people with mental illness. Innovations & Research, 2, 13-23.
41. Muhlbauer, S.A (2002). Navigating the storm of mental illness: Phases in the family’s journey. Qualitative Health Research, 12 (8), 1076-1092.
42. Murray C. J. L., Lopez A. D. (Eds.) (1996). The Global Burden of Disease: A Comprehensive Assessment of Mortality and Disability from Diseases, Injuries, and Risk Factors in 1990 and Projected to 2020. Cambridge, MA: Harvard University Press.
43. National Advisory Mental Health Council. (1993). The report of the National Advisory Mental Health Council. American Journal of Psychiatry, 150 (10), 1445-1465.
44. National Institute of Mental Health (2001). When someone has schizophrenia. Retrieved October 16, 2004 from the World Wide Web: http://www.nimh.nih.gov/publicatlschizsoms.cfm
45. Nechmad, A., Fennig, S., Ternochiano, P., Treves, I., Fennig-Naisberg, S., & Levkovich, Y. (2000). Siblings of schizophrenic patients-A review. Israel Journal of Psychiatry and Relational Science, 37, 3-11.
46. Neighbors, H. W., Bashshur, R, Price, R, Selig, S., Donabedian, A, & Shannon, G. (1992). Ethnic minority mental health service delivery: A review of the literature. Research in Community and Mental Health, 7, 55-71.
47. Neighbors, H. W., Musick, M. A, & Williams, D. R (1998). The African American minister as a source of help for serious personal crises: Bridge or barrier to mental health care? Health Education & Behavior, 25, 759-777.
48. Narrow W.E. (1998). One-year prevalence of depressive disorders among adults 18 and over in the U.S.: NIMH ECA prospective data. Population estimates based on U.S. Census estimated residential population age 18 and over on July 1, 1998. Unpublished.
49. Public Health Agency of Canada (2001). A Report on Mental Illnesses in Canada. Canada. http://www.phac-aspc.gc.ca
50. Regier D. A, Narrow W. E., Rae D. S. et al. (1993). The de facto mental and addictive disorders service system: Epidemiologic Catchment Area prospective I-year prevalence rates of disorders and services. Archives of General Psychiatry, 50(2), 85-94.
51. Schwartz S. (1999). Biological approaches to psychological disorders. in A V. Horwitz & T. L. Sheid (Eds.), A Handbook for the Study of Mental Health-Social Context, Theories and Systems (Ch. 4). Cambridge: Cambridge University Press.
52. Shortt, J. W., & Gottman, J. M. (1997). Closeness in young adult sibling relationships: Affective and physiological processes. Social Development, 6 (2), 142-164.
53. Snowden, L. R (2001). Barriers to effective mental health services for African Americans. Mental Health Services Research, 3(4), 181-187.
54. Steinwachs, D., Kasper, J., & Skinner, E. (1992a). Family perspectives on meeting the needs for care of severely mentally ill relatives: A national survey. Baltimore, MD: Johns Hopkins University Press.
55. Tessler, R., & Gamache, G. (2000). Family experiences with mental illness. Westport, CT: Auburn Press.
56. Thompson Jr., E. H., & Doll, W. (1982). The burden of families coping with the mentally ill: An invisible crisis. Family Relations: Journal of Applied Family & Child Studies, 31, 379-388.
57. U.S. Department of Health and Human Services (1999). Mental Health: A Report of the Surgeon General. Rockville, MD: U.S. Department of Health and Human Services, Substance Abuse and Mental Health Services Administration, Center for Mental Health Services, National Institutes of Health, National Institute of Mental Health.
58. Whaley, A. L. (1997). Ethnic and racial differences in perceptions of dangerousness of persons with mental illness. Psychiatric Services, 48(10), 1328-30.
59. Whaley, A. L. (1998). Racism in the provision of mental health services: A social-cognitive analysis. American Journal of Orthopsychiatry 68(1), 47-57.