The Canadian survey of health, lifestyle and ageing with multiple sclerosis: Methodology and initial results

BMJ Open

Volumn 4, Issue 7, 2014, Pages

  Ploughman, Michelle ^a   Beaulieu, Serge ^b   Harris, Chelsea ^a   Hogan, Stephen ^a   Manning, Olivia J ^a   Alderdice, Penelope W ^a   Fisk, John D ^c   Sadovnick, A Dessa ^d   O'Connor, Paul ^e   Morrow, Sarah A ^f   Metz, Luanne M ^g   Smyth, Penelope ^h   Mayo, Nancy ⁱ   Marrie, Ruth Ann ^j   Knox, Katherine B ^k   Stefanelli, Mark ^a   Godwin, Marshall ^a  

^a MEMORIAL UNIVERSITY OF NEWFOUNDLAND   (Canada)

^b Eastern Health Canada   (Canada)

^c DALHOUSIE UNIVERSITY   (Canada)

^d UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^e ST MICHAEL'S HOSPITAL   (Canada)

^f LONDON HEALTH SCIENCES CENTRE   (Canada)

^g UNIVERSITY OF ALBERTA   (Canada)

^h UNIVERSITY OF CALGARY   (Canada)

ⁱ MCGILL UNIVERSITY   (Canada)

^j UNIVERSITY OF MANITOBA   (Canada)

^k UNIVERSITY OF SASKATCHEWAN   (Canada)

more..

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGING; ALCOHOL CONSUMPTION; ARTICLE; BARTHEL INDEX; CANADA; COMORBIDITY; DISABILITY; FATIGUE; FEMALE; HEALTH; HEALTH BEHAVIOR; HOSPITAL ANXIETY AND DEPRESSION SCALE; HUMAN; LEISURE; LIFESTYLE; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH; MULTIPLE SCLEROSIS; PHYSICAL ACTIVITY; QUALITY OF LIFE; SMOKING; SOCIAL SUPPORT; AGE; AGED; CLINICAL TRIAL; CROSS-SECTIONAL STUDY; HEALTH SURVEY; MIDDLE AGED; MULTICENTER STUDY; VERY ELDERLY;

AGE FACTORS; AGED; AGED, 80 AND OVER; CANADA; CROSS-SECTIONAL STUDIES; FEMALE; HEALTH SURVEYS; HUMANS; LIFE STYLE; MALE; MIDDLE AGED; MULTIPLE SCLEROSIS;

EID: 84904264285     PISSN: None     EISSN: 20446055     Source Type: Journal    
DOI: 10.1136/bmjopen-2014-005718     Document Type: Article

References (49)

1. Sadovnick AD. Genetic background of multiple sclerosis. Autoimmun Rev 2012;11:163-6.
2. Marrie RA, Yu N, Blanchard J, et al. The rising prevalence and changing age distribution of multiple sclerosis in Manitoba. Neurology 2010;74:465-71.
3. D'Hooghe MB, Haentjens P, Nagels G, et al. Alcohol, coffee, fish, smoking and disease progression in multiple sclerosis. Eur J Neurol 2012;19:616-24.
4. Marrie RA, Rudick R, Horwitz R, et al. Vascular comorbidity is associated with more rapid disability progression in multiple sclerosis. Neurology 2010;74:1041-7.
5. Ploughman M, Austin MW, Murdoch M, et al. Factors influencing healthy aging with multiple sclerosis: a qualitative study. Disabil Rehabil 2012;34:26-33.
6. Ploughman M, Austin MW, Murdoch M, et al. The path to self-management: a qualitative study involving older people with multiple sclerosis. Physiother Can 2012;64:6-17.
7. He D, Guo R, Zhang F, et al. Rituximab for relapsing-remitting multiple sclerosis. Cochrane Database Syst Rev 2013;12:CD009130.
8. Rietberg MB, Brooks D, Uitdehaag BM, et al. Exercise therapy for multiple sclerosis. Cochrane Database Syst Rev 2005;(1):CD003980.
9. Ploughman M, Austin M, Stefanelli M, et al. Applying cognitive debriefing to pre-test patient-reported outcomes in older people with multiple sclerosis. Qual Life Res 2010;19:483-7.
10. Multiple Sclerosis Society of Canada. MS Research Portal. Secondary MS Research Portal 2012. http://msresearch.ca/ (accessed May 2014).
11. Hobart J, Lamping D, Fitzpatrick R, et al. The Multiple Sclerosis Impact Scale (MSIS-29): a new patient-based outcome measure. Brain 2001;124(Pt 5):962-73. (Pubitemid 32458508)
12. Hobart JC, Riazi A, Lamping DL, et al. How responsive is the Multiple Sclerosis Impact Scale (MSIS-29)? A comparison with some other self report scales. J Neurol Neurosurg Psychiatry 2005;76:1539-43. (Pubitemid 41531702)
13. Mahoney FI, Barthel DW. Functional Evaluation: the Barthel Index. Md State Med J 1965;14:61-5.
14. Nicholl L, Hobart J, Dunwoody L, et al. Measuring disability in multiple sclerosis: is the Community Dependency Index an improvement on the Barthel Index? Mult Scler 2004;10:447-50. (Pubitemid 39117343)
15. Cano SJ, O'Connor RJ, Thompson AJ, et al. Exploring disability rating scale responsiveness II: do more response options help? Neurology 2006;67:2056-9. (Pubitemid 44967392)
16. van der Putten JJ, Hobart JC, Freeman JA, et al. Measuring change in disability after inpatient rehabilitation: comparison of the responsiveness of the Barthel index and the Functional Independence Measure. J Neurol Neurosurg Psychiatry 1999;66:480-4. (Pubitemid 29145683)
17. Yeo D, Faleiro R, Lincoln NB. Barthel ADL Index: a comparison of administration methods. Clin Rehabil 1995;9:34-9.
18. Katz PP. Measures of adult general functional status: the Barthel Index, Katz Index of activities of daily living, health assessment questionnaire (HAQ), MACTAR patient preference disability questionnaire, and modified health assessment questionnaire (MHAQ). Arthrit Care Res 2003;49:S15-27.
19. Marrie RA, Horwitz RI. Emerging effects of comorbidities on multiple sclerosis. Lancet Neurol 2010;9:820-8.
20. Horton M, Rudick RA, Hara-Cleaver C, et al. Validation of a self-report comorbidity questionnaire for multiple sclerosis. Neuroepidemiology 2010;35:83-90.
21. Wade DT, Legh-Smith J, Langton Hewer R. Social activities after stroke: measurement and natural history using the Frenchay Activities Index. Int Rehabil Med 1985;7:176-81. (Pubitemid 16203279)
22. Turnbull JC, Kersten P, Habib M, et al. Validation of the Frenchay Activities Index in a general population aged 16 years and older. Arch Phys Med Rehabil 2000;81:1034-8. (Pubitemid 30618658)
23. Carter J, Mant F, Mant J, et al. Comparison of postal version of the Frenchay Activities Index with interviewer-administered version for use in people with stroke. Clin Rehabil 1997;11:131-8. (Pubitemid 27267748)
24. Einarsson U, Gottberg K, Fredrikson S, et al. Activities of daily living and social activities in people with multiple sclerosis in Stockholm County. Clin Rehabil 2006;20:543-51. (Pubitemid 44102827)
25. Ytterberg C, Johansson S, Gottberg K, et al. Perceived needs and satisfaction with care in people with multiple sclerosis: a two-year prospective study. BMC Neurol 2008;8:36.
26. Godwin M, Streight S, Dyachuk E, et al. Testing the Simple Lifestyle Indicator Questionnaire: initial psychometric study. Can Fam Physician 2008;54:76-7.
27. Honarmand K, Feinstein A. Validation of the Hospital Anxiety and Depression Scale for use with multiple sclerosis patients. Mult Scler 2009;15:1518-24.
28. Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand 1983;67:361-70. (Pubitemid 13098606)
29. Wagnild GM, Young HM. Development and psychometric evaluation of the Resilience Scale. J Nurs Meas 1993;1:165-78.
30. Weinert C. A social support measure: PRQ85. Nurs Res 1987;36:273-7.
31. Weinert C, Cudney S, Hill WG. Rural women, technology, and self-management of chronic illness. Can J Nurs Res 2008;40:114-34.
32. Long KA, Weinert C. Descriptions and perceptions of health among rural and urban adults with multiple sclerosis. Res Nurs Health 1992;15:335-42.
33. Statistics Canada. Canadian Community Health Survey: Data Liberation Initiative 2010.
34. Gagne L, Tedds L, Sullivan J, et al. An introduction to the UT/DLS: Microdata analysis subsetting. Secondary An introduction to the UT/DLS: Microdata analysis subsetting n.d. http://sda.chass.utoronto.ca/sdaweb/doc/ SDAtutorial2008.pdf
35. Hawthorne G, Elliott P. Imputing cross-sectional missing data: comparison of common techniques. Aust N Z J Psychiatry 2005;39:583-90. (Pubitemid 41602542)
36. Evans C, Beland SG, Kulaga S, et al. Incidence and prevalence of multiple sclerosis in the Americas: a systematic review. Neuroepidemiology 2013;40:195-210.
37. Statistics Canada. Population by sex and age group secondary population by sex and age group 2012. http://www.statcan.gc.ca/tables-tableaux/sum-som/l01/ cst01/demo10a-eng.htm
38. Buchanan RJ, Chakravorty BJ, Tyry T, et al. Age-related comparisons of people with multiple sclerosis: demographic, disease, and treatment characteristics. NeuroRehabilitation 2009;25:271-8.
39. Giordano A, Ferrari G, Radice D, et al. Self-assessed health status changes in a community cohort of people with multiple sclerosis: 11 years of follow-up. Eur J Neurol 2013;20:681-8.
40. Asano M, Duquette P, Andersen R, et al. Exercise barriers and preferences among women and men with multiple sclerosis. Disabil Rehabil 2013;35:353-61.
41. Kasser SL, Kosma M. Health beliefs and physical activity behavior in adults with multiple sclerosis. Disabil Health J 2012;5:261-8.
42. Jensen MP, Molton IR, Gertz KJ, et al. Physical activity and depression in middle and older-aged adults with multiple sclerosis. Disabil Health J 2012;5:269-76.
43. Krokavcova M, Nagyova I, van Dijk JP, et al. Mastery, functional disability and perceived health status in patients with multiple sclerosis. Eur J Neurol 2008;15:1237-44.
44. Kayes NM, McPherson KM, Schluter P, et al. Exploring the facilitators and barriers to engagement in physical activity for people with multiple sclerosis. Disabil Rehabil 2011;33:1043-53.
45. Chretien JP, Chu LK, Smith TC, et al. Demographic and occupational predictors of early response to a mailed invitation to enroll in a longitudinal health study. BMC Med Res Methodol 2007;7:6.
46. Manouchehrinia A, Tench CR, Maxted J, et al. Tobacco smoking and disability progression in multiple sclerosis: United Kingdom cohort study. Brain 2013;136(Pt 7):2298-304.
47. D'Hooghe MB, Nagels G, De Keyser J, et al. Self-reported health promotion and disability progression in multiple sclerosis. J Neurol Sci 2013;325:120-6.
48. Marrie RA, Horwitz RI, Cutter G, et al. Smokers with multiple sclerosis are more likely to report comorbid autoimmune diseases. Neuroepidemiology 2011;36:85-90.
49. Weiland TJ, Hadgkiss EJ, Jelinek GA, et al. The association of alcohol consumption and smoking with quality of life, disability and disease activity in an international sample of people with multiple sclerosis. J Neurol Sci 2014;336:211-19.