The double-edged sword of electronic health records: Implications for patient disclosure

Journal of the American Medical Informatics Association

Volumn 22, Issue e1, 2014, Pages e130-e140

  Campos Castillo, Celeste ^a   Anthony, Denise L ^b  

^a UNIVERSITY OF WISCONSIN MILWAUKEE   (United States)

^b Dartmouth College ^*  (United States)

Author keywords

Consumer surveys; Electronic health records; Patient doctor communication; Privacy; Quality of care

Indexed keywords

BIVARIATE ANALYSIS; CONSUMER; DOCTOR PATIENT RELATION; ELECTRONIC HEALTH RECORD; HUMAN; HUMAN EXPERIMENT; MEDICAL INFORMATION; PRIVACY; COMPUTER SECURITY; CONFIDENTIALITY; ELECTRONIC MEDICAL RECORD; HEALTH CARE QUALITY; HEALTH CARE SURVEY; INTERPERSONAL COMMUNICATION; MULTIVARIATE ANALYSIS; UNITED STATES;

COMPUTER SECURITY; CONFIDENTIALITY; DISCLOSURE; ELECTRONIC HEALTH RECORDS; HEALTH CARE SURVEYS; HUMANS; MULTIVARIATE ANALYSIS; QUALITY OF HEALTH CARE; UNITED STATES;

EID: 84904532993     PISSN: 10675027     EISSN: 1527974X     Source Type: Journal    
DOI: 10.1136/amiajnl-2014-002804     Document Type: Article

References (65)

1. Barrows RC, Clayton PD. Privacy, confidentiality, and electronic medical records. J Am Med Inform Assoc. 1996;3: 139-48.
2. Bates DW, Ebell M, Gotlieb E, et al. A proposal for electronic medical records in U.S. primary care. J Am Med Inform Assoc. 2003;10:1.
3. Loomis GA, Ries JS, Saywell RMJ, et al. If electronic medical records are so great, why aren't family physicians using them? J Fam Pract. 2002;51:636-41.
4. Simborg DW, Detmer DE, Berner ES. The wave has finally broken: now what? J Am Med Inform Assoc. 2013;20:e21-5.
5. Shield RR, Goldman RE, Anthony DA, et al. Gradual electronic health record implementation: new insights on physician and patient adaptation. Ann Fam Med. 2010;8: 316-26.
6. Woodward B. The computer-based patient record and confidentiality. N Engl J Med. 1995;333:1419-22.
7. Harrison MI, Koppel R, Bar-Lev S. Unintended consequences of information technologies in health care-an interactive sociotechnical analysis. J Am Med Inform Assoc. 2007; 14:542-9.
8. Koppel R, Metlay JP, Cohen A, et al. Role of computerized physician order entry systems in facilitating medication errors. JAMA. 2005;293:1197-203.
9. Appari A, Eric Johnson M, Anthony DL. Meaningful use of electronic health record systems and process quality of care: evidence from a panel data analysis of U.S. acutecare hospitals. Health Serv Res. 2012;48:354-75.
10. Buntin MB, Burke MF, Hoaglin MC, et al. The benefits of health information technology: a review of the recent literature shows predominantly positive results. Health Aff. 2011; 30:464-71.
11. Delbanco T, Walker J, Bell SK, et al. Inviting patients to read their doctors' notes: a quasi-experimental study and a look ahead. Ann Intern Med. 2012;157:461-70.
12. McCullough JS, Casey M, Moscovice I, et al. The effect of health information technology on quality in U.S. hospitals. Health Aff. 2010;29:647-54.
13. Ralston JD, Revere D, Robins LS, et al. Patients' experience with a diabetes support programme based on an interactive electronic medical record: qualitative study. BMJ. 2004; 328:1159.
14. Blumenthal D. Launching HITECH. N Engl J Med. 2010;362: 382-5.
15. Technology PsCoAoSa. Report to the President Realizing the Full Potential of Health Information Technology to Improve Healthcare for Americans: The Path Forward. 2010.
16. Robinson JD, Heritage J. The structure of patients' presenting concerns: the completion relevance of current symptoms. Soc Sci Med. 2005;61:481-93.
17. Finney Rutten LJ, Vieux SN, St Sauver JL, et al. Patient perceptions of electronic medical records use and ratings of care quality. Patient Relat Outcome Measures. 2014;5: 17-22.
18. Kazley AS, Diana ML, Ford EW, et al. Is electronic health record use associated with patient satisfaction in hospitals? Health Care Manage Rev. 2012;37:23-30.
19. Rosen P, Spalding JS, Hannon JM, et al. Parent satisfaction with the electronic medical record in an academic pediatric rheumatology practice. J Med Internet Res. 2011;13:e40.
20. Ancker JS, Silver M, Miller MC, et al. Consumer experience with and attitudes toward health information technology: a nationwide survey. J Am Med Inform Assoc. 2013;20:152-6.
21. Gaylin DS, Moiduddin A, Mohamoud S, et al. Public attitudes about health information technology, and its relationship to health care quality, costs, and privacy. Health Serv Res. 2011;46:920-38.
22. Caine K, Hanania R. Patients want granular privacy control over health information in electronic medical records. J Am Med Inform Assoc. 2013;20:7-15.
23. Dimitropoulos L, Patel V, Scheffler SA, et al. Public attitudes toward health information exchange: perceived benefits and concerns. Am J Manag Care. 2011;17:SP111-16.
24. Undem T. Consumers and health information technology: a national survey. Oakland, CA: California HealthCare Foundation, 2010.
25. Lang F, Floyd MR, Beine KL, et al. Sequenced questioning to elicit the patient's perspective on illness: effects on information disclosure, patient satisfaction, and time expenditure. Fam Med. 2002;34:325-30.
26. Ong LML, de Haes JCJM, Hoos AM, et al. Doctor-patient communication: a review of the literature. Soc Sci Med. 1995;40:903-18.
27. Agaku IT, Adisa AO, Ayo-Yusuf OA, et al. Concern about security and privacy, and perceived control over collection and use of health information are related to withholding of health information from healthcare providers. J Am Med Inform Assoc. 2014;21:374-8.
28. Hall MA, Zheng B, Dugan E, et al. Measuring patients' trust in their primary care providers. Med Care Res Rev. 2002; 59:293-318.
29. Mechanic D, Meyer S. Concepts of trust among patients with serious illness. Soc Sci Med. 2000;51:657-68.
30. Willging CE, Salvador M, Kano M. Pragmatic help seeking: how sexual and gender minority groups access mental health care in a rural state. Psychiatr Serv. 2006;57:871-4.
31. Ramchand R, Fox CE, Wolitski RJ, et al. Access to optimal care among gay and bisexual men: identifying barriers and promoting culturally competent care. In: Wolitski RJ, Stall R, Valdiserri RO, eds. Unequal opportunity: health disparities affecting gay and bisexual men in the United States. New York: Oxford University Press, 2008:355.
32. National Partnership for Women & Families. Making IT meaningful: how consumers value and trust health IT. Washington, DC, 2012.
33. DiMatteo MR, Taranta A, Friedman HS, et al. Predicting patient satisfaction from physicians' nonverbal communication skills. Med Care. 1980;18:376-87.
34. Hall JA, Roter DL, Rand CS. Communication of affect between patient and physician. J Health Soc Behav. 1981; 22:18-30.
35. Hargraves JL, Hays RD, Cleary PD. Psychometric properties of the Consumer Assessment of Health Plans Study (CAHPSVR ) 2.0 adult core survey. Health Serv Res. 2003; 38(6 Pt 1):1509-27.
36. DesRoches CM, Charles D, Furukawa MF, et al. Adoption of electronic health records grows rapidly, but fewer than half of US hospitals had at least a basic system in 2012. Health Aff. 2013;32:1478-85.
37. Hsiao C-J, Jha AK, King J, et al. Office-based physicians are responding to incentives and assistance by adopting and using electronic health records. Health Aff. 2013;32: 1470-7.
38. Finney Rutten LJ, Davis T, Beckjord EB, et al. Picking up the pace: changes in method and frame for the health information national trends survey (2011-2014). J Health Commun. 2012;17:979-89.
39. Allison P. Missing Data. Thousand Oaks, CA: Sage Publications, 2001.
40. Ancker JS, Barrón Y, Rockoff ML, et al. Use of an electronic patient portal among disadvantaged populations. J Gen Intern Med. 2011;26:1117-23.
41. Malat J. Social distance and patients' rating of healthcare providers. J Health Soc Behav. 2001;42:360-72.
42. Sarkar U, Karter AJ, Liu JY, et al. Social disparities in internet patient portal use in diabetes: evidence that the digital divide extends beyond access. J Am Med Inform Assoc. 2011;18:318-21.
43. Wissow LS, Larson SM, Roter D, et al. Longitudinal care improves disclosure of psychosocial information. Arch Pediatr Adolesc Med. 2003;157:419-24.
44. Kroenke K, Spitzer RL, Williams JBW, et al. An ultra-brief screening scale for anxiety and depression: the PHQ-4. Psychosomatics. 2009;50:613-21.
45. The National Cancer Institute. Brief 23: Health information technology and meaningful use. National Cancer Institute, 2013.
46. Allison P. Multiple regression: a primer. Thousand Oaks, CA: Pine Forge Press, 2001.
47. Kiecolt-Glaser JK, Newton TL. Marriage and health: his and hers. Psychol Bull. 2001;127:472.
48. Nissenbaum H. Privacy in context: technology, policy, and the integrity of social life. Palo Alto, CA: Stanford University Press, 2010.
49. Thom DH, Campbell B. Patient-physician trust: an exploratory study. J Fam Pract. 1997;44:169-76.
50. Suurmond J, Seeleman C. Shared decision-making in an intercultural context: barriers in the interaction between physicians and immigrant patients. Patient Educ Couns. 2006;60:253-9.
51. Papic O, Malak Z, Rosenberg E. Survey of family physicians' perspectives on management of immigrant patients: attitudes, barriers, strategies, and training needs. Patient Educ Couns. 2012;86:205-9.
52. Okie S. Immigrants and health care-at the intersection of two broken systems. N Engl J Med. 2007;357:525-9.
53. Fiscella K, Meldrum S, Franks P, et al. Patient trust: is it related to patient-centered behavior of primary care physicians? Med Care. 2004;42:1049-55.
54. Dew K, Morgan S, Dowell A, et al. 'It puts things out of your control': fear of consequences as a barrier to patient disclosure of mental health issues to general practitioners. Sociol Health Illn. 2007;29:1059-74.
55. Ostertag S, Wright BRE, Broadhead RS, et al. Trust and other characteristics associated with health care utilization by injection drug users. J Drug Issues. 2006;36: 953-74.
56. Verhaeghe M, Bracke P. Stigma and trust among mental health service users. Arch Psychiatr Nurs. 2011;25: 294-302.
57. McGraw D, Dempsey JX, Harris L, et al. Privacy as an enabler, not an impediment: building trust into health information exchange. Health Aff. 2009;28:416-27.
58. Ferris N. Electronic health record standards. Health Affairs. 2010.
59. Rouf E, Whittle J, Lu N, et al. Computers in the exam room: differences in physician-patient interaction may be due to physician experience. J Gen Intern Med. 2007;22: 43-8.
60. Wright ER. Enter health information technology: expanding theories of the doctor-patient relationship for the twenty-first century health care delivery system. In: Pescosolido BA, Martin JK, McLeod JD, Rogers A, eds. Handbook of the sociology of health, illness, and healing: a blueprint for the 21st century. New York: Springer, 2011:343-59.
61. Hall MA, Dugan E, Balkrishnan R, et al. How disclosing HMO physician incentives affects trust. Health Aff. 2002;21: 197-206.
62. Pearson SD, Kleinman K, Rusinak D, et al. A trial of disclosing physicians' financial incentives to patients. Arch Intern Med. 2006;166:623-8.
63. McDonald AM, Reeder RW, Kelley PG, et al. A comparative study of online privacy policies and formats. In: Goldberg I, Atallah MJ, eds. Privacy enhancing technologies. Berlin: Springer, 2009:37-55.
64. Richman WL, Kiesler S, Weisband S, et al. A meta-analytic study of social desirability distortion in computeradministered questionnaires, traditional questionnaires, and interviews. J Appl Psychol. 1999;84:754-75.
65. Tourangeau R, Yan T. Sensitive questions in surveys. Psychol Bull. 2007;133:859-83.