Population-based study to determine mortality in spina bifida: New York State congenital malformations registry, 1983 to 2006

Birth Defects Research Part A - Clinical and Molecular Teratology

Volumn 100, Issue 8, 2014, Pages 563-575

  Kancherla, Vijaya ^a   Druschel, Charlotte M ^b   Oakley, Godfrey P ^a  

^a EMORY UNIVERSITY   (United States)

^b NEW YORK STATE DEPARTMENT OF HEALTH   (United States)

Author keywords

Birth defects; Cause of death; Congenital malformations registry; Hypertrophic pyloric stenosis; Long term follow up; Mortality; Spina bifida

Indexed keywords

FOLIC ACID;

ADOLESCENT; ADULT; ARTICLE; BIRTH WEIGHT; BRAIN DAMAGE; CAUSE OF DEATH; CHILD; DISABILITY; DISEASE ASSOCIATION; FEMALE; FOLLOW UP; HEART DISEASE; HEART FAILURE; HUMAN; HYDROCEPHALUS; HYPERTROPHIC PYLORUS STENOSIS; INFECTION; INJURY; KIDNEY FAILURE; LOW BIRTH WEIGHT; LUNG EMBOLISM; MAJOR CLINICAL STUDY; MALE; MATERNAL AGE; MECKEL SYNDROME; MORTALITY; OBSTRUCTIVE HYDROCEPHALUS; OVERALL SURVIVAL; PNEUMONIA; PRADER WILLI SYNDROME; PREGNANCY; PREMATURITY; PRIMARY PREVENTION; PRIORITY JOURNAL; SEPSIS; SPINAL DYSRAPHISM; TRISOMY 13; TRISOMY 18; URINARY TRACT INFECTION; HEALTH SURVEY; INFANT; PRESCHOOL CHILD; PYLORIC STENOSIS, HYPERTROPHIC; REGISTER; UNITED STATES; YOUNG ADULT;

ADOLESCENT; ADULT; CAUSE OF DEATH; CHILD; CHILD, PRESCHOOL; FEMALE; HUMANS; INFANT; MALE; NEW YORK; POPULATION SURVEILLANCE; PYLORIC STENOSIS, HYPERTROPHIC; REGISTRIES; SPINAL DYSRAPHISM; YOUNG ADULT;

EID: 84906485893     PISSN: 15420752     EISSN: 15420760     Source Type: Journal    
DOI: 10.1002/bdra.23259     Document Type: Article

References (23)

1. Bol KA, Collins JS, Kirby RS. 2006. Survival of infants with neural tube defects in the presence of folic acid fortification. Pediatrics 117:803-813.
2. Bowman RM, McLone DG, Grant JA, Tomita T, Ito JA. 2001. Spina bifida outcome: a 25-year prospective. Pediatr Neurosurg 34:114-120.
3. Burke R, Liptak GS. 2011. Providing a primary care medical home for children and youth with spina bifida. Pediatrics 128:e1645-1657.
4. Haase J, Green A, Hauge M, Holm NV, Mathiasen H. 1987. A cohort study of neural tube defects (NTD) in Denmark covering the first seven years of life. Childs Nerv Syst 3:117-120.
5. Hunt GM, Oakeshott P. 2004. Lifestyle in adults aged 35 years who were born with open spina bifida: prospective cohort study. Cerebrospinal Fluid Res 1:4.
6. Kalucy M, Bower C, Stanley F, Burton P. 1994. Survival of infants with neural tube defects in Western Australia 1966-1990. Paediatr Perinat Epidemiol 8:334-351.
7. Laurence KM. 1974. Effect of early surgery for spina bifida cystica on survival and quality of life. Lancet 1:301-304.
8. McDonnell GV, McCann JP. 2000. Why do adults with spina bifida and hydrocephalus die? A clinic-based study. Eur J Pediatr Surg 10:31-32.
9. Mosley BS, Cleves MA, Siega-Riz AM, Shaw GM, Canfield MA, Waller DK, et al. 2009. Neural tube defects and maternal folate intake among pregnancies conceived after folic acid fortification in the United States. Am J Epidemiol 169:9-17.
10. Nembhard WN, Waller DK, Sever LE, Canfield MA. 2001. Patterns of first-year survival among infants with selected congenital anomalies in Texas, 1995-1997. Teratology 64:267-275.
11. Oakeshott P, Hunt GM, Poulton A, Reid F. 2010. Expectation of life and unexpected death in open spina bifida: a 40-year complete, non-selective, longitudinal cohort study. Dev Med Child Neurol 52:749-753.
12. Ouyang L, Grosse SD, Armour BS, Waitzman NJ. 2007. Health care expenditures of children and adults with spina bifida in a privately insured U.S. population. Birth Defects Res A Clin Mol Teratol 79:552-558.
13. Preis K, Swiatkowska-Freund M, Janczewska I. 2005. Spina bifida-a follow-up study of neonates born from 1991 to 2001. J Perinat Med 33:353-356.
14. Prevention of neural tube defects: results of the Medical Research Council Vitamin Study. MRC Vitamin Study Research Group. 1991. Lancet 338:131-137.
15. Roach JW, Short BF, Saltzman HM. 2011. Adult consequences of spina bifida: a cohort study. Clin Orthop Relat Res 469:1246-1252.
16. Rowe DE, Jadhav AL. 2008. Care of the adolescent with spina bifida. Pediatr Clin North Am 55:1359-1374, ix.
17. Sandler AD. 2010. Children with spina bifida: key clinical issues. Pediatr Clin North Am 57:879-892.
18. Shin M, Kucik JE, Siffel C, Lu C, Shaw GM, Canfield MA, Correa A. 2012. Improved Survival Among Children with Spina Bifida in the United States. J Pediatr 161:1132-1137.
19. Waitzman NJ, Romano PS, Grosse SD. 2005. The half-life of cost-of-illness estimates: the case of spina bifida. In: Wyszynski DF, ed. Neural tube defects: from origin to treatment. Oxford, UK: Oxford University Press.
20. Wang Y, Hu J, Druschel CM, Kirby RS. 2011. Twenty-five-year survival of children with birth defects in New York State: a population-based study. Birth Defects Res A Clin Mol Teratol 91:995-1003.
21. Wang Y, Hu J, Druschel CM. 2010. A retrospective cohort study of mortality among children with birth defects in New York State, 1983-2006. Birth Defects Res A Clin Mol Teratol 88:1023-1031.
22. Wong LY, Paulozzi LJ. 2001. Survival of infants with spina bifida: a population study, 1979-94. Paediatr Perinat Epidemiol 15:374-378.
23. Youngblood ME, Williamson R, Bell KN, Johnson Q, Kancherla V, Oakley GP, Jr. 2013. 2012 Update on global prevention of folic acid-preventable spina bifida and anencephaly. Birth Defects Res A Clin Mol Teratol 97:658-663.