Validation of the IMPACT-III quality of life questionnaire in Swiss children with inflammatory bowel disease

Journal of Crohn's and Colitis

Volumn 8, Issue 7, 2014, Pages 641-648

  Werner, Helene ^a   Landolt, Markus A ^a,e   Buehr, Patrick ^a   Koller, Rebekka ^a   Nydegger, Andreas ^b   Spalinger, Johannes ^c   Heyland, Klaas ^a   Schibli, Susanne ^d   Braegger, Christian P ^a,e  

^a UNIVERSITY CHILDREN S HOSPITAL   (Switzerland)

^b Centre Hospitalier Universitaire Vaudois   (Switzerland)

^c CHILDREN S HOSPITAL   (Switzerland)

^d Children s Hospital   (Switzerland)

^e UNIVERSITY CHILDREN S HOSPITAL   (Switzerland)

Author keywords

Children; Inflammatory bowel disease; Quality of life; Validation

Indexed keywords

CORTICOSTEROID; IMMUNOSUPPRESSIVE AGENT;

ADOLESCENT; ARTICLE; BODY HEIGHT; BODY IMAGE; BODY WEIGHT; CHILD; CHILDHOOD DISEASE; COHORT ANALYSIS; CONCURRENT VALIDITY; CONTROLLED STUDY; CROHN DISEASE; DIAGNOSTIC TEST ACCURACY STUDY; DISCRIMINANT VALIDITY; DISEASE ACTIVITY; FEMALE; HUMAN; IMPACT III QUALITY OF LIFE QUESTIONNAIRE; INFLAMMATORY BOWEL DISEASE; MAJOR CLINICAL STUDY; MALE; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; PRIORITY JOURNAL; PSYCHOLOGICAL WELL BEING; QUALITY OF LIFE; QUESTIONNAIRE; RELIABILITY; SCHOOL CHILD; SOCIAL INTERACTION; SWITZERLAND; ULCERATIVE COLITIS; CLINICAL TRIAL; MULTICENTER STUDY; PSYCHOLOGY; REPRODUCIBILITY; SEVERITY OF ILLNESS INDEX; VALIDATION STUDY;

ADOLESCENT; CHILD; COLITIS, ULCERATIVE; CROHN DISEASE; FEMALE; HUMANS; MALE; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SEVERITY OF ILLNESS INDEX; SWITZERLAND;

EID: 84901494215     PISSN: 18739946     EISSN: 18764479     Source Type: Journal    
DOI: 10.1016/j.crohns.2013.11.025     Document Type: Article

References (28)

1. Irvine E.J., Farrokhyar F., Swarbrick E.T. A critical review of epidemiological studies in inflammatory bowel disease. Scand J Gastroenterol 2001, 36:2-15.
2. Kugathasan S., Judd R.H., Hoffmann R.G., Heikenen J., Telega G., Khan F., et al. Epidemiologic and clinical characteristics of children with newly diagnosed inflammatory bowel disease in Wisconsin: a statewide population-based study. J Pediatr 2003, 143:525-531.
3. Matza L.S., Swensen A.R., Flood E.M., Secnik K., Leidy N.K. Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues. Value Health 2004, 7:79-92.
4. Landolt M.A., Valsangiacomo Buechel E.R., Latal B. Health-related quality of life in children and adolescents after open-heart surgery. J Pediatr 2008, 152:349-355.
5. Rabbett H., Elbadri A., Thwaites R., Northover H., Dady I., Firth D., et al. Quality of life in children with Crohn's disease. J Pediatr Gastroenterol Nutr 1996, 23:528-533.
6. Griffiths A.M., Nicholas D., Smith C., Munk M., Stephens D., Durno C., et al. Development of a quality-of-life index for pediatric inflammatory bowel disease: dealing with differences related to age and IBD type. J Pediatr Gastroenterol Nutr 1999, 28:S46-S52.
7. Otley A., Smith C., Nicholas D., Munk M., Avolio J., Sherman P.M., et al. The IMPACT questionnaire: a valid measure of health-related quality of life in pediatric inflammatory bowel disease. J Pediatr Gastroenterol Nutr 2002, 35:557-563.
8. Guyatt G., Mitchell A., Irvine E.J., Singer J., Williams N., Goodacre R., et al. A new measure of health status for clinical trials in inflammatory bowel disease. Gastroenterology 1989, 96:804-810.
9. Loonen H.J., Grootenhuis M.A., Last B.F., de Haan R.J., Bouquet J., Derkx B.H. Measuring quality of life in children with inflammatory bowel disease: the impact-II (NL). Qual Life Res 2002, 11:47-56.
10. Loonen H.J., Grootenhuis M.A., Last B.F., Koopman H.M., Derkx H.H. Quality of life in paediatric inflammatory bowel disease measured by a generic and a disease-specific questionnaire. Acta Paediatr 2002, 91:348-354.
11. Otley A.R., Griffiths A.M., Hale S., Kugathasan S., Pfefferkorn M., Mezoff A., et al. Health-related quality of life in the first year after a diagnosis of pediatric inflammatory bowel disease. Inflamm Bowel Dis 2006, 12:684-691.
12. Otley A. IMPACT-III: User's Guide 2005.
13. Abdovic S., Mocic Pavic A., Milosevic M., Persic M., Senecic-Cala I., Kolacek S. The IMPACT-III (HR) questionnaire: a valid measure of health-related quality of life in Croatian children with inflammatory bowel disease. J Crohns Colitis 2013, 7:908-915.
14. Ogden C.A., Akobeng A.K., Abbott J., Aggett P., Sood M.R., Thomas A.G. Validation of an instrument to measure quality of life in British children with inflammatory bowel disease. J Pediatr Gastroenterol Nutr 2011, 53:280-286.
15. Tabachnik B.G., Fidell L.S. Using multivariate statistics 2005, Pearson International Edition.
16. Pittet V., Juillerat P., Mottet C., Felley C., Ballabeni P., Burnand B., et al. Cohort profile: the Swiss Inflammatory Bowel Disease Cohort Study (SIBDCS). Int J Epidemiol 2009, 38:922-931.
17. Lennard-Jones J.E. Classification of inflammatory bowel disease. Scand J Gastroenterol Suppl 1989, 170:2-6. [discussion 16-9].
18. Hyams J., Markowitz T., Otley A., Rosh J., Mack I., Bousvaros A., et al. Evaluation of the pediatric Crohn disease activity index: a prospective multicenter experience. J Pediatr Gastroenterol Nutr 2005, 41:416-421.
19. Turner D., Griffiths A.M., Walters T.D., Seah T., Markowitz J., Pfefferkorn M., et al. Appraisal of the Pediatric Crohn's Disease Activity Index on Four Prospectively Collected Datasets: recommended cutoff values and clinimetric properties. Am J Gastroenterol 2010, 105:2085-2092.
20. Hyams J.S., Ferry G.D., Mandel F.S., Gryboski J.D., Kibort P.M., Kirschner B.S., et al. Development and validation of a Pediatric Crohns-Disease Activity Index. J Pediatr Gastroenterol Nutr 1991, 12:439-447.
21. Turner D., Otley A.R., Mack D., Hyams J., De Bruijne J., Uusoue K., et al. Development, validation, and evaluation of a pediatric ulcerative colitis activity index: a prospective multicenter study. Gastroenterology 2007, 133:423-432.
22. Braegger C.P., Jenni O.G., Konrad D., Molinari L. Neue Wachstumskurven für die Schweiz. Paediatrica 2011, 22:9-11.
23. Bisegger C., Cloetta B., GroupTEK Kidscreen: Fragebogen zur Erfassung der gesundheitsbezogenen Lebensqualität von Kindern und Jugendlichen. Abteilung für Gesundheitsforschung des Instituts für Sozial- und Präventivmedizin der Universität 2005.
24. Beaton D.E., Bombardier C., Guillemin F., Ferraz M.B. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine 2000, 25:3186-3191.
25. Kaiser H.F. The application of electronic computers to factor analysis. Educ Psychol Meas 1960, 20:141-151.
26. Stevens J.P. Applied multivariate statistics for the social sciences 2002, Erlbaum.
27. Cohen J.A. Power Primer. Psychol Bull 1992, 112:155-159.
28. Perrin J.M., Kuhlthau K., Chughtai A., Romm D., Kirschner B.S., Ferry G.D., et al. Measuring quality of life in pediatric patients with inflammatory bowel disease: psychometric and clinical characteristics. J Pediatr Gastroenterol Nutr 2008, 46:164-171.