Use of the terms "Wellbeing" and "Quality of Life" in health sciences: A conceptual framework

European Journal of Psychiatry

Volumn 28, Issue 1, 2014, Pages 50-65

  Salvador Carulla, Luis ^a,b   Lucas, Ramona ^c,d   Ayuso Mateos, José Luis ^e,f,g   Miret, Marta ^e,f,g  

^a UNIVERSITY OF SYDNEY   (Australia)

^b International College of Person Centered Medicine   (Switzerland)

^c UNIVERSITY OF BARCELONA   (Spain)

^d CAMBRIDGESHIRE AND PETERBOROUGH NHS FOUNDATION TRUST   (United Kingdom)

^e CENTRO DE INVESTIGACIÓN BIOMÉDICA EN RED DE SALUD MENTAL CIBERSAM   (Spain)

^f UNIVERSIDAD AUTÓNOMA DE MADRID   (Spain)

^g HOSPITAL UNIVERSITARIO DE LA PRINCESA   (Spain)

Author keywords

Functioning; Happiness; Health terminology; Nomenclature; Quality of Life; Wellbeing

Indexed keywords

ARTICLE; CONCEPTUAL FRAMEWORK; CULTURAL FACTOR; GROSS NATIONAL PRODUCT; HAPPINESS; HEALTH ECONOMICS; HOLISTIC CARE; HUMAN; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; MEDICAL TERMINOLOGY; PSYCHOBIOLOGY; PSYCHOLOGICAL WELL BEING; QUALITY ADJUSTED LIFE YEAR; QUALITY OF LIFE; SOCIAL PSYCHOLOGY; SOCIOLOGY; WELLBEING; WORLD HEALTH ORGANIZATION;

EID: 84900993047     PISSN: 02136163     EISSN: None     Source Type: Journal    
DOI: 10.4321/S0213-61632014000100005     Document Type: Article

References (90)

1. Colquhoun D. The A to Z of the wellbeing industry: from Angelic Reiki to patient centred care. Wellbeing is big business, but how much of it works? BMJ 2011; 342: d2711.
2. Angner E. The evolution of eupathics: the historical roots of subjective measures of wellbeing. International Journal of Wellbeing 2011; 1(1): 4-41.
3. Hart H. Chart for happiness. New York: Macmillan; 1940.
4. Diener E, Suh EM, Lucas RE, Smith HL. Subjective Well-Being: Three Decades of Progress. Psychol Bull 1999; 125(2): 276-302.
5. Kuznets S. National income and capital formation, 1919-1935. New York: National bureau of economic research; 1937.
6. Ayuso-Mateos JL, Salvador-Carulla L, Chisholm D. Use of quality of life measures in mental health economics and care planning. Actas Esp Psiquiatr 2006; 34(1): 1-6.
7. Tversky A, Kahneman D. The framing of decisions and the psychology of choice. Science 1981; 211(4481): 453-458.
8. Kahneman D. Objective happiness. In: Kahneman D, Diener E, Schwarz N, editors. Well-being: the foundations of hedonic psychology. New York: Russell Sage Foundation; 1999. p. 3-25.
9. Anielski M. The economics of happiness: building genuine wealth. Gabriola Island, BC: New Society Publishers; 2007.
10. Commission of the European Communities. GDP and beyond. Measuring progress in a changing world. 2009.
11. Stiglitz JE, Sen A, Fitoussi JP. Report by the Commission on the Measurement of Economic Performance and Social Progress. 2009.
12. Self A, Thomas J, Randall C. Measuring National Well-being: Life in the UK, 2012. Office for National Statistics, 2012.
13. Tobgay T, Dophu U, Torres CE, Na-Bangchang K. Health and Gross National Happiness: review of current status in Bhutan. J Multidiscip Healthc 2011; 4: 293-298.
14. Tobgay T, Dorji T, Pelzom D, Gibbons RV. Progress and delivery of health care in Bhutan, the Land of the Thunder Dragon and Gross National Happiness. Trop Med Int Health 2011; 16(6): 731-736.
15. Pennock M, Ura K. Gross national happiness as a framework for health impact assessment. Environ Impact Assess Rev 2011; 31(1): 61-65.
16. Scorsolini-Comin F, dos Santos MA. The scientific study of happiness and health promotion: an integrative literature review. Rev Lat Am Enfermagem 2010; 18(3): 472-479.
17. Gallup. Gallup-Healthways Well-being Index: Methodology Report for Indexes. Gallup Inc., 2009.
18. Political and Economic Planning. Report on the British health services: a survey of the existing health services in Great Britain, with proposals for future development. London: Political and Economic Planning; 1937.
19. Horder T. Health with happiness-Lord Horder's speech at Leeds. BMJ 1937; 2: 858-859.
20. Tejada de Rivero DA. Alma Ata revisited. Perspect Health 2003; 8 (2): 3.
21. Mattei C. [IX. International Hospital Congress; mental wellbeing of the patient]. Tech Hosp Med Soc Sanit. 1955; 10(118): 47-49.
22. Linder FE. The health of the American people. Sci Am 1966; 214(6): 21-29.
23. Bradburn NM. The structure of psychological wellbeing. Chicago: Aldine; 1969.
24. Prutkin JM, Feinstein AR. Quality-of-life measurements: origin and pathogenesis. Yale J Biol Med 2002; 75(2): 79-93.
25. Gershuny J. Time-use surveys and the measurement of national well-being. Centre for time-use research. Department of sociology. University of Oxford, 2011.
26. Karnofsky DA, Burchenal JH. The clinical evaluation of chemotherapeutic agents in cancer. In: Macleod CM, editor. Evaluation of Chemotherapeutic Agents. New York: Columbia University Press; 1948.
27. Katz S, Ford AB, Moskowitz RW, Jackson BA, Jaffe MW. Studies of illness in the aged. The index of ADL: A standardized measure of biological and psychosocial function. JAMA 1963; 185: 914-919.
28. Campbell A, Converse PE. The human meaning of social change. New York: Rusell Sage Foundation; 1972.
29. Andrews FM, Withey SB. Social Indicators of Well-Being. London: Plenum Publishers; 1976.
30. Carlens E, Dahlstrom G, Nou E. Comparative measurements of quality of survival of lung cancer patients after diagnosis. Scand J Respir Dis 1970; 51(4): 268-275.
31. Feinstein AR, Pritchett JA, Schimpff CR. The epidemiology of cancer therapy. II. The clinical course: data, decisions, and temporal demarcations. Arch Intern Med 1969; 123(3): 323-344.
32. Priestman TJ, Baum M. Evaluation of quality of life in patients receiving treatment for advanced breast cancer. Lancet 1976; 1(7965): 899-900.
33. Aaronson NK, Acquadro C, Alonso J, Apolone G, Bucquet D, Bullinger M, et al. International Quality of Life Assessment (IQOLA) Project. Qual Life Res 1992; 1(5): 349-351.
34. The WHOQOL group. Development of the WHOQOL: rationale and current status. Int J Ment Health 1994; 23: 24-56.
35. WHOQOL group. Study protocol for the World Health Organization project to develop a Quality of Life assessment instrument (WHOQOL). Qual Life Res 1993; 2(2): 153-159.
36. Kuyken W, Orley J. Development of the WHOQOL-Rationale and Current Status. Int J Ment Health 1994; 23(3): 24-56.
37. Kuyken W, Orley J, Power M, Herrman H, Schofield H, Murphy B, et al. The World-Health-Organization Quality-Of-Life Assessment (WHOQOL)-Position Paper from the World-Health-Organization. Soc Sci Med 1995; 41(10): 1403-1409.
38. Power M, Harper A, Bullinger M. The World Health Organization WHOQOL-100: tests of the universality of Quality of Life in 15 different cultural groups worldwide. Health Psychol 1999; 18(5): 495-505.
39. Power M, Kuyken W, Orley J, Herrman H, Schofield H, Murphy B, et al. The World Health Organization Quality of Life assessment (WHOQOL): Development and general psychometric properties. S Soc Sci Med 1998; 46(12): 1569-1585.
40. WHOQOL SRPB Group. A cross-cultural study of spirituality, religion, and personal beliefs as components of quality of life. Soc Sci Med 2006; 62(6): 1486-1497.
41. Power M, Quinn K, Schmidt S, WHOQOL-OLD Group. Development of the WHOQOL-old module. Qual Life Res 2005; 14(10): 2197-2214.
42. Power M, Green AM, WHOQOL-Dis Group. Development of the WHOQOL disabilities module. Qual Life Res 2010; 19(4): 571-584.
43. Aaronson NK. Methodologic issues in assessing the quality of life of cancer patients. Cancer 1991; 67(3 Suppl): 844-850.
44. Chisholm D, Salvador-Carulla L, Ayuso-Mateos JL. Quality of life measurement in the economic analysis of mental health care. In: Katschnig H, Freeman H, Sartorius N, editors. Quality of life in mental disorders, 2nd ed. New York: John Wiley and Sons Inc; 2006. p. 299-308.
45. Weinstein MC, Stason WB. Foundations of cost-effectiveness analysis for health and medical practices. N Engl J Med 1977; 296(13): 716-721.
46. Donaldson C, Baker R, Mason H, Jones-Lee M, Lancsar E, Wildman J, et al. The social value of a QALY: raising the bar or barring the raise? BMC Health Serv Res 2011; 11:8.
47. Gillham JE, Seligman ME. Footsteps on the road to a positive psychology. Behav Res Ther 1999; 37 Suppl 1: S163-S173.
48. Ryff CD. Happiness Is Everything, Or Is It-Explorations on the Meaning of Psychological Well-Being. J Pers Soc Psychol 1989; 57(6): 1069-1081.
49. Ryff CD, Singer B. Psychological well-being: meaning, measurement, and implications for psychotherapy research. Psychother Psychosom 1996; 65(1): 14-23.
50. Ryff CD, Magee WJ, Kling KC, Wing EH. Forging macro-micro linkages in the study of psychological wellbeing. In: Ryff CD, Marshall VW, editors. The self and society in aging process. New York: Springer; 1999. p. 247-278.
51. Ryan RM, Deci EL. On happiness and human potentials: a review of research on hedonic and eudaimonic well-being. Annu Rev Psychol 2001; 52: 141-166.
52. Seligman ME, Csikszentmihalyi M. Positive psychology. An introduction. Am Psychol 2000; 55(1): 5-14.
53. Singer B, Friedman E, Seeman T, Fava GA, Ryff CD. Protective environments and health status: cross-talk between human and animal studies. Neurobiol Aging 2005; 26 Suppl 1: 113-118.
54. Schalock RL, Keith KD, Hoffman K, Karan OC. Quality of life: its measurement and use. Ment Retard 1989; 27(1): 25-31.
55. Wang M, Schalock RL, Verdugo MA, Jenaro C. Examining the factor structure and hierarchical nature of the quality of life construct. Am J Intellect Dev Disabil 2010; 115(3): 218-233.
56. Frank AW. What is dialogical research, and why should we do it? Qual Health Res 2005; 15(7): 964-974.
57. Morrow MR. Feeling unsure: a universal lived experience. Nurs Sci Q 2010; 23(4): 315-325.
58. Jonas-Simpson CM. Feeling understood: a melody of human becoming. Nurs Sci Q 2001; 14(3): 222-230.
59. Pilkington FB, Kilpatrick D. The lived experience of suffering: a parse research method study. Nurs Sci Q 2008; 21(3): 228-237.
60. Gray JA. The psychophysiological basis of introversion-extraversion. Behav Res Ther 1970; 8(3): 249-266.
61. Cloninger CR, Svrakic DM, Przybeck TR. A psychobiological model of temperament and character. Arch Gen Psychiatry 1993; 50(12): 975-990.
62. Cloninger CR. Feeling good: the science of wellbeing. Oxford: Oxford University Press; 2004.
63. Cloninger CR. The science of well-being: an integrated approach to mental health and its disorders. World Psychiatry 2006; 5(2): 71-76.
64. Josefsson K, Cloninger CR, Hintsanen M, Jokela M, Pulkki-Raback L, Keltikangas-Jarvinen L. Associations of personality profiles with various aspects of well-being: a population-based study. J Affect Disord 2011; 133(1-2): 265-273.
65. Salloum IM, Mezzich JE. Outlining the bases of person-centred integrative diagnosis. J Eval Clin Pract 2011; 17(2): 354-356.
66. Herrman H, Saxena S, Moodie R, editors. Promoting mental health: concepts, emerging evidence, practice. Geneva: World Health Organization; 2005.
67. Hosman C, Jane-Llopis E, Saxena S, editors. Prevention of mental disorders: effective interventions and policy options. Oxford: Oxford University Press; 2005.
68. World Health Organization. Health Promotion Glossary. Geneva: World Health Organization; 1998.
69. World Health Organization. Ageing. Exploding the myths. World Health Organization; 1999.
70. World Health Organization. Ottawa charter for health promotion. World Health Organization; 2013.
71. World Health Organization. International Classification of Functioning, Disability and Health: ICF. Geneva: World Health Organization; 2001.
72. World Health Organization. International Classification of Health Interventions (ICHI). Geneva: World Health Organization; 2010.
73. OECD, Eurostat, WHO. A system of health accounts: OECD Publishing; 2011.
74. Salvador-Carulla L, Garcia-Gutierrez C. The WHO construct of health-related functioning (HrF) and its implications for health policy. BMC Public Health 2011; 11 Suppl 4: S9.
75. Kumar A, Smith B, editors. The ontology of processes and funtions: a study of the international classification of functioning, dissability and health. AIME 2005 Workshop on Biomedical Ontology Engineering; 2005.
76. Della Mea V, Simoncello A, editors. Onto ICF: a first report on ICF and SUMO. Meeting of the WHO Collaborating Centres For The Family of International Classifications; 2009.
77. Cieza A, Stucki G. The International Classification of Functioning Disability and Health: its development process and content validity. Eur J Phys Rehabil Med 2008; 44(3): 303-313.
78. Salvador-Carulla L, Gasca VI. Defining disability, functioning, autonomy and dependency in person-centered medicine and integrated care. Int J Integr Care 2010; 10 Suppl: e025.
79. Raggi A, Leonardi M, Cabello M, Bickenbach JE. Application of ICF in clinical settings across Europe. Disabil Rehabil 2010; 32 Suppl 1: S17-S22.
80. Leonardi M, Raggi A, Bussone G, D'Amico D. Health-related quality of life, disability and severity of disease in patients with migraine attending to a specialty headache center. Headache 2010; 50(10): 1576-1586.
81. Geyh S, Cieza A, Kollerits B, Grimby G, Stucki G. Content comparison of health-related quality of life measures used in stroke based on the international classification of functioning, disability and health (ICF): a systematic review. Qual Life Res 2007; 16(5): 833-851.
82. Svestkova O, Angerova Y, Sladkova P, Keclikova B, Bickenbach JE, Raggi A. Functioning and disability in multiple sclerosis. Disabil Rehabil 2010; 32 Suppl 1: S59-S67.
83. Ayuso-Mateos JL, Miret M, Caballero FF, Olaya B, Haro JM, Kowal P, et al. Multi-country evaluation of affective experience: validation of an abbreviated version of the day reconstruction method in seven countries. PloS One 2013; 8(4): e61534.
84. Miret M, Caballero FF, Mathur A, Naidoo N, Kowal P, Ayuso-Mateos JL, et al. Validation of a measure of subjective well-being: an abbreviated version of the day reconstruction method. PLoS One 2012; 7(8): e43887.
85. Haro JM, Ayuso-Mateos JL, Bitter I, Demotes-Mainard J, Leboyer M, Lewis SW, et al. ROAMER: roadmap for mental health research in Europe. Int J Methods Psychiatr Res 2014 Jan; 23 Suppl 1: 1-14.
86. Mezzich JE, Snaedal J, van Weel C, Heath I. Introduction to conceptual explorations on person-centered medicine. Int J Integr Care 2010; 10: e002.
87. Salvador-Carulla L, Ruiz M, Saavedra JE. Promoting wellbeing in persons with disabilities. The international journal of person centered medicine 2012; 2(1).
88. Foresight Mental Capital Wellbeing Project. Final project report-executive summary. London: The Government Office for Science; 2008.
89. Beddington J, Cooper CL, Field J, Goswami U, Huppert FA, Jenkins R, et al. The mental wealth of nations. Nature 2008; 455(7216): 1057-1060.
90. Salvador-Carulla L, Reed GM, Vaez-Azizi LM, Cooper SA, Martinez-Leal R, Bertelli M, et al. Intellectual developmental disorders: towards a new name, definition and framework for "mental retardation/intellectual disability" in ICD-11. World Psychiatry 2011; 10(3): 175-180.