Dementia: Stigma, Language, and Dementia-friendly

Dementia

Volumn 13, Issue 6, 2014, Pages 709-716

  Swaffer, Kate ^a  

^a UNIVERSITY OF WOLLONGONG   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

DEMENTIA; HUMAN; LANGUAGE; PSYCHOLOGY; SOCIAL STIGMA; STEREOTYPING;

DEMENTIA; HUMANS; LANGUAGE; SOCIAL STIGMA; STEREOTYPING;

EID: 84908542160     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301214548143     Document Type: Editorial

References (46)

1. Alzheimer’s Australia (2009). Dementia friendly language: position paper 4. Retrieved from http://www.fightdementia.org.au/dementia-friendly-language.aspx.
2. Alzheimer’s Australia (2014a). Dementia Advisory Committee. Retrieved from http://www.fightdementia.org.au/dementia-advisory-commitee.aspx (accessed 3 April 2014).
3. Alzheimer’s Australia (2014b). Dementia friendly communities presented by Rachael Litherland. http://www.fightdementia.org.au/south-australia/dementia-friendly-communities-presented-by-rachael-litherland-.aspx.
4. Alzheimer’s Australia (2014c). Key facts and statistics 2014: Australian statistics. Retrieved from http://www.fightdementia.org.au/western-australia/key-facts-and-statistics.aspx.
5. Alzheimer’s Australia (2014d). Setting the agenda for a dementia-friendly Australia. Retrieved from http://www.fightdementia.org.au/research-publications/setting-the-agenda-for-a-dementia-friendly-australia.aspx.
6. Alzheimer’s Australia (2012e). Stigma surrounding dementia today as widespread as ever. Retrieved from http://www.fightdementia.org.au/research-publications/stigma-surrounding-dementia-today-as-widespread-as-ever-ita-buttrose.aspx.
7. Alzheimer’s Disease International (2013). Dementia statistics. Retrieved from http://www.alz.co.uk/research/statistics.
8. Alzheimer’s Europe (2014). The European Dementia Working Group. Retrieved from http://www.alzheimer-europe.org/Alzheimer-Europe/Who-we-are/European-Working-Group-of-People-with-Dementia (accessed 3 April 2014).
9. Alzheimer’s Society (2008). Dementia out of the shadows. Retrieved from http://www.alzheimers.org.uk/site/scripts/download_info.php?fileID=454/pdf
10. Alzheimer’s Society Canada (2012) Person centred language. Retrieved from http://www.alzheimer.ca/en/About-dementia/For-health-care-professionals/culture-change-towards-person-centred-care/person-centred-language-guidelines.
11. Alzheimer’s Society of Ireland (2008). Media Guidelines to Dementia Language: Dementia Friendly Language. Retrieved from http://www.alzheimer.ie/about-us/news-and-media/media-guidelines-to-dementia-language.aspx.
12. Anon (2010). Body language is a powerful communication tool. Johannesburg: Independent Online (South Africa).
13. Bartlett R.The emergent modes of dementia activism.Ageing and Society. 2014;34:623-644
14. Batsch N.,Mittelman M.,Alzheimer’s Disease International World Alzheimer’s Report 2012: overcoming the stigma of dementia. London: Alzheimer’s Disease International; 2012:56.
15. Benbow S.,Jolley D.Dementia: stigma and its effects.Neurodegenerative Disease Management. 2012;2:165-172
16. Burgener S.,Berger B.Measuring perceived stigma in persons with progressive neurological disease: Alzheimer's dementia and Parkinson's disease.Dementia. 2008;7:31-53
17. Buttrose, I. (2012). National press club speech: towards a world without dementia. Alzheimer’s Australia. Retrieved from http://www.fightdementia.org.au/research-publications/stigma-surrounding-dementia-today-as-widespread–as-ever-ita-buttrose.aspx.
18. Cayton, C. (2006) From childhood to childhood? Autonomy and dependence through the ages. In Hughes, J, S. Louw & S. Sabat (Eds.), Dementia: mind, meaning, and the person e-Kindle (p.4364). New York, NY: Oxford University Press, Inc.
19. Clasper, K. (2014) Time to raise awareness of dementia again, blog post. In Living well with Lewy body dementia, 20 April. Retrieved from http://ken-kenc2.blogspot.com.au/2014/04/time-to-raise-awareness-of-dementia.html.
20. Crampton, J., Dean, J., & Eley R. (2012). Creating a dementia-friendly York, Retrieved from http://www.jrf.org.uk/publications/creating-dementia-friendly-york-full(1).pdf.
21. Dean E.Stigma and dementia care.Nursing Older People. 2011a;23:12
22. Dean E.Workloads and staff levels hamper dementia care.Nursing Older People. 2011b;23:6
23. Devlin E.,MacAskill S.,Stead M.‘We're still the same people’: developing a mass media campaign to raise awareness and challenge the stigma of dementia.International Journal of Nonprofit and Voluntary Sector Marketing. 2007;12:47-58
24. DPS News (2014). The C-word for aged care. Retrieved from http://www.agedcareguide.com.au/news/2014/03/12/the-c-word-for-aged-care/.
25. Garand, L., Lingler, J., Conner, K., & Dew, M. (2009). Diagnostic labels, stigma, and participation in research related to dementia and mild cognitive impairment. Research in Gerontological Nursing, 2(2), 112–121.
26. Goffman E.Stigma: notes on the management of spoiled identity. Englewood Cliffs, NJ: Prentice Hall; 1963:
27. Hodkinson B.Taking the stigma out of dementia.Nursing Older People. 2011;23:8
28. Hoffert B.The definitive book of body language.Library Journal. 2006;131:66
29. Hughes J.,Louw S.,Sabat S.Dementia: mind, meaning, and the person. Hughes J.Louw S.Sabat S.e-Kindle, ed. New York: Oxford University Press, Inc; 2006:475.
30. Link B.,Phelan J.Conceptualizing stigma.Annual Review of Sociology. 2001;27:363-338
31. Mackenzie J.Stigma and dementia.Dementia. 2006a;5:233-247
32. Mackenzie J.Stigma and dementia: East European and South Asian family carers negotiating stigma in the UK.Dementia. 2006b;5:233-224
33. Milne A.The ‘D' word: Reflections on the relationship between stigma, discrimination and dementia.Journal of Mental Health (Abingdon, England). 2010;19:227-233
34. Mukadam N.,Livingston G.Reducing the stigma associated with dementia: approaches and goals. London: Future Medicine Ltd; 2012:
35. Parker J.Language: a pernicious and powerful tool.The English Journal. 2001;91:74-78
36. Pesonen H.,Remes A.,Isola A.Ethical aspects of researching subjective experiences in early-stage dementia.Nursing Ethics. 2011;18:651-661
37. Phillipson, L., Magee, C., Jones, S., & Skladzien, E. (2012). Correlates of dementia attitudes in a sample of middle-aged Australian adults. Australasian Journal on Ageing.
38. Ryan, S. (2006). Stigma of dementia is ‘cruel and widespread’. Irish Medical Times, 40(39), 6.
39. Sabat S.The experience of Alzheimer's disease: life through a tangled veil. Malden, MA: Blackwell; 2001:29.
40. Sandblom, J. (2014). ADI2014: What an experience, Early onset A-typical Alzheimer’s disease. Retrieved from http://www.earlyonsetatypicalalzheimers.com/blog/adi2014-what-an-experience.
41. Sandra R.Stigma of dementia is ‘cruel and widespread.Irish Medical Times. 2006;40:6
42. Scheff T.Microsociology: Discourse, emotion and social structure. London: University of Chicago Press; 1990:58.
43. Swaffer, K. (2012) We live until we die. In P. Wilson & K. Leeson. Learning life from illness stories. Mt. Gravatt, Qld: Post Pressed.
44. The Scottish Dementia Working Group. (2014) About us. Retrieved from http://www.sdwg.org.uk/home/about-us-sdwg/.
45. Ticehurst S.Is dementia a mental illness?.Australian and New Zealand Journal of Psychiatry. 2001;35:716-723
46. Werner P.,Mittelman M.,Goldstein D.,Heinik J.Family stigma and caregiver burden in Alzheimer's disease.The Gerontologist. 2012;52:89-97