ICanCope with Pain™: User-centred design of a web- and mobile-based self-management program for youth with chronic pain based on identified health care needs

Pain Research and Management

Volumn 19, Issue 5, 2014, Pages 257-265

  Stinson, Jennifer N ^a,b   Lalloo, Chitra ^c   Harris, Lauren ^c   Isaac, Lisa ^a,b   Campbell, Fiona ^a,b   Brown, Stephen ^a,b   Ruskin, Danielle ^a   Gordon, Allan ^d   Galonski, Marilyn ^d   Pink, Leah R ^d   Buckley, Norman ^e   Henry, James L ^c   White, Meghan ^a   Karim, Allia ^a  

^a HOSPITAL FOR SICK CHILDREN   (Canada)

^b UNIVERSITY OF TORONTO   (Canada)

^c MCMASTER UNIVERSITY   (Canada)

^d MOUNT SINAI HOSPITAL   (Canada)

^e MCMASTER UNIVERSITY   (Canada)

Author keywords

Adolescent; Chronic pain; E health; Mobile health; Needs assessment; Self management

Indexed keywords

ACUPUNCTURE; ADOLESCENT; ADULT; ANALGESIA; ARTICLE; CHILD; CHILD HEALTH CARE; CHILD PARENT RELATION; CHRONIC PAIN; CLINICAL ARTICLE; COPING BEHAVIOR; EMOTION; FEMALE; HEALTH CARE NEED; HEALTH CARE PERSONNEL; HEALTH CARE SYSTEM; HUMAN; INFORMATION PROCESSING; MALE; MASSAGE; MOBILE APPLICATION; NEEDS ASSESSMENT; PHYSIOTHERAPY; PURPOSIVE SAMPLE; QUALITATIVE ANALYSIS; SELF CARE; SELF MONITORING; SEMI STRUCTURED INTERVIEW; SOCIAL STATUS; SOCIAL SUPPORT; WEB BROWSER; INTERNET; PROCEDURES; PSYCHOLOGY;

ADOLESCENT; CHILD; CHRONIC PAIN; FEMALE; HUMANS; INTERNET; MALE; MOBILE APPLICATIONS; NEEDS ASSESSMENT; PAIN MANAGEMENT; SELF CARE;

EID: 84907782663     PISSN: 12036765     EISSN: None     Source Type: Journal    
DOI: 10.1155/2014/935278     Document Type: Article

References (71)

1. American Pain Society. Assessment and Management of Children with Chronic Pain. Position Statement from The American Pain Society, 2012.
2. King S, Chambers CT, Huguet A, et al. The epidemiology of chronic pain in children and adolescents revisited: A systematic review. Pain 2011;152:2729-38.
3. Huguet A, Miró J. The severity of chronic pediatric pain: An epidemiological study. J Pain 2008;9:226-36.
4. Fearon P, Hotopf M. Relation between headache in childhood and physical and psychiatric symptoms in adulthood: National birth cohort study. BMJ 2001;322:1145.
5. Brattberg G. Do pain problems in young school children persist into early adulthood? A 13-year follow-up. Eur J Pain 2004;8:187-99.
6. American Pain Society. Pediatric chronic pain: A position statement from the American Pain Society. American Pain Society Bulletin 2001 January/February: 10-12.
7. Amaria K, Stinson JN, Cullen-Dean G, Sappleton K, Kaufman M. Tools for addressing systems issues in transition. Healthc Q 2011;14(Spec No 3):72-6.
8. Berg KK. Sustainable transition process for young people with chronic conditions: A narrative summary on achieved cooperation between paediatric and adult medical teams. Child Care Health Dev 2011;37:800-5.
9. van Staa AL, Jedeloo S, van Meeteren J, Latour JM. Crossing the transition chasm: Experiences and recommendations for improving transitional care of young adults, parents and providers. Child Care Health Dev 2011;37:821-32.
10. Modi AC, Pai AL, Hommel KA, et al. Pediatric self-management: A framework for research, practice, and policy. Pediatrics 2012;129:e473-e485.
11. Palermo TM, Eccleston C, Lewandowski AS, Williams AC, Morley S. Randomized controlled trials of psychological therapies for management of chronic pain in children and adolescents: An updated meta-analytic review. Pain 2010;148:387-97.
12. Eccleston C, Williams A, Morley S. Psychological therapies for the management of chronic pain (excluding headache) in adults. Cochrane Database Syst Rev 2009;(2):CD007407.
13. Peng P, Choinière M, Dion D, et al. Challenges in accessing multidisciplinary pain treatment facilities in Canada. Can J Anaesth 2007;54:977-84.
14. Lynch ME, Campbell F, Clark AJ, et al. A systematic review of the effect of waiting for treatment for chronic pain. Pain 2008;136:97-116.
15. Stinson JN, Isaac L, Campbell F, et al. Understanding the information and service needs of young adults with chronic pain: Perspectives of young adults and their providers. Clin J Pain 2013;29:600-12.
16. Ritterband L, Gonder-Frederick L, Cox D, Clifton A, West R, Borowitz S. Internet interventions: In review, in use, and into the future. Prof Psych Res Prac 2003;34:527.
17. Nguyen HQ, Carrieri-Kohlman V, Rankin SH, Slaughter R, Stulbarg MS. Internet-based patient education and support interventions: A review of evaluation studies and directions for future research. Comput Biol Med 2004;34:95-112.
18. Wantland DJ, Portillo CJ, Holzemer WL, Slaughter R, McGhee EM. The effectiveness of Web-based vs. non-Web-based interventions: A meta-analysis of behavioral change outcomes. J Med Internet Res 2004;6:e40.
19. Murray E, Burns J, See TS, Lai R, Nazareth I. Interactive health communication applications for people with chronic disease. Cochrane Database Syst Rev 2005;CD004274.
20. Runge C, Lecheler J, Horn M, Tews J, Schaefer M. Outcomes of a Web-based patient education program for asthmatic children and adolescents. Chest 2006;129:581-93.
21. Spek V, Cuijpers P, Nyklicek I, Riper H, Keyzer J, Pop V. Internet-based cognitive behaviour therapy for symptoms of depression and anxiety: A meta-analysis. Psychol Med 2006;37:319.
22. Palmqvist B, Carlbring P, Andersson G. Internet-delivered treatments with or without therapist input: Does the therapist factor have implications for efficacy and cost? Expert Rev Pharmacoecon Outcomes Res 2007;7:291-7.
23. Cuijpers P, van Straten A, Andersson G. Internet-administered cognitive behavior therapy for health problems: A systematic review. J Behav Med 2008;31:169-77.
24. Stinson JN, Wilson R, Gill N, Yamada J, Holt J. A systematic review of Internet-based self-management interventions for youth with health conditions. J Pediatr Psychol 2009;34:495-510.
25. Palermo TM, Wilson AC. eHealth applications in pediatric psychology. In: Roberts M, Steele R, eds. Handbook of Pediatric Psychology, 4th edn. New York: Guildford Press, 2009:227-37.
26. Macea DD, Gajos K, Daglia Calil YA, Fregni F. The efficacy of Web-based cognitive behavioral interventions for chronic pain: A systematic review and meta-analysis. J Pain 2010;11:917-29.
27. Velleman S, Stallard P, Richardson T. A review and meta-analysis of computerized cognitive behaviour therapy for the treatment of pain in children and adolescents. Child Care Health Dev 2010;36:465-72.
28. Bender JL, Radhakrishnan A, Diorio C, Englesakis M, Jadad AR. Can pain be managed through the Internet? A systematic review of randomized controlled trials. Pain 2011;152:1740-50.
29. Griffiths F, Lindenmeyer A, Powell J, Lowe P, Thorogood M. Why are health care interventions delivered over the internet? A systematic review of the published literature. J Med Internet Res 2006;8:e10.
30. Hicks CL, von Baeyer CL, McGrath PJ. Online psychological treatment for pediatric recurrent pain: A randomized evaluation. J Pediatr Psychol 2006;31:724-36.
31. Krishna S, Boren SA, Balas AE. Healthcare via cell phones: A systematic review. Telemed J E Health 2009;15:231-40.
32. Kristjánsdóttir OB, Fors EA, Eide E, et al. Written online situational feedback via mobile phone to support self-management of chronic widespread pain: A usability study of a Web-based intervention. BMC Musculoskelet Disord 2011;12:51.
33. Rosser BA, Eccleston C. Smartphone applications for pain management. J Telemed Telecare 2011;17:308-12.
34. Demiris G, Afrin LB, Speedie S, et al. Patient-centered applications: Use of information technology to promote disease management and wellness. A white paper by the AMIA Knowledge in Motion working group. J Am Med Inform Assoc 2008;15:8-13.
35. Wallace LS. A review of pain-related smartphone apps. Abstract presented at the American Academy of Pain Medicine Annual Meeting, Fort Lauderdale, April 11 to 14, 2013.
36. Palermo TM, Wilson AC, Peters M, Lewandowski A, Somhegyi H. Randomized controlled trial of an Internet-delivered family cognitive-behavioral therapy intervention for children and adolescents with chronic pain. Pain 2009;146:205-13.
37. Long AC, Palermo TM. Brief report: Web-based management of adolescent chronic pain: Development and usability testing of an online family cognitive behavioral therapy program. J Ped Psych 2009;34:511-6.
38. Creswell JW. Qualitative Inquiry and Research Design. Thousand Oaks: Sage Publications, 1998.
39. Sandelowski M. Whatever happened to qualitative description? Res Nurs Health 2000;23:334-40.
40. Morgan DL. Focus Groups as Qualitative Research, 2nd edn. Thousand Oaks: Sage, 1997
41. Nulab Inc. Cacoo (Software). 2013.
42. Ayling Campos A, Amaria K, Campbell F, McGrath P. Clinical impact and evidence base for physiotherapy in treating childhood chronic pain. Physiother Can 2011;63:21-33.
43. Stinson JN, White M, Isaac L, et al. Understanding the information and service needs of young adults with chronic pain: Perspectives of young adults and their providers. Clin J Pain 2013;29:600-12.
44. SAS Version 9.1.3. Software. 2006.
45. QSR NVivo8. Software. 2008.
46. Miles M, Huberman M. An Expanded Source Book: Qualitative Data Analysis. California: Sage Publications, 1994.
47. Morse J, Field P. Qualitative Research Methods for Health Professionals. California: Sage Publications, 2005.
48. Kvale S. Interviews: An introduction to Qualitative Research Interviewing. California: Sage Publications, 1996.
49. Hopko DR, Lejuez CW, LePage J P, Hopko SD, McNeil DW. A brief behavioral activation treatment for depression. A randomized pilot trial within an inpatient psychiatric hospital. Behav Modif 2003;27:458-69.
50. Jensen MP, Turner JA, Romano JM. Self-efficacy and outcome expectancies: Relationship to chronic pain coping strategies and adjustment. Pain 1991;44:263-9.
51. Bovend'Eerdt TJ, Botell RE, Wade DT. Writing SMART rehabilitation goals and achieving goal attainment scaling: A practical guide. Clin Rehabil 2009;23:352-61.
52. Noel M, Petter M, Parker JA, Chambers CT. Cognitive behavioral therapy for pediatric chronic pain: The problem, research, and practice. J Cogn Psychother 2012;26:143-56.
53. Bandura A. Social Learning Theory. Englewood Cliffs: Prentice Hall, 1971.
54. Gray NJ, Klein JD, Noyce PR, Sesselberg TS, Cantrill JA. Health information-seeking behaviour in adolescence: The place of the Internet. Soc Sci Med 2005;60:1467-78.
55. Smith A. 35% of American adults own a smartphone. Pew Research Center Study, 2011. (Accessed October 1, 2013).
56. Intelligence e-MD. Smartphone Population Gains Users, Young and Old. 2012. (Accessed October 1, 2013).
57. Statistics Canada. Canadian Internet Use Survey. 2010. (Accessed October 1, 2013).
58. Law EF, Murphy LK, Palermo TM. Evaluating treatment participation in an internet-based behavioral intervention for pediatric chronic pain. J Pediatr Psychol 2012;37:893-903.
59. Tate DF, Jockvony EH, Wing RR. A randomized trial comparing human e-mail counseling, computer-automated tailored counseling, and no counseling in an Internet weight loss program. Arch Int Med 2006;166:1620-5.
60. Rickwood DJ, Deane F P, Wilson CJ. When and how do young people seek professional help for mental health problems? Med J Aust 2007;187:S35-9.
61. Vanheusden K, Mulder CL, van der Ende J, van Lenthe FJ, Mackenbach J P, Verhulst FC. Young adults face major barriers to seeking help from mental health services. Patient Educ Couns 2008;73:97-104.
62. Klasnja P, Pratt W. Healthcare in the pocket: Mapping the space of mobile-phone health interventions. J Biomed Inform 2012;45:184-98.
63. Barker RL. The Social Work Dictionary, 4th edn. Washington: NASW Press, 1999:454.
64. Forgeron PA, King S, Stinson JN, McGrath PJ, MacDonald AJ, Chambers CT. Social functioning and peer relationships in children and adolescents with chronic pain: A systematic review. Pain Res Manag 2010;15:27-41.
65. Eccleston C, Wastell S, Crombez G, Jordan A. Adolescent social development and chronic pain. Eur J Pain 2008;12:765-74.
66. Forgeron PA, McGrath P, Stevens B, et al. Social information processing in adolescents with chronic pain: My friends don't really understand me. Pain 2011;152:2773-80.
67. Polomano RC, Droog N, Purinton MC, Cohen AS. Social support web-based resources for patients with chronic pain. J Pain Palliat Care Pharmacother 2007;21:49-55.
68. Rosser BA, Vowles KE, Keogh E, Eccleston C, Mountain GA. Technologically-assisted behaviour change: A systematic review of studies of novel technologies for the management of chronic illness. J Telemed Telecare 2009;15:327-38.
69. Ekeland AG, Bowes A, Flottorp S. Effectiveness of telemedicine: A systematic review of reviews. Int J Med Inform 2010;79:736-71.
70. Danaher BG, Seeley JR. Methodological issues in research on web-based behavioral interventions. Ann Behav Med 2009;38:28-39.
71. Dewar A, White M, Posade ST, Dillon W. Using nominal group technique to assess chronic pain, patients' perceived challenges and needs in a community health region. Health Expect 2003;6:44-52.