Epidemiology of systemic mastocytosis in Denmark

British Journal of Haematology

Volumn 166, Issue 4, 2014, Pages 521-528

  Cohen, Sarah S ^a   Skovbo, Stine ^b   Vestergaard, Hanne ^c   Kristensen, Thomas ^c   Møller, Michael ^c   Bindslev Jensen, Carsten ^c   Fryzek, Jon P ^a,b   Broesby Olsen, Sigurd ^c  

^a EpidStat Institute   (United States)

^b AARHUS UNIVERSITY   (Denmark)

^c ODENSE UNIVERSITY HOSPITAL   (Denmark)

Author keywords

Aggressive systemic mastocytosis; Denmark; Epidemiology; Indolent systemic mastocytosis; Urticaria pigmentosa

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; ADOLESCENT; ADULT; AGED; AGGRESSIVE SYSTEMIC MASTOCYTOSIS; ARTICLE; CEREBROVASCULAR DISEASE; CHRONIC LUNG DISEASE; COHORT ANALYSIS; COMORBIDITY; CONGESTIVE HEART FAILURE; CONNECTIVE TISSUE DISEASE; CONTROLLED STUDY; DEMENTIA; DENMARK; DISEASE CLASSIFICATION; FEMALE; FOLLOW UP; HEART INFARCTION; HEMIPLEGIA; HUMAN; INCIDENCE; INDOLENT SYSTEMIC MASTOCYTOSIS; INSULIN DEPENDENT DIABETES MELLITUS; KIDNEY DISEASE; LIVER DISEASE; MAJOR CLINICAL STUDY; MALE; MAST CELL LEUKEMIA; METASTASIS; MIDDLE AGED; NON INSULIN DEPENDENT DIABETES MELLITUS; PERIPHERAL VASCULAR DISEASE; PREVALENCE; PRIORITY JOURNAL; REGISTER; RETROSPECTIVE STUDY; SURVIVAL TIME; SYSTEMIC MASTOCYTOSIS; SYSTEMIC MASTOCYTOSIS WITH ASSOCIATED CLONAL HAEMATOLOGICAL NON-MAST CELL LINEAGE DISEASE; ULCER; URTICARIA PIGMENTOSA;

AGGRESSIVE SYSTEMIC MASTOCYTOSIS; DENMARK; EPIDEMIOLOGY; INDOLENT SYSTEMIC MASTOCYTOSIS; URTICARIA PIGMENTOSA;

ADOLESCENT; ADULT; AGED; DENMARK; EPIDEMIOLOGIC METHODS; FEMALE; HUMANS; MALE; MASTOCYTOSIS, SYSTEMIC; MIDDLE AGED; YOUNG ADULT;

EID: 84905042721     PISSN: 00071048     EISSN: 13652141     Source Type: Journal    
DOI: 10.1111/bjh.12916     Document Type: Article

References (14)

1. Charlson, M.E., Pompei, P., Ales, K.L. & MacKenzie, C.R. (1987) A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. Journal of Chronic Diseases, 40, 373-383.
2. van Doormaal, J.J., Arends, S., Brunekreeft, K.L., van der Wal, V.B., Sietsma, J., van Voorst Vader, P.C., Oude Elberink, J.N., Kluin-Nelemans, J.C., van der Veer, E. & de Monchy, J.G. (2013) Prevalence of indolent systemic mastocytosis in a Dutch region. The Journal of Allergy and Clinical Immunology, 131, 1429-1431.
3. Escribano, L., Alvarez-Twose, I., Sanchez-Munoz, L., Garcia-Montero, A., Nunez, R., Almeida, J., Jara-Acevedo, M., Teodosio, C., Garcia-Cosio, M., Bellas, C. & Orfao, A. (2009) Prognosis in adult indolent systemic mastocytosis: a long-term study of the Spanish Network on Mastocytosis in a series of 145 patients. The Journal of Allergy and Clinical Immunology, 124, 514-521.
4. Frank, L. (2000) Epidemiology. When an entire country is a cohort. Science, 287, 2398-2399.
5. Horny, H.P., Akin, C., Metcalfe, D.D., Escribano, L., Bennett, J.M. & Valent, P. (2008) Mastocytosis (mast cell disease). World Health Organization (WHO) Classification of Tumours: Pathology & Genetics, Vol. 2 Tumours of Haematopoietic and Lymphoid Tissues, pp. 54-63. IARC Press, Lyon, France.
6. Lim, K.H., Tefferi, A., Lasho, T.L., Finke, C., Patnaik, M., Butterfield, J.H., McClure, R.F., Li, C.Y. & Pardanani, A. (2009) Systemic mastocytosis in 342 consecutive adults: survival studies and prognostic factors. Blood, 113, 5727-5736.
7. Lynge, E., Sandegaard, J.L. & Rebolj, M. (2011) The Danish National Patient Register. Scandanavian Journal of Public Health, 39, 30-33.
8. Pardanani, A.D., Lim, K.-H., Lasho, T.L., Finke, C., McClure, R., Li, C.Y. & Tefferi, A. (2009) Indolent Mastocytosis in 159 Adults: Smoldering but not bone marrow only variant is prognostically significant. Blood, 114, 2906.
9. Pedersen, C.B. (2011) The Danish Civil Registration System. Scandanavian Journal of Public Health, 39, 22-25.
10. Stoecker, M.M. & Wang, E. (2012) Systemic mastocytosis with associated clonal hematologic nonmast cell lineage disease: a clinicopathologic review. Archives of Pathology and Laboratory Medicine, 136, 832-838.
11. Storm, H.H., Michelsen, E.V., Clemmensen, I.H. & Pihl, J. (1997) The Danish Cancer Registry-history, content, quality and use. Danish Medical Bulletin, 44, 535-539.
12. Thygesen, S.K., Christiansen, C.F., Christensen, S., Lash, T.L. & Sorensen, H.T. (2011) The predictive value of ICD-10 diagnostic coding used to assess Charlson comorbidity index conditions in the population-based Danish National Registry of Patients. BMC Medical Research Methodology, 11, 83.
13. Uzzaman, A., Maric, I., Noel, P., Kettelhut, B.V., Metcalfe, D.D. & Carter, M.C. (2009) Pediatric-onset mastocytosis: a long term clinical follow-up and correlation with bone marrow histopathology. Pediatric Blood and Cancer, 53, 629-634.
14. Valent, P., Akin, C., Escribano, L., Fodinger, M., Hartmann, K., Brockow, K., Castells, M., Sperr, W.R., Kluin-Nelemans, H.C., Hamdy, N.A., Lortholary, O., Robyn, J., van Doormaal, J., Sotlar, K., Hauswirth, A.W., Arock, M., Hermine, O., Hellmann, A., Triggiani, M., Niedoszytko, M., Schwartz, L.B., Orfao, A., Horny, H.P. & Metcalfe, D.D. (2007) Standards and standardization in mastocytosis: consensus statements on diagnostics, treatment recommendations and response criteria. European Journal of Clinical Investigation, 37, 435-453.