Decisional conflict in economically disadvantaged men with newly diagnosed prostate cancer: Baseline results from a shared decision-making trial

Cancer

Volumn 120, Issue 17, 2014, Pages 2721-2727

  Kaplan, Alan L ^a   Crespi, Catherine M ^a   Saucedo, Josemanuel D ^a   Connor, Sarah E ^a   Litwin, Mark S ^a,b   Saigal, Christopher S ^a  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

decisional conflict; knowledge; low socioeconomic status; patient education; prostate cancer

Indexed keywords

ADULT; AFRICAN AMERICAN; AGE DISTRIBUTION; AGED; ARTICLE; ATTITUDE TO ILLNESS; COHORT ANALYSIS; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; DECISIONAL CONFLICT; DECISIONAL CONFLICT SCALE PERCEIVED EFFICACY SUBSCALE; DECISIONAL CONFLICT SCALE UNCERTAINTY SUBSCALE; ECONOMICALLY DISADVANTAGED MAN; EDUCATIONAL STATUS; HIGH RISK POPULATION; HUMAN; INCOME; MAJOR CLINICAL STUDY; MALE; MARRIAGE; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; OUTCOME ASSESSMENT; PATIENT ATTITUDE; PATIENT DECISION MAKING; POPULATION AND POPULATION RELATED PHENOMENA; PRIORITY JOURNAL; PROSTATE CANCER; RISK ASSESSMENT; RISK FACTOR;

DECISIONAL CONFLICT; KNOWLEDGE; LOW SOCIOECONOMIC STATUS; PATIENT EDUCATION; PROSTATE CANCER;

AGED; CHOICE BEHAVIOR; CROSS-SECTIONAL STUDIES; DECISION MAKING; DISSENT AND DISPUTES; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INCOME; MALE; MIDDLE AGED; PROSTATIC NEOPLASMS; VULNERABLE POPULATIONS;

EID: 84906330343     PISSN: 0008543X     EISSN: 10970142     Source Type: Journal    
DOI: 10.1002/cncr.28755     Document Type: Article

References (36)

1. Sanda MG, Dunn RL, Michalski J, et al. Quality of life and satisfaction with outcome among prostate-cancer survivors. N Engl J Med. 2008; 358: 1250-1261.
2. Steineck G, Helgesen F, Adolfsson J, et al. Quality of life after radical prostatectomy or watchful waiting. N Engl J Med. 2002; 347: 790-796.
3. Vasarainen H, Lokman U, Ruutu M, et al. Prostate cancer active surveillance and health-related quality of life: results of the Finnish arm of the prospective trial. BJU Int. 2012; 109: 1614-1619.
4. King JS, Moulton B,. Rethinking informed consent: the case for shared medical decision-making. Am J Law Med. 2006; 32: 429-501.
5. Carpenito LJ,. Nursing Diagnosis: Application to Clinical Practice. ed 8. Philadelphia, PA: Lippincott Williams & Wilkins; 2000.
6. O'Connor AM,. Validation of a decisional conflict scale. Med Decis Making. 1995; 15: 25-30.
7. Song MK, Sereika SM,. An evaluation of the Decisional Conflict Scale for measuring the quality of end-of-life decision making. Patient Educ Couns. 2006; 61: 397-404.
8. Brehaut JC, O'Connor AM, Wood TJ, et al. Validation of a decision regret scale. Med Decis Making. 2003; 23: 281-292.
9. Gattelari M, Ward JE,. Will men attribute fault to their GP for adverse effects arising from controversial screening tests? An Australian study using scenarios about PSA screening. J Med Screen. 2004; 11: 165-169.
10. O'Connor AM, Légaré F, Stacey D,. Risk communication in practice: the contribution of decision aids. BMJ. 2003; 327: 736-740.
11. Zeliadt SB, Ramsey SD, Penson DF, et al. Why do men choose one treatment over another? A review of patient decision making for localized prosate cancer. Cancer. 2006; 106: 1865-1874.
12. Murray E, Davis H, Tai SS, et al. Randomised controlled trial of an interactive multimedia decision aid on benign prostatic hypertrophy in primary care. BMJ. 2001; 323: 493-496.
13. Charlson ME, Pompei P, Ales K, et al. A new method of classifying prognostic comorbidity in longitudinal studies: Development and validation. J Chronic Dis. 1987; 40: 373-383.
14. Deibert CM, Maliski S, Kwan L, et al. Prostate cancer knowledge among low income minority men. J Urol. 2007; 177: 1851-1855.
15. Wei JT, Dunn RL, Litwin MS, et al. Development and validation of the expanded prostate cancer composite index (EPIC) for comprehensive assessment of health-related quality of life in men with prostate cancer. Urology. 2000; 56: 899-905.
16. Fishbein M,. The role of theory in HIV prevention. AIDS Care. 2000; 12: 273-278.
17. Frosch DL, Légaré F, Fishbein M, et al. Adjuncts or adversaries to shared decision-making? Applying the Integrative Model of behavior to the role and design of decision support interventions in healthcare interactions. Implement Sci. 2009; 4: 73.
18. Kim SP, Knight SJ, Tomori C, et al. Health literacy and shared decision making for prostate cancer patients with low socioeconomic status. Cancer Invest. 2001; 19: 684-691.
19. Kutner M, Greenberg E, Jin Y, et al. The Health Literacy of America's Adults: Results From the 2003 National Assessment of Adult Literacy. US Department of Education. Washington, DC: National Center for Education Statistics; 2006.
20. Wang DS, Jani AB, Tai CG, et al. Severe lack of comprehension of common prostate health terms among low-income inner-city men. Cancer. 2013; 119: 3204-3211.
21. Berry DL, Ellis WJ, Russell KJ, et al. Factors that predict treatment choice and satisfaction with the decision in men with localized prostate cancer. Clin Genitourin Cancer. 2006; 5: 219-226.
22. Goh AC, Kowalkowski MA, Bailey DE Jr, et al. Perception of cancer and inconsistency in medical information are associated with decisional conflict: a pilot study of men with prostate cancer who undergo active surveillance. BJU Int. 2012; 110: e50-e56.
23. Heckman JE, Chamie K, Maliski SL, et al. The role of self-efficacy in quality of life for disadvantaged men with prostate cancer. J Urol. 2011; 186: 1855-1861.
24. Manne S, Kashy D, Albrecht T, et al. Knowledge, attitudes, and self-efficacy as predictors of preparedness for oncology clinical trials: a mediational model. Med Decis Making. 2014; 34: 454-463.
25. Gore JL, Krupski T, Kwan L, et al. Partnership status influences quality of life in low-income, uninsured men with prostate cancer. Cancer. 2005; 104: 191-198.
26. Bergman JB, Gore JL, Saigal CS, et al. Partnership and outcomes in men with prostate cancer. Cancer. 2009; 115: 4688-4694.
27. Soloway CT, Soloway MS, Kim SS, et al. Sexual, psychological and dyadic qualities of the prostate cancer 'couple'. BJU Int. 2005; 95: 780-785.
28. Légaré F, Witteman HO,. Shared decision making: Examining key elements and barriers to adoption in routine clinical practice. Health Aff (Millwood). 2013; 32: 276-284.
29. Taylor KL, Williams RM, Davis K, et al. Decision making in prostate cancer screening using decision aids vs usual care: a randomized clinical trial. JAMA Intern Med. 2013; 173: 1704-1712.
30. Friedberg MW, Van Busum K, Wexler R, et al. A demonstration of shared decision making in primary care highlights barriers to adoption and potential remedies. Health Aff (Millwood). 2013; 32: 286-275.
31. Ferron Parayre A, Labrecque M, Rousseau M, et al. Validation of SURE a four-item clinical checklist for decisional conflict in patients. Med Decis Making. 2014; 34: 54-65.
32. Hacking B, Wallace L, Scott S, et al. Testing the feasibility, acceptability and effectiveness of a 'decision navigation' intervention for early stage prostate cancer patients in Scottland-a randomised controlled trial. Psychooncology. 2013; 22: 1017-1024.
33. Bennett H, Laird K, Margolius D, Ngo V, Thom DH, Bodenheimer T,. The effectiveness of health coaching, home blood pressure monitoring, and home titration in controlling hypertension among low-income patients: protocol for a randomized controlled trial. BMC Public Health. 2009; 9: 456.
34. Knops AM, Goossens A, Ubbink DT, Legemate DA, Stalpers LJ, Bossuyt PM,. Interpreting patient decisional conflict scores: behavior and emotions in decisions about treatment. Med Decis Making. 2013; 33: 78-84.
35. Hibbard JH, Greene J, Overton V,. Patients with lower activation associated with higher costs; Delivery systems should know their patients' 'scores.' Health Aff (Millwood). 2013; 32: 216-222.
36. Hibbard JH, Stockard J, Mahoney ER, et al. Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv Res. 2004; 39: 1005-1026.