The OPtimising HEalth LIterAcy (Ophelia) process: Study protocol for using health literacy profiling and community engagement to create and implement health reform

BMC Public Health

Volumn 14, Issue 1, 2014, Pages

  Batterham, Roy W ^a   Buchbinder, Rachelle ^b,c   Beauchamp, Alison ^a,c   Dodson, Sarity ^a   Elsworth, Gerald R ^a   Osborne, Richard H ^a  

^a DEAKIN UNIVERSITY   (Australia)

^b CABRINI HOSPITAL   (Australia)

^c MONASH UNIVERSITY   (Australia)

Author keywords

Access; Chronic illness; Co creation; Equity; Health literacy; Health Literacy Questionnaire (HLQ); Implementation; Intervention development; Intervention mapping; Participatory research

Indexed keywords

AUSTRALIA; CHRONIC DISEASE; CONSUMER; COOPERATION; HEALTH CARE POLICY; HEALTH LITERACY; HEALTH PROMOTION; HUMAN; NEEDS ASSESSMENT; QUESTIONNAIRE;

CHRONIC DISEASE; CONSUMER PARTICIPATION; COOPERATIVE BEHAVIOR; HEALTH CARE REFORM; HEALTH LITERACY; HEALTH PROMOTION; HUMANS; NEEDS ASSESSMENT; QUESTIONNAIRES; VICTORIA;

EID: 84903667307     PISSN: None     EISSN: 14712458     Source Type: Journal    
DOI: 10.1186/1471-2458-14-694     Document Type: Article

References (61)

1. Health Promotion Glossary. World Health Organization, Health Promot Int 1998 13 4 349 364
2. United Nations Economic and Social Council (ECOSOC) regional meeting background paper (abstracted). Health literacy and the Millennium Development Goals, J Health Comm 2010 15 Suppl 2 211 223
3. The evolving concept of health literacy. Nutbeam D, Soc Sci Med 2008 67 2072 2078
4. Department of Health, Self Care-A Real Choice, Self Care Support-A Practical Option London: National Health Service 2004
5. Commonwealth of Australia, Building a 21st Century Primary Healthcare System: A Draft of Australia's First National Primary Healthcare Strategy ACT: Commonwealth of Australia 2009 [ http://www.yourhealth.gov.au/internet/ yourhealth/publishing.nsf/Content/nphc-draft-report-toc/$FILE/NPHC-Draft. pdf ]
6. Health literacy: addressing the health and education divide. Kickbusch I, Health Promot Int 2001 16 3 289 297 (Pubitemid 32910946)
7. Critical appraisal of health literacy indices revealed variable underlying constructs, narrow content and psychometric weaknesses. Jordan JE, Osborne RH, Buchbinder R, J Clin Epidemiol 2011 64 4 366 379
8. Functional health literacy and the risk of hospital admission among Medicare managed care enrollees. Baker DW, Gazmararian JA, Williams MV, Scott T, Parker RM, Green D, Ren J, Peel J, Am J Public Health 2002 92 8 1278 1283 (Pubitemid 34815791)
9. Health literacy and the risk of hospital admission. Baker DW, Parker RM, Williams MV, Clark WS, J Gen Intern Med 1998 13 12 791 798 (Pubitemid 29009290)
10. Health literacy and 30-day postdischarge hospital utilization. Mitchell SE, Sadikova E, Jack BW, Paasche-Orlow MK, J Health Commun 2012 17 Suppl 3 325 338
11. Effects of health literacy on health status and health service utilisation amongst the elderly. Young I, SD. L, AM. A, KS. C, Soc Sci Med 2008 66 1809 1816
12. Effects of health literacy on health status and health service utilization amongst the elderly. Cho YI, Lee SY, Arozullah AM, Crittenden KS, Soc Sci Med 2008 66 8 1809 1816 (Pubitemid 351380642)
13. Health literacy and preventive health care use among Medicare enrollees in a managed care organization. Scott TL, Gazmararian JA, Williams MV, Baker DW, Med Care 2002 40 5 395 404
14. Effects of health literacy to self-efficacy and preventive care utilization among older adults. Chen JZ, Hsu HC, Tung HJ, Pan LY, Geriatr Gerontol Int 2013 13 1 70 76
15. Application of the health literacy framework to diet-related cancer prevention conversations of older immigrant women to Canada. Thomson MD, Hoffman-Goetz L, Health Promot Int 2012 27 1 33 44
16. Functional health literacy and health-promoting behaviour in a national sample of British adults. von Wagner C, Knight K, Steptoe A, Wardle J, J Epidemiol Community Health 2007 61 12 1086 1090 (Pubitemid 350207366)
17. Functional health literacy mediates the relationship between socio-economic status, perceptions and lifestyle behaviors related to cancer risk in an Australian population. Adams RJ, Piantadosi C, Ettridge K, Miller C, Wilson C, Tucker G, Hill CL, Patient Educ Couns 2013 91 2 206 212
18. Is diabetes-specific health literacy associated with diabetes-related outcomes in older adults? Yamashita T, Kart CS, J Diabetes 2011 3 2 138 146
19. Health literacy and knowledge of chronic disease. Gazmararian JA, Williams MV, Peel J, Baker DW, Patient Educ Couns 2003 51 3 267 275 (Pubitemid 37441301)
20. Assessing awareness and knowledge of hypertension in an at-risk population in the Karen ethnic rural community, Thasongyang, Thailand. Aung MN, Lorga T, Srikrajang J, Promtingkran N, Kreuangchai S, Tonpanya W, Vivarakanon P, Jaiin P, Praipaksin N, Payaprom A, Int J Gen Med 2012 5 553 561
21. Relationship of functional health literacy to patients' knowledge of their chronic disease, A Study of patients with hypertension and diabetes. Williams M, Baker D, Parker R, Nurss J, Arch Intern Med 1998 158 2 166 172 (Pubitemid 28049510)
22. Association of health literacy with diabetes outcomes. [see comment]. Schillinger D, Grumbach K, Piette J, Wang F, Osmond D, Daher C, Palacios J, Sullivan GD, Bindman AB, JAMA 2002 288 4 475 482 (Pubitemid 34787479)
23. Health literacy and outcomes among patients with heart failure. Peterson PN, Shetterly SM, Clarke CL, Bekelman DB, Chan PS, Allen LA, Matlock DD, Magid DJ, Masoudi FA, JAMA 2011 305 16 1695 1701
24. Health literacy and functional health status among older adults. Wolf MS, Gazmararian JA, Baker DW, Arch Intern Med 2005 165 17 1946 1952 (Pubitemid 41362616)
25. Low Health Literacy is Associated With Increased Risk of Mortality in Patients With Heart Failure. Peterson PN, Shetterly SM, Clarke CL, Allen LA, Matlock DD, Magid DJ, Masoudi FA, Circulation 2009 120 18 749
26. Limited literacy and mortality in the elderly: the health, aging, and body composition study. Sudore RL, Yaffe K, Satterfield S, Harris TB, Mehta KM, Simonsick EM, Newman AB, Rosano C, Rooks R, Rubin SM, Ayonayon HN, Schillinger D, J Gen Intern Med 2006 21 8 806 812 (Pubitemid 44024924)
27. Association between low functional health literacy and mortality in older adults: longitudinal cohort study. Bostock S, Steptoe A, BMJ 2012 344 1602
28. Low health literacy skills increase annual health care expenditures by $73 billion. National Academy on an Aging Society, The Center for Health Care Strategies and National Academy on an Aging Society 1999
29. Impact of health literacy on socioeconomic and racial differences in health in an elderly population. Howard DH, Sentell TL, Gazmararian JA, J Gen Intern Med 2006 21 857 861 (Pubitemid 44024933)
30. Importance of adult literacy in understanding health disparities. Sentell TL, Halpin HA, J Gen Intern Med 2006 21 862 866 (Pubitemid 44024934)
31. Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M, Developing and evaluating complex interventions: new guidance London: Medical Research Guidelines 2008
32. Health literacy: what is it and why is it important to measure? Buchbinder R, Batterham R, Ciciriello S, Newman S, Horgan B, Ueffing E, Rader T, Tugwell PS, Osborne RH, J Rheumatol 2011 38 8 1791 1797
33. Conceptualising health literacy from the patient perspective. Jordan JE, Buchbinder R, Osborne RH, Patient Educ Couns 2010 79 1 36 42
34. The grounded psychometric development and initial validation of the Health Literacy Questionnaire (HLQ). Osborne RH, Batterham RW, Elsworth GR, Hawkins M, Buchbinder R, BMC Public Health 2013 13 658
35. Intervention mapping: a process for developing theory- and evidence-based health education programs. Bartholomew LK, Parcel GS, Kok G, Health Educ Behav 1998 25 5 545 563 (Pubitemid 128453997)
36. Using intervention mapping to develop and adapt a secondary stroke prevention program in Veterans Health Administration medical centers. Schmid AA, Andersen J, Kent T, Williams LS, Damush TM, Implement Sci 2010 5 97
37. Five roles for using theory and evidence in the design and testing of behavior change interventions. Bartholomew LK, Mullen PD, J Public Health Dent 2011 71 Suppl 1 20 S33
38. Using Intervention Mapping to develop a programme to prevent sexually transmittable infections, including HIV, among heterosexual migrant men. Wolfers ME, van den Hoek C, Brug J, de Zwart O, BMC Public Health 2007 7 141
39. Understanding the components of quality improvement collaboratives: a systematic literature review. Nadeem E, Olin SS, Hill LC, Hoagwood KE, Horwitz SM, Milbank Q 2013 91 2 354 394
40. Determinants of success of quality improvement collaboratives: what does the literature show? Hulscher ME, Schouten LM, Grol RP, Buchan H, BMJ Qual Saf 2013 22 1 19 31
41. Evidence for the impact of quality improvement collaboratives: systematic review. Schouten LM, Hulscher ME, van Everdingen JJ, Huijsman R, Grol RP, BMJ 2008 336 7659 1491 1494 (Pubitemid 351977022)
42. Coaching interprofessional health care improvement teams: the coachee, the coach and the leader perspectives. Godfrey MM, Andersson-Gare B, Nelson EC, Nilsson M, Ahlstrom G, J Nurs Manag 2014 22 4 452 464
43. Effectiveness of collaborative improvement: evidence from 27 applications in 12 less-developed and middle-income countries. Franco LM, Marquez L, BMJ Qual Saf 2011 20 8 658 665
44. The Australian Primary Care Collaboratives Program: improving diabetes care. Knight AW, Ford D, Audehm R, Colagiuri S, Best J, BMJ Qual Saf 2012 21 11 956 963
45. Protocol-realist and meta-narrative evidence synthesis: evolving standards (RAMESES). Greenhalgh T, Wong G, Westhorp G, Pawson R, BMC Med Res Methodol 2011 11 115
46. Realist synthesis: illustrating the method for implementation research. Rycroft-Malone J, McCormack B, Hutchinson AM, DeCorby K, Bucknall TK, Kent B, Schultz A, Snelgrove-Clarke E, Stetler CB, Titler M, Wallin L, Wilson V, Implement Sci 2012 7 33
47. Realist review-a new method of systematic review designed for complex policy interventions. Pawson R, Greenhalgh T, Harvey G, Walshe K, J Health Serv Res Policy 2005 10 Suppl 1 21 34 (Pubitemid 40993882)
48. Pawson R, Evidence-based policy: a realist perspective London; Thousand Oaks, Calif: SAGE 2006
49. Pawson R, Tilley N, Realistic evaluation London, Thousand Oaks, Calif: Sage 1997
50. Bhaskar R, A realist theory of science. London New York: Routledge 2008
51. A validity-driven approach to the understanding of the personal and societal burden of low back pain: development of a conceptual and measurement model. Buchbinder R, Batterham R, Elsworth G, Dionne CE, Irvin E, Osborne RH, Arthritis Res Ther 2011 13 5 152
52. Funnell SC, Rogers PJ, Purposeful program theory: effective use of theories of change and logic models San Francisco, CA: Jossey-Bass 1 2011
53. What is value in health care? Porter ME, N Engl J Med 2010 363 26 2477 2481
54. Suchman E, Evaluative Research New York: Russell Sage Foundation 1967
55. Evaluators as applied theorists. McClintock C, Am J Eval 1990 11 1 1 12
56. Evaluation of welfare reform, A framework for addressing the urgent and the important. McClintock C, Colosi LA, Eval Rev 1998 22 5 668 694 (Pubitemid 127457391)
57. Miles MB, Huberman AM, SaldaÃa J, Qualitative data analysis Thousand Oaks: Sage Publications Inc. 3 2013
58. NVivo qualitative data analysis software. QSR International Pty Ltd, QSR International Pty Ltd Version 10 2012
59. World Health Organization, Working document Nairobi Call to Action for Closing the Implementation Gap in Health Promotion 2009
60. WHO regional office for Europe, Health literacy: The solid facts Copenhagen: WHO regional office for Europe 2013
61. Nielsen-Bohlman L, Panzer AM, Kindig DA, Health Literacy: A Prescription to End the Confusion 2004