Participation in daily life activities and its relationship to strength and functional measures in boys with Duchenne muscular dystrophy

Disability and Rehabilitation

Volumn 36, Issue 22, 2014, Pages 1918-1923

  Bendixen, Roxanna M ^a   Lott, Donovan J ^b   Senesac, Claudia ^b   Mathur, Sunita ^c   Vandenborne, Krista ^b  

^a UNIVERSITY OF PITTSBURGH   (United States)

^b UNIVERSITY OF FLORIDA   (United States)

^c UNIVERSITY OF TORONTO   (Canada)

Author keywords

Duchenne muscular dystrophy; Functional outcomes; Participation; Social engagement; Strength outcomes

Indexed keywords

ADOLESCENT; CHILD; COMPARATIVE STUDY; CROSS-SECTIONAL STUDY; DAILY LIFE ACTIVITY; DISEASE COURSE; DUCHENNE MUSCULAR DYSTROPHY; EXERCISE TEST; HUMAN; MALE; MUSCLE STRENGTH; PATHOPHYSIOLOGY; PHYSIOLOGY; SOCIAL PARTICIPATION;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; CHILD; CROSS-SECTIONAL STUDIES; DISEASE PROGRESSION; EXERCISE TEST; HUMANS; MALE; MUSCLE STRENGTH; MUSCULAR DYSTROPHY, DUCHENNE; SOCIAL PARTICIPATION;

EID: 84908890282     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638288.2014.883444     Document Type: Article

References (27)

1. Deconinck N, Dan B. Pathophysiology of duchenne muscular dystrophy: current hypotheses. Pediatric Neurol 2007;36:1-7.
2. Emery A, Muntoni F. Duchenne muscular dystrophy. 3rd ed. Oxford: Oxford University Press; 2003.
3. Wren TAL, Bluml S, Tseng-Ong L, Gilsanz V. Three-point technique of fat quantification of muscle tissue as a marker of disease progression in Duchenne muscular dystrophy: preliminary study. Am J Roentgenol 2008;190:W8-12.
4. Bogdanovich S, Perkins KJ, Krag TOB, Khurana TS. Therapeutics for Duchenne muscular dystrophy: current approaches and future directions. J Mol Med-Jmm 2004;82:102-15.
5. Bendixen RM, Senesac C, Lott DJ, Vandenborne K. Participation and quality of life in children with Duchenne muscular dystrophy using the International Classification of Functioning, Disability, and Health. Health Qual Life Outcomes 2012;10:43. doi:10.1186/1477-7525-10-43.
6. World Health Organization (WHO). International Classification of Functioning, Disability and Health. Geneva, Switzerland: WHO; 2001.
7. King G, Law M, Hanna S, et al. Predictors of the leisure and recreation participation of children with physical disabilities: a structural equation modeling analysis. Child Health Care 2006;35:209-34.
8. Whiteneck G, Dijkers MP. Difficult to measure constructs: conceptual and methodological issues concerning participation and environmental factors. Arch Phys Med Rehabil 2009;90:S22-35.
9. Coster W, Bedell G, Law M, et al. Psychometric evaluation of the participation and environment measure for children and youth. Dev Med Child Neurol 2011;53:1030-7.
10. Vandervelde L, Van den Bergh PYK, Goemans N, Thonnard JL. ACTIVLIM: a Rasch-built measure of activity limitations in children and adults with neuromuscular disorders. Neuromusc Disord 2007;17:459-69.
11. Bostrom K, Ahlstrom G. Living with a chronic deteriorating disease: the trajectory with muscular dystrophy over ten years. Disabil Rehabil 2004;26:1388-98.
12. Chamberlain J, Rando T. Duchenne muscular dystrophy: advances in therapeutics. New York: Taylor & Francis Group; 2006.
13. King G, Law M, King S, et al. Children's assessment of participation and enjoyment (CAPE) and preferences for activities of children (PAC). San Antonio (TX): Harcourt Assessment, Inc; 2004.
14. King G, Law M, King S, et al. A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Phys Occup Ther Pediatr 2003;23:63-90.
15. Mathur S, Lott DJ, Senesac C, et al. Age-related differences in lower-limb muscle cross-sectional area and torque production in boys with Duchenne muscular dystrophy. Arch Phys Med Rehabil 2010;91:1051-8.
16. McDonald CM, Abresch RT, Carter GT, et al. Profiles of neuromuscular diseases. Duchenne muscular dystrophy. Am J Phys Med Rehabil 1995;74:S70-92.
17. King GA, Law M, King S, et al. Measuring children's participation in recreation and leisure activities: construct validation of the CAPE and PAC. Child: Care Health Dev 2006;33:28-39.
18. Beenakker EA, Maurits NM, Fock JM, et al. Functional ability and muscle force in healthy children and ambulant Duchenne muscular dystrophy patients. Eur J Paediatr Neurol 2005;9:387-93.
19. Lerario A, Bonfiglio S, Sormani M, et al. Quantitative muscle strength assessment in duchenne muscular dystrophy: longitudinal study and correlation with functional measures. BMC Neurol 2012;12:91-8.
20. Newacheck PW, Halfon N. Prevalence and impact of disabling chronic conditions in childhood. Am J Publ Health 1998;88:610-7.
21. Law M, King G, King S, et al. Patterns of participation in recreational and leisure activities among children with complex physical disabilities. Dev Med Child Neurol 2006;48:337-42.
22. Chawla JC. ABC of sports medicine - sport for people with disability. Br Med J 1994;308:1500-4.
23. Bushby K, Finkel R, Birnkrant DJ, et al. Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management. Lancet Neurol 2010;9:77-93.
24. Brooke MH, Griggs RC, Mendell JR, et al. Clinical-trial in duchenne dystrophy. I. The design of the protocol. Muscle Nerve 1981;4:186-97.
25. Scott E, Mawson SJ. Measurement in Duchenne muscular dystrophy: considerations in the development of a neuromuscular assessment tool. Dev Med Child Neurol 2006;48:540-4.
26. Mendell JR, Csimma C, McDonald CM, et al. Challenges in drug development for muscle disease: a stakeholders' meeting. Muscle Nerve 2007;35:8-16.
27. Bendixen RM, Kreider CM. Review of occupational therapy research in the practice area of children and youth. Am J Occupat Therapy 2011;65:351-9.