Under reporting of dementia deaths on death certificates: A systematic review of population-based cohort studies

Journal of Alzheimer's Disease

Volumn 41, Issue 1, 2014, Pages 213-221

  Romero, Juan Pablo ^a   Benito León, Julián ^a,b,c   Louis, Elan D ^d,e,f   Bermejo Pareja, Félix ^a,b,c  

^a HOSPITAL UNIVERSITARIO 12 DE OCTUBRE   (Spain)

^b CENTRO DE INVESTIGACIÓN BIOMÉDICA EN RED SOBRE ENFERMEDADES NEURODEGENERATIVAS CIBERNED   (Spain)

^c UNIVERSIDAD COMPLUTENSE DE MADRID   (Spain)

^d Vagelos College of Physicians and Surgeons   (United States)

^e NONE   (United States)

^f Department of Medicine   (United States)

Author keywords

Death certificates; elderly; epidemiology; population based study; systematic review

Indexed keywords

ALZHEIMER DISEASE; CAUSE OF DEATH; COHORT ANALYSIS; DEATH CERTIFICATE; DEMENTIA; DSM-III-R; DSM-IV; HUMAN; MANDATORY REPORTING; MEDICAL PERSONNEL; MICROANGIOPATHY; MULTIINFARCT DEMENTIA; OBSERVATIONAL STUDY; PATIENT CODING; POPULATION; PRIORITY JOURNAL; RESPIRATORY TRACT DISEASE; REVIEW; SYSTEMATIC REVIEW; BRAZIL; CANADA; EPIDEMIOLOGY; MORTALITY; SPAIN; UNITED KINGDOM; UNITED STATES;

BRAZIL; CANADA; CAUSE OF DEATH; DEATH CERTIFICATES; DEMENTIA; GREAT BRITAIN; HUMANS; SPAIN; UNITED STATES;

EID: 84902249133     PISSN: 13872877     EISSN: 18758908     Source Type: Journal    
DOI: 10.3233/JAD-132765     Document Type: Review

References (30)

1. Riedl B, Than N, Hogarth M (2010) Using the UMLS and simple statistical methods to semantically categorize causes of death on death certificates. AMIA Annu Symp Proc 2010, 677-681.
2. Chandra V, Bharucha NE, Schoenberg BS (1986) Patterns of mortality from types of dementia in the United States, 1971 and 1973-1978. Neurology 36, 204-208.
3. Martyn CN, Pippard EC (1988) Usefulness of mortality data in determining the geography and time trends of dementia. J Epidemiol Community Health 42, 134-137.
4. von Elm E, Altman DG, Egger M, Pocock SJ, Gotzsche PC, Vandenbroucke JP, Initiative S (2007) Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement: Guidelines for reporting observational studies. BMJ 335, 806-808.
5. Mandrekar JN (2011) Measures of interrater agreement. J Thorac Oncol 6, 6-7.
6. Morgan K, Clarke D (1995) To what extent is dementia under-reported on British death certificates? Int J Geriatr Psychiatry 10, 987-990.
7. Ganguli M, Rodriguez EG (1999) Reporting of dementia on death certificates: A community study. J Am Geriatr Soc 47, 842-849.
8. Ostbye T, Hill G, Steenhuis R (1999) Mortality in elderly Canadians with and without dementia: A 5-year follow-up. Neurology 53, 521-526.
9. Chamandy N, Wolfson C (2005) Underlying cause of death in demented and non-demented elderly Canadians. Neuroepi-demiology 25, 75-84.
10. Ganguli M, Dodge HH, Shen C, Pandav RS, DeKosky ST (2005) Alzheimer disease and mortality: A 15-year epidemi-ological study. Arch Neurol 62, 779-784.
11. Nitrini R, Caramelli P, Herrera E Jr, de Castro I, Bahia VS, Anghinah R, Caixeta LF, Radanovic M, Charchat-Fichman H, Porto CS, Teresa Carthery M, Hartmann APJ, Huang N, Smid J, Lima EP, Takahashi DY, Takada LT (2005) Mortality from dementia in a community-dwelling Brazilian population. Int J Geriatr Psychiatry 20, 247-253.
12. Romero JP, Benito-Leon J, Mitchell AJ, Trincado R, Bermejo-Pareja F (2014) Under reporting of dementia deaths on death certificates using data from a population-based study (NEDICES). J Alzheimers Dis 39, 741-748.
13. American Psychiatric Association (1987) DSM-III-R Diagnostic and Statistical Manual of Mental Disorder, Washington, DC.
14. Newens AJ, Forster DP, Kay DW (1993) Death certification after a diagnosis of presenile dementia. J Epidemiol Community Health 47, 293-297.
15. Raiford K, Anton-Johnson S, Haycox Z, Nolan K, Schaffer A, Caimano C, Fillenbaum G, Heyman A (1994) CERAD part VII: Accuracy of reporting dementia on death certificates of patients with Alzheimer's disease. Neurology 44, 2208-2209.
16. Molsa PK, Marttila RJ, Rinne UK (1986) Survival and cause of death in Alzheimer's disease and multi-infarct dementia. Acta Neurol Scand 74, 103-107.
17. Macera CA, Sun RK, Yeager KK, Brandes DA (1992) Sensitivity and specificity of death certificate diagnoses for dementing illnesses, 1988-1990. J Am Geriatr Soc 40, 479-481.
18. Thomas BM, Starr JM, Whalley LJ (1997) Death certification in treated cases of presenile Alzheimer's disease and vascular dementia in Scotland. Age Ageing 26, 401-406.
19. Kukull WA, Brenner DE, Speck CE, Nochlin D, Bowen J, McCormick W, Teri L, Pfanschmidt ML, Larson EB (1994) Causes of death associated with Alzheimer disease: Variation by level of cognitive impairment before death. J Am Geriatr Soc 42, 723-726.
20. Villarejo A, Benito-León J, Trincado R, Posada IJ, Puertas-Mart́in V, Boix R, Medrano MRAJ, Bermejo-Pareja F (2011) Dementia-associated mortality at thirteen years in the NEDICES Cohort Study. J Alzheimers Dis 26, 543-551.
21. Burns A, Jacoby R, Luthert P, Levy R (1990) Cause of death in Alzheimer's disease. Age Ageing 19, 341-344.
22. Posada IJ, Benito-Leon J, Louis ED, Trincado R, Villarejo A, Medrano MJ, Bermejo-Pareja F (2011) Mortality from Parkinson's disease: A population-based prospective study (NEDICES). Mov Disord 26, 2522-2529.
23. Benito-Leon J, Louis ED, Posada IJ, Sanchez-Ferro A, Trin-cado R, Villarejo A, Mitchell AJ, Bermejo-Pareja F (2011) Population-based case-control study of cognitive function in early Parkinson's disease (NEDICES). J Neurol Sci 310, 176-182.
24. Olichney JM, Hofstetter CR, Galasko D, Thal LJ, Katzman R (1995) Death certificate reporting of dementia and mortality inanAlzheimer's disease research center cohort. J Am Geriatr Soc 43, 890-893.
25. Messite J, Stellman SD (1996) Accuracy of death certificate completion: The need for formalized physician training. JAMA 275, 794-796.
26. Bermejo-Pareja F, Benito-Leon J, Vega S, Olazaran J, de Toledo M, D́iaz-Guzman J, Sanchez-Sanchez F, Morales-Gonzalez JM, Trincado R, Portera-Sanchez A, Roman GC (2009) Consistency of clinical diagnosis of dementia in NEDICES: A population-based longitudinal study in Spain. J Geriatr Psychiatry Neurol 22, 246-255.
27. Bermejo-Pareja F, Benito-Leon J, Vega S, Medrano MJ, Roman GC (2008) Incidence and subtypes of dementia in three elderly populations of central Spain. J Neurol Sci 264, 63-72.
28. Ritchie K, Kildea D (1995) Issenile dementia "age-related" or "ageing-related"-evidence from meta-analysis of dementia prevalence in the oldest old. Lancet 346, 931-934.
29. Kohn RR (1982) Cause of death in very old people. JAMA 247, 2793-2797.
30. Attems J, Arbes S, Bohm G, Bohmer F, Lintner F (2004) The clinical diagnostic accuracy rate regarding the immediate cause of death in a hospitalized geriatric population; an autopsy study of 1594 patients. Wien Med Wochenschr 154, 159-162.