Validity of a self-administered version of the brief index of lupus damage in a predominantly African American systemic lupus erythematosus cohort

Arthritis Care and Research

Volumn 66, Issue 6, 2014, Pages 888-896

  Drenkard, C ^a   Yazdany, J ^b   Trupin, L ^b   Katz, P P ^b   Dunlop Thomas, C ^a   Bao, G ^a   Lim, S S ^a  

^a EMORY UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AFRICAN AMERICAN; ARTICLE; BRIEF INDEX OF LUPUS DAMAGE; COHORT ANALYSIS; CONSTRUCT VALIDITY; CRITERION RELATED VALIDITY; DISEASE DURATION; FEMALE; HEALTH CARE UTILIZATION; HEALTH STATUS; HUMAN; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; RATING SCALE; SELF REPORT; SYSTEMIC LUPUS ERYTHEMATOSUS; TEST RETEST RELIABILITY;

ADULT; AFRICAN AMERICANS; COHORT STUDIES; FEMALE; FOLLOW-UP STUDIES; HUMANS; LONGITUDINAL STUDIES; LUPUS ERYTHEMATOSUS, SYSTEMIC; MALE; MIDDLE AGED; QUESTIONNAIRES; REGISTRIES; SELF REPORT; SEVERITY OF ILLNESS INDEX;

EID: 84901650298     PISSN: 2151464X     EISSN: 21514658     Source Type: Journal    
DOI: 10.1002/acr.22231     Document Type: Article

References (39)

1. Gladman DD, Goldsmith CH, Urowitz MB, Bacon P, Fortin P, Ginzler E, et al. The Systemic Lupus International Collaborating Clinics/American College of Rheumatology (SLICC/ACR) Damage Index for systemic lupus erythematosus international comparison. J Rheumatol 2000; 27: 373-6.
2. Haque S, Gordon C, Isenberg D, Rahman A, Lanyon P, Bell A, et al. Risk factors for clinical coronary heart disease in systemic lupus erythematosus: the Lupus and Atherosclerosis Evaluation of Risk (LASER) Study. J Rheumatol 2010; 37: 322-9.
3. Calvo-Alen J, McGwin G, Toloza S, Fernandez M, Roseman JM, Bastian HM, et al. Systemic lupus erythematosus in a multiethnic US cohort (LUMINA): XXIV. Cytotoxic treatment is an additional risk factor for the development of symptomatic osteonecrosis in lupus patients: results of a nested matched case-control study. Ann Rheum Dis 2006; 65: 785-90.
4. Zonana-Nacach A, Yanez P, Jimenez-Balderas FJ, Camargo-Coronel A,. Disease activity, damage and survival in Mexican patients with acute severe systemic lupus erythematosus. Lupus 2007; 16: 997-1000.
5. Nived O, Jonsen A, Bengtsson AA, Bengtsson C, Sturfelt G,. High predictive value of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index for survival in systemic lupus erythematosus. J Rheumatol 2002; 29: 1398-400.
6. Cardoso CR, Signorelli FV, Papi JA, Salles GF,. Initial and accrued damage as predictors of mortality in Brazilian patients with systemic lupus erythematosus: a cohort study. Lupus 2008; 17: 1042-8.
7. Chambers SA, Allen E, Rahman A, Isenberg D,. Damage and mortality in a group of British patients with systemic lupus erythematosus followed up for over 10 years. Rheumatology (Oxford) 2009; 48: 673-5.
8. Rahman P, Gladman DD, Urowitz MB, Hallett D, Tam LS,. Early damage as measured by the SLICC/ACR Damage Index is a predictor of mortality in systemic lupus erythematosus. Lupus 2001; 10: 93-6.
9. Alarcon GS, McGwin G Jr, Bartolucci AA, Roseman J, Lisse J, Fessler BJ, et al. Systemic lupus erythematosus in three ethnic groups: IX. Differences in damage accrual. Arthritis Rheum 2001; 44: 2797-806.
10. Mok CC, Ho CT, Wong RW, Lau CS,. Damage accrual in Southern Chinese patients with systemic lupus erythematosus. J Rheumatol 2003; 30: 1513-9.
11. Gladman D, Ginzler E, Goldsmith C, Fortin P, Liang M, Urowitz M, et al. Systemic lupus international collaborative clinics: development of a damage index in systemic lupus erythematosus. J Rheumatol 1992; 19: 1820-1.
12. Gladman D, Ginzler E, Goldsmith C, Fortin P, Liang M, Urowitz M, et al. The development and initial validation of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index for systemic lupus erythematosus. Arthritis Rheum 1996; 39: 363-9.
13. Gladman DD, Urowitz MB, Goldsmith CH, Fortin P, Ginzler E, Gordon C, et al. The reliability of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index in patients with systemic lupus erythematosus. Arthritis Rheum 1997; 40: 809-13.
14. Alarcon GS, McGwin G Jr, Bastian HM, Roseman J, Lisse J, Fessler BJ, et al, for the LUMINA Study Group. Systemic lupus erythematosus in three ethnic groups: VIII. Predictors of early mortality in the LUMINA cohort. Arthritis Rheum 2001; 45: 191-202.
15. Mok CC, Ho LY, Cheung MY, Yu KL, To CH,. Effect of disease activity and damage on quality of life in patients with systemic lupus erythematosus: a 2-year prospective study. Scand J Rheumatol 2009; 38: 121-7.
16. Wang C, Mayo NE, Fortin PR,. The relationship between health related quality of life and disease activity and damage in systemic lupus erythematosus. J Rheumatol 2001; 28: 525-32.
17. Baker K, Pope J, Fortin P, Silverman E, Peschken C,. Work disability in systemic lupus erythematosus is prevalent and associated with socio-demographic and disease related factors. Lupus 2009; 18: 1281-8.
18. Bertoli AM, Fernandez M, Alarcon GS, Vila LM, Reveille JD,. Systemic lupus erythematosus in a multiethnic US cohort LUMINA (XLI): factors predictive of self-reported work disability. Ann Rheum Dis 2007; 66: 12-7.
19. Clarke AE, Petri M, Manzi S, Isenberg DA, Gordon C, Senecal JL, et al. The systemic lupus erythematosus Tri-nation Study: absence of a link between health resource use and health outcome. Rheumatology (Oxford) 2004; 43: 1016-24.
20. Sutcliffe N, Clarke AE, Taylor R, Frost C, Isenberg DA,. Total costs and predictors of costs in patients with systemic lupus erythematosus. Rheumatology (Oxford) 2001; 40: 37-47.
21. Bultink IE, Turkstra F, Dijkmans BA, Voskuyl AE,. High prevalence of unemployment in patients with systemic lupus erythematosus: association with organ damage and health-related quality of life. J Rheumatol 2008; 35: 1053-7.
22. Costenbader KH, Khamashta M, Ruiz-Garcia S, Perez-Rodriguez MT, Petri M, Elliott J, et al. Development and initial validation of a self-assessed lupus organ damage instrument. Arthritis Care Res (Hoboken) 2010; 62: 559-68.
23. Yazdany J, Trupin L, Gansky SA, Dall'era M, Yelin EH, Criswell LA, et al. Brief Index of Lupus Damage: a patient-reported measure of damage in systemic lupus erythematosus. Arthritis Care Res (Hoboken) 2011; 63: 1170-7.
24. Drenkard C, Rask KJ, Easley KA, Bao G, Lim SS,. Primary preventive services in patients with systemic lupus erythematosus: study from a population-based sample in Southeast U.S. Semin Arthritis Rheum 2013; 43: 209-16.
25. Lim SS, Bayakly AR, Helmick CG, Gordon C, Easley KA, Drenkard C,. The incidence and prevalence of systemic lupus erythematosus, 2002-2004: the Georgia Lupus Registry. Arthritis Rheumatol 2014; 66: 357-68.
26. Tan EM, Cohen AS, Fries JF, Masi AT, McShane DJ, Rothfield NF, et al. The 1982 revised criteria for the classification of systemic lupus erythematosus. Arthritis Rheum 1982; 25: 1271-7.
27. Byrt T, Bishop J, Carlin JB,. Bias, prevalence and kappa. J Clin Epidemiol 1993; 46: 423-9.
28. Karlson EW, Daltroy LH, Rivest C, Ramsey-Goldman R, Wright EA, Partridge AJ, et al. Validation of a Systemic Lupus Activity Questionnaire (SLAQ) for population studies. Lupus 2003; 12: 280-6.
29. Hurst NP, Ruta DA, Kind P,. Comparison of the MOS Short Form-12 (SF12) health status questionnaire with the SF36 in patients with rheumatoid arthritis. Br J Rheumatol 1998; 37: 862-9.
30. Wolfe F, Michaud K, Li T, Katz RS,. Chronic conditions and health problems in rheumatic diseases: comparisons with rheumatoid arthritis, noninflammatory rheumatic disorders, systemic lupus erythematosus, and fibromyalgia. J Rheumatol 2010; 37: 305-15.
31. Cochran W,. Some methods for strengthening the common tests. Biometrics 1954; 10: 417-51.
32. Armitage P,. Tests for linear trends in proportions and frequencies. Biometrics 1955; 11: 375-86.
33. Rookey BD, Le L, Littlejohn M, Dillman DA,. Understanding the resilience of mail-back survey methods: an analysis of 20 years of change in response to national park surveys. Soc Sci Res 2012; 41: 1404-14.
34. Rivest C, Lew RA, Welsing PM, Sangha O, Wright EA, Roberts WN, et al. Association between clinical factors, socioeconomic status, and organ damage in recent onset systemic lupus erythematosus. J Rheumatol 2000; 27: 680-4.
35. Fortin PR, Abrahamowicz M, Neville C, du Berger R, Fraenkel L, Clarke AE, et al. Impact of disease activity and cumulative damage on the health of lupus patients. Lupus 1998; 7: 101-7.
36. Vila LM, Alarcon GS, McGwin G Jr, Friedman AW, Baethge BA, Bastian HM, et al. Early clinical manifestations, disease activity and damage of systemic lupus erythematosus among two distinct US Hispanic subpopulations. Rheumatology (Oxford) 2004; 43: 358-63.
37. Cooper GS, Treadwell EL, St.Clair EW, Gilkeson GS, Dooley MA, Sociodemographic associations with early disease damage in patients with systemic lupus erythematosus. Arthritis Rheum 2007; 57: 993-9.
38. Toloza SM, Roseman JM, Alarcon GS, McGwin G Jr, Uribe AG, Fessler BJ, et al. Systemic lupus erythematosus in a multiethnic US cohort (LUMINA): XXII. Predictors of time to the occurrence of initial damage. Arthritis Rheum 2004; 50: 3177-86.
39. Yazdany J, Yelin EH, Panopalis P, Trupin L, Julian L, Katz PP,. Validation of the systemic lupus erythematosus activity questionnaire in a large observational cohort. Arthritis Rheum 2008; 59: 136-43.