Changes in quality of life in the first 5 years of disease in a multicenter cohort of patients with systemic lupus erythematosus

Arthritis Care and Research

Volumn 66, Issue 9, 2014, Pages 1374-1379

  Urowitz, M ^a   Gladman, D D ^a   Ibanez D ^a   Sanchez Guerrero, J ^a   Bae, S C ^b   Gordon, C ^b   Fortin, P R ^a   Clarke, A ^b   Bernatsky, S ^b   Hanly, J G ^b   Wallace, D J ^b   Isenberg, D ^b   Rahman, A ^b   Merrill, J ^b   Ginzler, E ^b   Alarcon G S ^b   Fessler, B ^b   Khamashta, M ^b   Steinsson, K ^b   Petri, M ^b   Dooley, M ^b   Bruce, I N ^b   Manzi, S ^b   Sturfelt, G ^b   Nived, O ^b   Ramsey Goldman, R ^b   Zoma, A ^b   Maddison, P ^b   Kalunian, K ^b   Van Vollenhoven, R ^b   Aranow, C ^b   Romero Diaz, J ^b   Stoll, T ^b   more..

^a UNIVERSITY OF TORONTO   (Canada)

^b Systemic Lupus International Collaborating Clinics   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CLINICAL PROTOCOL; COHORT ANALYSIS; DISEASE DURATION; FEMALE; FOLLOW UP; HUMAN; MAJOR CLINICAL STUDY; MALE; MULTICENTER STUDY; OUTCOME ASSESSMENT; PREDICTIVE VALUE; QUALITY OF LIFE; QUESTIONNAIRE; SCORING SYSTEM; SHORT FORM 36; SYSTEMIC LUPUS ERYTHEMATOSUS;

ADULT; COHORT STUDIES; DISEASE PROGRESSION; FEMALE; HEALTH STATUS; HUMANS; LUPUS ERYTHEMATOSUS, SYSTEMIC; MALE; MIDDLE AGED; QUALITY OF LIFE; QUESTIONNAIRES; SEVERITY OF ILLNESS INDEX; YOUNG ADULT;

EID: 84906703030     PISSN: 2151464X     EISSN: 21514658     Source Type: Journal    
DOI: 10.1002/acr.22299     Document Type: Article

References (22)

1. Gladman D, Urowitz M, Fortin P, Isenberg D, Goldsmith C, Gordon C, and the Systemic Lupus Erythematosus International Collaborating Clinics (SLICC). Systemic Lupus International Collaborating Clinics conference on assessment of lupus flare and quality of life measures in SLE. J Rheumatol 1996; 23: 1953-5.
2. Ware JE Jr, Sherbourne CD,. The MOS 36-item Short-Form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992; 30: 473-83.
3. Brazier JE, Harper R, Jones NM, O'Cathain A, Thomas KJ, Usherwood T, et al. Validating the SF-36 health survey questionnaire: new outcome measure for primary care. BMJ 1992; 305: 160-4.
4. Ware JE Jr, Kosinski M, Keller SK,. SF-36 physical and mental health summary scales: a user's manual. Boston: The Health Institute, New England Medical Center; 1994.
5. Jolly M,. How does quality of life of patients with systemic lupus erythematosus compare with that of other common chronic illnesses? J Rheumatol 2005; 32: 1706-8.
6. Campbell R Jr, Cooper GS, Gilkeson GS,. Two aspects of the clinical and humanistic burden of systemic lupus erythematosus: mortality risk and quality of life early in the course of disease. Arthritis Rheum 2008; 59: 458-64.
7. Hochberg MC, for the Diagnostic and Therapeutic Criteria Committee of the American College of Rheumatology. Updating the American College of Rheumatology revised criteria for the classification of systemic lupus erythematosus [letter]. Arthritis Rheum 1997; 40: 1725.
8. Gladman DD, Ibanez D, Urowitz MB,. Systemic Lupus Erythematosus Disease Activity Index 2000. J Rheumatol 2002; 29: 288-91.
9. Gladman D, Ginzler E, Goldsmith C, Fortin P, Liang M, Urowitz M, et al. The development and initial validation of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index for systemic lupus erythematosus. Arthritis Rheum 1996; 39: 363-9.
10. Dobkin PL, Da Costa D, Fortin PR, Edworthy S, Barr S, Esdaile JM, et al. Living with lupus: a prospective pan-Canadian study. J Rheumatol 2001; 28: 2442-8.
11. Rumsfeld JS, MaWhinney S, McCarthy M Jr, Shroyer AL, VillaNueva CB, O'Brien M, et al. Health-related quality of life as a predictor of mortality following coronary artery bypass graft surgery. JAMA 1999; 281: 1298-303.
12. Ware JE Jr, Kosinski M, Bjorner JB, Turner-Bowker DM, Gandek B, Maruish ME,. User's manual for the SF-36v2TM health survey. 2nd ed. Lincoln (RI): QualityMetric; 2007.
13. Strand V, Crawford B, Singh J, Choy E, Smolen JS, Khanna D,. Use of "spydergrams" to present and interpret health related quality of life data across rheumatic diseases. Ann Rheum Dis 2009; 68: 1800-4.
14. Strand V, Singh JA,. Newer biological agents in rheumatoid arthritis: impact on health-related quality of life and productivity. Drugs 2010; 70: 121-45.
15. Strand V, Sharp V, Koenig AS, Park G, Shi Y, Wang B, et al. Comparison of health-related quality of life in rheumatoid arthritis, psoriatic arthritis and psoriasis and effects of etanercept treatment. Ann Rheum Dis 2012; 71: 1143-50.
16. Strand V, Crawford B,. Improvement in health-related quality of life in patients with SLE following sustained reductions in anti-dsDNA antibodies. Expert Rev Pharmacoecon Outcomes Res 2005; 5: 1-9.
17. Kuriya B, Gladman DD, Ibanez D, Urowitz MB,. Quality of life over time in patients with systemic lupus erythematosus. Arthritis Rheum 2008; 59: 181-5.
18. Strand V, Aranow C, Cardiel MH, Alarcon-Segovia D, Furie R, Sherrer Y, et al. Improvement in health-related quality of lifein systemic lupus erythematosus patients enrolled in a randomized clinical trial comparing LJP 394 treatment with placebo. Lupus 2003; 12: 677-86.
19. Strand V, Levy RA, Cervera R, Petri MA, Birch H, Freimuth WW, et al. Improvements in health related quality of life with belimumab, a B-lymphocyte stimulator-specific inhibitor, in patients with autoantibody-positive systemic lupus erythematosus from the randomized controlled BLYSS trials. Ann Rheum Dis 2014; 73: 838-44.
20. Fortin PR, Abrahamowicz M, Nevelle C, du Berger R, Fraenkel L, Clarke AE, et al. Impact of disease activity and cumulative damage on the health of lupus patients. Lupus 1998; 7: 101-7.
21. Rood MJ, Borggreve SE, Huizinga TW,. Sensitivity to change of the MOS-SF-36 quality of life assessment questionnaire in patients with systemic lupus erythematosus taking immunosuppressive therapy. J Rheumatol 2000; 28: 2057-9.
22. Hanly JG, Urowitz MB, Jackson D, Bae SC, Gordon C, Wallace DJ, et al. SF-36 summary and subscale scores are reliable outcomes of neuropsychiatric events in systemic lupus erythematosus. Ann Rheum Dis 2011; 70: 961-7.