메뉴 건너뛰기




Volumn 5, Issue 4, 2014, Pages 14-21

Motivations of Patients With Diabetes to Participate in Research

Author keywords

bioethics; diabetes; empirical ethics; general medical research; research participation; research subject motivations

Indexed keywords


EID: 84907302838     PISSN: 23294515     EISSN: 23294523     Source Type: Journal    
DOI: 10.1080/23294515.2014.910282     Document Type: Article
Times cited : (12)

References (32)
  • 2
    • 3042766397 scopus 로고    scopus 로고
    • The influence of risk and monetary payment on the research participation decision making process
    • Bentley, J. P., and P. G. Thacker. 2004. The influence of risk and monetary payment on the research participation decision making process. Journal of Medical Ethics 30(3): 293-298.
    • (2004) Journal of Medical Ethics , vol.30 , Issue.3 , pp. 293-298
    • Bentley, J.P.1    Thacker, P.G.2
  • 3
    • 84855896799 scopus 로고    scopus 로고
    • The role of disease characteristics in the ethical debate on personal genome testing
    • Bunnik, E. M., M. H. Schermer, and A. C. Janssens. 2012. The role of disease characteristics in the ethical debate on personal genome testing. BMC Medical Genomics 5: 4. doi:10.1186/1755-8794-5-4
    • (2012) BMC Medical Genomics , vol.5 , pp. 4
    • Bunnik, E.M.1    Schermer, M.H.2    Janssens, A.C.3
  • 4
    • 84865523312 scopus 로고    scopus 로고
    • Factors that influence parental attitudes toward enrollment in type 1 diabetes trials
    • Buscariollo, D. L., M. A. Davidson, M. Black, W. E. Russell, R. L. Rothman, and D. J. Moore. 2012. Factors that influence parental attitudes toward enrollment in type 1 diabetes trials. PLoS One 7(8): e44341. doi:10.1371/journal.pone.0044341
    • (2012) PLoS One , vol.7 , Issue.8
    • Buscariollo, D.L.1    Davidson, M.A.2    Black, M.3    Russell, W.E.4    Rothman, R.L.5    Moore, D.J.6
  • 5
    • 39149107064 scopus 로고    scopus 로고
    • A direct comparison of research decision-making capacity: Schizophrenia/schizoaffective, medically ill, and non-ill subjects
    • Candilis, P. J., K. E. Fletcher, C. M. Geppert, C. W. Lidz, and P. S. Appelbaum. 2008. A direct comparison of research decision-making capacity: Schizophrenia/schizoaffective, medically ill, and non-ill subjects. Schizophrenia Research 99(1-3): 350-358.
    • (2008) Schizophrenia Research , vol.99 , Issue.1-3 , pp. 350-358
    • Candilis, P.J.1    Fletcher, K.E.2    Geppert, C.M.3    Lidz, C.W.4    Appelbaum, P.S.5
  • 7
    • 0025756675 scopus 로고
    • Survival and quality of life among patients receiving unproven as compared with conventional cancer therapy
    • Cassileth, B. R., E. J. Lusk, D. Guerry, et al. 1991. Survival and quality of life among patients receiving unproven as compared with conventional cancer therapy. New England Journal of Medicine 324(17):1180-1185.
    • (1991) New England Journal of Medicine , vol.324 , Issue.17 , pp. 1180-1185
    • Cassileth, B.R.1    Lusk, E.J.2    Guerry, D.3
  • 8
    • 0032958316 scopus 로고    scopus 로고
    • Epidemiology of Diabetes Interventions and Complications (EDIC). Design, implementation, and preliminary results of a long-term follow-up of the Diabetes Control and Complications Trial cohort
    • Diabetes Control and Complications Trial
    • [Diabetes Control and Complications Trial]. 1999. Epidemiology of Diabetes Interventions and Complications (EDIC). Design, implementation, and preliminary results of a long-term follow-up of the Diabetes Control and Complications Trial cohort. Diabetes Care 22(1): 99-111.
    • (1999) Diabetes Care , vol.22 , Issue.1 , pp. 99-111
  • 9
    • 0016823810 scopus 로고
    • "Mini-mental state." A practical method for grading the cognitive state of patients for the clinician
    • Folstein, M. F., S. E. Folstein, and P. R. McHugh. 1975. "Mini-mental state." A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research 12(3): 189-198.
    • (1975) Journal of Psychiatric Research , vol.12 , Issue.3 , pp. 189-198
    • Folstein, M.F.1    Folstein, S.E.2    McHugh, P.R.3
  • 10
    • 0001621471 scopus 로고
    • Note on an exact treatment of contingency, goodness of fit and other problems of significance
    • Freeman, G. H., and J. H. Halton. 1951. Note on an exact treatment of contingency, goodness of fit and other problems of significance. Biometrika 38: 141-149.
    • (1951) Biometrika , vol.38 , pp. 141-149
    • Freeman, G.H.1    Halton, J.H.2
  • 11
    • 77953033662 scopus 로고    scopus 로고
    • Ethical issues of predictive genetic testing for diabetes
    • Haga, S. B. 2009. Ethical issues of predictive genetic testing for diabetes. Journal of Diabetes Science and Technology 3(4): 781-788.
    • (2009) Journal of Diabetes Science and Technology , vol.3 , Issue.4 , pp. 781-788
    • Haga, S.B.1
  • 12
    • 35748939045 scopus 로고    scopus 로고
    • Participation preferences of patients with acute and chronic conditions
    • Hamann, J., B. Neuner, J. Kasper, et al. 2007. Participation preferences of patients with acute and chronic conditions. Health Expectations 10(4): 358-363. doi:10.1111/j.1369-7625.2007.00458.x
    • (2007) Health Expectations , vol.10 , Issue.4 , pp. 358-363
    • Hamann, J.1    Neuner, B.2    Kasper, J.3
  • 15
    • 0347022297 scopus 로고    scopus 로고
    • Influences upon willingness to participate in schizophrenia research: An analysis of narrative data from 63 people with schizophrenia
    • Kaminsky, A., L. W. Roberts, and J. L. Brody. 2003. Influences upon willingness to participate in schizophrenia research: An analysis of narrative data from 63 people with schizophrenia. Ethics and Behavior 13(3): 279-302.
    • (2003) Ethics and Behavior , vol.13 , Issue.3 , pp. 279-302
    • Kaminsky, A.1    Roberts, L.W.2    Brody, J.L.3
  • 16
    • 0037509847 scopus 로고    scopus 로고
    • Participating in the United Kingdom Prospective Diabetes Study (UKPDS): A qualitative study of patients' experiences
    • Lawton, J., A. Fox, C. Fox, and A. L. Kinmonth. 2003. Participating in the United Kingdom Prospective Diabetes Study (UKPDS): A qualitative study of patients' experiences. British Journal of General Practice 53(490): 394-398.
    • (2003) British Journal of General Practice , vol.53 , Issue.490 , pp. 394-398
    • Lawton, J.1    Fox, A.2    Fox, C.3    Kinmonth, A.L.4
  • 18
    • 0031182779 scopus 로고    scopus 로고
    • Communication of preferences for care among human immunodeficiency virus-infected patients. Barriers to informed decisions
    • Mouton, C., J. M. Teno, V. Mor, and J. Piette. 1997. Communication of preferences for care among human immunodeficiency virus-infected patients. Barriers to informed decisions? Archives of Family Medicine 6(4): 342-347.
    • (1997) Archives of Family Medicine , vol.6 , Issue.4 , pp. 342-347
    • Mouton, C.1    Teno, J.M.2    Mor, V.3    Piette, J.4
  • 19
    • 84856003217 scopus 로고    scopus 로고
    • National Diabetes Information Clearinghouse (NDIC), Bethesda, MD, Bethesda, MD,: National Institute of Diabetes and Digestive and Kidney Diseases, Available at
    • National Diabetes Information Clearinghouse (NDIC). 2011. National diabetes statistics. Bethesda, MD: National Institute of Diabetes and Digestive and Kidney Diseases. Available at: http://diabetes.niddk.nih.gov/dm/pubs/statistics/DM_Statistics_508.pdf
    • (2011) National diabetes statistics
  • 20
    • 21744458760 scopus 로고    scopus 로고
    • Assessment of capacity to consent to research among older persons with schizophrenia, Alzheimer disease, or diabetes mellitus: Comparison of a 3-item questionnaire with a comprehensive standardized capacity instrument
    • Palmer, B. W., L. B. Dunn, P. S. Appelbaum, et al. 2005. Assessment of capacity to consent to research among older persons with schizophrenia, Alzheimer disease, or diabetes mellitus: Comparison of a 3-item questionnaire with a comprehensive standardized capacity instrument. Archives of General Psychiatry 62(7): 726-733.
    • (2005) Archives of General Psychiatry , vol.62 , Issue.7 , pp. 726-733
    • Palmer, B.W.1    Dunn, L.B.2    Appelbaum, P.S.3
  • 21
    • 35348837154 scopus 로고    scopus 로고
    • Risk perception and decision processes underlying informed consent to research participation
    • Reynolds, W. W., and R. M. Nelson. 2007. Risk perception and decision processes underlying informed consent to research participation. Social Science and Medicine 65(10): 2105-2115. doi:10.1016/j.socscimed.2007.06.021
    • (2007) Social Science and Medicine , vol.65 , Issue.10 , pp. 2105-2115
    • Reynolds, W.W.1    Nelson, R.M.2
  • 22
    • 0036218887 scopus 로고    scopus 로고
    • Patient and psychiatrist ratings of hypothetical schizophrenia research protocols: Assessment of harm potential and factors influencing participation decisions
    • Roberts, L. W., T. D. Warner, J. L. Brody, B. Roberts, J. Lauriello, and C. Lyketsos. 2002. Patient and psychiatrist ratings of hypothetical schizophrenia research protocols: Assessment of harm potential and factors influencing participation decisions. American Journal of Psychiatry 159(4): 573-584.
    • (2002) American Journal of Psychiatry , vol.159 , Issue.4 , pp. 573-584
    • Roberts, L.W.1    Warner, T.D.2    Brody, J.L.3    Roberts, B.4    Lauriello, J.5    Lyketsos, C.6
  • 23
    • 33645224752 scopus 로고    scopus 로고
    • Perspectives on medical research involving men in schizophrenia and HIV-related protocols
    • Roberts, L. W., T. D. Warner, K. A. Green Hammond, and C. M. Geppert. 2006. Perspectives on medical research involving men in schizophrenia and HIV-related protocols. Schizophrenia Bulletin 32(2): 360-365.
    • (2006) Schizophrenia Bulletin , vol.32 , Issue.2 , pp. 360-365
    • Roberts, L.W.1    Warner, T.D.2    Green Hammond, K.A.3    Geppert, C.M.4
  • 24
    • 1642537720 scopus 로고    scopus 로고
    • Schizophrenia patients' and psychiatrists' perspectives on ethical aspects of symptom re-emergence during psychopharmacological research participation
    • Roberts, L. W., T. D. Warner, K. D. Nguyen, C. D. Geppert, M. D. Rogers, and B. D. Roberts. 2003. Schizophrenia patients' and psychiatrists' perspectives on ethical aspects of symptom re-emergence during psychopharmacological research participation. Psychopharmacology (Berl.) 171(1): 58-67.
    • (2003) Psychopharmacology (Berl.) , vol.171 , Issue.1 , pp. 58-67
    • Roberts, L.W.1    Warner, T.D.2    Nguyen, K.D.3    Geppert, C.D.4    Rogers, M.D.5    Roberts, B.D.6
  • 25
    • 61649099807 scopus 로고    scopus 로고
    • Barriers to clinical research participation in a diabetes randomized clinical trial
    • Robiner, W. N., J. A. Yozwiak, D. L. Bearman, T. D. Strand, and K. R. Strasburg. 2009. Barriers to clinical research participation in a diabetes randomized clinical trial. Social Science and Medicine 68(6): 1069-1074. doi:10.1016/j.socscimed.2008.12.025
    • (2009) Social Science and Medicine , vol.68 , Issue.6 , pp. 1069-1074
    • Robiner, W.N.1    Yozwiak, J.A.2    Bearman, D.L.3    Strand, T.D.4    Strasburg, K.R.5
  • 28
    • 0002580610 scopus 로고
    • On heterogeneity tests based on efficient score
    • Tarone, R. E. 1985. On heterogeneity tests based on efficient score. Biometrika 72: 91-95.
    • (1985) Biometrika , vol.72 , pp. 91-95
    • Tarone, R.E.1
  • 29
    • 0028910825 scopus 로고
    • Informed consent for phase I studies: Evaluation of quantity and quality of information provided to patients
    • Tomamichel, M., C. Sessa, S. Herzig, et al. 1995. Informed consent for phase I studies: Evaluation of quantity and quality of information provided to patients. Annals of Oncology 6(4): 363-369.
    • (1995) Annals of Oncology , vol.6 , Issue.4 , pp. 363-369
    • Tomamichel, M.1    Sessa, C.2    Herzig, S.3
  • 31
    • 0026877917 scopus 로고
    • The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection
    • Ware, J. E., Jr., and C. D. Sherbourne. 1992. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care 30(6): 473-483.
    • (1992) Medical Care , vol.30 , Issue.6 , pp. 473-483
    • Ware Jr., J.E.1    Sherbourne, C.D.2
  • 32
    • 0141678175 scopus 로고    scopus 로고
    • Pharmacogenomics, genetic testing and ethnic variability: Tackling the ethical questions
    • Winkelmann, B. R. 2003. Pharmacogenomics, genetic testing and ethnic variability: Tackling the ethical questions. Pharmacogenomics 4(5): 531-535. doi: 10.1517/phgs.4.5.531.23801
    • (2003) Pharmacogenomics , vol.4 , Issue.5 , pp. 531-535
    • Winkelmann, B.R.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.