Functionality and feedback: A protocol for a realist synthesis of the collation, interpretation and utilisation of PROMs data to improve patient care

BMJ Open

Volumn 4, Issue 7, 2014, Pages

  Greenhalgh, Joanne ^a   Pawson, Ray ^a   Wright, Judy ^b   Black, Nick ^c   Valderas, Jose Maria ^d   Meads, David ^b   Gibbons, Elizabeth ^e   Wood, Laurence ^f   Wood, Charlotte ^g   Mills, Chris ^h   Dalkin, Sonia ^a  

^a UNIVERSITY OF LEEDS   (United Kingdom)

^b UNIVERSITY OF LEEDS   (United Kingdom)

^c LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE   (United Kingdom)

^d UNIVERSITY OF EXETER MEDICAL SCHOOL   (United Kingdom)

^e UNIVERSITY OF OXFORD   (United Kingdom)

^f Patient Representative   (United Kingdom)

^g PUBLIC HEALTH ENGLAND   (United Kingdom)

^h Leeds South and East Clinical Commissioning Group   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; DECISION MAKING; EXPECTATION; FEEDBACK SYSTEM; HEALTH CARE POLICY; HEALTH CARE UTILIZATION; HUMAN; OUTCOME ASSESSMENT; PATIENT CARE; PATIENT MONITORING; PATIENT PARTICIPATION; TOTAL QUALITY MANAGEMENT; INFORMATION PROCESSING; PATIENT SATISFACTION; QUESTIONNAIRE; STATISTICAL ANALYSIS;

DATA COLLECTION; DATA INTERPRETATION, STATISTICAL; FEEDBACK; HUMANS; PATIENT CARE; PATIENT SATISFACTION; QUALITY IMPROVEMENT; SURVEYS AND QUESTIONNAIRES;

EID: 84904701815     PISSN: None     EISSN: 20446055     Source Type: Journal    
DOI: 10.1136/bmjopen-2014-005601     Document Type: Article

References (47)

1. Dawson J, Doll H, Fitzpatrick R, et al. The routine use of patient reported outcome measures in healthcare settings. BMJ 2010;340:c186.
2. Guyatt G, Veldhuuyzen van Zanten SJO, Feeny DH, et al. Measuring quality of life in clinical trials: a taxonomy and review. CMAJ 1989;140:1441-48. (Pubitemid 19155833)
3. DoH. Equity and excellence: liberating the NHS. London:TSO, 2010.
4. Trust N. Rating providers for quality: a policy worth pursuing? London: Nuffield Trust, 2013.
5. Haywood K, Garratt A, Carrivick S, et al. Continence specialists use of quality of life information in routine practice: a national survey of practitioners. Qual Life Res 2009;18:423-33.
6. Bausewein C, Simon ST, Benalia H, et al. Implementing patient reported outcome measures (PROMs) in palliative care-users' cry for help. Health Qual Life Outcomes 2011;9:27.
7. Snyder CF, Aaronson N, Choucair AK, et al. Implementing patient-reported outcomes assessment into clinical practice: a review of the options and considerations. Qual Life Res 2012;21:1305-14.
8. Greenhalgh J. The applications of PROs in clinical practice: what are they, do they work and why? Qual Life Res 2009;18:115-23.
9. Higginson IJ, Carr AJ. Measuring quality of life: using quality of life measures in the clinical setting. BMJ 2001;322:1297-300. (Pubitemid 32493968)
10. Espallargues M, Valderas JM, Alonso J. Provision of feedback on perceived health status to health care professionals: a systematic review of its impact. [see comments.]. [Review] [53 refs]. Med Care 2000;38:175-86.
11. Fung HC, Lim YW, Mattke S, et al. Systematic review: the evidence that publishing patient care performance data improves quality of care. Ann Intern Med 2008;148:111 -23.
12. Greenhalgh J, Long AF, Flynn R. The use of patient reported outcome measures in clinical practice: lacking an impact or lacking a theory? Soc Sci Med 2005;60:833-43. (Pubitemid 39574779)
13. Black N. Patient reported outcome measures could help transform healthcare. BMJ 2013;346:f167.
14. Hutchings A, Neuburger J, Grosse Frie K, et al. Factors associated with non-response in routine use of patient reported outcome measures after elective surgery in England. Health Qual Life Outcomes 2012;10:34.
15. Hutchings A, Neuburger J, Van der Meulen J, et al. Estimating recruitment rates for routine use of patient reported outcome measures and the impact on provider comparisons. BMC Health Serv Res 2014;14:66.
16. Davies HTO, Crombie IK. Interpreting health outcomes. J Eval Clin Pract 1997;3:187-99. (Pubitemid 127499686)
17. Lilford RJ, Brown CA, Nicholl J. Use of process measures to monitor the quality of clinical practice. BMJ 2007;335:648-50. (Pubitemid 47548455)
18. Hildon Z, Neuburger J, Allwood D, et al. Clinicians ' and patients' views of metrics of change derived from patient reported outcome measures (PROMs) for comparing providers' performance of surgery. BMC Health Serv Res 2012;12:171.
19. Valderas JM, Fitzpatrick R, Roland M. Using health status to measure NHS performance: another step into the dark for health reform in England. BMJ Q Saf Healthc 2012;21:352-3.
20. Murray D, Fitzpatrick R, Rogers K, et al. The use of the Oxford hip and knee scores. J Bone Joint Surg Br 2007;89:1010- 14.
21. Werner RM, Asch DA. The unintended consequences of publicly reporting quality information. JAMA 2005;293:1239-44. (Pubitemid 40327909)
22. Schneider EC, Epstein AM. Influence of cardiac surgery performance reports on referral practices and access to care: a survey of cardiovascular specialists. N Engl J Med 1996;335:251-6. (Pubitemid 26249574)
23. West D, West D. 'Unpolished' data to support patient choice. Health Serv J 2010;120:4-5.
24. Marshall M, McLoughlin V. How do patients use information on health providers? BMJ 2010;341:c5272.
25. Magee H, Davis L-J, Coulter A. Public views on healthcare performance indicators and patient choice. J R Soc Med 2003;96:338-42. (Pubitemid 36842996)
26. Boyce M, Browne J. Does providing feedback on patient-reported outcomes to healthcare professionals result in better outcomes for patients? A systematic review. Qual Life Res 2013;22:2265-78.
27. Pawson R, Greenhalgh T, Harvey G, et al. Realist review - a new method of systematic review designed for complex policy interventions. J Health Serv Res Policy 2005;10(Suppl 1):21-34. (Pubitemid 40993882)
28. Pawson R. Evidence based policy: a realist perspective. London: Sage, 2006.
29. Valderas JM, Kotzeva A, Espallargues M, et al. The impact of measuring patient-reported outcomes in clinical practice: a systematic review of the literature. [Review] [64 refs]. Qual Life Res 2008;17:179-93.
30. Boyce M, Browne J, Greenhalgh J. The experiences of professionals with using information from patient-reported outcome measures to improve the quality of healthcare: a systematic review of qualitative research. BMJ Qual Saf 2013;23:508-18.
31. Gonclaves D, Valderas JM, Ricci I, et al. The use of PROMs in clinical practice. Patients and health professionals' perspectives: a systematic review of qualitative studies. PROSPERO CRD42012003318 2012.
32. Hildon Z, Allwood D, Black N. Impact of format and content of visual display of data on comprehension, choice and preference: systematic review. Int J Qual Health Care 2012;24:55-64.
33. Greenhalgh T, Peacock R. Effectiveness and efficiency of search methods in systematic reviews of complex evidence. BMJ 2005;331:1064-65. (Pubitemid 41597859)
34. Pawson R. Digging for nuggets: how bad research can yield good evidence. Int J Soc Res Methodol 2006;9:127-42. (Pubitemid 43791716)
35. Wong CK, Greenhalgh T, Westhorp G, et al. RAMESES publication standards: realist synthesis. BMC Med 2013;11:21.
36. Rycroft-Malone J, McCormack B, Hutchinson A, et al. Realist synthesis:illustrating the methods for implementation research. Implementation Sci 2012;7:33.
37. Marshall S, Haywood KL, Fitzpatrick R. Impact of patient-reported outcome measures on routine practice: a structured review. [Review] [46 refs]. J Eval Clin Pract 2006;12:559-68. (Pubitemid 44427288)
38. Takeuchi EE, Keding A, Awad N, et al. Impact of patient-reported outcomes in oncology: a longitudinal analysis of patient-physician communication. J Clin Oncol 2011;29:2910-17.
39. Velikova G, Awad N, Coles-Gale R, et al. The clinical value of quality of life assessment in oncology practice-a qualitative study of patient and physician views. Psychooncology 2008;17:690-8.
40. Greenhalgh J, Abhyankar P, McCluskey S, et al. How do doctors refer to patient-reported outcome measures (PROMS) in oncology consultations. Qual Life Res 2013;22:939-50.
41. Rogers MS, Todd CJ. The 'right kind' of pain: talking about symptoms in outpatient oncology consultations. Palliat Med 2000;14:299-307. (Pubitemid 30609548)
42. Hibbard JH, Stockard J, Tusler M. Does publicizing hospital performance stimulate quality improvement efforts? Health Aff 2003;22:84-94. (Pubitemid 41399275)
43. Mannion R, Davies H, Marshall M. Impact of star performance ratings in English acute hospital trusts. J HealthServ Res Policy 2005;10:18-24.
44. Guru V, Fremes SE, Naylor CD, et al. Public versus private institutional performance reporting: what is mandatory for quality improvement? Am Heart J 2006;152:573-78. (Pubitemid 44233410)
45. Lindenauer PK, Remus D, Roman S, et al. Public reporting and pay for performance in hospital quality improvement. N Engl J Med 2007;356:486-96. (Pubitemid 46193076)
46. Rubenstein LV, McCoy JM, Cope DW, et al. Improving patient quality of life with feedback to physicians about functional status. J Gen Intern Med 1995;10:607-14.
47. Mathias SD, Fifer SK, Mazonson PD, et al. Necessary but not sufficient: the effect of screening and feedback on outcomes of primary care patients with untreated anxiety. J Gen Intern Med 1994;9:606-15. (Pubitemid 24370209)