Correlates of quality of life for individuals with dementia living at home: The role of home environment, caregiver, and patient-related characteristics

American Journal of Geriatric Psychiatry

Volumn 22, Issue 6, 2014, Pages 587-597

  Gitlin, Laura N ^a   Hodgson, Nancy ^a   Piersol, Catherine Verrier ^b   Hess, Edward ^a,d   Hauck, Walter W ^c  

^a JOHNS HOPKINS UNIVERSITY SCHOOL OF NURSING   (United States)

^b THOMAS JEFFERSON UNIVERSITY   (United States)

^c Sycamore Consulting LLC   (United States)

^d UNIVERSITY OF COLORADO   (United States)

Author keywords

Caregiving; Dementia care; Health related quality of life; Neuropsychiatric behaviors

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; COGNITIVE DEFECT; CORRELATION ANALYSIS; CROSS-SECTIONAL STUDY; DEMENTIA; DEPRESSION; EDUCATIONAL STATUS; FALL RISK; FEMALE; HOME CARE; HOME ENVIRONMENT; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICATION THERAPY MANAGEMENT; MINI MENTAL STATE EXAMINATION; MOBILIZATION; PAIN; QUALITY OF LIFE; RISK FACTOR; SELF CARE; DAILY LIFE ACTIVITY; MIDDLE AGED; NEUROPSYCHOLOGICAL TEST; PREVALENCE; PSYCHOLOGY; QUESTIONNAIRE; STATISTICS AND NUMERICAL DATA; VERY ELDERLY;

ACTIVITIES OF DAILY LIVING; ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; DEMENTIA; FEMALE; HOME NURSING; HUMANS; MALE; MIDDLE AGED; NEUROPSYCHOLOGICAL TESTS; PREVALENCE; QUALITY OF LIFE; QUESTIONNAIRES; RISK FACTORS;

EID: 84901627532     PISSN: 10647481     EISSN: 15457214     Source Type: Journal    
DOI: 10.1016/j.jagp.2012.11.005     Document Type: Article

References (59)

1. Alzheimer's Association: 2012 Alzheimer's disease facts and figures. Alzheimers Dement 2012;8(2):131-168
2. Brookmeyer R, Gray S, Kawas C: Projections of Alzheimer's disease in the United States and the public health impact of delaying disease onset. Am J Public Health 1998;9:1337-1342
3. Wimo A, Prince M: World Alzheimer Report 2010: the global economic impact of dementia. Alzheimer's Disease International (ADI). (online). Available at: http://www.alz.co.uk/research/world-report. Accessed March 2013
4. Haberstroh J, Hampel H, Pantel J: Optimal management of Alzheimer's disease patients: clinical guidelines and family advice. Neuropsychiatr Dis Treat 2010:243-253
5. Chodosh J, Mittman BS, Connor KI, et al: Caring for patients with dementia: how good is the quality of care? Results from three health systems. J Am Geriatr Soc 2007;55:1260-1268
6. Callahan CM, Arling G, Tu W, et al: Transitions in care for older adults with and without Dementia. J Am Geriatr Soc 2012;60(5):813-820
7. Bouman AI, Ettema TP, Wetzels RB, et al: Evaluation of Qualidem: a dementia-specific quality of life instrument for persons with dementia in residential settings: Scalability and reliability of subscales in four Dutch field surveys. Int J Geriatr Psychiatry 2011;7:711-722
8. Scholzel-Dorenbos CJ, Ettema TP, Bos J, et al: Evaluating the outcome of interventions on quality of life in dementia: selection of the appropriate scale. IntJ Geriatr Psychiatry 2007;6:511-519
9. Ready RE, Ott BR: Quality of life measures for dementia. Health Qual Life Outcomes 2003:11
10. Hoe J, Katona C, Roch B, et al: Use of the QOL-AD for measuring quality of life in people with severe dementia: The LASER-AD study. Age Ageing 2005;2:130-135
11. Cahill S, Diaz-Ponce AM: 'I hate having nobody here. I'd like to know where they all are': can qualitative research detect differences in quality of life among nursing home residents with different levels of cognitive impairment? Aging Ment Health 2011;5:562-572
12. Trigg R, Jones RW, Skevington SM: Can people with mild to moderate dementia provide reliable answers about their quality of life? Age Ageing 2007;6:663-669
13. Sands LP, Ferreira P, Stewart AL, et al: What explains differences between dementia patients' and their caregivers' ratings of patients' quality of life? Am J Geriatr Psychiatry 2004;3:272-280
14. Cordner Z, Blass DM, Rabins PV, et al: Quality of life in nursing home residents with advanced dementia. J Am Geriatr Soc 2010;12:2394-2400
15. Edelman P, Fulton BR, Kuhn D: Comparison of dementia-specific quality of life measures in adult day centers. Home Health Care Serv Q 2004;1:25-42
16. Karlawish JH, Casarett D, Klocinski J, et al: The relationship between caregivers' global ratings of Alzheimer's disease patients' quality of life, disease severity, and the caregiving experience. J Am Geriatr Soc 2001;8:1066-1070
17. Crespo M, Bernaldo de Quiros M, Gomez MM, et al: Quality of Life of nursing home residents with dementia: a comparison of perspectives of residents, family, and staff. Gerontologist 2012;52:56-65
18. Vogel A, Mortensen EL, Hasselbalch SG, et al: Patient versus informant reported quality of life in the earliest phases of Alzheimer's disease. IntJ Geriatr Psychiatry 2006;12:1132-1138
19. Schiffczyk C, Romero B, Jonas C, et al: Generic quality of life assessment in dementia patients: a prospective cohort study. BMC Neurol 2010;48:1471-2377
20. Nikmat AW, Hawthorne G, Al-Mashoor SH: Quality of life in dementia patients: nursing home versus home care. Int Psychogeriatr 2011;23(10):1692-1700
21. Karttunen K, Karppi P, Hiltunen A, et al: Neuropsychiatric symptoms and quality of life in patients with very mild and mild Alzheimer's disease. IntJ Geriatr Psychiatry 2011;26(5):473
22. Conde-Sala JL, Garre-Olmo J, Turró-Garriga O, et al: Factors related to perceived quality of life in patients with Alzheimer's disease: the patient's perception compared with that of caregivers. IntJ Geriatr Psychiatry 2009;24(6):585-594
23. Berwig M, Leicht H, Gertz HJ: Critical evaluation of self-rated quality of life in mild cognitive impairment and Alzheimer's disease: further evidence for the impact of anosognosia and global cognitive impairment. J Nutr Health Aging 2009;13(3):226
24. Barca ML, Engedal K, Laks J, et al: Quality of life among elderly patients with dementia in institutions. Dement Geriatr Cogn Disord 2011;6:435-442
25. Gerontologist 2005;45(suppl 1):133-146
26. Albert SM, Jacobs DM, Sano M, et al: Longitudinal study of quality of life in people with advanced Alzheimer's disease. Am J Geriatr Psychiatry 2001;2:160-168
27. Banerjee S, Samsi K, Petrie CD, et al: What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health related quality of life in people with dementia. Int J Geriatr Psychiatry 2009;24(1):15-24
28. Lawton MP: A multidimensional view of quality of life in frail elders, in The Concept and Measurement of Quality of Life in the Frail Elderly. Edited by Birren JE, Lubben JE, Rowe JC, et al: San Diego, CA, Academic Press, 1991, pp 3
29. Wahl HW, Fange A, Oswald F, et al: The home environment and disability-related outcomes in aging individuals: what is the empirical evidence? Gerontologist 2009;3:355-367
30. Folstein MF, Folstein SE, McHugh PR: "Mini-mental state": a practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 1975;12:189-198
31. Logsdon RG, Gibbons LE, McCurry SM, et al: Assessing quality of life in older adults with cognitive impairment. Psychosom Med 2002;3:510-519
32. Allen CK, Austin SL, David SK, et al: Manual for the Allen Cognitive Level Screen-5 (ACLS-5) and Large Allen Cognitive Level Screen-5 (LACLS-5). Camarillo, CA: ACLS and LACLS Committee, 2007
33. Earhart CA. Allen Diagnostic Modules: Manual, Ed. 2. Colchester, CT: S&S Worldwide, 2006
34. Gitlin LN, Schinfeld S, Winter L, et al: Evaluating home environments of persons with dementia: interrater reliability and validity of the Home Environmental Assessment Protocol (HEAP). Disabil Rehabil 2002;24:59-71
35. Lawton MP, Moss M, Fulcomer M, et al: A research and service oriented multilevel assessment instrument. J Gerontol 1982;60(5):813-820
36. Cummings JL, Mega M, Gray K, et al: The Neuropsychiatric Inventory. Neurology 1994;12:2308
37. Podsiadlo D, Richardson S: The Timed "Up & Go": a test of basic functional mobility for frail elderly persons. J Am Geriatr Soc 1991;2:142-148
38. Shumway-Cook A, Brauer S, Woollacott M: Predicting the probability for falls in community-dwelling older adults using the Timed Up & Go Test. Physical Therapy 2000:903
39. Warden V, Hurley AC, Volicer L: Development and psychometric evaluation of the pain assessment in advanced dementia (PAINAD) scale. J Am Med Dir Association 2003;4:9-15
40. Bieri D, Reeve RA, Champion GD, et al: The Faces Pain Scale for the self-assessment of the severity of pain experienced by children: development, initial validation, and preliminary investigation for ratio scale properties. Pain 1990;2:139-150
41. Herr K, Bursch H, Ersek M, et al: Use of pain-behavioral assessment tools in the nursing home: expert consensus recommendations for practice. Gerontol Nurs 2010;36(3):18-29
42. Buysse DJ, Reynolds CF 3rd, Monk TH, et al: The Pittsburgh Sleep Quality Index: a new instrument for psychiatric practice and research. Psychiatry Res 1989;2:193-213
43. Radloff LS: The CES-D scale: A self-report depression scale for research in the general population. Appl Psychol Meas 1977;1:385-401
44. Tarlow B, Wisniewski S, Belle S, et al: Positive aspects of caregiving: contributions of the REACH project to the development of new measures for Alzheimer's caregiving. Res Aging 2004;4:429-453
45. Boerner K, Schulz R, Horowitz A: Positive aspects of caregiving and adaptation to bereavement. Psychol Aging 2004;4:668-675
46. Hinrichsen GA, Niederehe G: Dementia management strategies and adjustment of family members of older patients. Gerontologist 1994;1:95-102
47. Straus M: Measuring intrafamily conflict and violence: the Conflict Tactics (CT) scales. J Marriage Family 1979;41:75-88
48. Gitlin LN, Winter L, Dennis MP, et al: Targeting and managing behavioral symptoms in individuals with dementia: a randomized trial of a nonpharmacological intervention. J Am Geriatr Soc 2010;8:1465-1474
49. Gitlin LN, Winter L, Dennis MP: Assistive devices to help manage behavioral symptoms of dementia: what do caregivers use and find helpful? Special issue in honor of Dr. Fozzard. Gerontechnology 2010;9(3):408-414
50. Gitlin LN, Winter L, Dennis MP, et al: A biobehavioral home-based intervention and the well-being of patients with dementia and their caregivers: the COPE randomized trial. JAMA 2010;9:983-991
51. Schulz R, Hebert RS, Dew MA, et al: Patient suffering and caregiver compassion: new opportunities for research, practice, and policy. Gerontologist 2007;1:4-13
52. Williamson GM, Shaffer DR, Schulz R: Activity restriction and prior relationship history as contributors to mental health outcomes among middle-aged and older spousal caregivers. Health Psychol 1998;17:152-162
53. Kovach CR, Logan BR, Simpson MR, et al: Factors associated with time to identify physical problems of nursing home residents with dementia. Am J Alzheimers Dis Other Demen 2010;4:317-323
54. Hodgson NA, Gitlin LN, Winter L, et al: Undiagnosed illness and neuropsychiatric behaviors in community residing older adults with dementia. Alzheimer Dis Assoc Disord 2011;2:109-115
55. Prince M, Acosta D, Ferri CP, et al: The association between common physical impairments and dementia in low and middle income countries, and, among people with dementia, their association with cognitive function and disability: a 10/66 Dementia Research Group population-based study. Int J Geriatr Psychiatry 2011;5:511-519
56. Teri L, Le Gibbons, McCurry SM, et al: Exercise plus behavioral management in patients with Alzheimer disease: a randomized controlled trial. JAMA 2003;290(15):2015-2022
57. Gitlin LN, Winter L, Vause Earland T, et al: The tailored activity program to reduce behavioral symptoms in individuals with dementia: feasibility, acceptability, and replication potential. Gerontologist 2009;49(3):428-439
58. Hurt C, Bhattacharyya S, Burns A, et al: Patient and caregiver perspectives of quality of life in dementia. An investigation of the relationship to behavioural and psychological symptoms in dementia. Dement Geriatr Cogn Disord 2008;2:138-146
59. Rabins PV, Black BS: Measuring quality of life in dementia: purposes, goals, challenges and progress. Int Psychogeriatr 2007;3:401-407