Non-participants and reasons for non-participation in a pragmatic trial of energy healing as cancer rehabilitation

European Journal of Integrative Medicine

Volumn 6, Issue 3, 2014, Pages 268-276

  Techau, Marzcia ^a   Lunde, Anita ^b   Pedersen, Christina Gundgaard ^c   Green, Anders ^a   Johannessen, Helle ^a   Nissen, Nina ^a  

^a UNIVERSITY OF SOUTHERN DENMARK   (Denmark)

^b VIA UNIVERSITY COLLEGE   (Denmark)

^c AARHUS UNIVERSITY HOSPITAL   (Denmark)

Author keywords

Cancer rehabilitation; Complementary and alternative medicine; Energy healing; Pragmatic trial; Trial non participation; Trial participation

Indexed keywords

ADULT; AGED; ARTICLE; CANCER CHEMOTHERAPY; CANCER RADIOTHERAPY; CANCER REHABILITATION; CANCER SURGERY; CANCER THERAPY; COLORECTAL CANCER; CONTROLLED STUDY; ENERGY; FEMALE; GENDER; HUMAN; MAJOR CLINICAL STUDY; MALE; MIDDLE AGED; PRIORITY JOURNAL; TELEPHONE; VERY ELDERLY; CLINICAL TRIAL (TOPIC); DEPRESSION; HEALING; ICD-10; MOOD; PHYSICAL ACTIVITY; QUALITY OF LIFE; QUESTIONNAIRE; RESEARCH SUBJECT; SLEEP QUALITY;

ANTINEOPLASTIC AGENT;

EID: 84901820758     PISSN: 18763820     EISSN: 18763839     Source Type: Journal    
DOI: 10.1016/j.eujim.2014.03.003     Document Type: Article

References (30)

1. Ferlay J., Steliarova-Foucher E., Lortet-Tieulent J., Rosso S., Coebergh J.W., Comber H., et al. Cancer incidence and mortality patterns in Europe: estimates for 40 countries in 2012. Eur J Cancer 2013, 49(6):1374-1403.
2. Dunn J., Lynch B., Rinaldis M., Pakenham K., McPherson L., Owen N., et al. Dimensions of quality of life and psychosocial variables most salient to colorectal cancer patients. Psycho-Oncology 2006, 15(1):20-30.
3. Desnoo L., Faithfull S. A qualitative study of anterior resection syndrome: the experiences of cancer survivors who have undergone resection surgery. Eur J Cancer Care 2006, 15(3):244-251.
4. Emmertsen K.J., Laurberg S. Bowel dysfunction after treatment for rectal cancer. Acta Oncol 2008, 47(6):994-1003.
5. Kjaer T.K., Johansen C., Ibfelt E., Christensen J., Rottmann N., Høybye M.T., et al. Impact of symptom burden on health related quality of life of cancer survivors in a Danish cancer rehabilitation program: a longitudinal study. Acta Oncol 2011, 50(2):223-232.
6. Rozmovits L., Ziebland S. Expressions of loss of adulthood in the narratives of people with colorectal cancer. Qual Health Res 2004, 14(2):187-203.
7. Ramsey S.D., Andersen M.R., Etzioni R., Moinpour C., Peacock S., Potosky A., et al. Quality of life in survivors of colorectal carcinoma. Cancer 2000, 88(6):1294-1303.
8. Eisenberg D.M., Davis R.B., Ettner S.L., Appel S., Wilkey S., Van Rompay M., et al. Trends in alternative medicine use in the United States, 1990-1997: results of a follow-up national survey. JAMA 1998, 280(18):1569-1575.
9. Ernst E., White A. The BBC survey of complementary medicine use in the UK. Complement Ther Med 2000, 8(1):32-36.
10. Pedersen G.C. Complementary and alternative medicine among cancer patients - prevalence, user characteristics, and effectiveness for well-being 2009, Aarhus University, Unpublished PhD thesis.
11. Damkier A. Kræftpatienters brug af alternativ behandling 2000, University of Southern Denmark, Odense.
12. Molassiotis A., Fernandez-Ortega P., Pud D., Ozden G., Platin N., Hummerston S., et al. Complementary and alternative medicine use in colorectal cancer patients in seven European countries. Complement Ther Med 2005, 13(4):251-257.
13. Eardley S., Bishop F.L., Prescott P., Cardini F., Brinkhaus B., Santos-Rey K., et al. A systematic literature review of complementary and alternative medicine prevalence in EU. Forsch Komplementärmed 2012, 19(Suppl. 2):18-28.
14. Anker N. Kræftpatienters brug af alternativ behandling. Hovedresultater 2006, 1-23. Kræftens Bekæmpelse.
15. Grønvold M., Pedersen C., Jensen R.C., Faber T.M., Johnson A.T. Kræftpatientens verden. En undersøgelse af hvad kræftpatienter har brug for-resultater. vurderinger og forslag 2006, 1-19. Kræftens Bekæmpelse, København.
16. Molassiotis A., Fernadez-Ortega P., Pud D., Ozden G., Scott J.A., Panteli V., et al. Use of complementary and alternative medicine in cancer patients: a European survey. Ann Oncol 2005, 16(4):655-663.
17. Techau M., Johannessen H. Evaluating MYCaW as a tool to test personalized outcomes of an intervention. Forsch Komplementärmed 2013, 20(Suppl. 1):4.
18. Ostenfeld-Rosenthal A., Johannessen H. Evaluating an individualized questionnaire MYCaW, as used in an interdisciplinary study of healing as rehabilitation after colon cancer. Forsch Komplementärmed 2013, 20(Suppl. 1):4.
19. Agdal R., Johannessen H. Processes of self-transformation among users of energy healing. Forsch Komplementärmed 2013, 20(Suppl. 1):3-4.
20. Pedersen C.G., Christensen S., Jensen A.B., Zachariae R. The effect of energy healing on the Quality-of-Life (QoL) in patients treated for colon or rectal cancer: a comparison of randomized versus self-selected allocation to treatment. Forsch Komplementärmed 2013, 20(Suppl. 1):4-5.
21. Edwards P.J., Roberts I., Clarke M.J., Diguiseppi C., Wentz R., Kwan I., et al. Methods to increase response to postal and electronic questionnaires. Cochrane Database Syst Rev 2009, 3:MR000008.
22. Treweek S., Pitkethly M., Cook J., Kjeldstrom M., Taskila T., Johansen M., et al. Strategies to improve recruitment to randomised controlled trials. Cochrane Database Syst Rev 2010, 4:MR000013.
23. O'Connor M. The challenge of recruiting control groups. An experiment of different recruitment models in the control group of a clinical psychological postal survey. Qual Quant 2011, 45(4):743-750.
24. Cox K., McGarry J. Why patients don't take part in cancer clinical trials: an overview of the literature. Eur J Cancer Care 2003, 12(2):114-122.
25. Kaur G., Smyth R.L., Williamson P. Developing a survey of barriers and facilitators to recruitment in randomized controlled trials. Trials 2012, 13:218.
26. Richardson M.A., Post-White J., Singletary S.E., Justice B. Recruitment for complementary/alternative medicine trials: who participates after breast cancer. Ann Behav Med 1998, 20(3):190-198.
27. Sharp L., Cotton S.C., Alexander L., Williams E., Gray N.M., Reid J.M. Reasons for participation and non-participation in a randomized controlled trial: postal questionnaire surveys of women eligible for TOMBOLA (Trial Of Management of Borderline and Other Low-Grade Abnormal smears). Clin Trials 2006, 3(5):431-442.
28. Christensen A.I., Ekholm O., Davisen M., Juel K. Sundhed og sygelighed i Danmark 2010 - og udviklingen siden 1987 2012, 260. Statens Institut for Folkesundhed, Syddansk Universitet.
29. Lønroth H.L., Ekholm O. Alternativ behandling i Danmark - brug, brugere og årsager til brug. Ugeskrift for læger 2007, 168(7):682-686.
30. Ledderer L., la Cour K., Mogensen O., Jakobsen E., dePont Christensen R., Kragstrup J., et al. Feasibility of a psychosocial rehabilitation intervention to enhance the involvement of relatives in cancer rehabilitation: pilot study for a randomized controlled trial. Patient: Patient Centered Outcomes Res 2013, 6(3):201-212.