Strategies for the economic evaluation of end-of-life care: Making a case for the capability approach

Expert Review of Pharmacoeconomics and Outcomes Research

Volumn 14, Issue 4, 2014, Pages 473-482

  Coast, Joanna ^a  

^a UNIVERSITY OF BIRMINGHAM   (United Kingdom)

Author keywords

Capability approach; Close persons; Decision making; Economic evaluation; End of life care; ICECAP SCM; Valuation

Indexed keywords

CAPABILITY APPROACH; COST BENEFIT ANALYSIS; COST EFFECTIVENESS ANALYSIS; DECISION MAKING; DYING; ECONOMIC EVALUATION; EXTRA WELFARIST APPROACH; HEALTH CARE POLICY; HEALTH MAXIMIZATION APPROACH; HUMAN; MEDICAL ETHICS; PATIENT PREFERENCE; PHILOSOPHY; QUALITY ADJUSTED LIFE YEAR; REVIEW; TERMINAL CARE; WELFARIST APPROACH; WELLBEING; ECONOMICS; INFORMATION PROCESSING; OUTCOME ASSESSMENT; PROCEDURES; RESOURCE ALLOCATION;

DATA COLLECTION; DECISION MAKING; HUMANS; OUTCOME ASSESSMENT (HEALTH CARE); RESOURCE ALLOCATION; TERMINAL CARE;

EID: 84904328310     PISSN: 14737167     EISSN: 17448379     Source Type: Journal    
DOI: 10.1586/14737167.2014.914436     Document Type: Review

References (82)

1. Department of Health. End of life care strategy: Promoting high quality care for all adults at the end of life. Department of Health; London, UK: 2008
2. National Audit Office. End of life care. Report by the comptroller and auditor general. The Stationery Office; London, UK: 2008
3. Department of Health and Ageing. Supporting Australians to live well at the end of life. National palliative care strategy 2010. Department of Health and Ageing; Canberra, Australia: 2010
4. Health Canada. Canadian strategy on palliative and end-of-life care. Final report of the coordinating committee. December 2002 to March 2007. Ottawa: Health Canada. 2007
5. Parliamentary Assembly. Resolution 1649 2009. Palliative care: A model for innovative health and social policies. Council of Europe. 2009
6. McBride T, Morton A, Nichols A, van Stolk C. Comparing the costs of alternative models of end-of-life care. J Palliat Care 2011;27(2):126-33
7. Smith S, Brick A, O'Hara S, Normand C. Evidence on the cost and cost-effectiveness of palliative care: A literature review. Palliat Med 2014;28:130-50
8. Normand C. Measuring outcomes in palliative care: Limitations of QALYs and the Road to PalYs. J Pain Symptom Manage 2009;38:27-31
9. Normand C. Setting priorities in and for end-of-life care: Challenges to the application of economic evaluation. Health Econ Policy Law 2012;7(4):431-9
10. Gomes B, Harding R, Foley KM, Higginson I. Optimal approaches to the health economics of palliative care: Report of an international think tank. J Pain Symptom Manage 2009;38:4-10
11. Harding R, Gomes B, Foley KM, Higginson IJ. Research priorities in health economics and funding for palliative care: Views of an international think tank. J Pain Symptom Manage 2009;38(1):11-14
12. Haycox A. Optimizing decision making and resource allocation in palliative care. J Pain Symptom Manage 2009;38(1):45-53
13. McCaffrey N, Currow DC, Eckermann S. Measuring impacts of value to patients is crucial when evaluating palliative care. J Pain Symptom Manage 2009;37(6):e7-9
14. Coast J, Flynn N, Sutton E, et al. Investigating choice experiments for perferences of older people (ICEPOP): Evaluative spaces in health economics. J Health Serv Res Policy 2008;13(Suppl 3): 31-7
15. Kinghorn P, Coast J. A health economics response to the review of the Liverpool Care Pathway. J Palliat Med 2013;16(12): 1614-16
16. Round J. Is a QALY still a QALY at the end of life? J Health Econ 2012;31:521-7
17. Higginson IJ, Evans CJ, Grande G, et al. Evaluating complex interventions in end of life care: The MORECare statement on good practice generated by a synthesis of transparent consultations and systematic reviews. BMC Med 2013;11:111
18. Brouwer WBF, Culyer AJ, van Exel NJA, Rutten FFH. Welfarism vs. extra-welfarism. J Health Econ 2008;27:325-38
19. Coast J, Smith RD, Lorgelly P. Welfarism, extra-welfarism and capability: The spread of ideas in health economics. Soc Sci Med 2008;67:1190-8
20. Coast J. Maximisation in extra-welfarism: A critique of the current position in health economics. Soc Sci Med 2009;69:786-92
21. Blaug M. Economic theory in retrospect. 5th edition. Cambridge University Press; Cambridge,UK: 1996
22. Hargreaves Heap S, Hollis M, Lyons B, et al. The theory of choice: A critical guide. Blackwell; Oxford,UK: 1992
23. Kaldor N. Welfare propositions of economics and interpersonal comparisons of utility. Economic J 1939;49:549-52
24. Mishan EJ. Cost-benefit analysis. An informal introduction. Unwin Hyman; London, UK: 1988. p. 4
25. Alberini A, Cropper M, Krupnick A, Simon N. Does the value of a statistical life vary with age and health status? Evidence from the United States and Canada. Discussion Paper 02-19. Washington: Resources for the Future; 2002
26. Kneiser T, Viscusi W, Ziliak J. LIfe cycle consumption and the age-Adjusted value of life. Contributions to Economic Analysis and Policy 2006;5(1): Article 4
27. Becker G, Murphy K, Philipson T. The Value of Life Near its End and Terminal Care. NBE Working Paper 13333. Cambridge, MA: National Bureau of Economic Research. 2007
28. Smith RD. Is regret theory an alternative basis for estimating the value of healthcare interventions? Health Policy 1996;37: 105-15
29. Richardson J, McKie J. Reassurance, regret and uncertainty: Testing ex ante sources of (dis)utility and the welfarist account of social welfare. Working paper 153. Monash University: Centre for Health Economics. 2005
30. Shah KK, Cookson R, Culyer, et al. NICE's social value judgements about equity in health and health care. Health Econ Policy Law 2013;8(2):145-65
31. Shah KK, Tsuchiya A, Wailoo A. Valuing health at the end of life: An emprical study of public preferences. Eur J Health Econ 2014. [Epub ahead of print]
32. Chalkidou K. Evidence and values: Paying for end-of-life drugs in the British NHS. Health Econ Policy Law 2012;7(4):393-409
33. Sen A. Capability and well-being. In: Nussbaum MC, editor. The quality of life. Clarendon Press; Oxford, UK: 1993
34. Coast J, Lavender S. An exploration of the economics of end of life care. Presented to the UK Health Economists' Study Group Meeting, Manchester, January 2009
35. Social Care Institute for Excellence. Dying well at home: Research evidence. Social Care Institute for Excellence; London, UK: 2013
36. Sen A. On ethics and economics. Blackwell Publishing; Oxford, UK: 1987
37. Singer P, Martin D, Kelner M. Quality of end-of-life care-patients' perspectives. JAMA 1999;281:163-8
38. Steinhauser KE, Christakis NA, Clipp EC, et al. Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 2000;284: 2476-82
39. Steinhauser KE, Clipp EC, McNeilly M, et al. In search of a good death: Observations of patients, families and providers. Ann Intern Med 2000;132: 825-32
40. Daveson BA, Alonso JP, Calanzani N, et al. Learning from the public: Citizens describe the need to improve end-of-life care access, provision and recognition across Europe. (In press.). Eur J Public Health 2013
41. Byock IR, Corbeil YJ, Goodrich ME. Beyond polarization, public preferences suggest policy opportunities to address aging, dying and family caregiving. Am J Hosp Palliat Med 2009;26(3):200-8
42. Parkinson C. UK experts back meningitis B jab. BBC News; 2014
43. Alkire S, Deneulin S. The human development and capability approach. In: Deneulin S, Shahani L, editors. An introduction to the human development and capability approach: Freedom and agency. Earthscan; London, UK: 2009. p. 22-48
44. Sen A. Inequality reexamined. Russell Sage Foundation; New York, USA: 1992
45. Sen A. The idea of justice. Allen Lane; London, UK: 2009
46. Nussbaum MC. Capabilities as fundamental entitlements: Sen and social justice. Fem Econ 2003;9(2-3):33-59
47. Alkire S. Why the capability approach? J Hum Dev 2005;6:115-33
48. Agarwal B, Humphries J, Robeyns I. Exploring the challenges of Amartya Sen's work and ideas: An introduction. Fem Econ 2003;9(2-3):3-12
49. Robeyns I. The capability approach: A theoretical survey. J Hum Dev 2005;6: 93-114
50. Robeyns I. The capability approach in practice. J Polit Philos 2006;14:351-76
51. Coventry P, Grande G, Richards D, Todd C. Prediction of appropriate timing of palliative care for older adults with non-malignant life-Threatening disease: A systematic review. Age Ageing 2005;34: 218-27
52. Lloyd L. Mortality and morality: Ageing and the ethics of care. Ageing Soc 2004;24: 235-56
53. Shah S, Blanchard M, Tookman A, et al. Estimating needs in life threatening illness: A feasibility study to assess the views of patients and doctors. Palliat Med 2006;20: 205-10
54. Emanuel E, Fairclough D, Slutsman J, Emanuel L. Understanding economic and other burdens of terminal illness: The experience of patients and their caregivers. Ann Intern Med 2000;132:451-9
55. Douglas H, Higginson I, Myers K, Normand C. Assessing structure, process and outcome in palliative day care: A pilot study for a multicentre trial. Health Soc Care Community 2000;8:336-44
56. Kissane DW, McKenzie M, Bloch S, et al. Family focused grief therapy: A randomized, controlled trial in palliative care and bereavement. Am J Psychiatry 2009;163: 1208-18
57. Robeyns I. Sen's capability approach and gender inequality: Selecting relevant capabilities. Fem Econ 2003;9(2-3):61-92
58. Sen A. Human rights and capabilities. J Hum Dev 2005;6:151-66
59. Grewal I, Lewis J, Flynn TN, et al. Developing attributes for a generic quality of life measure for older people: Preferences or capabilities? Soc Sci Med 2006;62: 1891-901
60. Coast J, Flynn TN, Natarajan L, et al. Valuing the ICECAP capability index for older people. Soc Sci Med 2008;67:874-82
61. Coast J, Peters TJ, Natarajan L, et al. An assessment of the construct validity of the descriptive system for the ICECAP capability measure for older people. Qual Life Res 2008;17:967-76
62. Al-Janabi H, Flynn TN, Coast J. Development of a self-report measure of capability wellbeing for adults: The ICECAP-A. Qual Life Res 2012;21:167-76
63. Al-Janabi H, Peters TJ, Brazier J, et al. An investigation of the construct validity of the ICECAP-A capability measure. Qual Life Res 2013;22:1831-40
64. Flynn TN, Huynh E, Peters TJ, et al. Scoring the ICECAP-A capability instrument. Estimation of a UK general population tariff. Health Econ 2014. [Epub ahead of print]
65. Simon J, Anand P, Gray A, et al. Operationalising the capability approach for outcome measurement in mental health research. Soc Sci Med 2013;98:187-96
66. Steinhauser KE, Christakis NA, Clipp EC, et al. Preparing for the end of life: Preferences of patients, families, physicians, and other care providers. J Pain Symptom Manage 2001;22:727-37
67. Sutton E, Coast J. Older people's preferences at the end of life-A review of the literature. Presented at Making Sense of Dying Conference, Oxford 2006. Available from: Www.inter-disciplinary.net/mso/dd/ dd4/sutton%20paper.pdf
68. Sutton E, Coast J. 'Choice is a small word with a huge meaning': Autonomy and decision making at the end of life. Policy Polit 2012;40(2):211-26
69. Sutton E, Coast J. Development of a supportive care measure for economic evaluation of end-of-life care, using qualitative methods. Palliat Med 2014;28: 151-7
70. Leonard R, Horsfall D, Noonan K. Identifying changes in the support networks of end-of-life carers using social network analysis. BMJ Support Palliat Care 2013. [Epub ahead of print]
71. Lunney J, Lynn J, Hogan C. Profiles of older Medicare decedents. J Am Geriatr Soc 2002;50:1108-12
72. Lunney J, Lynn J, Foley D, et al. Patterns of functional decline at the end of life. JAMA 2003;289:2387-92
73. Sen A. Reason, freedom and well-being. Utilitas 2006;18:80-96
74. Cookson R. QALYs and the capability approach. Health Econ 2005;14:817-29
75. Flynn TN, Louviere J, Peters T, Coast J. Best-worst scaling. What it can do for health care research and how to do it. J Health Econ 2007;26:171-89
76. Coast J, Smith RD, Lorgelly P. Should the capability approach be applied in health economics? Health Econ 2008;17:667-70
77. Robeyns I. Equality and justice. In: Deneulin S, Shahani L, editors. An introduction to the human development and capability approach. Freedom and agency. Earthscan; London, UK: 2009
78. Alkire S, Foster J. Counting and multidimensional poverty measurement. J Public Econ 2011;95:476-87
79. Main J, Whittle C, Treml J, et al. The development of an integrated care pathway for all patients with advanced life-limiting illness-The Supportive Care Pathway. J Nurs Manag 2006;14:521-8
80. Francis J, Byford S. SCIE's approach to economic evaluation in social care. Social Care Institute for Excellence; London, UK: 2011
81. National Institute for Health and Care Excellence. The social care guidance manual. National Institute for Health and Care Excellence; London, UK: 2011
82. Raftery J. Value based pricing: Can it work? BMJ 2013;347:f5941.