Bereavement care for childbearing women and their families: An interactive workbook

Bereavement Care for Childbearing Women and their Families: An Interactive Workbook

Volumn , Issue , 2013, Pages 1-154

  Hollins Martin, Caroline ^a   Forrest, Eleanor ^b  

^a UNIVERSITY OF SALFORD   (United Kingdom)

^b GLASGOW CALEDONIAN UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84911125455     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.4324/9780203366967     Document Type: Book

References (116)

1. Abortion Act (1967) in Mason, J.K. and Laurie, G.T. (2005) Mason and McCall Smith’s Law and Medical Ethics, 7th edn. Oxford: Oxford University Press.
2. American Psychiatric Association (2000) Diagnostic and Statistical Manual of Mental Disorders, 4th edn. Text Revision (DSM-IV-TR). Washington, DC: APA.
3. Allport, G. (1935) ‘Attitudes’, in Murchison, C. (4th edn) (1985) A Handbook of Social Psychology. Worcester, MA: Clark University Press.
4. ARC (Antenatal Results and Choices) (2012) Available at: http://www.arc-uk.org/ (accessed 1 March 2012).
5. Badenhorst, W., Riches, S., Turton, P. and Hughes, P. (2006) ‘The psychological effects of stillbirth and neonatal death on fathers: systematic review’. Journal of Psychosomatic Obstetrics and Gynaecology, 27(4): 245–56.
6. Barr, P. and Cacciatore, J. (2008) ‘Personal fear of death and grief in bereaved mothers’. Death Studies, 32: 445–60.
7. Bartellas, E. and Van Aerde, J. (2003) ‘Bereavement support for women and their families after stillbirth’. Journal of Obsterics and Gynaecology Canada, 25(2): 131–8.
8. Billson, A. and Tyrrell, J. (2003) ‘How to break bad news’. Current Paediatrics, 13: 284–7.
9. Blackburn, C. and Copley, R. (1989) ‘One precious moment: what you can offer when a newborn infant dies’. Nursing, 19: 52–4.
10. Bonanno, G. A. (2009) The Other Side of Sadness: What the New Science of Bereavement Tells Us About Life After Loss. New York: Basic Books.
11. Borg, J. (2010) Body Language: 7 Easy Lessons to Master the Silent Language. New Jersey: FT Press.
12. Bourne, P. (1968) ‘The psychological effects of stillbirth on women and their doctors’. Journal of the Royal College of General Practitioners, 16: 103–12.
13. Bowlby, J. (1961) ‘Processes of mourning’. International Journal of Psychoanalysis, 44(317).
14. Bowlby, J. (1981) Attachment and Loss, Vol. 3, 1st edn. New York, Basic Books.
15. Bowlby, J. (1990) The Making and Breaking of Affectionate Bonds. London: Routledge.
16. Brier, N. (2008) ‘Grief following miscarriage: a comprehensive review of the literature’. Journal of Women’s Health, 17(3): 451–64.
17. Brost, L. and Kenney, J. (1992) ‘Pregnancy after perinatal loss: parental reactions and nursing interventions’. Journal of Obstetric Gynecologic and Neonatal Nursing, 21: 457–63.
18. Brown, E. (2009) ‘Helping bereaved children and young people’. British Journal of School Nursing, 4(2): 69–73.
19. Brown, Y. (1993) ‘Perinatal loss: a framework for good practice’. Health Care for Women International, 14: 469–79.
20. Büchi, S., Mörgeli, H., Schynder, U., Jenewin, J., Glaser, A., Fauchère, J. C., Bucher, H. and Sensky, T. (2008) ‘Shared or discordant grief in couples 2–6 years after the death of their premature baby: effects on suffering and posttraumatic growth’. Psychosomatics, 50(2): 123–30.
21. Caelli, K., Downie, J. and Letendre, A. (2002) ‘Parent’s experiences of midwife-managed care following the loss of a baby in a previous pregnancy’. Journal of Advanced Nursing, 39(2): 127–36.
22. Calhoun, B., Napolitano, P., Terry, M., Bussey, C. and Hoeldtke, N. (2003) ‘Perinatal hospice: comprehensive care for the family of the fetus with a lethal condition’. Journal of Reproductive Medicine, 48(5): 343–8.
23. Capitulo, K. (2005) ‘Evidence for healing interventions with perinatal bereavement’. American Journal of Maternal Child Nursing, 30(6): 389–96.
24. Carlson, N. (1993) Psychology: The Science of Behaviour. London: Allyn and Bacon, p. 583.
25. Centre for Maternal and Child Enquiries (CMACE) (2011) ‘Saving mother’s lives: reviewing maternal deaths to make motherhood safer: 2006–2008’. The Eighth Report on Confidential Enquiries into Maternal Deaths in the United Kingdom. BJOG, An International Journal of Obstetrics & Gynaecology, 118(suppl. 1): 1–223.
26. Condon, J. (2010) ‘Women’s mental health: a wish-list for the DSM V’. Archives of Women’s Mental Health, 13: 5–10.
27. Côté-Arsenault, D. and Morrison-Beedy, D. (2001) ‘Support groups helping women through pregnancies after loss’. Western Journal of Nursing Research, 26(6): 650–70.
28. Davies, R. (2004) ‘New understandings of parental grief: literature review’. Journal of Advanced Nursing, 46(5): 506–13.
29. DeBackere, K., Hill, P. and Kavanagh, K. (2008) ‘The parental experience of pregnancy after perinatal loss’. Journal of Obstetric, Gynecologic & Neonatal Nursing, 37(5): 525–37.
30. Engel, G.C. (1961) ‘Is grief a disease? A challenge for medical research’. Psychosomatic Medicine, 23: 18–22.
31. Engelhard, I., van den Hout, M. and Arntz, A. (2001) ‘Posttraumatic stress disorder after pregnancy loss’. General Hospital Psychiatry, 21: 62–6.
32. Engler, A.J., Cusson, R.M. and Brockett, R.T. (2004) ‘Neonatal staff and advanced practice nurses’ perceptions of bereavement/end-of-lifecare of families of critically ill and/or dying infants’. American Journal of Critical Care, 13: 489–98.
33. Engler A.J. and Lasker, J.N. (2000) ‘Predictors of maternal grief in the year after a newborn death”. Illness, Crisis and Loss, 8: 227–43.
34. Enkin, M., Keirse, M., Renfrew, M. and Neilson, J. (1995) A Guide to Effective Care in Pregnancy and Childbirth, 2nd edn. Oxford: Oxford University Press.
35. Gardner, J. M. (1999) ‘Perinatal death: uncovering the needs of midwives and nurses and exploring helpful interventions in the United States, England, and Japan’. Journal of Transcultural Nursing, 10: 120–30.
36. Gensch, B. K. and Midland, D. (2000) ‘When a baby dies: a standard of care’. Illness, Crisis and Loss, 8: 286–95.
37. Government Statistical Service (2006) Statistical Bulletin Abortion Statistics, England and Wales: 2005. Available at: www.dh.gov.uk/assetRoot/04/13/68/59/04136859.pdf (accessed on 19 August 2012).
38. Hertz, R. ([1907] 1960) Death and the Right Hand. Aberdeen: Cohen and West.
39. Hillhouse, J.J. and Adler C.M. (1997) ‘Investigating stress effect patterns in hospital staff nurses: results of a cluster analysis’. Social Science and Medicine, 45(12): 1781–8.
40. Hollins Martin, C. J. (2008) ‘Birth planning for midwives and mothers’. British Journal of Midwifery, 16(9): 583–7.
41. Hughes, P., Turton, P., Hopper, E. and Evans, C. (2002) ‘Assessment of guidelines for good practice in psychosocial care of mothers after stillbirth: a cohort study’. Lancet, 360: 114–18.
42. Jones, A. (1989) ‘Managing the invisible grief’. Senior Nurse, 9(5): 26–7.
43. Katbamna, S. (2000) Race and Childbirth. Buckingham: Open University Press.
44. Kavanaugh, K., Trier, D. and Korzec, M. (2004) ‘Social support following perinatal loss’. Journal of Family Nursing, 10: 70–92.
45. Kelly, E. (2007) Marking Short Lives: Constructing and Sharing Rituals following Pregnancy Loss. Oxford: Peter Lang.
46. Kendler, K., Myers, J. and Zisook, S. (2008) ‘Does bereavement-related major depression differ from major depression associated with other stressful life events?’ American Journal of Psychiatry, 165(11): 1449–55.
47. Kennel, J.H. and Klaus, M.H. (1970) ‘The mourning response of parents to death of a newborn infant’. New England Journal of Medicine, 283: 344–9.
48. Kennel, J.H. and Traause, M.A. (1978) ‘Helping parents cope with perinatal death’. Contemporary OB/GYN, 12: 53–68.
49. Kirkham, M. (1999) ‘The culture of midwifery in the National Health Service in England’. Journal of Advanced Nursing, 30(3): 732–9.
50. Kirkley-Best, E. and Kellner, K.R. (1982) ‘Forgotten grief: a review of the literature on the psychology of stillbirth’. American Journal of Orthopsychiatry, 52: 420–9.
51. Klass, D. (1996) ‘The deceased child in the psychic and social worlds of bereaved parents during resolution of grief’ in Klass, D., Silvermann, P. and Nickman, S. (eds) (1999) Continuing Bonds: New Understandings of Grief. London: Taylor and Francis.
52. Klass, D., Silverman, P. and Nickman, S. (1996) Continuing Bonds: New Understandings of Grief. Washington, DC: Taylor and Francis.
53. Kroth, J., Garcia, M., Hallgren, M., LeGrue, E., Ross, M. and Scalise, J. (2004) ‘Perinatal loss, trauma and dream reports’. Psychological Reports, 94(31): 877–82.
54. Kübler-Ross, E. (1969) On Death and Dying. New York: Macmillan.
55. Kübler-Ross, E. and Kessler, D. (2005) On Grief and Grieving: Finding the Meaning of Grief through the Five Stages of Loss. New York: Scribner.
56. LaRoche, C., Lalinec-Michaud, M., Engelsmann, F., Fuller, N., Copp, M. and McQuade-Soldatos, L. (1984) ‘Grief reactions to perinatal death’. Canadian Journal of Psychiatry, 29: 14–19.
57. Lasker, J.N. and Toedter, L.J. (1991) ‘Acute versus chronic grief: the case of pregnancy loss’. American Journal of Orthopsychiatry, 61(4): 510–22.
58. Lasker, J.N. and Toedter, L.J. (2000) ‘Predicting outcomes after pregnancy loss: results from studies using the perinatal grief scale’. Illness, Crisis and Loss, 8(4): 350–72.
59. Leon, I.G. (1992) ‘Perinatal loss: a critique of current hospital practices’. Clinical Pediatrics, 31: 366–74.
60. Lewis, G. (2004) Confidential Enquiry into Maternal and Child Health (CEMACH) Why Mother’s Die: Sixth Report on Confidential Enquiries into Maternal Deaths in the United Kingdom 2000–2002. London: RCOG Press.
61. Lewis, G. (2007) Confidential Enquiry into Maternal and Child Health (CEMACH) Why Mother’s Die: Seventh Report on Confidential Enquiries into Saving Mothers Lives: Reviewing Maternal Deaths to Make Motherhood Safer 2003–2005. London: RCOG Press.
62. Lin, S.X. and Lasker, J.N. (1996) ‘Patterns of grief reaction after pregnancy loss’. American Journal of Orthopsychiatry, 66: 262–71.
63. Lindemann, E. (1944) ‘Symptomatology and management of acute grief’. American Journal of Psychiatry, 101: 141–9.
64. Lok, I. and Neugebauer, R. (2007) ‘Psychological morbidity following miscarriage’. Best Practice and Research Clinical Obstetrics and Gynaecology, 21(2): 229–47.
65. McHaffie, H. (2001) Crucial Decisions at the Beginning of Life. Abingdon: Radcliffe Medical Press.
66. Mander, R. (1999) ‘The death of a mother: a proposed research project’. RCM Midwives’ Journal, 2(1): 24–5.
67. Mander, R. (2006) Loss and Bereavement in Childbearing, 2nd edn. London: Routledge.
68. Mehta, P. (2008) ‘Communication skills - breaking bad news’. Pediatrics in Practice, 45: 839–41.
69. Midwifery 2020 UK Programme (2010) Midwifery 2020: Delivering Expectations. Edinburgh: Midwifery 2020 UK Programme.
70. NES (NHS Education for Scotland) (2006) A Curricular Framework for Perinatal Mental Health. Edinburgh: NES.
71. Ngan Kee, W.D. (2005) ‘Confidential enquiries into maternal deaths: 50 years of closing the loop’. British Journal of Anaesthesia, 94(4): 413–16.
72. Ngo-Metzer, Q. (2009) ‘Breaking bad news over the phone’. American Family Physician, 80(5): 521–22.
73. NICE (National Institute for Health and Clinical Excellence) (2007) Antenatal and Postnatal Mental Health: Clinical Management and Service Guidance. London: NICE.
74. Nicol, M.T., Tompkins, J.R., Campbell, N.A. and Syme, G.J. (1986) ‘Maternal grieving response after perinatal death’. Medical Journal Australia, 144: 287–9.
75. NMC (Nursing and Midwifery Council) (2010) Midwives’ Rules and Standards. London: NMC.
76. NMSF (National Maternity Support Foundation) (2009) Who Care When You Lose a Baby: A Comprehensive Study into Bereavement Midwife Care across NHS Trusts. National Maternity Support Foundation (NMSF).
77. O’Connor, M.F., Irwin, M.R. and Wellisch, D.K. (2009) ‘When grief heats up: pro-inflammatory cytokines predict regional brain activation’. Neuroimage, 47: 891–6.
78. O’Lunaigh, P. and Carlson, C. (2005) Midwifery and Public Health. Edinburgh: Elsevier.
79. Parkes, C.M. (1996) Bereavement: Studies of Grief in Adult Life, 3rd edn. London: Tavistock.
80. Pavlish, C. (2005) ‘Action responses in Congolese refugee women’. Journal of Nursing Scholarship, 37(1): 10–17.
81. Price, S. (2007) Mental Health in Pregnancy and Childbirth. Philadelphia, PA: Churchill Livingstone.
82. Radestad, I., Steineck, G., Nordin, C. and Sjogren, B. (1996) ‘Psychological complications after stillbirth: influence of memories and immediate management: population based study’. British Medical Journal, 312: 1505.
83. Raynor, M. and England, C. (2010) Psychology for Midwives. Glasgow: McGraw Hill.
84. Reiger, K.M. and Lane, K.L. (2009) ‘Working together: collaboration between midwives and doctors in public hospitals’. Australian Health Review, 33(2): 315–24.
85. Reena, K. (2005) Body Language in Patient Counselling. AECS Illumination, 5(1): 25–7.
86. Robertson, A. (1997) Empowering Women. Camperdown: Ace Graphics, p. 64.
87. Robinson, M., Baker, L. and Nackerud, L. (1999) ‘The relationship between attachment theory and perinatal loss’. Death Studies, 23: 257–70.
88. Romm, J. (2002) ‘Breaking bad news in obstetrics and gynaecology: educational conference for resident physicians’. Archives of Women’s Mental Health, 5: 177–9.
89. Rowe, J., Clyman, R., Green, C., Mikkelson, C., Haight, J. and Ataide, L. (1978) ‘Follow-up of families who experience a perinatal death’. Pediatrics, 62: 166–70.
90. Rowa-Dewar, N. (2002) ‘Do interventions make a difference to bereaved parents? A systematic review of controlled studies’. International Journal of Palliative Nursing, 8: 452–7.
91. Royal College of Obstetricians and Gynaecologists (RCOG) (2001a) ‘Further issues relating to late abortion, fetal viability and registration of births and deaths’. Available at: www.rcog.org.uk/index.asp?PageID_549 (accessed on 18 August 2012).
92. Säflund, K., Sjögren, B. and Wredling, R. (2004) ‘The role of caregivers after a stillbirth: views and experiences of parents’. Birth, 31, 132–7.
93. SANDS (Stillbirth and Neonatal Death Society) (2009) Miscarriage, Stillbirth and Neonatal Death. London: SANDS.
94. Schott, J. and Henley, A. (1996) Culture, Religion and Childbearing in a Multiracial Society. Oxford: Butterworth Heinemann.
95. Scobie, G. (1978) ‘Teaching in social attitude areas’. Association of Educational Psychologists, 4(8): 13–15.
96. Scottish Government (2011) Shaping Bereavement Care - A Framework for Action. Available from: www.sehd.scot.nhs.uk/mels/CEL2011_09.pdf (accessed 28 July 2011).
97. Séjourné, N., Callahan, S. and Chabrol, H. (2010) ‘Support following miscarriage: what women want’. Journal of Reproductive and Infant Psychology, 28(4): 403–11.
98. Shane, M. (1992) Enduring, Sharing, Loving. London: Darton, Longman and Todd.
99. Stack, C.G. (2003) ‘Bereavement in paediatric intensive care’. Paediatric Anaesthesia, 13: 651–4.
100. Stapleton, H., Duerden, J. and Kirkham, M. (1998) Evaluation of the Impact of the Supervision of Midwives on Professional Practice and the Quality of Midwifery Care. London: University of Sheffield and ENB for Nursing, Midwifery and Health Visiting.
101. Statham, H., Solomou, W. and Green, J.M. (2001) ‘Care in hospital for parents who terminated their pregnancy’, in When a Baby has an Abnormality: A Study of Parents’ Experiences (Chapter 6). Cambridge: Centre for Family Research, University of Cambridge.
102. Statham, H. (2002) ‘Prenatal diagnosis of fetal abnormality: the decision to terminate the pregnancy and the psychological consequences’. Fetal Maternity Medical Review, 13: 213–47.
103. Stroebe, M. and Schut, H. (1999) ‘The dual process model of coping with bereavement: rational and description’. Death Studies, 23(3): 197–224.
104. Surkan, P., Radestad, I., Cnattingius, S., Steineck, G. and Dickman, P. (2008) ‘Events after stillbirth in relation to maternal depressive symptoms: a brief report’. Birth. 35(2): 153–7.
105. Taft, P. (2009) ‘Breaking bad news’. Nursing Standard, 24(10): 59.
106. Toates, F. (1992) Biology Brain and Behaviour: Control of Behaviour. Milton Keynes: Open University.
107. Toedter, L.J., Lasker, J.N. and Alhadeff, J.M. (1988) ‘The perinatal grief scale: development and initial validation’. American Journal of Orthopsychiatry, 58: 435–49.
108. Walter, T. (1999) On Bereavement: The Culture of Grief. Philadelphia, PA: Open University Press.
109. Whitney, S., McCullough, L.B., Frugé, E., McGuire, A. and Volk, R. (2008) ‘Beyond breaking bad news’. American Cancer Society, 113(2): 442–5.
110. WHO (World Health Organisation) (2010) ‘International statistical classification of diseases and related health problems (10th revision) (Vol. 1): Tabular list (Vol. 2): Instruction manual’. Geneva: WHO.
111. WHO (World Health Organisation) (2012) ‘WHO/UNICEF/UNFPA/The World Bank: trends in maternal mortality: 1990 to 2010’. Geneva: WHO, UNICEF, UNFPA and The World Bank estimates.
112. Williams, C., Munson, D., Zupanic, J. and Kirpalani, H. (2008) ‘Supporting bereaved parents: practical steps in providing compassionate perinatal and neonatal end-of-life care: A North American perspective’. Fetal and Neonatal Medicine, 13: 335–40.
113. Worden, J.W. (1983) Grief Counselling and Grief Therapy, 1st edn. London: Tavistock.
114. Worden, J.W. (1991) Grief Counselling and Grief Therapy, 2nd edn. London: Routledge.
115. Yentis, S. M. (2011) ‘From CEMD to CEMACH to CMACE to…? Where now for the confidential enquiries into maternal deaths?’ Anaesthesia, 66(10): 859–60.
116. Zeanah, C. H. (1989) ‘Adaptation following perinatal loss: a critical review’. American Academy of Child Adolescent Psychiatry, 28(3): 467–80.