Development and validation of a new tool for the assessment and spiritual care of palliative care patients

Journal of Pain and Symptom Management

Volumn 47, Issue 6, 2014, Pages

  Benito, Enric ^a   Oliver, Amparo ^b   Galiana, Laura ^b   Barreto, Pilar ^b   Pascual, Antonio ^c   Gomis, Clara ^d   Barbero, Javier ^e  

^a Balearic Strategy of Palliative Care   (Spain)

^b UNIVERSITY OF VALENCIA   (Spain)

^c HOSPITAL DE LA SANTA CREU I SANT PAU   (Spain)

^d UNIVERSITAT RAMON LLULL   (Spain)

^e HOSPITAL UNIVERSITARIO LA PAZ   (Spain)

Author keywords

assessment; Palliative care; questionnaire validation; spiritual care; spirituality; structural equation modeling

Indexed keywords

ADULT; AGED; ANXIETY; ARTICLE; CLINICAL ASSESSMENT TOOL; CONSTRUCT VALIDITY; COPING BEHAVIOR; CRITERION RELATED VALIDITY; DEPRESSION; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; PALLIATIVE THERAPY; QUESTIONNAIRE; RELIABILITY; RELIGION; SPAIN; SPANISH SOCIETY OF PALLIATIVE CARE QUESTIONNAIRE; SPIRITUAL CARE; TRUST; WELLBEING; CROSS-SECTIONAL STUDY; FACTORIAL ANALYSIS; MIDDLE AGED; PILOT STUDY; PROCEDURES; PSYCHOLOGICAL MODEL; PSYCHOMETRY; REPRODUCIBILITY; VALIDATION STUDY; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; CROSS-SECTIONAL STUDIES; FACTOR ANALYSIS, STATISTICAL; FEMALE; HUMANS; MALE; MIDDLE AGED; MODELS, PSYCHOLOGICAL; PALLIATIVE CARE; PILOT PROJECTS; PSYCHOMETRICS; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SPAIN; SPIRITUALITY;

EID: 84902461008     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2013.06.018     Document Type: Article

References (53)

1. A. Edwards, N. Pang, V. Shiu, and C. Chan The understanding of spirituality and the potential role of spiritual care in end-of-life and palliative care: a meta-study of qualitative research Palliat Med 24 2010 753 770
2. M.J. Gijsberts, M.A. Echteld, and J.T. van der Steen et al. Spirituality at the end of life: conceptualization of measurable aspects - a systematic review J Palliat Med 14 2011 852 863
3. M. Ando, T. Morita, T. Aketchi, and T. Okamoto Japanese Task Force for Spiritual Care. Efficacy of short-term life review interviews on the spiritual well-being of terminally ill cancer patients J Pain Symptom Manage 39 2010 993 1002
4. L. Selman, R. Harding, M. Gysels, P. Speck, and I.J. Higginson The measurement of spirituality in palliative care and the content of tools validated cross-culturally: a systematic review J Pain Symptom Manage 41 2011 728 753
5. M. Vachon, L. Fillion, and M. Achille A conceptual analysis of spirituality at the end of life J Palliat Med 12 2009 53 59
6. M. Barreto, M. Fombuena, and R. Diego et al. Bienestar emocional y espiritualidad al final de la vida [Emotional well being and spirituality at the end of life] Medicina Paliativa 2013 May 1 [Epub ahead of print]
7. J. Hearn, and I.J. Higginson Development and validation of a core outcome measure for palliative care: the Palliative Care Outcome Scale Qual Saf Health Care 8 1999 219 227
8. D.E. Lyon, and J. Younger Development and preliminary evaluation of the existential meaning scale J Holist Nurs 23 2005 54 65
9. M.J. Brady, A.H. Peterman, G. Fitchett, and D. Cella The expanded version of the Functional assessment of Chronic Illness Therapy - spiritual well-being scale (FACIT-Sp-Ex): initial report of psychometric properties Ann Behav Med 21 1999 129
10. G. Ironson, G.F. Solomon, and E.G. Balbin et al. The Ironson-Woods Spirituality/Religiousness Index is associated with long survival, health behaviors, less distress and low cortisol in people with HIV/AIDS Ann Behav Med 24 2002 34 48
11. The WHOQOL HIV Group Initial steps to developing the World Health Organization's quality of life instrument (WHOQOL) module for international assessment in HIV/AIDS AIDS Care 15 2003 347 357
12. R.K. Sharma, A.B. Astrow, K. Texeira, and D.P. Sulmasy The Spiritual Needs Assessment for Patients (SNAP): development and validation of a comprehensive instrument to assess unmet spiritual needs J Pain Symptom Manage 44 2012 44 51
13. W. Slater, T.W. Hall, and K.J. Edwards Measuring religion and spirituality: where are we and where are we going? J Psychol Theol 29 2001 4 21
14. L.M. Lewis Spiritual assessment in African-Americans: a review of measures of spirituality used in health research: review and critique J Relig Health 47 2008 458 475
15. K.M. Loewenthal, M. Cinnirella, G. Evdoka, and P. Murphy Faith conquers all? Beliefs about the role of religious factors in coping with depression among different cultural-religious groups in the UK Br J Med Psychol 74 2001 293 303
16. D.O. Moberg Assessing and measuring spirituality: confronting dilemmas of universal and particular evaluative criteria J Adult Dev 9 2002 47 60
17. L.H. Rogler Methodological sources of cultural insensitivity in mental health research Am Psychol 54 1999 424 433
18. B.M. Mount, P.H. Boston, and S.R. Cohen Healing connections: on moving from suffering to a sense of well-being J Pain Symptom Manage 33 2007 372 388
19. L. Galiana, A. Oliver, C. Gomis, J. Barbero, and E. Benito Cuestionarios de evaluación e intervención espiritual en cuidados paliativos: una revisión crítica [Spiritual assessment and intervention questionnaires in palliative care: a critical review] Med Palliat 2013 April 28 [Epub ahead of print]
20. M. Serrat-Prat, M. Nabal, V. Santacruz, J.M. Picaza, and J. Trelis Grupo Catalán de Estudio de la Efectividad de los Cuidados Paliativos. Traducción, adaptación y validación de la Palliative Care Outcome Scale al español [Spanish translation, adaptation and validation of the Palliative Care Outcome Scale] Med Clin 123 2004 406 412
21. E. Benito, J. Barbero, and A. Payás El acompañamiento espiritual en cuidados paliativos. Una introducción y una propuesta [Spiritual care in palliative care. An introduction and a proposal]. SECPAL 2008 Arán Ediciones, S.L Madrid
22. Benito E, Jimenez E, Barbero J, et al. Talleres de acompañamiento espiritual en cuidados paliativos SECPAL. Dos años de experiencia [SECPAL workshops on spiritual care in palliative care. Two years of experience]. Proceedings of the IX Congreso Nacional de la Sociedad Española de Cuidados Paliativos. Badajoz, Spain, 2012:208.
23. C. Puchalski, B. Ferrell, and R. Virani et al. Improving the quality of spiritual care as a dimension of palliative care: the report of the consensus conference J Palliat Med 12 2009 885 890
24. S. Nolan, P. Saltmarch, and C. Leget Spiritual care in palliative care: working towards an EAPC Task Force Eur J Palliat Care 18 2011 86 89
25. M. Mount Existential suffering and the determinants of healing Eur J Palliat Care 10 2003 40 42
26. C.M. Puchalski Physicians and patients' spirituality. Ethical concerns and boundaries in spirituality and health Virtual Mentor 11 2009 804 815
27. A. Kellehear Spirituality and palliative care: a model of needs Palliat Med 14 2000 149 155
28. P.G. Reed An emerging paradigm for the investigation of spirituality in nursing Res Nurs Health 15 1992 349 357
29. C. Puchalski, and B. Ferrell Making health care whole. Integrating spirituality into patient care 2010 Templeton Press West Conshohocken, PA
30. A.H. Peterman, G. Fitchett, M. Brady, L. Hernandez, and D. Cella Measuring spiritual well-being in people with cancer: the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being Scale (FACIT-Sp) Ann Behav Med 24 2002 49 58
31. A.S. Zigmond, and R.P. Snaith The Hospital Anxiety and Depression Scale Acta Psychiatr Scand 67 1983 361 370
32. J.M. Quintana, A. Padierna, and C. Esteban et al. Evaluation of the psychometric characteristics of the Spanish version of the Hospital Anxiety and Depression Scale Acta Psychiatr Scand 107 2003 216 221
33. V.G. Sinclair, and K.A. Wallston The development and psychometric evaluation of the Brief Resilient Coping Scale Assessment 11 2004 94 101
34. J.M. Tomás, P. Sancho, J.C. Melendez, and T. Mayordomo Resilience and coping as predictors of general well-being in the elderly: a structural equation modeling approach Aging Ment Health 16 2012 317 326
35. T. Raykov Behavioral scale reliability and measurement invariance evaluation using latent variable modeling Behav Ther 35 2004 299 331
36. J.M. Graham Congeneric and essentially tau-equivalent estimates of score reliability: what they are and how to use them Educ Psychol Meas 66 2006 930 944
37. P.M. Bentler EQS structural equations program manual 2006 Multivariate Software, Inc. Encino, CA
38. R.H. Hoyle Structural equation modeling 1995 SAGE Publications Thousand Oaks, CA
39. J.S. Tanaka Multifaceted conceptions of fit in structural equation models K.A. Bollen, Testing structural equation models 1993 Sage Newbury Park, CA 10 39
40. K.G. Jöreskog, and D. Sörbom LISREL VI: Analysis of linear structural relationships by maximum likelihood and least squares methods 1986 Scientific Software, Inc. Mooresville, IN
41. R.H. Hoyle, and A.T. Panter Writing about structural equation models R.H. Hoyle, Structural equation modeling: Concepts, issues, and applications 1995 Sage Publications Thousand Oaks, CA 158 176
42. J.G. Marsh, F.J. Lerch, and B.H. Putney et al. A new gravitational model for the earth from satellite tracking data: GEM-T1 J Geophys Res 93 1998 6169 6215
43. P.M. Bentler, and D.G. Bonett Significance tests and goodness of fit in the analysis of covariance structures Psychol Bull 88 1980 588 606
44. J.C. Loehlin Latent variable models: An introduction to factor, path, and structural analysis 3rd ed. 1998 Lawrence Erlbaum Associates Hillsdale, NJ
45. M.W. Browne, and R. Cudeck Alternative ways of assessing model fit C.A. Bollen, H.S. Long, Testing structural equation models 1993 Sage Beverly Hills, CA 136 162
46. R.B. Kline Principles and practice of structural equation modeling 2011 The Guilford Press New York
47. S. Messik Consequences of test interpretation and use: The fusion of validity and values in psychological assessment 1998 Educational Testing Services Princeton, NJ
48. M.O. Delgado-Guay, D. Hui, and H.A. Parsons et al. Spirituality, religiosity, and spiritual pain in advanced cancer patients J Pain Symptom Manage 41 2011 986 994
49. B. Vivat Members of the Quality of Life Group of the European Organisation for Research and Treatment of Cancer Measures of spiritual issues for palliative care patients: a literature review Palliat Med 22 2008 859 868
50. M. Cobb, C. Dowrick, and M. Lloyd-Williams What can we learn about the spiritual needs of palliative care patients from the research literature? J Pain Symptom Manage 43 2012 1105 1119
51. J. Meezenbroek Ede, B. Garssen, and M. Van den Berg et al. Measuring spirituality as a universal human experience: development of the Spiritual Attitude and Involvement List (SAIL) J Psychosoc Oncol 30 2012 141 167
52. R.C. McCoubrie, and A.N. Davies Is there a correlation between spirituality and anxiety and depression in patients with advanced cancer? Support Care Cancer 14 2006 379 385
53. I.V. Vahia, C.A. Depp, and B.W. Palmer et al. Correlates of spirituality in older women Aging Ment Health 15 2011 97 102