A history of health-related quality of life outcomes in psychiatry

Dialogues in Clinical Neuroscience

Volumn 16, Issue 2, 2014, Pages 127-135

  Revicki, Dennis A ^a   Kleinman, Leah ^a   Cella, David ^b  

^a EVIDERA   (United States)

^b NORTHWESTERN UNIVERSITY   (United States)

Author keywords

Health related quality of life; Patient reported outcome; Psychiatric outcome; Psychiatric symptom; Quality of life

Indexed keywords

ARTICLE; BIPOLAR DISORDER; CLINICAL ASSESSMENT; CLINICAL EFFECTIVENESS; CLINICAL PRACTICE; COGNITION; COGNITIVE DEFECT; COMPARATIVE EFFECTIVENESS; HUMAN; LIFE SATISFACTION; MENTAL DISEASE; MENTAL PATIENT; OUTCOME ASSESSMENT; OUTCOMES RESEARCH; PATIENT CARE; PATIENT SATISFACTION; PHYSICAL DISEASE; PSYCHIATRY; PSYCHOLOGICAL WELL BEING; QUALITY OF LIFE; SCHIZOPHRENIA; SELF REPORT; SHORT FORM 36; SIDE EFFECT; SOCIAL INTERACTION; SOCIAL STATUS; MENTAL DISORDERS; PSYCHOLOGY; TREATMENT OUTCOME;

HUMANS; MENTAL DISORDERS; OUTCOME ASSESSMENT (HEALTH CARE); PSYCHIATRY; QUALITY OF LIFE; SELF REPORT; TREATMENT OUTCOME;

EID: 84906704089     PISSN: 12948322     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (55)

1. McCabe R, Saidi M, Priebe S. Patient-reported outcomes in schizophrenia. Br J Psychiatry Suppl. 2007;50:s21-s28.
2. Awad AG, Voruganti LN. Measuring quality of life in patients with schizophrenia: an update. Pharmacoeconomics. 2012;30:183-195.
3. Reininghaus U, Priebe S. Measuring patient-reported outcomes in psychosis: conceptual and methodological review. Br J Psychiatry. 2012;201:262-267.
4. Carpenter WT, Jr, Hanlon TE, Heinrichs DW, et al. Continuous versus targeted medication in schizophrenic outpatients: outcome results. Am J Psychiatry. 1990;147:1138-1148.
5. Meltzer HY, Burnett S, Bastani B, Ramirez LF. Effects of six months of clozapine treatment on the quality of life of chronic schizophrenic patients. Hosp Community Psychiatry. 1990;41:892-897.
6. Revicki DA, Genduso LA, Hamilton SH, Ganoczy D, Beasley CM, Jr. Olanzapine versus haloperidol in the treatment of schizophrenia and other psychotic disorders: quality of life and clinical outcomes of a randomized clinical trial. Qual Life Res. 1999;8:417-426.
7. Swartz MS, Perkins DO, Stroup TS, et al. Effects of antipsychotic medications on psychosocial functioning in patients with chronic schizophrenia: findings from the NIMH CATIE study. Am J Psychiatry. 2007;164:428-436.
8. Fervaha G, Foussias G, Siddiqui I, Agid O, Remington G. Abbreviated quality of life scales for schizophrenia: Comparison and utility of two brief community functioning measures. Schizophr Res. 2014;154:89-92.
9. Heinrichs DW, Hanlon TE, Carpenter WT, Jr. The Quality of Life Scale: an instrument for rating the schizophrenic deficit syndrome. Schizophr Bull. 1984;10:388-398.
10. Lehman AF. Measures of quality of life among persons with severe and persistent mental disorders. Soc Psychiatry Psychiatr Epidemiol. 1996;31:78-88.
11. Food and Drug Administration. Guidance for industry on patientreported outcome measures: use in medical product development to support labeling claims. Federal Register. 2009;74:65132-65133.
12. Endicott J, Nee J, Harrison W, Blumenthal R. Quality of Life Enjoyment and Satisfaction Questionnaire: a new measure. Psychopharmacol Bull. 1993;29:321-326.
13. Lehman AF. A quality of life interview for the chronically mentally ill. Eval Program Plan. 1988;11:51-61.
14. Atkinson M, Zibin S, Chuang H. Characterizing quality of life among patients with chronic mental illness: a critical examination of the selfreport methodology. Am J Psychiatry. 1997;154:99-105.
15. Glazer W, Sholomskas D, Williams D, Weissman M. Chronic schizophrenics in the community: are they able to report their social adjustment? Am J Orthopsychiatry. 1982;52:166-171.
16. Awad AG, Hogan TP, Voruganti LN, Heslegrave RJ. Patients' subjective experiences on antipsychotic medications: implications for outcome and quality of life. Int Clin Psychopharmacol. 1995;10(suppl 3):123-132.
17. Dickey B, Wagenaar H, Stewart A. Using health status measures with the seriously mentally ill in health services research. Med Care. 1996;34:112-116.
18. Russo J, Trujillo CA, Wingerson D, et al. The MOS 36-Item Short Form Health Survey: reliability, validity, and preliminary findings in schizophrenic outpatients. Med Care. 1998;36:752-756.
19. Reininghaus U, McCabe R, Burns T, Croudace T, Priebe S. The validity of subjective quality of life measures in psychotic patients with severe psychopathology and cognitive deficits: an item response model analysis. Qual Life Res. 2012;21:237-246.
20. Wilson IB, Cleary PD. Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA. 1995;273:59-65.
21. Mechanic D, McAlpine D, Rosenfield S, Davis D. Effects of illness attribution and depression on the quality of life among persons with serious mental illness. Soc Sci Med. 1994;39:155-164.
22. Corrigan PW, Buican B. The construct validity of subjective quality of life for the severely mentally ill. J Nerv Ment Dis. 1995;183:281-285.
23. Wilkinson G, Hesdon B, Wild D, et al. Self-report quality of life measure for people with schizophrenia: the SQLS. Br J Psychiatry. 2000;177:42-46.
24. Pukrop R, Schlaak V, Moller-Leimkuhler AM, et al. Reliability and validity of Quality of Life assessed by the Short-Form 36 and the Modular System for Quality of Life in patients with schizophrenia and patients with depression. Psychiatry Research. 2003;119:63-79.
25. Sim K, Mahendran R, Siris SG, Heckers S, Chong SA. Subjective quality of life in first episode schizophrenia spectrum disorders with comorbid depression. Psychiatry Res. 15 2004;129:141-147.
26. Orsel S, Akdemir A, Dag I. The sensitivity of quality-of-life scale WHOQOL-100 to psychopathological measures in schizophrenia. Compr Psychiatry. 2004;45:57-61.
27. Ritsner M, Kurs R, Ratner Y, Gibel A. Condensed version of the Quality of Life Scale for schizophrenia for use in outcome studies. Psychiatry Res. 15 2005;135:65-75.
28. Ritsner M, Kurs R, Gibel A, Ratner Y, Endicott J. Validity of an abbreviated quality of life enjoyment and satisfaction questionnaire (Q-LES-Q-18) for schizophrenia, schizoaffective, and mood disorder patients. Qual Life Res. 2005;14:1693-1703.
29. Eack SM, Newhill CE. Psychiatric symptoms and quality of life in schizophrenia: a meta-analysis. Schizophr Bull. 2007;33:1225-1237.
30. Vatne S, Bjorkly S. Empirical evidence for using subjective quality of life as an outcome variable in clinical studies A meta-analysis of correlates and predictors in persons with a major mental disorder living in the community. Clin Psychol Rev. 2008;28:869-889.
31. Priebe S, Reininghaus U, McCabe R, et al. Factors influencing subjective quality of life in patients with schizophrenia and other mental disorders: a pooled analysis. Schizophr Res. 2010;121:251-258.
32. Priebe S, McCabe R, Junghan U, et al. Association between symptoms and quality of life in patients with schizophrenia: a pooled analysis of changes over time. Schizophr Res. 2011;133:17-21.
33. Skantze K, Malm U, Dencker SJ, PR, Corrigan P. Comparison of quality of life with standard of living in schizophrenic out-patients. Br J Psychiatry. 1992;161:797-801.
34. Brekke JS, Kohrt B, Green MF. Neuropsychological functioning as a moderator of the relationship between psychosocial functioning and the subjective experience of self and life in schizophrenia. Schizophr Bull. 2001;27:697-708.
35. Green MF, Kern RS, Heaton RK. Longitudinal studies of cognition and functional outcome in schizophrenia: implications for MATRICS. Schizophr Res. 2004;72:41-51.
36. Fujii DE, Wylie AM, Nathan JH. Neurocognition and long-term prediction of quality of life in outpatients with severe and persistent mental illness. Schizophr Res. 2004;69:67-73.
37. Wegener S, Redoblado-Hodge MA, Lucas S, Fitzgerald D, Harris A, Brennan J. Relative contributions of psychiatric symptoms and neuropsychological functioning to quality of life in first-episode psychosis. Aust N Z J Psychiatry. 2005;39:487-492.
38. Galletly CA, Clark CR, McFarlane AC, Weber DL. Relationships between changes in symptom ratings, neurophysiological test performance and quality of life in schizophrenic patients treated with clozapine. Psychiatry Res. 1997;72:161-166.
39. Ritsner M. Comparison of instruments for measuring the quality of life impairment syndrome in severe mental disorders. In: Ritsner M, Awad AG, eds. Quality of Life Impairment in Schizophrenia, Mood and Anxiety Disorders: New Perspectives on Research and Treatment. New York, NY: Springer; 2007:133-142.
40. Cella D, Yount S, Rothrock N, et al. The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Med Care. 2007;45(5 suppl 1):S3-S11.
41. Cella D, Riley W, Stone A, et al. The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008. J Clin Epidemiol. 2010;63:1179-1194.
42. Uher R, Farmer A, Maier W, et al. Measuring depression: comparison and integration of three scales in the GENDEP study. Psychol Med. 2008;38:289-300.
43. Revicki DA, Chen WH, Frank L, Feltner D, Morlock R. Development and analysis of item response theory based short form depression severity scales based on the HDRS and MADRS. Health Outcomes Research in Medicine. 2010:e111-e112.
44. Schechter D, Endicott J, Nee J. Quality of life of 'normal' controls: association with lifetime history of mental illness. Psychiatry Res. 2007;152:45-54.
45. Mick E, Faraone SV, Spencer T, Zhang HF, Biederman J. Assessing the validity of the Quality of Life Enjoyment and Satisfaction Questionnaire Short Form in adults with ADHD. J Atten Disord. 2008;11:504-509.
46. Revicki DA, Brandenburg N, Matza L, Hornbrook MC, Feeny D. Health-related quality of life and utilities in primary-care patients with generalized anxiety disorder. Qual Life Res. 2008;17:1285-1294.
47. Demyttenaere K, Andersen HF, Reines EH. Impact of escitalopram treatment on Quality of Life Enjoyment and Satisfaction Questionnaire scores in major depressive disorder and generalized anxiety disorder. Int Clin Psychopharmacol. 2008;23:276-286.
48. Wyrwich KW, Harnam N, Locklear JC, Svedsater H, Revicki DA. Understanding the relationships between health outcomes in generalized anxiety disorder clinical trials. Qual Life Res. 2011;20:255-262.
49. Stewart AL, Ware JE. Measuring Functioning and Well-Being: The Medical Outcomes Study Approach. Durham, NC: Duke University Press; 1992.
50. Ware JE, Snow KK, Kosinski M, Gandek B. SF-36 Health Survey: Manual and Interpretation Guide. Boston, MA: The Health Institute, New England Medical Center; 1993.
51. Ware JE, Kosinski M, Dewey JE. How to Score Version Two of the SF-36 Health Survey. Lincoln, RI: QualityMetric, Inc; 2000.
52. Pilkonis PA, Choi SW, Reise SP, et al. Item banks for measuring emotional distress from the Patient-Reported Outcomes Measurement Information System (PROMIS(R)): depression, anxiety, and anger. Assessment. 2011;18:263-283.
53. Cella D, Lai JS, Nowinski CJ, et al. Neuro-QOL: brief measures of health-related quality of life for clinical research in neurology. Neurology. 2012;78:1860-1867.
54. Gershon RC, Lai JS, Bode R, et al. Neuro-QOL: quality of life item banks for adults with neurological disorders: item development and calibrations based upon clinical and general population testing. Qual Life Res. 2012;21:475-486.
55. Ahmed S, Berzon RA, Revicki DA, et al. The use of patient-reported outcomes (PRO) within comparative effectiveness research: implications for clinical practice and health care policy. Med Care. 2012;50:1060-1070.