Was Sarah Murnaghan treated justly?

Pediatrics

Volumn 134, Issue 1, 2014, Pages 155-162

  DeSante, Jennifer ^a   Caplan, Arthur ^b   Hippen, Benjamin ^c   Testa, Giulano ^d   Lantos, John D ^e  

^a CHILDREN S HOSPITAL OF PHILADELPHIA   (United States)

^b NEW YORK UNIVERSITY MEDICAL CENTER   (United States)

^c CAROLINAS MEDICAL CENTER   (United States)

^d BAYLOR UNIVERSITY MEDICAL CENTER   (United States)

^e CHILDREN S MERCY HOSPITAL   (United States)

Author keywords

Child; Cystic fibrosis; Ethics; Justice; Lung transplantation; Resource allocation

Indexed keywords

ARTICLE; ASSISTED VENTILATION; CADAVER DONOR; CASE REPORT; CHILD; CHILD ADVOCACY; CLINICAL DECISION MAKING; CRITICALLY ILL PATIENT; CYSTIC FIBROSIS; DONOR SELECTION; EXTRACORPOREAL OXYGENATION; FEMALE; GRAFT DYSFUNCTION; HEALTH CARE ACCESS; HEALTH CARE POLICY; HOSPITAL ADMISSION; HUMAN; LUNG ALLOCATION SCORE; LUNG TRANSPLANTATION; PATIENT RIGHT; PRIORITY JOURNAL; RESPIRATORY FAILURE; SCHOOL CHILD; SCORING SYSTEM;

CHILD; CYSTIC FIBROSIS; ETHICS; JUSTICE; LUNG TRANSPLANTATION; RESOURCE ALLOCATION;

AGE FACTORS; CHILD; FEMALE; HUMANS; LUNG TRANSPLANTATION; TISSUE AND ORGAN PROCUREMENT; UNITED STATES;

EID: 84904163173     PISSN: 00314005     EISSN: 10984275     Source Type: Journal    
DOI: 10.1542/peds.2013-4189     Document Type: Article

References (28)

1. Levs J, Welch C, Asher Z, Bixler J. Dying girl's plight sparks fight over organ transplants. CNN Cable News Network. May 29, Available at: http://edition.cnn.com/2013/05/29/health/pennsylvania-girl-lungs. Accessed December 11, 2013
2. OPTN: Organ Procurement and Transplantation Network. Available at: http://optn.transplant.hrsa.gov/policiesAndBylaws/nota.asp. Accessed December 11, 2013
3. Organ Procurement and Transplantation Network (OPTN) Policies. Policy 10: Allocation of Lungs. Available at: http://optn.transplant.hrsa.gov/ ContentDocuments/OPTN-Policies-PC-08-2013.pdf#nameddest=Policy10. Accessed December 11, 2013
4. Keating DT, Marasco SF, Negri J, et al. Long-term outcomes of cadaveric lobar lung transplantation: helping to maximize resources. J Heart Lung Transplant. 2010;29(4):439-444
5. Benden C, Inci I, Weder W, Boehler A. Size-reduced lung transplantation in children - an option worth to consider! Pediatr Transplant. 2010;14(4):529-533
6. Marasco SF, Than S, Keating D, et al Cadaveric Lobar Lung Transplantation. Cadaveric lobar lung transplantation: technical aspects. Ann Thorac Surg. 2012;93(6):1836-1842
7. Mohite PN, Popov AF, Yacoub MH, Simon AR. Living related donor lobar lung transplantation recipients surviving well over a decade: still an option in times of advanced donor management. J Cardiothorac Surg. 2013;8:37.
8. Norman B. Kathleen Sebelius at center of storm over child's lung transplant. Available at: www.politico.com/story/2013/06/kathleen-sebelius- childs-lung-transplant-92237.html#ixzz-2nBmx8sVb. Accessed December 11, 2013
9. Baylson MM. United States District Court. Eastern District of Pennsylvania. Janet and Franicis Murnaghan v. United States Department of Health and Human Services. Rep. no. Civil Action 13-3083. June 2013. Available at: www.paed.uscourts.gov/documents/opinions/13D0484P.pdf. Accessed December 11, 2013
10. United Network of Organ Sharing. Questions and answers for transplant candidates about lung allocation policy. 2010. Available at: www.unos.org/docs/Lung-Patient.pdf. Accessed April 21, 2014
11. Ladin K, Hanto DW. Rationing lung transplants - procedural fairness in allocation and appeals. N Engl J Med. 2013;369(7):599-601
12. Department of Health and Human Services. 2011 Annual Data Report. Scientific Registry of Transplant Recipients. Available at: http://srtr. transplant.hrsa.gov/annual-reports/2011/default.aspx. Accessed September 4, 2013
13. Hoffman B. Rep. Barletta: Sebelius could easily have interceded in sick girl's case. Newsmax. June 6, 2013. Available at: www.newsmax.com/US/barletta- sebelius-sick-girl/2013/06/06/id/508548. Accessed September 4, 2013
14. National Heart, Lung, and Blood Institute. What are the risks of lung transplant? May 1, 2011. Available at: www.nhlbi.nih.gov/health/health-topics/ topics/lungtxp/risks.html. Accessed September 4, 2013
15. Reese PP, Caplan AL. Better off living - the ethics of the new UNOS proposal for allocating kidneys for transplantation. Clin J Am Soc Nephrol. 2011;6(9):2310-2312
16. Halpern SD. Turning wrong into right: the 2013 lung allocation controversy. Ann Intern Med. 2013;159(5):358-359
17. Harvey SG. The 2013 lung allocation controversy. Ann Int Med. 2013;159:794
18. UNOS/OPTN. Policy 10: allocation of lungs, Tables 10-4 and 10-5. Available at: http://optn.transplant.hrsa.gov/ContentDocuments/OPTN-Policies. pdf. Accessed February 10, 2014
19. UNOS/OPTN. Executive committee meeting June 10, 2013: agenda and materials. Available at: http://optn.transplant.hrsa.gov/ContentDocuments/OPTN- Exec-Comm-mtng-materials-06-10-13.pdf. Accessed December 1, 2013
20. Edney A. Dying girl needing lung forces change in US policy. Bloomberg News, June 11, 2013. Available at: www.bloomberg.com/news/2013-06-10/u-s-organ- donor-committee-votes-to-ease-under-12-lung-policy.html. Accessed December 1, 2013
21. Shakespeare W. The Life and Death of Julius Caesar. Act 1, Scene II. Available at: http://shakespeare.mit.edu/julius-caesar/full.html. Accessed April 21, 2014
22. Scientific Registry Transplant Recipients. Available at: www.srtr.org. Accessed December 11, 2013
23. National Organ Transplant Act: Public Law 98-507. October 19, 1984. Available at: www.gpo.gov/fdsys/pkg/STATUTE-98/pdf/STATUTE-98-Pg2339.pdf. Accessed April 21, 2014
24. HRSA UNOS. Policy management/policies. Available at: http://optn. transplant.hrsa.gov/PoliciesandBylaws2/policies/pdfs/policy-9.pdf. Accessed April 21, 2014
25. Loviglio J. Sarah Murnaghan now has pneumonia in one lung. NBC News. July 8, Available at: www.nbcnews.com/health/sarah-murnaghan-now-has-pneumonia-one- lung-6C10570533. Accessed December 11, 2013
26. Alexander S. They decide who lives, who dies. Life Magazine. 1962;53:102-125. Available at: http://ihatedialysis.com/forum/index.php?topic= 23860.0. Accessed November 29, 2013
27. Calabresi G, Bobbitt P. Tragic Choices. New York: W.W. Norton; 1978
28. Snyder JJ, Salkowski N, Skeans M, et al. The equitable allocation of deceased donor lungs for transplant in children in the United States. Am J Transplant. 2014;14(1):178-183