Palliative care understanding and end-of-life decisions in chronic obstructive pulmonary disease

Clinical Respiratory Journal

Volumn 8, Issue 3, 2014, Pages 312-320

  Fahim, Ahmed ^a   Kastelik, Jack A ^b  

^a NEW CROSS HOSPITAL   (United Kingdom)

^b CASTLE HILL HOSPITAL   (United Kingdom)

Author keywords

Cardiopulmonary resuscitation; Mechanical ventilation; Non invasive ventilation; Palliative care

Indexed keywords

OXYGEN;

ADULT; AGED; ARTICLE; BORG DYSPNOEA INDEX; CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL EVALUATION; COHORT ANALYSIS; FEMALE; FORCED EXPIRATORY VOLUME; HOME OXYGEN THERAPY; HUMAN; LEICESTER COUGH QUESTIONNAIRE; MALE; MEDICAL RESEARCH COUNCIL DYSPNOEA SCALE; NONINVASIVE VENTILATION; OBSERVATIONAL STUDY; PALLIATIVE THERAPY; PRIORITY JOURNAL; PROSPECTIVE STUDY; QUESTIONNAIRE; RESUSCITATION; SCORING SYSTEM; TERMINAL CARE; ATTITUDE TO HEALTH; DECISION MAKING; DYSPNEA; MIDDLE AGED; PATHOPHYSIOLOGY; PHYSIOLOGY; SEVERITY OF ILLNESS INDEX; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; CARDIOPULMONARY RESUSCITATION; DECISION MAKING; DYSPNEA; FEMALE; FORCED EXPIRATORY VOLUME; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; MIDDLE AGED; PALLIATIVE CARE; PROSPECTIVE STUDIES; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUESTIONNAIRES; SEVERITY OF ILLNESS INDEX;

EID: 84903821606     PISSN: 17526981     EISSN: 1752699X     Source Type: Journal    
DOI: 10.1111/crj.12073     Document Type: Article

References (37)

1. Zielinski J, Bednarek M, Gorecka D, etal. Increasing COPD awareness. Eur Respir J. 2006;27(4): 833-852.
2. Improving supportive and palliative care for adults with cancer. National Institutes of Health and Clinical Excellence 2004 (www.nice.org.uk).
3. Gore JM, Brophy CJ, Greenstone M. How well do we care for patients with end stage chronic obstructive pulmonary disease (COPD)? A comparison of palliative care and quality of life in COPD and lung cancer. Thorax. 2000;55(12): 1000-1006.
4. Davis RM, Wagner EH, Groves T. Managing chronic disease. Br Med J. 1999;318(7191): 1090-1091.
5. Buist AS, McBurnie MA, Vollmer WM, etal. International variation in the prevalence of COPD (the BOLD Study): a population-based prevalence study. Lancet. 2007;370(9589): 741-750.
6. Heffner JE, Fahy B, Hilling L, Barbieri C. Attitudes regarding advance directives among patients in pulmonary rehabilitation. Am J Respir Crit Care Med. 1996;154(6 Pt 1): 1735-1740.
7. Heffner JE, Fahy B, Hilling L, Barbieri C. Outcomes of advance directive education of pulmonary rehabilitation patients. Am J Respir Crit Care Med. 1997;155(3): 1055-1059.
8. Curtis JR, Wenrich MD, Carline JD, Shannon SE, Ambrozy DM, Ramsey PG. Patients' perspectives on physician skill in end-of-life care: differences between patients with COPD, cancer, and AIDS. Chest. 2002;122(1): 356-362.
9. Tulsky JA, Chesney MA, Lo B. How do medical residents discuss resuscitation with patients? J Gen Intern Med. 1995;10(8): 436-442.
10. Tulsky JA, Fischer GS, Rose MR, Arnold RM. Opening the black box: how do physicians communicate about advance directives? Ann Intern Med. 1998;129(6): 441-449.
11. Gott MC, Ahmedzai SH, Wood C. How many inpatients at an acute hospital have palliative care needs? Comparing the perspectives of medical and nursing staff. Palliat Med. 2001;15(6): 451-460.
12. Birring SS, Prudon B, Carr AJ, Singh SJ, Morgan MDL, Pavord ID. Development of a symptom specific health status measure for patients with chronic cough: Leicester Cough Questionnaire (LCQ). Thorax. 2003;58(4): 339-343.
13. Raj AA, Pavord ID, Birring SS. Clinical cough IV: what is the minimal important difference for the Leicester Cough Questionnaire? Handb Exp Pharmacol. 2009;187: 311-320.
14. Kendrick KR, Baxi SC, Smith RM. Usefulness of the modified 0-10 Borg scale in assessing the degree of dyspnea in patients with COPD and asthma. J Emerg Nurs. 2000;26(3): 216-222.
15. Fletcher CM, Elmes PC, Fairbairn AS, Wood CH. The significance of respiratory symptoms and the diagnosis of chronic bronchitis in a working population. Br Med J. 1959;2(5147): 257-266.
16. Claessens MT, Lynn J, Zhong Z, Desbiens NA, Phillips RS, Wu AW, Harrell FE, Jr, Connors AF, Jr. Dying with lung cancer or chronic obstructive pulmonary disease: insights from SUPPORT. Study to understand prognoses and preferences for outcomes and risks of treatments. J Am Geriatr Soc. 2000;48(5 Suppl): S146-153.
17. Edmonds P, Karlsen S, Khan S, Addington-Hall J. A comparison of the palliative care needs of patients dying from chronic respiratory diseases and lung cancer. Palliat Med. 2001;15(4): 287-295.
18. Celli BR, Cote CG, Lareau SC, Meek PM. Predictors of Survival in COPD: more than just the FEV1. Respir Med. 2008;102(Suppl 1): S27-S35.
19. Fahim A, Lee WY, Faruqi S, Kastelik JA. Gender and mortality following hospitalisation for COPD. Thorax. 2011;66(11): 1009.
20. Hersh CP, DeMeo DL, Al Ansari E, Carey VJ, Reilly JJ, Ginns LC, Silverman EK. Predictors of survival in severe, early onset COPD. Chest. 2004;126(5): 1443-1451.
21. Budweiser S, Jorres RA, Riedl T, Heinemann F, Hitzl AP, Windisch W, Pfeifer M. Predictors of survival in COPD patients with chronic hypercapnic respiratory failure receiving noninvasive home ventilation. Chest. 2007;131(6): 1650-1658.
22. Roberts CM, Lowe D, Bucknall CE, Ryland I, Kelly Y, Pearson MG. Clinical audit indicators of outcome following admission to hospital with acute exacerbation of chronic obstructive pulmonary disease. Thorax. 2002;57(2): 137-141.
23. Curtis JR, Engelberg RA, Nielsen EL, Au DH, Patrick DL. Patient-physician communication about end-of-life care for patients with severe COPD. Eur Respir J. 2004;24(2): 200-205.
24. Ehman JW, Ott BB, Short TH, Ciampa RC, Hansen-Flaschen J. Do patients want physicians to inquire about their spiritual or religious beliefs if they become gravely ill? Arch Intern Med. 1999;159(15): 1803-1806.
25. King DE, Bushwick B. Beliefs and attitudes of hospital inpatients about faith healing and prayer. J Fam Pract. 1994;39(4): 349-352.
26. Knauft E, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR. Barriers and facilitators to end-of-life care communication for patients with COPD. Chest. 2005;127(6): 2188-2196.
27. Gaber KA, Barnett M, Planchant Y, McGavin CR. Attitudes of 100 patients with chronic obstructive pulmonary disease to artificial ventilation and cardiopulmonary resuscitation. Palliat Med. 2004;18(7): 626-629.
28. Wenrich MD, Curtis JR, Shannon SE, Carline JD, Ambrozy DM, Ramsey PG. Communicating with dying patients within the spectrum of medical care from terminal diagnosis to death. Arch Intern Med. 2001;161(6): 868-874.
29. Coventry PA, Grande GE, Richards DA, Todd CJ. Prediction of appropriate timing of palliative care for older adults with non-malignant life-threatening disease: a systematic review. Age Ageing. 2005;34(3): 218-227.
30. Rennard S, Decramer M, Calverley PM, Pride NB, Soriano JB, Vermeire PA, Vestbo J. Impact of COPD in North America and Europe in 2000: subjects' perspective of Confronting COPD International Survey. Eur Respir J. 2002;20(4): 799-805.
31. van Schayck CP, Loozen JM, Wagena E, Akkermans RP, Wesseling GJ. Detecting patients at a high risk of developing chronic obstructive pulmonary disease in general practice: cross sectional case finding study. Br Med J. 2002;324(7350): 1370-1374.
32. Smith JA, Calverley PM. Cough in chronic obstructive pulmonary disease. Pulm Pharmacol Ther. 2004;17(6): 393-398.
33. Smith J, Owen E, Earis J, Woodcock A. Cough in COPD: correlation of objective monitoring with cough challenge and subjective assessments. Chest. 2006;130(2): 379-385.
34. Polley L, Yaman N, Heaney L, Cardwell C, Murtagh E, Ramsey J, MacMahon J, Costello RW, McGarvey L. Impact of cough across different chronic respiratory diseases: comparison of two cough-specific health-related quality of life questionnaires. Chest. 2008;134(2): 295-302.
35. Skilbeck JK, Payne S. End of life care: a discursive analysis of specialist palliative care nursing. J Adv Nurs. 2005;51(4): 325-334.
36. Skilbeck J, Small N, Ahmedzai SH. Nurses' perceptions of specialist palliative care in an acute hospital. Int J Palliat Nurs. 1999;5(3): 110-115.
37. Yohannes AM, Baldwin RC, Connolly MJ. Predictors of 1-year mortality in patients discharged from hospital following acute exacerbation of chronic obstructive pulmonary disease. Age Ageing. 2005;34(5): 491-496.