Effects of Behavior Problems, Family Functioning, and Family Coping on Parent Stress in Families with a Child with Smith-Magenis Syndrome

Journal of Developmental and Physical Disabilities

Volumn 26, Issue 4, 2014, Pages 391-401

  Morse, Rebecca S ^a   Rojahn, Johannes ^a   Smith, Ann C M ^b  

^a GEORGE MASON UNIVERSITY   (United States)

^b NATIONAL HUMAN GENOME RESEARCH INSTITUTE   (United States)

Author keywords

Family functioning; Maladaptive behavior; Parent stress; Smith Magenis syndrome

Indexed keywords

EID: 84903906974     PISSN: 1056263X     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10882-014-9367-3     Document Type: Article

References (28)

1. Abidin, R. (1995). Parenting stress index manual. Charlottesville: Pediatric Psychology Press.
2. Achenbach, T. (1991). Manual for the child behavior checklist/4-18 and 1991 profile. Burlington: University of Vermont, Department of Psychiatry.
3. Allen, C. (2004). The relationship of stress, coping and other factors in parents of children with autism. Dissertation Abstracts International: Section B: The Sciences and Engineering, 64, 6319.
4. Bayley, N. (2006). Bayley scales of infant and toddler development (3rd ed.). San Antonio: Harcourt Assessment.
5. De Leersnyder, H. (2006). Sleep and circadian rhythm of melatonin in Smith-Magenis syndrome. In P. C. Cardinali, & S. R. Pandi-Perumal (Eds.), Neuroendocrine Correlates of Sleep/ Wakefulness (pp. 259-267). New York: Springer.
6. Dykens, E. M., & Smith, A. C. M. (1998). Distinctiveness and correlates of maladaptive behaviour in children and adolescents with Smith-Magenis syndrome. Journal of Intellectual Disability Research, 42, 481-489.
7. Elsea, S. H., & Girirajan, S. (2008). Smith-Magenis syndrome. European Journal of Human Genetics, 16, 412-421.
8. Epstein, N. B., Baldwin, L. M., & Bishop, D. S. (1983). The McMaster family assessment device. Journal of Marital and Family Therapy, 9, 171-180.
9. Epstein, N. B., Bishop, D., Ryan, C., Miller, I. W., & Keitner, G. I. (1993). The McMaster model view of healthy family functioning. In F. Walsh (Ed.), Normal family processes (pp. 138-160). New York: The Guilford Press.
10. Fidler, D. J., Hodapp, R. M., & Dykens, E. M. (2000). Stress in families of young children with Down syndrome, Williams syndrome, and Smith-Magenis syndrome. Early Education and Development, 11, 395-406.
11. Finucane, B., Dirrigl, K. H., & Simon, E. W. (2001). Characterization of self-injurious behaviors in children and adults with Smith-Magenis syndrome. American Journal on Mental Retardation, 106, 52-58.
12. Frey, K., Greenberg, M., & Fewell, R. (1989). Stress and coping among parents of handicapped children: a multi-dimensional perspective. American Journal on Mental Retardation, 94, 240-249.
13. Gropman, A., Duncan, W., Smith, A. C. M. (2006). Neurologic and developmental features of the Smith-Magenis syndrome (del 17p11. 2). Pediatric Neurology 34, 337-350.
14. Gropman, A., Elsea, S., Duncan, W., & Smith, A. C. M. (2007). New developments in Smith-Magenis syndrome (del 17p11. 2). Current Opinion in Neurology 20, 125-134.
15. Hodapp, R. M., Fidler, D. J., & Smith, A. C. M. (1998). Stress and coping in families of children with Smith-Magenis syndrome. Journal of Intellectual Disability Research, 42, 331-340.
16. Jones, J., & Passey, J. (2005). Family adaptation, coping and resources: parents of children with developmental disabilities and behaviour problems. Journal on Developmental Disabilities, 11, 31-46.
17. McCubbin, H. I., Olson, D. H., & Larson, A. S. (1991). FCOPES: Family crisis oriented personal evaluation scales. In H. I. McCubbin & A. I. Thompson (Eds.), Family assessment inventories for research and practice. Madison: University of Wisconsin-Madison.
18. Miller, I., Epstein, N., Bishop, D., & Keitner, G. (1985). The McMaster family assessment device: reliability and validity. Journal of Marital and Family Therapy, 11, 345-356.
19. Perry, A. (2005). A model of stress in families of children with developmental disabilities: clinical and research applications. Journal on Developmental Disabilities, 11, 1-16.
20. Plant, K. M., & Sanders, M. R. (2007). Predictors of care-giver stress in families of preschool-aged children with developmental disabilities. Journal of Intellectual Disability Research, 51, 109-124.
21. Roid, G. (2003). Stanford-Binet intelligence scale (5th ed.). Itasca: Riverside Publishing.
22. Sloneem, J., Oliver, C., Udwin, O., & Woocock, K. A. (2011). Prevalence, phenomenology, aetiology and predictors of challenging behaviour in Smith-Magenis syndrome. Journal of Intellectual Disability Research, 55, 138-151.
23. Smith, A. C. M., McGavran, L., Robinson, J., Waldstein, G., Macfarland, J., Zonona, J., et al. (1986). Interstitial deletion of (17)(p11. 2p11. 2) in nine participants. American Journal of Medical Genetics, 24, 393-414.
24. Smith, A. C. M., Boyd, K. E., Elsea, S. H., et al. (2001, October 22, updated 2012 June 28) Smith-Magenis Syndrome. In R. A. Pagon, M. P. Adam, T. D. Bird, et al. (Eds), GeneReviews™ [Internet]. Seattle (WA): University of Washington, Seattle; 1993-2013. Available from: http://www. ncbi. nlm. nih. gov/books/NBK1310/.
25. Smith, T. B., Oliver, M. N. I., & Innocenti, M. S. (2001b). Parenting stress in families of children with disabilities. American Journal of Orthopsychiatry, 71, 257-261.
26. Sparrow, S., Balla, D., & Cicchetti, D. (1984). Vineland adaptive behavior scales. Circle Pines: American Guidance Clinic.
27. Wechsler, D. (1997). Manual for the Wechsler adult intelligence scale (3rd ed.). San Antonio: The Psychological Corporation.
28. Zhu, J., Tulsky, D. S., Price, L., & Chen, H. Y. (2001). WAIS-III reliability data for clinical groups. Journal of International Neuropsychiatric Society, 7, 862-866.