메뉴 건너뛰기




Volumn 23, Issue 6, 2014, Pages 1883-1894

Health-related quality of life in children and adolescents with celiac disease: Patient-driven data from focus group interviews

Author keywords

Adolescents youth; Celiac disease; Children; Chronic; Coping; Focus groups; Health related quality of life; Illness and disease

Indexed keywords

GLUTEN;

EID: 84905222047     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-014-0623-x     Document Type: Article
Times cited : (41)

References (41)
  • 1
    • 84855414559 scopus 로고    scopus 로고
    • European society for pediatric gastroenterology, hepatology, and nutrition guidelines for the diagnosis of coeliac disease
    • 1:STN:280:DC%2BC387psVyksQ%3D%3D 22197856 10.1097/MPG.0b013e31821a23d0
    • Husby, S., Koletzko, S., Korponay-Szabó, I. R., Mearin, M. L., Phillips, A., Shamir, R., et al. (2012). European society for pediatric gastroenterology, hepatology, and nutrition guidelines for the diagnosis of coeliac disease. Journal of Pediatric Gastroenterology and Nutrition, 54(1), 136-160.
    • (2012) Journal of Pediatric Gastroenterology and Nutrition , vol.54 , Issue.1 , pp. 136-160
    • Husby, S.1    Koletzko, S.2    Korponay-Szabó, I.R.3    Mearin, M.L.4    Phillips, A.5    Shamir, R.6
  • 2
    • 0041669320 scopus 로고    scopus 로고
    • Coeliac disease
    • 1:CAS:528:DC%2BD3sXlvFGnsLg%3D 12907013 10.1016/S0140-6736(03)14027-5
    • Green, P. H. R., & Jabri, B. (2003). Coeliac disease. Lancet, 362(9381), 383-391.
    • (2003) Lancet , vol.362 , Issue.9381 , pp. 383-391
    • Green, P.H.R.1    Jabri, B.2
  • 3
    • 0037429081 scopus 로고    scopus 로고
    • Prevalence of celiac disease in at-risk and not-at-risk groups in the United States: A large multicenter study
    • 12578508 10.1001/archinte.163.3.286
    • Fasano, A., Berti, I., Gerarduzzi, T., Not, T., Colletti, R. B., Drago, S., et al. (2003). Prevalence of celiac disease in at-risk and not-at-risk groups in the United States: A large multicenter study. Archives of Internal Medicine, 163(3), 286-292.
    • (2003) Archives of Internal Medicine , vol.163 , Issue.3 , pp. 286-292
    • Fasano, A.1    Berti, I.2    Gerarduzzi, T.3    Not, T.4    Colletti, R.B.5    Drago, S.6
  • 4
    • 67649200339 scopus 로고    scopus 로고
    • Increased prevalence and mortality in undiagnosed celiac disease
    • 2704247 19362553 10.1053/j.gastro.2009.03.059
    • Rubio-Tapia, A., Kyle, R. A., Kaplan, E. L., Johnson, D. R., Page, W., Erdtmann, F., et al. (2009). Increased prevalence and mortality in undiagnosed celiac disease. Gastroenterology, 137(1), 88-93.
    • (2009) Gastroenterology , vol.137 , Issue.1 , pp. 88-93
    • Rubio-Tapia, A.1    Kyle, R.A.2    Kaplan, E.L.3    Johnson, D.R.4    Page, W.5    Erdtmann, F.6
  • 5
    • 64249171903 scopus 로고    scopus 로고
    • Economic benefits of increased diagnosis of celiac disease in a national managed care population in the United States
    • 19317331
    • Green, P. H. R., Neugut, A. I., Naiyer, A. J., Edwards, Z. C., Gabinelle, S., & Chinburapa, V. (2008). Economic benefits of increased diagnosis of celiac disease in a national managed care population in the United States. Journal of Insurance Medicine, 40(3-4), 218-228.
    • (2008) Journal of Insurance Medicine , vol.40 , Issue.3-4 , pp. 218-228
    • Green, P.H.R.1    Neugut, A.I.2    Naiyer, A.J.3    Edwards, Z.C.4    Gabinelle, S.5    Chinburapa, V.6
  • 6
    • 16244390505 scopus 로고    scopus 로고
    • Clinical presentation of celiac disease in the pediatric population
    • 15825129 10.1053/j.gastro.2005.02.015
    • Fasano, A. (2005). Clinical presentation of celiac disease in the pediatric population. Gastroenterology, 128(4 Suppl 1), S68-S73.
    • (2005) Gastroenterology , vol.128 , Issue.4 SUPPL. 1
    • Fasano, A.1
  • 7
    • 33847041129 scopus 로고    scopus 로고
    • Coeliac disease and risk of mood disorders - A general population-based cohort study
    • 17030405 10.1016/j.jad.2006.08.032
    • Ludvigsson, J. F., Reutfors, J., Osby, U., Ekbom, A., & Montgomery, S. M. (2007). Coeliac disease and risk of mood disorders - A general population-based cohort study. Journal of Affective Disorders, 99(1-3), 117-126.
    • (2007) Journal of Affective Disorders , vol.99 , Issue.1-3 , pp. 117-126
    • Ludvigsson, J.F.1    Reutfors, J.2    Osby, U.3    Ekbom, A.4    Montgomery, S.M.5
  • 9
    • 33644670222 scopus 로고    scopus 로고
    • Celiac disease: Evaluation of the diagnosis and dietary compliance in Canadian children
    • 16322131 10.1542/peds.2005-0904
    • Rashid, M., Cranney, A., Zarkadas, M., Graham, I. D., Switzer, C., Case, S., et al. (2005). Celiac disease: Evaluation of the diagnosis and dietary compliance in Canadian children. Pediatrics, 116(6), e754-e759.
    • (2005) Pediatrics , vol.116 , Issue.6
    • Rashid, M.1    Cranney, A.2    Zarkadas, M.3    Graham, I.D.4    Switzer, C.5    Case, S.6
  • 10
    • 67649977073 scopus 로고    scopus 로고
    • Food that makes you different: The stigma experienced by adolescents with celiac disease
    • 19556403 10.1177/1049732309338722
    • Olsson, C., Lyon, P., Hörnell, A., Ivarsson, A., & Sydner, Y. M. (2009). Food that makes you different: The stigma experienced by adolescents with celiac disease. Qualitative Health Research, 19(7), 976-984.
    • (2009) Qualitative Health Research , vol.19 , Issue.7 , pp. 976-984
    • Olsson, C.1    Lyon, P.2    Hörnell, A.3    Ivarsson, A.4    Sydner, Y.M.5
  • 11
    • 77649088998 scopus 로고    scopus 로고
    • Impact of gluten-free camp on quality of life of children and adolescents with celiac disease
    • 20156892 10.1542/peds.2009-1862
    • Bongiovanni, T. R. S., Clark, A. L., Garnett, E. A., Wojcicki, J. M., & Heyman, M. B. (2010). Impact of gluten-free camp on quality of life of children and adolescents with celiac disease. Pediatrics, 125(3), e525-e529.
    • (2010) Pediatrics , vol.125 , Issue.3
    • Bongiovanni, T.R.S.1    Clark, A.L.2    Garnett, E.A.3    Wojcicki, J.M.4    Heyman, M.B.5
  • 13
    • 79955736869 scopus 로고    scopus 로고
    • Balancing health benefits and social sacrifices: A qualitative study of how screening-detected celiac disease impacts adolescents' quality of life
    • 3120678 21569235 10.1186/1471-2431-11-32
    • Rosén, A., Ivarsson, A., Nordyke, K., Karlsson, E., Carlsson, A., Danielsson, L., et al. (2011). Balancing health benefits and social sacrifices: A qualitative study of how screening-detected celiac disease impacts adolescents' quality of life. BMC Pediatrics, 11, 32.
    • (2011) BMC Pediatrics , vol.11 , pp. 32
    • Rosén, A.1    Ivarsson, A.2    Nordyke, K.3    Karlsson, E.4    Carlsson, A.5    Danielsson, L.6
  • 14
    • 84861019654 scopus 로고    scopus 로고
    • Health-related quality of life in children and adolescents with celiac disease: From the perspectives of children and parents
    • 3324145 22548054 10.1155/2012/986475
    • Byström, I.-M., Hollén, E., Fälth-Magnusson, K., & Johansson, A. (2012). Health-related quality of life in children and adolescents with celiac disease: From the perspectives of children and parents. Gastroenterology Research and Practice, 2012, 986475.
    • (2012) Gastroenterology Research and Practice , vol.2012 , pp. 986475
    • Byström, I.-M.1    Hollén, E.2    Fälth-Magnusson, K.3    Johansson, A.4
  • 16
    • 47949131438 scopus 로고    scopus 로고
    • The everyday life of adolescent coeliacs: Issues of importance for compliance with the gluten-free diet
    • 1:STN:280:DC%2BD1crkvVKqtQ%3D%3D 18754144 10.1111/j.1365-277X.2008.00867. x
    • Olsson, C., Hörnell, A., Ivarsson, A., & Sydner, Y. M. (2008). The everyday life of adolescent coeliacs: Issues of importance for compliance with the gluten-free diet. Journal of Human Nutrition and Dietetics, 21(4), 359-367.
    • (2008) Journal of Human Nutrition and Dietetics , vol.21 , Issue.4 , pp. 359-367
    • Olsson, C.1    Hörnell, A.2    Ivarsson, A.3    Sydner, Y.M.4
  • 17
    • 0027286145 scopus 로고
    • Study protocol for the World Health Organization project to develop a Quality of Life assessment instrument (WHOQOL)
    • 10.1007/BF00435734
    • HO, W. (1993). Study protocol for the World Health Organization project to develop a Quality of Life assessment instrument (WHOQOL). Quality of Life Research, 2(2), 153-159.
    • (1993) Quality of Life Research , vol.2 , Issue.2 , pp. 153-159
    • Ho, W.1
  • 18
    • 0029664491 scopus 로고    scopus 로고
    • Assesment of quality-of-life outcomes
    • 1:STN:280:DyaK287ns1akug%3D%3D 8596551 10.1056/NEJM199603283341306
    • Testa, M. A., & Simonson, D. C. (1996). Assesment of quality-of-life outcomes. New England Journal of Medicine, 334(13), 835-840.
    • (1996) New England Journal of Medicine , vol.334 , Issue.13 , pp. 835-840
    • Testa, M.A.1    Simonson, D.C.2
  • 19
    • 34547601182 scopus 로고    scopus 로고
    • Health-related quality of life problems of children aged 8-11 years with a chronic disease
    • 1:STN:280:DC%2BD2szptVCjtw%3D%3D 17608324 10.1080/13682820600691017
    • Grootenhuis, M. A., Koopman, H. M., Verrips, E. G. H., Vogels, A. G. C., & Last, B. F. (2007). Health-related quality of life problems of children aged 8-11 years with a chronic disease. Developmental Neurorehabilitation, 10(1), 27-33.
    • (2007) Developmental Neurorehabilitation , vol.10 , Issue.1 , pp. 27-33
    • Grootenhuis, M.A.1    Koopman, H.M.2    Verrips, E.G.H.3    Vogels, A.G.C.4    Last, B.F.5
  • 21
    • 84857507929 scopus 로고    scopus 로고
    • Quality of life in children with diabetes and celiac disease: Minimal impact of the "double diagnosis"
    • 21672108 10.1111/j.1399-5448.2011.00785.x
    • Sud, S., Marcon, M., Assor, E., Daneman, D., & Mahmud, F. H. (2012). Quality of life in children with diabetes and celiac disease: Minimal impact of the "double diagnosis". Pediatric Diabetes, 13(2), 163-169.
    • (2012) Pediatric Diabetes , vol.13 , Issue.2 , pp. 163-169
    • Sud, S.1    Marcon, M.2    Assor, E.3    Daneman, D.4    Mahmud, F.H.5
  • 22
    • 0035047380 scopus 로고    scopus 로고
    • Health-related quality of life in children with celiac disease
    • 1:STN:280:DC%2BD3MzktVWqtQ%3D%3D 11295729 10.1067/mpd.2001.111504
    • Kolsteren, M. M., Koopman, H. M., Schalekamp, G., & Mearin, M. L. (2001). Health-related quality of life in children with celiac disease. Journal of Pediatrics, 138(4), 593-595.
    • (2001) Journal of Pediatrics , vol.138 , Issue.4 , pp. 593-595
    • Kolsteren, M.M.1    Koopman, H.M.2    Schalekamp, G.3    Mearin, M.L.4
  • 23
    • 59849127261 scopus 로고    scopus 로고
    • Quality of life in adolescents with treated coeliac disease: Influence of compliance and age at diagnosis
    • 18955861 10.1097/MPG.0b013e31817fcb56
    • Wagner, G., Berger, G., Sinnreich, U., Grylli, V., Schober, E., Huber, W.-D., et al. (2008). Quality of life in adolescents with treated coeliac disease: Influence of compliance and age at diagnosis. Journal of Pediatric Gastroenterology and Nutrition, 47(5), 555-561.
    • (2008) Journal of Pediatric Gastroenterology and Nutrition , vol.47 , Issue.5 , pp. 555-561
    • Wagner, G.1    Berger, G.2    Sinnreich, U.3    Grylli, V.4    Schober, E.5    Huber, W.-D.6
  • 24
    • 65349105336 scopus 로고    scopus 로고
    • Long-term health and quality-of-life consequences of mass screening for childhood celiac disease: A 10-year follow-up study
    • 19336349 10.1542/peds.2008-2221
    • Van Koppen, E. J., Schweizer, J. J., Csizmadia, C. G. D. S., Krom, Y., Hylkema, H. B., van Geel, A. M., et al. (2009). Long-term health and quality-of-life consequences of mass screening for childhood celiac disease: A 10-year follow-up study. Pediatrics, 123(4), e582-e588.
    • (2009) Pediatrics , vol.123 , Issue.4
    • Van Koppen, E.J.1    Schweizer, J.J.2    Csizmadia, C.3    Krom, Y.4    Hylkema, H.B.5    Van Geel, A.M.6
  • 25
    • 79951576918 scopus 로고    scopus 로고
    • Compliance with the gluten-free diet: The role of locus of control in celiac disease
    • 10.1016/j.jpeds.2010.08.034
    • Bellini, A., Zanchi, C., Martelossi, S., Di Leo, G., Not, T., & Ventura, A. (2011). Compliance with the gluten-free diet: The role of locus of control in celiac disease. The Journal of Pediatrics, 158(3), 463.e5-466.e5.
    • (2011) The Journal of Pediatrics , vol.158 , Issue.3
    • Bellini, A.1    Zanchi, C.2    Martelossi, S.3    Di Leo, G.4    Not, T.5    Ventura, A.6
  • 26
    • 84555190269 scopus 로고    scopus 로고
    • Health-related quality-of-life in children with coeliac disease, measured prior to receiving their diagnosis through screening
    • 22106434 10.1258/jms.2011.011081
    • Nordyke, K., Norström, F., Lindholm, L., Carlsson, A., Danielsson, L., Emmelin, M., et al. (2011). Health-related quality-of-life in children with coeliac disease, measured prior to receiving their diagnosis through screening. Journal of Medical Screening, 18(4), 187-192.
    • (2011) Journal of Medical Screening , vol.18 , Issue.4 , pp. 187-192
    • Nordyke, K.1    Norström, F.2    Lindholm, L.3    Carlsson, A.4    Danielsson, L.5    Emmelin, M.6
  • 27
    • 79957450107 scopus 로고    scopus 로고
    • Compliant gluten-free children with celiac disease: An evaluation of psychological distress
    • 3149570 21619651 10.1186/1471-2431-11-46
    • Mazzone, L., Reale, L., Spina, M., Guarnera, M., Lionetti, E., Martorana, S., et al. (2011). Compliant gluten-free children with celiac disease: An evaluation of psychological distress. BMC Pediatrics, 11, 46.
    • (2011) BMC Pediatrics , vol.11 , pp. 46
    • Mazzone, L.1    Reale, L.2    Spina, M.3    Guarnera, M.4    Lionetti, E.5    Martorana, S.6
  • 28
    • 84858864961 scopus 로고    scopus 로고
    • Evaluation of the quality of life of children with celiac disease and their parents: A case-control study
    • 21598063 10.1007/s11136-011-9930-7
    • De Lorenzo, C. M., Xikota, J. C., Wayhs, M. C., Nassar, S. M., & de Souza Pires, M. M. (2012). Evaluation of the quality of life of children with celiac disease and their parents: A case-control study. Quality of Life Research, 21(1), 77-85.
    • (2012) Quality of Life Research , vol.21 , Issue.1 , pp. 77-85
    • De Lorenzo, C.M.1    Xikota, J.C.2    Wayhs, M.C.3    Nassar, S.M.4    De Souza Pires, M.M.5
  • 30
    • 33846982525 scopus 로고    scopus 로고
    • Predictors of reduced health-related quality of life in adults with coeliac disease
    • 10.1111/j.1365-2036.2006.03227.x
    • Häuser, W., Stallmach, A., Caspary, W. F., & Stein, J. (2007). Predictors of reduced health-related quality of life in adults with coeliac disease. Alimentary Pharmacology & Therapeutics, 25(5), 569-578.
    • (2007) Alimentary Pharmacology & Therapeutics , vol.25 , Issue.5 , pp. 569-578
    • Häuser, W.1    Stallmach, A.2    Caspary, W.F.3    Stein, J.4
  • 31
    • 0036675469 scopus 로고    scopus 로고
    • Case control study on health-related quality of life in adult coeliac disease
    • 1:STN:280:DC%2BD38jjvVOmsA%3D%3D 12502210 10.1016/S1590-8658(02)80087-1
    • Usai, P., Minerba, L., Marini, B., Cossu, R., Spada, S., Carpiniello, B., et al. (2002). Case control study on health-related quality of life in adult coeliac disease. Digestive and Liver Disease, 34(8), 547-552.
    • (2002) Digestive and Liver Disease , vol.34 , Issue.8 , pp. 547-552
    • Usai, P.1    Minerba, L.2    Marini, B.3    Cossu, R.4    Spada, S.5    Carpiniello, B.6
  • 33
    • 36248993854 scopus 로고    scopus 로고
    • Focus groups can be fun": The use of activity-oriented questions in focus group discussions
    • 18000081 10.1177/1049732307308129
    • Colucci, E. (2007). "Focus groups can be fun": The use of activity-oriented questions in focus group discussions. Qualitative Health Research, 17(10), 1422-1433.
    • (2007) Qualitative Health Research , vol.17 , Issue.10 , pp. 1422-1433
    • Colucci, E.1
  • 34
    • 76449105112 scopus 로고    scopus 로고
    • The development and validation of a new coeliac disease quality of life survey (CD-QOL)
    • 1:STN:280:DC%2BC3c7gtVGqtA%3D%3D 10.1111/j.1365-2036.2009.04220.x
    • Dorn, S. D., Hernandez, L., Minaya, M. T., Morris, C. B., Hu, Y., Leserman, J., et al. (2010). The development and validation of a new coeliac disease quality of life survey (CD-QOL). Alimentary Pharmacology & Therapeutics, 31(6), 666-675.
    • (2010) Alimentary Pharmacology & Therapeutics , vol.31 , Issue.6 , pp. 666-675
    • Dorn, S.D.1    Hernandez, L.2    Minaya, M.T.3    Morris, C.B.4    Hu, Y.5    Leserman, J.6
  • 35
    • 84971585775 scopus 로고
    • Qualitative research. Introducing focus groups
    • 1:STN:280:DyaK2MzlvFOrug%3D%3D 2550365 7633241 10.1136/bmj.311.7000.299
    • Kitzinger, J. (1995). Qualitative research. Introducing focus groups. BMJ, 311(7000), 299-302.
    • (1995) BMJ , vol.311 , Issue.7000 , pp. 299-302
    • Kitzinger, J.1
  • 37
    • 0032132530 scopus 로고    scopus 로고
    • Collecting and analysing qualitative data: Issues raised by the focus group
    • 1:STN:280:DyaK1czptFGksw%3D%3D 9725732 10.1046/j.1365-2648.1998.00692.x
    • Sim, J. (1998). Collecting and analysing qualitative data: Issues raised by the focus group. Journal of Advanced Nursing, 28(2), 345-352.
    • (1998) Journal of Advanced Nursing , vol.28 , Issue.2 , pp. 345-352
    • Sim, J.1
  • 38
    • 19444384913 scopus 로고    scopus 로고
    • Controlled by food" - Lived experiences of coeliac disease
    • 1:STN:280:DC%2BD2M3ksVOgug%3D%3D 15882379 10.1111/j.1365-277X.2005.00591. x
    • Sverker, A., Hensing, G., & Hallert, C. (2005). "Controlled by food" - Lived experiences of coeliac disease. Journal of Human Nutrition and Dietetics, 18(3), 171-180.
    • (2005) Journal of Human Nutrition and Dietetics , vol.18 , Issue.3 , pp. 171-180
    • Sverker, A.1    Hensing, G.2    Hallert, C.3
  • 40
    • 62449163933 scopus 로고    scopus 로고
    • Developmental pathways in food allergy: A new theoretical framework
    • 1:STN:280:DC%2BD1M3ivFKjsw%3D%3D 19154549 10.1111/j.1398-9995.2008.01862. x
    • DunnGalvin, A., Gaffney, A., & Hourihane, J. O. (2009). Developmental pathways in food allergy: A new theoretical framework. Allergy, 64(4), 560-568.
    • (2009) Allergy , vol.64 , Issue.4 , pp. 560-568
    • Dunngalvin, A.1    Gaffney, A.2    Hourihane, J.O.3
  • 41
    • 84893676474 scopus 로고    scopus 로고
    • Living with coeliac disease: A grounded theory study
    • doi:10.1111/jhn 12062
    • Rose, C., Howard, R. (2013). Living with coeliac disease: A grounded theory study. Journal of Human Nutrition and Dietetics. doi:10.1111/jhn 12062.
    • (2013) Journal of Human Nutrition and Dietetics
    • Rose, C.1    Howard, R.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.