Everyday activities for people with dementia in residential aged care: Associations with person-centredness and quality of life

International Journal of Older People Nursing

Volumn 9, Issue 4, 2014, Pages 269-276

  Edvardsson, David ^a,b   Petersson, Lisa ^b   Sjogren, Karin ^b   Lindkvist, Marie ^b   Sandman, Per Olof ^c  

^a LA TROBE UNIVERSITY   (Australia)

^b UMEÅ UNIVERSITY   (Sweden)

^c KAROLINSKA INSTITUTE   (Sweden)

Author keywords

Housing for older people; Leisure activities; Long term care; Nursing homes; Nursing, quality of life

Indexed keywords

CROSS-SECTIONAL STUDY; DAILY LIFE ACTIVITY; DEMENTIA; FEMALE; HEALTH CARE QUALITY; HUMAN; MALE; PATHOPHYSIOLOGY; PATIENT CARE; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRE; RESIDENTIAL HOME; SWEDEN; VERY ELDERLY;

ACTIVITIES OF DAILY LIVING; AGED, 80 AND OVER; CROSS-SECTIONAL STUDIES; DEMENTIA; FEMALE; HUMANS; MALE; PATIENT-CENTERED CARE; QUALITY OF HEALTH CARE; QUALITY OF LIFE; QUESTIONNAIRES; RESIDENTIAL FACILITIES; SWEDEN;

EID: 84911490684     PISSN: 17483735     EISSN: 17483743     Source Type: Journal    
DOI: 10.1111/opn.12030     Document Type: Article

References (35)

1. Brooker D. (2007) Person-Centred Dementia Care: Making Services Better. Jessica Kingsley, London.
2. Cohen-Mansfield J. & Bester A. (2006) Flexibility as a management principle in dementia care: the Adards example. Gerontologist 46, 540-544.
3. Cooney A., Murphy K. & O'Shea E. (2009) Resident perspectives of the determinants of quality of life in residential care in Ireland. Journal of Advanced Nursing 65, 1029-1038.
4. Cooper C., Mukadam N., Katona C., Lyketsos C.G., Ames D., Rabins P., Engedal K., de Mendonca Lima C., Blazer D., Teri L., Brodaty H. & Livingston G. (2012) Systematic review of the effectiveness of non-pharmacological interventions to improve quality of life of people with dementia. International Psychogeriatrics 24, 856-870.
5. Davis S., Byers S., Nay R. & Koch S. (2009) Guiding design of dementia friendly environments in residential care settings: considering the living experiences. Dementia 8, 185-203.
6. Drageset J., Natvig G.K., Eide G.E., Bondevik M., Nortvedt M.W. & Nygaard H.A. (2009) Health-related quality of life among old residents of nursing homes in Norway. International Journal of Nursing Practice 15, 455-466.
7. Edvardsson D., Winblad B. & Sandman P.O. (2008) Person-centred care for people with Alzheimer's disease - current status and ways forward. The Lancet Neurology 7, 362-367.
8. Edvardsson D., Fetherstonhaugh D. & Nay R. (2010a) Promoting a continuation of self and normality: person-centred care as described by people with dementia, family members and aged care staff. Journal of Clinical Nursing 19, 2611-2618.
9. Edvardsson D., Fetherstonhaugh D., Gibson S. & Nay R. (2010b) Development and initial testing of the Person-centred Care Assessment Tool (P-CAT). International Psychogeriatrics 22, 101-108.
10. Edvardsson D., Sandman P.O. & Rasmussen B.H. (2011) Forecasting the ward climate: a study from a dementia care unit. Journal of Clinical Nursing 21, 1136-1144.
11. Falk H., Persson L.O. & Wijk H. (2007) A psychometric evaluation of a Swedish version of the Quality of Life in Late-Stage Dementia (QUALID) scale. International Psychogeriatrics 19, 1040-1050.
12. Folstein M.F., Folstein S.E. & McHugh P.R. (1975) "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatry Research 12, 189-198.
13. Fritsch T., Kwak J., Grant S., Lang J., Montgomery R.R. & Basting A.D. (2009) Impact of TimeSlips, a greative expression intervention program, on nursing home residents with dementia and their caregivers. The Gerontologist 49, 117-127.
14. Funaki Y., Kaneko F. & Okamura H. (2005) Study on factors associated with changes in quality of life of demented elderly persons in group homes. Scandinavian Journal of Occupational Therapy 12, 4-9.
15. Gottfries C.G., Bråne G., Gullberg B. & Steen G. (1982) A new rating scale for dementia syndromes. Archives of Gerontology and Geriatrics 1, 311-321.
16. Harre R. (1998) The Singular Self: an Introduction to the Psychology of Personhood. Sage, London.
17. Kitwood T.M. (1997) Dementia Reconsidered: the Person Comes First. Open University Press, Buckingham.
18. Lindqvist O., Tishelman C., Lundh Hagelin C., Clark J.B., Daud M.L., Dickman A., Domeisen Benedetti F., Galushko M., Lunder U., Lundquist G., Miccinesi G., Sauter S.B., Furst C.J. & Rasmussen B.H. (2012) Complexity in non-pharmacological caregiving activities at the end of life: an international qualitative study. PLoS Medicine 9, e1001173.
19. Magaziner J., German P., Zimmerman S.I., Hebel J.R., Burton L., Gruber-Baldini A.L., May C. & Kittner S. (2000) The prevalence of dementia in a statewide sample of new nursing home admissions aged 65 and older: diagnosis by expert panel. Gerontologist 40, 663-672.
20. McCormack B. & McCance T.V. (2006) The Person-Centred Nursing conceptual framework. Journal of Clinical Nursing 56, 1-8.
21. McCormack B., Karlsson B., Dewing J. & Lerdal A. (2010) Exploring person-centredness: a qualitative meta-synthesis of four studies. Scandinavian Journal of Caring Sciences 24, 620-634.
22. McKeown J., Clarke A., Ingleton C., Ryan T. & Repper J. (2010) The use of life story work with people with dementia to enhance person-centred care. International Journal of Older People Nursing 5, 148-158.
23. Morgan S. & Yoder L.H. (2012) A concept analysis of person-centered care. Journal of Holistic Nursing 30, 6-15.
24. Murphy K., O'Shea E. & Cooney A. (2007) Quality of life for older people living in long-stay settings in Ireland. Journal of Clinical Nursing 16, 2167-2177.
25. Nolan M., Davies S., Brown J., Keady J. & Nolan J. (2004) Beyond 'person-centred' care: a new vision for gerontological nursing. International Journal of Older People Nursing 13, 45-53.
26. Raske M. (2010) Nursing home quality of life: study of an enabling garden. Journal of Gerontological Social Work 53, 336-351.
27. Sandman P.O., Adolfsson R., Norberg A., Nystrom L. & Winblad B. (1988) Long-term care of the elderly. A descriptive study of 3600 institutionalized patients in the county of Vasterbotten, Sweden. Comprehensive Gerontology. Section A. Clinical and Laboratory Sciences 2, 120-132.
28. Sandman P.O., Edvardsson D. & Winblad B. (2006) Care of patients in the severe stage of dementia. In Clinical Diagnosis and Management of Alzheimer's Disease, 3rd edn. (Gauthier S. ed). Taylor & Francis, London, pp. 233-246.
29. Sjögren K., Sandman P.O., Zingmark K. & Edvardsson D. (2012) Psychometric evaluation of the Swedish version Person-centred Care Assessment Tool (P-CAT). International Psychogeriatrics 24, 406-415.
30. Sloane P.D., Zimmerman S., Williams C.S., Reed P.S., Gill K.S. & Preisser J.S. (2005) Evaluating the quality of life of long-term care residents with dementia. The Gerontologist 45, 37-49.
31. Smith S.C., Murray J., Banerjee S., Foley B., Cook J.C., Lamping D.L. & Mann A. (2005) What constitutes health-related quality of life in dementia? Development of a conceptual framework for people with dementia and their carers. International Journal of Geriatric Psychiatry 20, 889-895.
32. Weiner M.F., Martin-Cook K., Svetlik D.A., Saine K., Foster B. & Fontaine C.S. (2000) The quality of life in late-stage dementia (QUALID) scale. Journal of the American Medical Directors Association 1, 114-116.
33. White D.L., Newton-Curtis L. & Lyons K.S. (2008) Development and initial testing of a measure of person-directed care. The Gerontologist 48, 114-123.
34. Zimmerman S., Sloane P.D., Williams C.S., Reed P.S., Preisser J.S., Eckert J.K., Boustani M. & Dobbs D. (2005) Dementia care and quality of life in assisted living and nursing homes. The Gerontologist 45, 133-146.
35. Zingmark K., Sandman P.O. & Norberg A. (2002) Promoting a good life among people with Alzheimer's disease. Journal of Advanced Nursing 38, 50-58.