Living will status and desire for living will help among rural Alabama veterans

Research in Nursing and Health

Volumn 37, Issue 5, 2014, Pages 379-390

  Mahaney Price, Ann F ^a   Hilgeman, Michelle M ^b   Davis, Lori L ^a,c   Mcneal, Sandre F ^d   Conner, Charles M ^e   Allen, Rebecca S ^b  

^a VETERANS AFFAIRS MEDICAL CENTER   (United States)

^b UNIVERSITY OF ALABAMA   (United States)

^c UNIVERSITY OF ALABAMA SCHOOL OF MEDICINE   (United States)

^d UNIVERSITY OF ALABAMA AT BIRMINGHAM   (United States)

^e BIRMINGHAM VA MEDICAL CENTER   (United States)

Author keywords

Advance care planning; Advance directive; End of life; Living will; Rural; Veterans

Indexed keywords

AGED; ARTICLE; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DISABILITY; END OF LIFE; FEMALE; HUMAN; LIVING WILL; MALE; MIDDLE AGED; MOTIVATION; MULTICENTER STUDY; NEEDS ASSESSMENT; PATIENT CARE; PATIENT COMPLIANCE; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL; RURAL; RURAL POPULATION; STATISTICS; UNITED STATES; VETERAN;

ADVANCE CARE PLANNING; ADVANCE DIRECTIVE; END OF LIFE; LIVING WILL; RURAL; VETERANS;

AGED; ALABAMA; DISABILITY EVALUATION; FEMALE; HUMANS; LIVING WILLS; MALE; MIDDLE AGED; MOTIVATION; NEEDS ASSESSMENT; PATIENT COMPLIANCE; QUESTIONNAIRES; RURAL POPULATION; VETERANS;

EID: 84908146906     PISSN: 01606891     EISSN: 1098240X     Source Type: Journal    
DOI: 10.1002/nur.21617     Document Type: Article

References (44)

1. Allen, J. Y., Hilgeman, M. M., & Allen, R. S. (2011). Prospective end-of-life treatment decisions and perceived vulnerability: Future time left to live and memory self-efficacy. Aging and Mental Health, 15, 122-131. doi: 10.1080/13607863.2010.505229
2. American Bar Association. (2014). Living wills, health care proxies, & advance health care directives. Retrieved from http://www.americanbar.org/groups/real_property_trust_estate/resources/estate_planning/living_wills_health_care_proxies_advance:health_care_directives.html
3. American Cancer Society. (2013). Cancer facts and figures 2010. Retrieved from http://www.cancer.org/acs/groups/content/@epidemiologysurveilance/documents/document/acspc-026238.pdf
4. American Nurses Association. (2010). Registered nurses' roles and responsibilities in providing expert care and counseling at the end of life. Revised Position Statement. Retrieved from http://www.nursingworld.org/MainMenuCategories/EthicsStandards/Ethics-Position-Statements/etpain14426.pdf
5. Buchanan, R. J., Bolin, J., Wang, S., Zhu, L., & Kim, M. (2004). Urban/rural differences in decision making and the use of advance directives among nursing home residents at admission. The Journal of Rural Health, 20, 131-135.
6. Charles, S. T. (2010). Strength and vulnerability integration: A model of emotional well-being across adulthood. Psychological Bulletin, 136, 1068-1091. doi: 10.1037/a0021232
7. Chisolm, T. H., Abrams, H. B., McArdle, R., Wilson, R. H., & Doyle, P. J. (2005). The WHO-DAS II: Psychometric properties in the measurement of functional health status in adults with acquired hearing loss. Trends in Amplification, 9, 111-126.
8. Chwastiak, L., & Von Korff, M. (2003). Disability in depression and back pain: Evaluation of the World Health Organization Assessment Schedule (WHO-DAS II) in a primary care setting. Journal of Clinical Epidemiology, 56, 507-514.
9. Clarke, E. B., Curtis, J. R., Luce, J. M., Levy, M., Danis, M., Nelson, J., & Solomon, M. Z. (2003). Quality indicators for end-of-life care in the intensive care unit. Critical Care Medicine, 31, 2255-2262.
10. Centers for Disease Control. (2013). Deaths and mortality. Retrieved from http://www.cdc.gov/nchs/fastats/deaths.htm
11. Davis, L. L., Kertesz, S. G., Mahaney-Price, A. F., Martin, M. Y., Tabb, K., Pettey, K., ... Hawn, M. T. (2011). Alabama veterans rural health initiative: A preliminary evaluation of unmet health care needs. Journal of Rural Social Sciences, 26(3), 74-100.
12. Ditto, P. H., Danks, J. H., Smucker, W. D., Bookwala, J., Coppola, K. M., Dresser, R., ... Zyzanski, S. (2001). Advance directives as acts of communication: Randomized controlled trial. Archives of Internal Medicine, 161, 421-430.
13. Ditto, P. H., & Hawkins, N. A. (2005). Advance directives and cancer decision making near the end of life. Health Psychology, 24, S63-S70.
14. Emanuel, L. L., Alpert, H. R., Baldwin, D. C., & Emanuel, E. J. (2003). What terminally ill patients care about: Toward a validated construct of patients' perspectives. Journal of Palliative Medicine, 3, 419-431.
15. Freeman, S. L., & Berger, A. M. (2009). Nebraska veterans' preferences for end-of-life care. Clinical Journal of Oncology Nursing, 13, 399-403.
16. Freer, J. M., Eubanks, M., Parker, B., & Hershey, C. O. (2006). Advance directives: Ambulatory patients' knowledge and perspectives. American Journal of Medicine, 119, 1088.e9-1088.e13. doi: 10.1016/j.amjmed.2006.02.028
17. Gunter-Hunt, G., Mahoney, J. E., & Sieger, C. E. (2002). A comparison of state advance directive documents. The Gerontologist, 42, 51-60.
18. Hall, S. F. (2006). A user's guide to selecting a comorbidity index for clinical research. Journal of Clinical Epidemiology, 59, 849-855.
19. Hilgeman, M. M., Mahaney-Price, A. F., Stanton, M. P., McNeal, S. F., Pettey, K. M., Tabb, K. D., ... the Alabama Veterans Rural Health Initiative Steering Committee. (2014). Alabama veterans rural health initiative: A pilot study of enhanced community outreach in rural areas. Journal of Rural Health, 30, 153-163. doi: 10.1111/jrh.12054
20. Hudon, C., Fortin, M., & Vanasse, A. J. (2005). Cumulative Illness Rating Scale was a reliable and valid index in a family practice context. Clinical Epidemiology, 58, 603-608.
21. Jezewski, M. A., Meeker, M. A., Sessanna, L., & Finnell, D. S. (2007). The effectiveness of interventions to increase advance directive completion rates. Journal of Aging and Health, 19, 519-536. doi: 10.1177/0898264307300198
22. Ko, E., & Lee, J. (2014). Completion of advance directives among low-income older adults: Does race/ethnicity matter? American Journal of Hospice and Palliative Care, 31, 247-253.
23. Kwak, J., & Haley, W. E. (2005). Current research findings on end-of-life decision making among racially or ethnically diverse groups. Gerontologist, 45, 634-641.
24. Larson, J. (2012). Why nursing is still the most trusted profession. Retrieved from http://www.nursezone.com/nursing-news-events/more-news/Why-Nursing-is-Still-the-Most-Trusted-Profession_38778.aspx
25. Linn, B. S., Linn, M. W., & Gurel, L. (1968). Cumulative Illness Rating Scale. Journal of the American Geriatric Society, 16, 622-626.
26. Loggers, E. T., Maciejewski, P. K., Paulk, E., DeSanto-Madeya, S., Nilsson, M., Viswanath, K., ... Prigerson, H. G. (2009). Racial differences in predictors of intensive end-of-life care in patients with advanced cancer. Journal of Clinical Oncology, 27, 5559-5564.
27. Mack, J. W., Paulk, M. E., Viswanath, K., & Prigerson, H. G. (2010). Racial disparities in the outcomes of communication on medical care received near death. Archives of Internal Medicine, 170, 1533-1540.
28. Mezey, M. D., Leitman, R., Mitty, E. L., Bottrell, M. M., & Ramsey, G. C. (2000). Why hospital patients do and do not execute an advance directive. Nursing Outlook, 48, 165-171.
29. Miller, M. D., Paradis, C. F., Houck, P. R., Mazumdar, S., Stack, J. A., Rifai, A. H., ... Reynolds, C. F. (1992). Rating chronic medical illness burden in geropsychiatric practice and research: Application of the Cumulative Illness Rating Scale. Psychiatry Research, 41, 237-248.
30. Mistry, R., Gokhman, I., Bastani, R., Gould, R., Jimenez, E., Maxwell, A., ... Jarvik, L. (2004). Measuring medical burden using CIRS in older veterans enrolled in UPBEAT, a psychogeriatric treatment program: A pilot study. Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 59, 1068-1075.
31. Nelson, K. M., Starkebaum, G. A., & Reiber, G. E. (2007). Veterans using and uninsured veterans not using Veterans Affairs (VA) health care. Public Health Reports, 122, 93-100.
32. O'Hare, D. G. (2004). Principles of medical ethics in supportive care: A reflection. Supportive Care in Cancer, 12, 86-90.
33. Parmelee, P. A., Thuras, P. D., Katz, I. R., & Lawton, M. P. (1995). Validation of the cumulative illness rating scale in a geriatric residential population. Journal of the American Geriatric Society, 43, 130-137.
34. Rao, J. K., Anderson, L. A., Lin, F. C., & Laux, J. P. (2014). Completion of advance directives among U.S. consumers. American Journal of Preventive Medicine, 46, 65-70. doi: 10.1016/j.amepre.2013.09.008
35. Rich, S. E., Gruber-Baldini, A. L., Quinn, C. C., & Zimmerman, S. I. (2009). Discussion as a factor in racial disparity in advance directive completion at nursing home admission. Journal of the American Geriatric Society, 57, 146-152.
36. Salvi, F., Miller, M. D., Grilli, A., Giori, R., Towers, A., Morichi, V., ... Dessi-Fulgheri, P. (2008). A manual of guidelines to score the modified cumulative illness rating scale and its validation in acute hospitalized elderly patients. Journal of the American Geriatrics Society, 56, 1926-1931. doi: 10.1111/j.1532-5415.2008.01935.x
37. Shalowitz, D. I., Garrett-Mayer, E., & Wendler, D. (2006). The accuracy of surrogate decision makers: A systematic review. Archives of Internal Medicine, 166, 493-497.
38. Singer, P. A., Martin, D. K., & Kelner, M. (1999). Quality end-of-life care: Patients' perspectives. Journal of the American Medical Association, 281, 163-168.
39. Steinhauser, K. E., Christakis, N. A., Clipp, E. C., McNeilly, M., McIntyre, L., & Tulsky, J. A. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. Journal of the American Medical Association, 284, 2476-2482.
40. United States Department of Health and Human Services Assistant Secretary for Planning and Evaluation, Office of Disability, Aging and Long-Term Care Policy. (2008). Advance directives and advance care planning: Report to Congress. Retrieved from http://aspe.hhs.gov/daltcp/reports/2008/ADCongRpt.pdf
41. Üstün, T. B., Chatterji, S., Kostanjsekn, N., Rehm, J., Kennedy, C., Epping-Jordan, J., ... in collaboration with WHO/NIH Joint Project. (2010). Developing the World Health Organization Disability Assessment Schedule 2.0. Retrieved from http://www.who.int/bulletin/volumes/88/11/09-067231/en/index.html
42. van Turbergen, A., Landewe, R., Heuft-Dorenbosch, L., Spoorenberg, A., van der Heijde, D., van der Tempel, H., & van der Linden, S. (2003). Assessment of disability with the World Health Organisation Disability Assessment Schedule II in patients with ankylosing spondylitis. Annals of the Rheumatic Diseases, 62, 140-145.
43. Wenrich, M. D., Curtis, J. R., Shannon, S. E., Carline, J. D., Ambrozy, D. M., & Ramsey, P. G. (2001). Communicating with dying patients within the spectrum of medical care from terminal diagnosis to death. Archives of Internal Medicine, 161, 868-874.
44. Zaide, G. B., Pekmezaris, R., Nouryan, C. N., Mir, T. P., Sison, C. P., Liberman, T., ... Wolf-Klein, G. P. (2013). Ethnicity, race, and advance directives in an inpatient palliative care consultation service. Palliative & Supportive Care, 11, 5-11.