The wellbeing of siblings of children with disabilities

Research in Developmental Disabilities

Volumn 35, Issue 9, 2014, Pages 2085-2092

  Emerson, Eric ^a   Giallo, Rebecca ^b,c  

^a UNIVERSITY OF SYDNEY   (Australia)

^b ROYAL CHILDREN'S HOSPITAL   (Australia)

^c RMIT UNIVERSITY   (Australia)

Author keywords

Childhood; Disability; Emotional and behavioural difficulties; Mental health; Siblings

Indexed keywords

ARTICLE; AUSTRALIA; CHILD; CHILD HEALTH; CONTROLLED STUDY; DISABILITY; FEMALE; HEALTH STATUS; HUMAN; MALE; PEER GROUP; PEER PRESSURE; SIBLING; SIBLING RELATION; SOCIOECONOMICS; WELLBEING; CASE CONTROL STUDY; CHRONIC DISEASE; DEVELOPMENTAL DISORDER; FAMILY SIZE; LONGITUDINAL STUDY; PRESCHOOL CHILD; PSYCHOLOGY; QUESTIONNAIRE; SATISFACTION; SOCIAL CLASS; SOCIAL ENVIRONMENT;

CASE-CONTROL STUDIES; CHILD; CHILD, PRESCHOOL; CHRONIC DISEASE; DEVELOPMENTAL DISABILITIES; FAMILY CHARACTERISTICS; FEMALE; HUMANS; LONGITUDINAL STUDIES; MALE; PERSONAL SATISFACTION; QUESTIONNAIRES; SIBLINGS; SOCIAL CLASS; SOCIAL ENVIRONMENT;

EID: 84901459918     PISSN: 08914222     EISSN: 18733379     Source Type: Journal    
DOI: 10.1016/j.ridd.2014.05.001     Document Type: Article

References (50)

1. Australian Institute of Family Studies Longitudinal study of Australian children data user guide 2011, Australian Institute of Family Studies, Melbourne.
2. Blakemore T., Strazdins L., Gibbings J. Measuring family socioeconomic position. Australian Social Policy 2009, 8:121-168.
3. Bristol M., Gallagher J., Schopler E. Mothers and fathers of young developmentally disabiled and nondisabled boys: Adaptation and spousal support. Developmental Psychology 1988, 24(3):441-451. 10.1037/0012-1649.24.3.441.
4. Burton S., Parks A. Self-esteem, locus of control, and career aspirations of college-age siblings of individuals with disabilities. Social Work Research 1994, 18:178-185.
5. Cadman D., Boyle M., Offord D. The Ontario child health study: Social adjustment and mental health of siblings of children with chronic health problems. Developmental & Behavioural Pediatrics 1988, 9:117-121.
6. Conger R.D., Donnellan M.B. An interactionist perspective on the socioeconomic context of human development. Annual Review of Psychology 2007, 58:175-199.
7. Cookson H., Granell R., Joinson C., Ben-Shlomo Y., Henderson A. Mothers' anxiety during pregnancy is associated with asthma in their children. Journal of Allergy and Clinical Immunology 2009, 123:847-853. 10.1016/j.jaci.2009.01.042.
8. Cox A., Marshall E., Mandieco B., Olsen S. Coping responses to daily life stressors of children who have a sibling with a disability. Journal of Family Nursing 2003, 9:397-413.
9. Daraganova G., Sipthorp M. Wave 4 weights 2011, Australian Institute of Family Studies, Melbourne.
10. Douglas P., Hill P. Behavioral sleep interventions in the first six months of life do not improve outcomes for mothers or infants: A systematic review. Journal of Developmental & Behaviour Pediatrics 2013, 34:497-507.
11. Emerson E. Understanding disabled childhoods: What can we learn from population-based studies?. Children & Society 2012, 26:214-222.
12. Emerson E. Commentary: Childhood exposure to environmental adversity and the well-being of people with intellectual disabilities. Journal of Intellectual Disabilities Research 2013, 57:589-600. 10.1111/j. 1365-2788.2012.01577.x.
13. Emerson E., Brigham P. Exposure of children with developmental delay to social determinants of poor health: Cross sectional study. Child: Care Health Development 2014, (in press).
14. Emerson E., Hatton C. The socio-economic circumstances of children at risk of disability in Britain. Disability and Society 2007, 22:563-580.
15. Emerson E., Hatton C. Socio-economic position, poverty and family research. On families: International review of research on mental retardation 2010, New York, Academic Press. L.M. Glidden, M.M. Seltzer (Eds.).
16. Emerson E., Llewellyn G. The mental health of Australian mothers and fathers of young children at risk of disability. Australian and New Zealand Journal of Public Health 2008, 32(1):53-59.
17. Emerson E., McCulloch A., Graham H., Blacher J., Llewellyn G., Hatton C. Socioeconomic circumstances and risk of psychiatric disorders among parents of children with early cognitive delay. American Journal on Intellectual and Developmental Disabilities 2010, 115(1):30-42. 10.1352/1944-7558-115.1.30.
18. Families Special Interest Research Group of IASSIDD Families supporting a child with intellectual or developmental disabilities: The current state of knowledge. Journal of Applied Research in Intellectual Disabilities 2013, 10.1111/jar.12078.
19. Giallo R., Baldwin L., Thompson S., Schuster S. Parenting siblings of children with a disability: Parent concerns and sibling adjustment. Paper presented at the 2nd Siblings Australia Conference 2009.
20. Giallo R., Roberts R., Emerson E., Wood C., Gavidia-Payne S. The emotional and behavioural functioning of siblings of children with special health care needs across childhood. Research in Developmental Disabilities 2014, 35:814-825.
21. Goodman R. The Strengths and Difficulties Questionnaire: A research note. Journal of Child Psychology, and Psychiatry and Allied Disciplines 1997, 38:581-586.
22. Goodman R. Psychometric properties of the Strengths and Difficulties Questionnaire (SDQ). Journal of the American Academy of Child and Adolescent Psychiatry 2001, 40:1337-1345.
23. Goodman R., Scott S. Comparing the Strengths and Difficulties Questionnaire and the Child Behaviour Checklist: Is small beautiful?. Journal of Abnormal Child Psychology, Crime and Law 1999, 27:17-24.
24. Guite J., Lobato D., Kao B., Plante W. Discordance between siblings and parent reports of the impact of chronic illness and disability on siblings. Children's Health Care 2004, 33:77-92.
25. Hatton C., Emerson E., Graham H., Blacher J., Llewellyn G. Changes in family composition and marital status in families with a young child with cognitive delay. Journal of Applied Research in Intellectual Disabilities 2010, 23:14-26.
26. Hawes D.J., Dadds M.R. Australian data and psychometric properties of the Strengths and Difficulties Questionnaire. Australian and New Zealand Journal of Psychiatry 2004, 38:644-651.
27. IBM Corp. IBM SPSS statistics: Version 20 2011, IBM Corp, Armonk, NY.
28. Kessler R.C., Andrews G., Colpe L.J., Hiripi E., Mroczek D.K., Normand S.-L.T. Short screening scales to monitor population prevalences and trends in nonspecific psychological distress. Psychological Medicine 2002, 32:959-976.
29. Kessler R.C., Barker P.R., Colpe L.J., Epstein J.F., Gfroerer J.C., Hiripi E. Screening for serious mental illness in the general population. Archives of General Psychiatry 2003, 60:184-189.
30. Lukemeyer A., Meyers M.K., Smeeding T. Expensive children in poor families: Out-of-pocket expenditures for the care of disabled and chronically ill children in welfare families. Journal of Marriage and the Family 2000, 62:399-415.
31. Mandleco B., Olsen S., Dyches T., Marshall E. The relationship between family and sibling functioning in families raising a child with a disability. Journal of Family Nursing 2003, 9:365-396.
32. Mission S., Sipthorpe M. Wave 2 weighting and non-response: LSAC Technical paper No. 5 2007, Australian Institute of Family Studies, Melbourne.
33. Mulroy S., Robertson L., Aiberti K., Leonard H., Bower C. The impact of having a sibling with an intellectual disability: Parental perspectives in two disorders. Journal of Intellectual Disability Research 2008, 52:216-229.
34. Newacheck P.W., Kim S.E. A national profile of health care utilization and expenditures for children with special health care needs. Archives of Pediatrics and Adolescent Medicine 2005, 159:10-18.
35. Olivier J., Bell M.L. Effect sizes for 2×2 contingency tables. PLoS ONE 2013, 8:e58777.
36. Olsson M.B., Hwang C.P. Socioeconomic and psychological variables as risk and protective factors for parental well-being in families of children with intellectual disabilities. Journal of Intellectual Disability Research 2008, 52(12):1102-1113.
37. Parish S.L., Cloud J.M. Financial well-being of young children with disabilities and their families. Social Work 2006, 51(3):223-232.
38. Parish S.L., Rose R.A., Andrews M.E., Grinstein-Weiss M., Richman E.L. Material hardship in US families raising children with disabilities. Exceptional Children 2008, 75(1):71-92.
39. Parish S.L., Seltzer M.M., Greenburg J.S., Floyd F. Economic implications of caregiving at midlife: Comparing parents with and without children who have developmental disabilities. Mental Retardation 2004, 42(6):413-426.
40. Pink B. Socio-economic indexes for areas (SEIFA): Technical paper 2008, Australian Bureau of Statistics, Canberra.
41. Porterfield S.L. Work choices of mothers in families with children with disabilities. Journal of Marriage & Family 2002, 64:972-981.
42. Rossiter L., Sharpe D. The siblings of individuals with mental retardation: A quantitative integration of the literature. Journal of Child and Family Studies 2001, 10:65-84.
43. Shahtahmasebi S., Emerson E., Berridge D., Lancaster G. Child disability and the dynamics of family poverty, hardship and financial strain: Evidence from the UK. Journal of Social Policy 2011, 40:653-673.
44. Sipthorp M., Misson S. Wave 3 weighting and non-response 2009, Australian Institute of Family Studies, Melbourne.
45. Soloff C., Lawrence D., Johnstone R. LSAC technical paper No. 1: Sample design 2005, Australian Institute of Family Studies, Melbourne.
46. Soloff C., Lawrence D., Misson S., Johnstone R. LSAC Technical paper No. 3: Wave 1 weighting and non-response 2006, Australian Institute of Family Studies, Melbourne.
47. Tibble M. Review of existing research on the extra costs of disability 2005, Department of Work and Pensions, London.
48. Vermaes I., van Susante A., van Bakel H. Psychological functioning of siblings in families of children with chronic health conditions: A meta-analysis. Journal of Pediatric Psychology 2012, 37(2):166-184.
49. Wang P., Gruber M., Powers R., Schoenbaum M., Speier A., Wells K. Mental health service use among Hurricane Katrina survivors in the eight months after the disaster. Psychiatric Services 2007, 58(11):1403-1411.
50. Zubrick S.R., Smith G.J., Nicholson J.M., Sanson A.V., Jackiewicz T.A. Parenting and families in Australia: Social policy research paper No. 34 2008, LSAC Research Consortium, Australian Government Department of Families, Housing, Community Services and Indigenous Affairs, Canberra.