Evaluating deceased organ donation: A programme theory approach

Journal of Health Organization and Management

Volumn 28, Issue 3, 2014, Pages 366-385

  Manzano, Ana ^a   Pawson, Ray ^a  

^a UNIVERSITY OF LEEDS   (United Kingdom)

Author keywords

Complex adaptive systems; Organ donation; Programme theory; Realist evaluation; Transplant coordination regimes; Transplantation services

Indexed keywords

ARTICLE; CADAVER; DONOR; HUMAN; METHODOLOGY; ORGAN TRANSPLANTATION; ORGANIZATION AND MANAGEMENT; POLICY; PROGRAM EVALUATION; THEORETICAL MODEL; TOTAL QUALITY MANAGEMENT; TRANSPLANTATION; UNITED KINGDOM;

CADAVER; GREAT BRITAIN; HUMANS; MODELS, THEORETICAL; ORGAN TRANSPLANTATION; ORGANIZATIONAL POLICY; PROGRAM EVALUATION; QUALITY IMPROVEMENT; TISSUE AND ORGAN PROCUREMENT; TISSUE DONORS;

EID: 84907073739     PISSN: 14777266     EISSN: None     Source Type: Journal    
DOI: 10.1108/JHOM-07-2012-0131     Document Type: Article

References (68)

1. Abadie, A. and Gay, S. (2006), "The impact of presumed consent legislation on cadaveric organ donation: a cross-country study," Journal of Health Economics, Vol. 25 No. 4, pp. 599-620.
2. Astbury, B. and Leeuw, F. L. (2010), "Unpacking black boxes: mechanisms and theory-building in evaluation," American Journal of Evaluation, Vol. 31 No. 3, pp. 363-381.
3. Bailey, C., Murphy, R. and Porock, D. (2011), "Trajectories of end-of-life care in the emergency department," Annals of Emergency Medicine, Vol. 57 No. 4, pp. 362-369.
4. Batalden, P. B. and Davidoff, F. (2007), "What is 'quality improvement' and how can it transform healthcare?," Quality and Safety in Health Care, Vol. 16 No. 1, pp. 2-3.
5. Berwick, D. (2008), "The science of improvement," Journal of the American Medical Association, Vol. 299 No. 10, pp. 1182-1184.
6. Bilgel, F. (2012), "The impact of presumed consent laws and institutions on deceased organ donation," European Journal Health Economics, Vol. 13 No. 1, pp. 29-38.
7. British Medical Association (2009), "Organ donation briefing," available at: www. bma. org. uk/images/organdonationbriefing_tcm41-206095. pdf (accessed 4 April 2014).
8. British Medical Association (2012), Building on Progress: Where Next for Organ Donation Policy in the UK? British Medical Association, London.
9. Caballero, F., Puig, M., Santos, J. A., Deulofeu, R., Ballarín, J., Charco, R. and Leal, J. (2012a), "Successful transplantation of organs from a donor with postneurosurgical meningitis caused by Escherichia coli," Transplantation, Vol. 93 No. 3, pp. e11-e13.
10. Caballero, F., Puig, M., Leal, J., Huayhualla, C., Manzano-Santaella, A., Ris, J. and Benito, S. (2012b), "Family interview guide for requesting organ donation for transplantation. An evaluation using the appraisal of guidelines research and evaluation instrument (AGREE II)," Organ, Tissues and Cells, Vol. 15 No. 3, pp. 163-169.
11. Chen, H. T. and Rossi, P. H. (1980), "The multi-goal, theory-driven approach to evaluation: a model lining basic and applied social science," Social Forces, Vol. 59 No. 1, pp. 106-122.
12. Coryn, C, Noakes, L. A., Westine, C. D. and Schröter, D. C. (2010), "A systematic review of theorydriven evaluation practice from 1990 to 2009," American Journal of Evaluation, Vol. 32 No. 1, pp. 1-28.
13. Department of Health (2008a), Organs for Transplants. A report from the Organ Donation Taskforce, Department of Health, London.
14. Department of Health (2008b), The Potential Impact of an Opt Out System for Organ Donation in the UK. An Independent Report From The Organ Donation Taskforce, Department of Health, London.
15. Department of Health (2010), Review of The Organ Donor Register: Report to the Secretary of State for Health, Department of Health, London.
16. Department of Health (2011), Working Together to Save Lives. The Organ Donation Taskforce Implementation Programme's Final Report, 2011, Department of Health, London.
17. Dolowitz, D. P. and Marsh, D. (2000), "Learning from abroad: the role of policy transfer in contemporary policy-making," Governance, Vol. 13 No. 1, pp. 5-23.
18. Donaldson, S. I. (2007), Program Theory-Driven Evaluation Science, Lawrence, New York, NY.
19. DVLA (2006), DVLA Annual Report & Accounts 2006-2007, The Stationary Office, London.
20. European Commission (2003), "Human organ transplantation in Europe: an overview," Luxembourg, available at: http://ec. europa. eu/health/ph_threats/human_substance/documents/organ_survey. pdf (accessed 11 December 2011).
21. Fabre, J., Murphy, P. and Matesanz, R. (2010), "Presumed consent is unnecessary," British Medical Journal, Vol. 341 No. 7779, pp. 922-924.
22. Funnell, S. and Rogers, P. (2011), Purposeful Program Theory: Effective Use of Theories of Change and Logic Models, Wiley, London.
23. George, A. and Bennett, A. (2005), Case Studies and Theory Development in the Social Sciences, MIT Press, Cambridge, MA.
24. Gómez, P. and de Santiago, C. (2008), "La entrevista familiar. Técnica y resultados" (The family interview. Technique and results), in Matesanz, R. (Ed.), El Modelo Español de Coordinación y Transplantes (The Spanish Model of Coordination and Transplantation), Aula Médica, Madrid, pp. 105-119.
25. Guadagnoli, E., Christiansen, C. L., DeJong, W., McNamara, P., Beasley, C., Christiansen, E. and Evanisko, M. (1999), "The public's willingness to discuss their preference for organ donation with family members," Clinical Transplantation, Vol. 13 No. 4, pp. 342-348.
26. Hayes, L., Service, O., Goldacre, B. and Torgerson, D. (2012), Test, Learn, Adapt: Developing Public Policy with Randomised Controlled Trials, Cabinet Office Behavioural Insight Team, London, available at: www. gov. uk/government/publications/test-learn-adapt-developingpublic-policy-with-randomised-controlled-trials.
27. Johnson, E. J. and Goldstein, D. J. (2004), "Default and donation decisions," Transplantation, Vol. 78 No. 12, pp. 1713-1716.
28. Kübler-Ross, E. (1969), On Death and Dying, Tavistock Publications, London.
29. Leeuw, F. L. (2003), "Reconstructing program theories: methods available and problems to be solved," American Journal of Evaluation, Vol. 24 No. 1, pp. 5-20.
30. Liamputtong, P. (2007), Researching the Vulnerable: A Guide to Sensitive Research Methods, Sage, London.
31. Lock, M. and Crowley-Makota, M. (2008), "Situating the practice of organ donation in familiar, cultural, and political context," Transplantation Reviews, Vol. 22 No. 3, pp. 154-157.
32. López-Navidad, A. and Caballero, F. (2003), "Extended criteria for organ acceptance. Strategies for achieving organ safety and for increasing organ pool," Clinical Transplantation, Vol. 17 No. 4, pp. 308-324.
33. McLaughlin, J. A. and Jordan, G. B. (2004), "Logic models: a tool for telling your program's performance story," Evaluation and Program Planning, Vol. 22 No. 1, pp. 65-72.
34. McMaster, P. and Vadeyar, H. (2000), "Spain model: world leaders in organ donation," Liver Transplantation, Vol. 6 No. 4, pp. 501-512.
35. Manara, A., Murphy, P. and O'Callaghan, G. (2012), "Donation after circulatory death," British Journal of Anaesthesia, Vol. 108 No. 1, pp. i108-i121.
36. Matesanz, R. and Miranda, B. (2002), "A decade of continuous improvement in cadaveric organ donation: the Spanish model," Journal of Nephrology, Vol. 15 No. 1, pp. 22-28.
37. Matesanz, R. and Domínguez-Gil, B. (2007), "Strategies to optimize deceased organ donation," Transplantation Reviews, Vol. 21 No. 4, pp. 177-188.
38. Matesanz, R., Coll, E., Domínguez-Gil, B., de la Rosa, G., Marazuela, R., Arráez, V., Elorrieta, P., Fernández-García, A., Fernández-Renedo, C., Galán, J., Gómez-Marinero, P., Martín-Delagebasala, C., Martín-Jiménez, S., Masnou, N., Salamero, P., Sánchez-Ibáñez, J., Serna, E., Martínez-Soba, F., Pastor-Rodríguez, A., Bouzas, E. and Castro, P. (2012), "Benchmarking in the process of donation after brain death: a methodology to identify best performer hospitals," American Journal of Transplantation, Vol. 12 No. 9, pp. 2498-2506.
39. Moraes, B. N., Bacal, F., Teixeira, M. C. T. V., Fiorelli, A. I., Leite, P. L., Fiorelli, L. R., Stolf, N. A. G. and Bocchi, E. A. (2009), "Behavior profile of family members of donors and nondonors of organs," Transplantation Proceedings, Vol. 41 No. 3, pp. 799-801.
40. Morgan, S. E., Stephenson, M. T., Harrison, T. R., Afifi, W. A. and Long, S. D. (2008), "Facts versus feelings: how rational is the decision to become an organ donor?," Journal of Health Psychology, Vol. 13 No. 5, pp. 644-658.
41. Neuberger, J. (2012), "Rationing life-saving resources-how should allocation policies be assessed in solid organ transplantation," Transplant International, Vol. 25 No. 1, pp. 3-6.
42. NHS Blood and Transplant (2010), "Donation after circulatory death," report of a consensus meeting, NHS Blood and Transplant, Bristol, July, pp. 2-45.
43. Pawson, R. (2013), The Science of Evaluation: A Realist Manifesto, Sage, London.
44. Pawson, R. and Sridharan, S. (2010), "Theory-driven evaluation of public health programmes," in Killoran, A. and Kelly, A. (Eds), Evidence Based Public Health, Oxford University Press, Oxford, pp. 43-62.
45. Pawson, R. and Tilley, N. (1997), Realistic Evaluation, Sage, London.
46. Plsek, P. E. and Greenhalgh, T. (2001), "The challenge of complexity in health care," British Medical Journal, Vol. 323 No. 7313, pp. 625-628.
47. Pont Castellana, T., Masnou Burralló, N., Gràcia Gonzalo, R. M., Barreto, M., Duque Guilera, E., Portillo Díez, J., Vila Granè, N., Salamero Barò, P. and Deulofeu Vilarnau, R. (2008), "Health care professionals: what do they know about organ donation?," Progress in Transplantation, Vol. 18 No. 2, pp. 141-145.
48. Rithalia, A., McDaid, C., Suekarran, S., Norman, G., Myers, L. and Sowden, A. (2009), "A systematic review of presumed consent systems for deceased organ donation," Health Technology Assessment, Vol. 13 No. 26, doi: 10. 3310/hta13260, available at www. hta. ac. uk/fullmono/mon1326. pdf (accessed 4 April 2014).
49. Rodríguez-Arias, D., Wright, L. and Paredes, D. (2010), "Success factors and ethical challenges of the Spanish model of organ donation," The Lancet, Vol. 376 No. 9746, pp. 1109-1112.
50. Rogers, P., Petrosino, A., Hacsi, T. and Huebner, T. (2000), "Program theory evaluation: practice, promise and problem," in Rogers, P., Petrosino, A., Hacsi, T. and Huebner, T. (Eds), Program Theory Evaluation: Challenges and Opportunities, New Directions in Evaluation Series Jossey-Bass, San Francisco, CA, pp. 5-13.
51. Science and Technology Select Committee (2011), Behaviour Change Report, The Stationery Office, London.
52. Siminoff, L. A. and Mercer, M. B. (2001), "Public policy, public opinion, and consent for organ donation," Cambridge Quarterly of Healthcare Ethics, Vol. 10 No. 4, pp. 377-386.
53. Simoff, L. A., Traino, H. M. and Gordon, N. H. (2011), "An exploratory study of relational, persuasive, and nonverbal communication in requests for tissue donation," Journal of Health Communication: International Perspectives, Vol. 16 No. 9, pp. 955-975.
54. Simpkin, A. L., Robertson, L. C., Barber, V. S. and Young, J. D. (2009), "Modifiable factors influencing relatives' decision to offer organ donation: systematic review," British Medical Journal, Vol. 338 No. 7702, pp. 1061-1063.
55. Steiner, P. (2009), "Organ donation: an analytical typology," Revue Française de Sociologie, Vol. 49 No. 5, pp. 125-152.
56. Stuart Mill, J. (1843), A System of Logic, Ratiocinative and Inductive, Cosimo, New York, NY.
57. Swanson, G. (1971), Framework for Comparative Research: Structural Anthropology and Theory of Action: Essay in Trends and Applications, University of University of California, Berkeley, CA.
58. Thaler, R. H. and Sunstein, C. R. (2008), Nudge: Improving Decisions About Health, Wealth and Happiness, Yale University Press, London.
59. Titmuss, R. M. (1971), The Gift Relationship. From Human Blood to Social Policy, Random House, New York, NY.
60. Van Leiden, H. A., Jansen, N. E., Haase-Kromwijk, B. J. J. M. and Hoitsma, A. J. (2010), "Higher refusal rates for organ donation among older potential donors in the Netherlands: impact of the donor register and relatives," Transplantation, Vol. 90 No. 6, pp. 677-682.
61. Velasco, J., Ayestarán, I., Homar, J., Pérez, J. and Blanco, C. (2010), "Hospital transplantador con neurocirugía (Hospitals with transplant unit and neuro-surgery department)," in Matesanz, R. (Ed.), El Modelo Español de Coordinación y Transplantes (The Spanish Model of Coordination and Transplantation), Aula Médica, Madrid, pp. 27-33.
62. Watson, R. (2010), "Pan-European organ transplant scheme promises to cut waiting times," British Medical Journal, Vol. 340, p. c2785.
63. Weber, M. (1949), The Methodology of the Social Sciences (Trans. and edited by Shils, E. and Finch, H.), Free Press, New York, NY.
64. Weiss, C. H. (1995), "Nothing as practical as good theory: exploring theory-based evaluation for comprehensive community initiatives for children and families," in Connell, J., Kubisch, A., Schorr, L. B. and Weiss, C. H. (Eds), New Approaches to Evaluating Community Initiatives: Volume 1, Concepts, Methods, and Contexts, Aspen Institute, New York, NY, pp. 65-92.
65. Weiss, C. H. (1997), "Theory-based evaluation: past, present and future," New Directions for Evaluation, Vol. 1997 No. 76, pp. 41-55.
66. Welsh Government (2011), AWelsh GovernmentWhite Paper No. WG13956, Welsh Government Consultation Document Proposals for Legislation on Organ and Tissue Donation Welsh Government, Cardiff, 8 November.
67. Welsh Government (2013), "Organ donation," available at: http://wales. gov. uk/topics/health/nhswales/majorhealth/organ/?lang=en (accessed 1 April 2013).
68. WHO (2011), "Third WHO Global consultation on organ donation and transplantation: striving to achieve self-sufficiency, March 23-25, 2010, Madrid, Spain," Transplantation, Vol. 91 No. 11S, pp. S27-S114.