Palliative care, version 1.2014 featured updates to the NCCN guidelines

JNCCN Journal of the National Comprehensive Cancer Network

Volumn 12, Issue 10, 2014, Pages 1379-1388

  Levy, Michael H ^a   Smith, Thomas ^b   Alvarez Perez, Amy ^c   Back, Anthony ^d   Baker, Justin N ^e   Block, Susan ^f   Codada, Shirley N ^g   Dalal, Shalini ^h   Dans, Maria ⁱ   Kutner, Jean S ^j   Kvale, Elizabeth ^k   Misra, Sumathi ^l   Mitchell, William ^m   Sauer, Todd M ⁿ   Spiegel, David ^o   Sutton, Linda ^p   Taylor, Robert M ^q   Temel, Jennifer ^r   Tickoo, Roma ^s   Urba, Susan G ^t   Van Zyl, Carin ^u   Weinstein, Sharon M ^v   Bergman, Mary Anne ^w   Scavone, Jillian L ^w   more..

^a FOX CHASE CANCER CENTER   (United States)

^b JOHNS HOPKINS UNIVERSITY   (United States)

^c ROSWELL PARK CANCER INSTITUTE   (United States)

^d SEATTLE CANCER CARE ALLIANCE   (United States)

^e UNIVERSITY OF TENNESSEE HEALTH SCIENCE CENTER   (United States)

^f DANA FARBER BRIGHAM AND WOMEN S CANCER CENTER   (United States)

^g H LEE MOFFITT CANCER CENTER AND RESEARCH INSTITUTE   (United States)

^h UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER   (United States)

ⁱ BARNES JEWISH HOSPITAL   (United States)

^j University of Colorado Cancer Center   (United States)

^k UNIVERSITY OF ALABAMA AT BIRMINGHAM   (United States)

^l VANDERBILT INGRAM CANCER CENTER   (United States)

^m UNIVERSITY OF CALIFORNIA SAN DIEGO   (United States)

ⁿ NEBRASKA MEDICAL CENTER   (United States)

^o STANFORD CANCER INSTITUTE   (United States)

^p DUKE CANCER INSTITUTE   (United States)

^q OHIO STATE UNIVERSITY   (United States)

^r MASSACHUSETTS GENERAL HOSPITAL CANCER CENTER   (United States)

^s MEMORIAL SLOAN KETTERING CANCER CENTER   (United States)

^t UNIVERSITY OF MICHIGAN COMPREHENSIVE CANCER CENTER   (United States)

^u CITY OF HOPE NATIONAL MEDICAL CENTER   (United States)

^v UNIVERSITY OF UTAH   (United States)

^w National Comprehensive Cancer Network   (United States)

more..

Author keywords

[No Author keywords available]

Indexed keywords

ACCREDITATION; CANCER PALLIATIVE THERAPY; CANCER PATIENT; CANCER RISK; CONSULTATION; CONTINUING EDUCATION; HELP SEEKING BEHAVIOR; HUMAN; LIFE SUSTAINING TREATMENT; ONCOLOGY; PATIENT CARE; PATIENT COMPLIANCE; PRACTICE GUIDELINE; PSYCHOSOCIAL CARE; QUALITY OF LIFE; RETROSPECTIVE STUDY; REVIEW; SYSTEMATIC REVIEW (TOPIC); TERMINAL CARE; TREATMENT PLANNING; CAREGIVER; NEOPLASMS; PALLIATIVE THERAPY; SOCIAL SUPPORT;

ADVANCE CARE PLANNING; CAREGIVERS; HUMANS; NEOPLASMS; PALLIATIVE CARE; PATIENT-CENTERED CARE; SOCIAL SUPPORT;

EID: 84908665697     PISSN: 15401405     EISSN: 15401413     Source Type: Journal    
DOI: 10.6004/jnccn.2014.0136     Document Type: Review

References (65)

1. Cleeland CS, Zhao F, Chang VT, et al. The symptom burden of cancer: evidence for a core set of cancer-related and treatment-related symptoms from the Eastern Cooperative Oncology Group Symptom Outcomes and Practice Patterns study. Cancer 2013;119:4333-4340.
2. Berger A, Portenoy R, Weissman D, eds. Practice and Principles of Supportive Oncology. Philadelphia, PA: Lippincott-Raven; 1998.
3. Doyle D, Hanks G, MacDonald NE, eds. Oxford Textbook of Palliative Medicine. Oxford, England: Oxford University; 1998.
4. Emanuel L, von Gunten C, Ferris FD, eds. The Education for Physicians on End-of-Life Care (EPEC) Curriculum. Princeton, NJ: The Robert Wood Johnson Foundation; 1999.
5. Ferris FD, Bruera E, Cherny N, et al. Palliative cancer care a decade later: accomplishments, the need, next steps-from the American Society of Clinical Oncology. J Clin Oncol 2009;27:3052-3058.
6. Peppercorn JM, Smith TJ, Helft PR, et al. American Society of Clinical Oncology statement: toward individualized care for patients with advanced cancer. J Clin Oncol 2011;29:755-760.
7. Smith TJ, Schnipper LJ. The American Society of Clinical Oncology program to improve end-of-life care. J Palliat Med 1998;1:221-230.
8. Cancer pain relief and palliative care. Report of a WHO Expert Committee. World Health Organ Tech Rep Ser 1990;804:1-75.
9. Levy MH. Living with cancer: hospice/palliative care. J Natl Cancer Inst 1993;85:1283-1287.
10. Levy MH. Supportive oncology: forward. Semin Oncol 1994;21:699-700.
11. MacDonald N. Palliative care-the fourth phase of cancer prevention. Cancer Detect Prev 1991;15:253-255.
12. Elsayem A, Swint K, Fisch MJ, et al. Palliative care inpatient service in a comprehensive cancer center: clinical and fnancial outcomes. J Clin Oncol 2004;22:2008-2014.
13. Temel JS, Greer JA, Muzikansky A, et al. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med 2010;363:733-742.
14. Greer JA, Pirl WF, Jackson VA, et al. Effect of early palliative care on chemotherapy use and end-of-life care in patients with metastatic non-small-cell lung cancer. J Clin Oncol 2012;30:394-400.
15. Temel JS, Greer JA, Admane S, et al. Longitudinal perceptions of prognosis and goals of therapy in patients with metastatic non-small-cell lung cancer: results of a randomized study of early palliative care. J Clin Oncol 2011;29:2319-2326.
16. McNamara BA, Rosenwax LK, Murray K, Currow DC. Early admission to community-based palliative care reduces use of emergency departments in the ninety days before death. J Palliat Med 2013;16:774-779.
17. Cruz VM, Camalionte L, Caruso P. Factors associated with futile end-of-life intensive care in a cancer hospital [published online ahead of print January 7, 2014]. Am J Hosp Palliat Care.
18. Jang RW, Krzyzanowska MK, Zimmermann C, et al. Intensity of palliative care and its impact on the aggressiveness of end-of-life care in patients with advanced pancreatic cancer [abstract]. J Clin Oncol 2013;31(Suppl):Abstract 9518.
19. Zimmermann C, Swami N, Krzyzanowska M, et al. Early palliative care for patients with advanced cancer: a cluster-randomised controlled trial. Lancet 2014;383:1721-1730.
20. Kamal AH, Bull J, Stinson CS, et al. Conformance with supportive care quality measures is associated with better quality of life in patients with cancer receiving palliative care. J Oncol Pract 2013;9:e73-76.
21. Gomes B, Calanzani N, Curiale V, et al. Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database Syst Rev 2013;6:CD007760.
22. Rocque GB, Cleary J F. Palliative care reduces morbidity and mortality in cancer. Nat Rev Clin Oncol 2013;10:80-89.
23. Khan SA, Gomes B, Higginson IJ. End-of-life care-what do cancer patients want? Nat Rev Clin Oncol 2014;11:100-108.
24. Von Roenn JH, Voltz R, Serrie A. Barriers and approaches to the successful integration of palliative care and oncology practice. J Natl Compr Canc Netw 2013;11(Suppl 1):S11-16.
25. Osta BE, Palmer JL, Paraskevopoulos T, et al. Interval between frst palliative care consult and death in patients diagnosed with advanced cancer at a comprehensive cancer center. J Palliat Med 2008;11:51-57.
26. Lamont EB, Christakis NA. Physician factors in the timing of cancer patient referral to hospice palliative care. Cancer 2002;94:2733-2737.
27. Ferrell BR. Late referrals to palliative care. J Clin Oncol 2005;23:2588-2589.
28. Morita T, Miyashita M, Tsuneto S, et al. Late referrals to palliative care units in Japan: nationwide follow-up survey and effects of palliative care team involvement after the Cancer Control Act. J Pain Symptom Manage 2009;38:191-196.
29. Hui D, Kim SH, Kwon JH, et al. Access to palliative care among patients treated at a comprehensive cancer center. Oncologist 2012;17:1574-1580.
30. Wentlandt K, Krzyzanowska MK, Swami N, et al. Referral practices of oncologists to specialized palliative care. J Clin Oncol 2012;30:4380-4386.
31. Davis M P, Bruera E, Morganstern D. Early integration of palliative and supportive care in the cancer continuum: challenges and opportunities. Am Soc Clin Oncol Educ Book 2013;33:144-150.
32. Alston C, Paget L, Halvorson G, et al. Communicating with patients on health care evidence. Available at: http://www.iom.edu/Global/Perspectives/2012/Evidence.aspx. Accessed May 17, 2013.
33. Novelli WD, Halvorson GC, Santa J. Recognizing an opinion: fndings from the IOM Evidence Communication Innovation Collaborative. JAMA 2012;308:1531-1532.
34. El-Jawahri A, Traeger L, Park ER, et al. Associations among prognostic understanding, quality of life, and mood in patients with advanced cancer. Cancer 2014;120:278-285.
35. Gwilliam B, Keeley V, Todd C, et al. Prognosticating in patients with advanced cancer-observational study comparing the accuracy of clinicians' and patients' estimates of survival. Ann Oncol 2013;24:482-488.
36. Hagerty RG, Butow PN, Ellis PA, et al. Cancer patient preferences for communication of prognosis in the metastatic setting. J Clin Oncol 2004;22:1721-1730.
37. Hagerty RG, Butow PN, Ellis PM, et al. Communicating with realism and hope: incurable cancer patients' views on the disclosure of prognosis. J Clin Oncol 2005;23:1278-1288.
38. Weeks JC, Catalano PJ, Cronin A, et al. Patients' expectations about effects of chemotherapy for advanced cancer. N Engl J Med 2012;367:1616-1625.
39. Smith TJ, Longo DL. Talking with patients about dying. N Engl J Med 2012;367:1651-1652.
40. Chen AB, Cronin A, Weeks JC, et al. Expectations about the effectiveness of radiation therapy among patients with incurable lung cancer. J Clin Oncol 2013;31:2730-2735.
41. de Haes H, Teunissen S. Communication in palliative care: a review of recent literature. Curr Opin Oncol 2005;17:345-350.
42. Sinclair CT. Communicating a prognosis in advanced cancer. J Support Oncol 2006;4:201-204.
43. van Vliet LM, van der Wall E, Plum NM, Bensing JM. Explicit prognostic information and reassurance about nonabandonment when entering palliative breast cancer care: fndings from a scripted video-vignette study. J Clin Oncol 2013;31:3242-3249.
44. Ciechanowski PS, Katon WJ, Russo JE, Walker EA. The patient-provider relationship: attachment theory and adherence to treatment in diabetes. Am J Psychiatry 2001;158:29-35.
45. Stewart MA. Effective physician-patient communication and health outcomes: a review. CMAJ 1995;152:1423-1433.
46. Furber L, Cox K, Murphy R, Steward W. Investigating communication in cancer consultations: what can be learned from doctor and patient accounts of their experience? Eur J Cancer Care (Engl) 2013;22:653-662.
47. Higginson IJ, Finlay IG, Goodwin DM, et al. Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers? J Pain Symptom Manage 2003;25:150-168.
48. Kinzbrunner BM. Hospice: what to do when anti-cancer therapy is no longer appropriate, effective, or desired. Semin Oncol 1994;21:792-798.
49. Hartmann LC. Unrealistic expectations. J Clin Oncol 2005;23:4231-4232; discussion 4233-4234.
50. Kalemkerian G P. Commentary on "unrealistic expectations". J Clin Oncol 2005;23:4233-4234.
51. Mack JW, Cronin A, Taback N, et al. End-of-life care discussions among patients with advanced cancer: a cohort study. Ann Intern Med 2012;156:204-210.
52. Almack K, Cox K, Moghaddam N, et al. After you: conversations between patients and healthcare professionals in planning for end of life care. BMC Palliat Care 2012;11:15.
53. Kao CY, Wang HM, Tang SC, et al. Predictive factors for do-not-resuscitate designation among terminally ill cancer patients receiving care from a palliative care consultation service. J Pain Symptom Manage 2014;47:271-282.
54. Mack J W, Cronin A, Keating NL, et al. Associations between end-of-life discussion characteristics and care received near death: a prospective cohort study. J Clin Oncol 2012;30:4387-4395.
55. Doll KM, Stine JE, Van Le L, et al. Outpatient end of life discussions shorten hospital admissions in gynecologic oncology patients. Gynecol Oncol 2013;130:152-155.
56. Zhang B, Nilsson ME, Prigerson HG. Factors important to patients' quality of life at the end of life. Arch Intern Med 2012;172:1133-1142.
57. Gomes B, Higginson IJ, Calanzani N, et al. Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain. Ann Oncol 2012;23:2006-2015.
58. Jeurkar N, Farrington S, Craig TR, et al. Which hospice patients with cancer are able to die in the setting of their choice? Results of a retrospective cohort study. J Clin Oncol 2012;30:2783-2787.
59. Wright AA, Keating NL, Balboni TA, et al. Place of death: correlations with quality of life of patients with cancer and predictors of bereaved caregivers' mental health. J Clin Oncol 2010;28:4457-4464.
60. Najjar N, Davis LW, Beck-Coon K, Carney Doebbeling C. Compassion fatigue: a review of the research to date and relevance to cancer-care providers. J Health Psychol 2009;14:267-277.
61. Cohen JS, Erickson JM. Ethical dilemmas and moral distress in oncology nursing practice. Clin J Oncol Nurs 2006;10:775-780.
62. Gaeta S, Price KJ. End-of-life issues in critically ill cancer patients. Crit Care Clin 2010;26:219-227.
63. Irvin S. The experiences of the registered nurse caring for the person dying of cancer in a nursing home. Collegian 2000;7:30-34.
64. Shanafelt T, Dyrbye L. Oncologist burnout: causes, consequences, and responses. J Clin Oncol 2012;30:1235-1241.
65. Sherman AC, Edwards D, Simonton S, Mehta P. Caregiver stress and burnout in an oncology unit. Palliat Support Care 2006;4:65-80.