Exceptional patients: Narratives of connections

Palliative and Supportive Care

Volumn 12, Issue 4, 2014, Pages 269-276

  Engebretson, Joan C ^a   Peterson, Noemi E ^a   Frenkel, Moshe ^a  

^a UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON   (United States)

Author keywords

Connections; Exceptional outcomes; Narratives; Oncology; Survivors

Indexed keywords

ADULT; AGED; FEMALE; HUMAN; MALE; MIDDLE AGED; NEOPLASM; PSYCHOLOGY; QUALITATIVE RESEARCH; RELIGION; SOCIAL SUPPORT; SURVIVOR; VERBAL COMMUNICATION;

ADULT; AGED; FEMALE; HUMANS; MALE; MIDDLE AGED; NARRATION; NEOPLASMS; QUALITATIVE RESEARCH; SOCIAL SUPPORT; SPIRITUALITY; SURVIVORS;

EID: 84904512309     PISSN: 14789515     EISSN: 14789523     Source Type: Journal    
DOI: 10.1017/S147895151300014X     Document Type: Article

References (39)

1. AbDelrazeq, A.S. (2007). Spontaneous regression of colorectal cancer: a review of cases
2. Back, A. (2006). Patient-physician communication in oncology: What does the eviDence show? Oncology, 20, 67-74 (Pubitemid 46940217)
3. Back, A., Arnold, R. & Tulsky, J. (2009). Mastering Communication with Seriously Ill Patients: Balancing Honesty with Empathy and Hope. New York: Cambridge University Press
4. Baile, W.F., Buckmanb, R., Lenzia, R., et al. (2000). SPIKES-A six step protocol for Delivering bad news: Application to the patient with cancer. The Oncologist, 5, 302-311 (Pubitemid 30666477)
5. Beach, M.C. & Inui, T. (2006). Relationship-centered care. A constructive reframing. Journal of General Internal Medicine, 21, S3-S8
6. Breibart,W., Gibson, C., Poppito, S.R., et al. (2004). Psychotherapeutic interventions at the end of life: A focus on meaning and spirituality. Cancer Journal of Psychiatry, 49, 366-372 (Pubitemid 38878667)
7. Briebart, W., Poppito, S., Rosenfeld, B., et al. (201 2). Pilot randomized controlled trial of individual meaning-centered psychotherapy for patients with adVanced cancer. Journal of Clinical Oncology, 30, 1304-9
8. Challis, G.B. & Stam, H.J. (1990). The spontaneous regression of cancer. A review of cases from 1900 to 1987. Acta Oncologica, 29, 545-550 (Pubitemid 20294725)
9. Chochinov, H.M., Hack, T.F., Hassard, T., et al. (2005). Dignity therapy: a novel psychotherapeutic int ervention for patients near the end of life. Journal of Clinical Oncology, 23, 5520-525.
10. Chochinov H.M.Kristianson L.J.Breibart W.et al.(2011). Effect of dignity therapy on distress and end-oflife experience in terminally ill patients: a randomized controlled trial. Lancet Oncology,12,753-762.
11. Classen, C., Butler, L.D., Koopman, C., et al. (2001). Supportive-expressive group therapy and distress in patients with metastatic breast cancer: A randomized clinical intervention trial. Archives of General Psychiatry, 58, 494-501 (Pubitemid 32411331)
12. Ettema, E.J., Derksen, L.D. & Van Leeuwen, E. (2010). Existential loneliness and end of life care: A systematic review. Theoretical Medicine and Bioethics. doi:10.1007/s11017-010-9141-1
13. Fønnebø , V., Drageset, B.J. & Salamonsen, A. (2012). The NAFKAM international registry of exceptional courses of disease related to the use of complementary and alternative medicine. Global AdVances in Health and Medicine, 1, 60-62.
14. Franklin, C.I. (1982). Spontaneous Regression in Cancer. Toronto: Wiley
15. Frenkel, M., Shachar, L.A., Engebretson, J., et al. (2010). Activism among exceptional patients with cancer. Supportive Care in Cancer, doi:10.1007/s00520-010-0918-6
16. Green, J. & Thorogood, N. (200 9). Qualitative methods for Health Research. London: Sage Publications
17. Greenstein, M. & Breibart, W. (2000). Cancer and the experience of meaning: a group psychotherapy program for people with cancer. American Journal of Psychotherapy, 54, 486-500 (Pubitemid 32905614)
18. Hall, S., Edmonds, P., Harding, R., et al. (2009). Assessing the feasibility, acceptability and potential effectiveness of Dignity Therapy for people with adVan ced cancer referred to a hospital-based palliative care team: study protocol. BMC Palliative Care, 16, 8:5
19. Hirshberg, C. & Barasch, M.I. (1996). Remarkable Recovery. New York: Riverhead TraDe.
20. Hirshberg, C.B. (1993). Spontaneous Remission. An Annotated Bibliography. Petaluma: Institute of Noetic Sciences
21. Hö k, J., Forss, A., Falkenberg, T., et al. (2009). What is an exceptional cancer traje ctory?: Multiple stakeholDer perspectives on cancer trajectories in relation to complementary and alternative medicine use. Integrative Cancer, doi:10.1177/1534735409335607
22. Holt-Lunstad, J., Smith, T.B.&Layton, J.B. (2010). Social relationships and mortality risk: A meta-analytic review. PLoS Medicine. doi:10.1371/journal.pmed.1000316
23. Jerry, L.M. & Challis, E.B. (1984). Oncology. PhilaDelphia: SaunDers
24. Joss elson, R., Lieblich, A. & McAdams, D.P. (2002). Up close and personal: The teaching and learning of narrative research. Washington, DC: American Psychological Association
25. Keilholz, U. (2007). Disappearing cancer. International Journal of Colorectal Disease, 22, 737-738 (Pubitemid 46863750)
26. Klienman, A. (1988). The Illness Narratives: Suffering, Healing, and the Human Condition. New York: Basic Books
27. Lee, S.J., Bac k, AL, Block, S.D., et al. (2002). Enhancing Physician-Patient Communication. Washington, DC: American Society Hematology Education Program, 464-83
28. Lemieux, J., Beaton, D.E., Hogg-Johnson, S., et al. (2007). Responsiveness to change (corrected) due to supportive expressive group therapy, improvement in mood and disease progression in women with metastatic breast cancer. Quality of Life, 16, 1007-1017 (Pubitemid 47179824)
29. Leszcz, M. & Goodwin, P.J. (1998). The rationale and foundations of group psychotherapy for women with metastatic breast cancer. International Journal of Group Psychother apy, 48, 245-273 (Pubitemid 28166702)
30. Lieblich, A., Tuval-Mashiach, R. & Zilber, T. (1988). Narrative Research: Reading, Analysis and Interpretation. Thousand Oaks, CA: Sage Publications.
31. Mattingly C.Garro L.C.2000, Narrative and the Cultural Construction of Illness and Healing, Berkeley University of California Press.
32. McClement, S., Chochinov, H.M., Hack, T., et al. (2007). Dignity therapy: Family members perspectives. Journal of Palliative Medicine, 10, 1076-1082 (Pubitemid 350073555)
33. Moustakas, C. (1961). Loneliness. Englewood Cliffs: Prentice Hall
34. NCCN Clinical Practice Oncology Forum a Teleinterview. (2012). Communicating with cancer patients: when the news is bad. http://www.mdanDerson. org/education-andresearch/resources-for-professionals/professional-educational- resources/i-care/inDex.html (Accessed October 2, 2012)
35. NCI Office of Cancer Survivorship Data. (2010). Spirituality in Cancer Care. http://cancercontrol.cancer. gov/ocs/prevalence/inDex.html (Accessed January 2, 2010
36. Riessman, C.K. (2008). Narrative Meth ods for the Human Sciences. Thousand Oaks: Sage Publications
37. Spiegel, D., Butler, L.D., Giese-Davis, J., et al. (2007). Effects of supportive-expressive group therapy on survival of patients with metastatic b reast cancer: A randomized prospective trial. Cancer, 110, 1130-1138 (Pubitemid 47312880)
38. Suchman, A.L. (2006). A new theoretical foundation for relationship-centered care: Complex responsive processes of relating. Journal of Gen eral Internal Medicine, doi:10.1111/j.1525-1497.2006.00308.x
39. Ventegodt, S., Morad, M., Hyam, E., et al. (2004). Clinical holistic medicine: Induction of spontaneous remission of cancer by recovery of the human cha racter and the purpose of life (the life mission). Science World Journal, 4, 362-377