The ethical challenges of biobanks: Safeguarding altruism and trust

First Do No Harm: Law, Ethics and Healthcare

Volumn , Issue , 2008, Pages 203-214

  Campbell, Alastair V ^a  

^a UNIVERSITY OF BRISTOL   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84901115411     PISSN: None     EISSN: None     Source Type: Book    
DOI: None     Document Type: Chapter

References (13)

1. Árnason, V., 'Coding and consent: moral challenges of the database project in Iceland', Bioethics, 2004, 18; 1:27-49.
2. Nomper, A., Open Consent - A New Form of Informed Consent for Population Genetic Databases, Estonia, Tartu University, 2005
3. Hansson, S.O., 'The ethics of biobanks', Cambridge Quarterly of Healthcare Ethics, 2004; 13: 320.
4. Greely, H.T., 'Breaking the Stalemate', Wake Forest Law Review, 1999, 34: 737-766.
5. Kaye, J., 'Abandoning informed consent: the case of genetic research in population collections', in Tutton, R. and Corrigan, O. (eds), Genetic Databases: Socio-ethical Issues in the Collection and Use of DNA, London, Routledge, 2004, 117-138.
6. O'Neill, O., 'Some limits of informed consent', Journal of Medical Ethics, 2003; 29: 6.
7. Hoeyer, K., '"Science is really needed - that's all I know": informed consent and the non-verbal practices of collecting blood for genetic research in Northern Sweden', New Genetics and Society, 22; 3: 239.
8. Available at: http://www.ukbiobank.ac.uk/ethics/efg.php.
9. Hansson, M.G., 'Building on relationships of trust in biobank research', Journal of Medical Ethics, 2005; 31: 415-418.
10. Williams G. and Schroeder, D., 'Human biobanking: altruism, benefit and consent', New Genetics and Society, 2004, 23; 1, p. 94.
11. Chadwick, R. and Berg, K., 'Solidarity and equity: new ethical frameworks for genetic databases', Nature Reviews Genetics, 2001; 2: 318-321.
12. Council see: http://www.egcukbiobank.org.uk/.
13. Eliot, T.S., Murder in the Cathedral, Act I.