Parental attitudes toward newborn screening for Duchenne/Becker muscular dystrophy and spinal muscular atrophy

Muscle and Nerve

Volumn 49, Issue 6, 2014, Pages 822-828

  Wood, Molly F ^a   Hughes, Sarah C ^a   Hache, Lauren P ^b   Naylor, Edwin W ^c   Abdel Hamid, Hoda Z ^a   Barmada, M Michael ^d   Dobrowolski, Steven F ^e   Stickler, David E ^f   Clemens, Paula R ^a,g  

^a UNIVERSITY OF PITTSBURGH SCHOOL OF MEDICINE   (United States)

^b CHILDREN'S NATIONAL MEDICAL CENTER   (United States)

^c MEDICAL UNIVERSITY OF SOUTH CAROLINA   (United States)

^d UNIVERSITY OF PITTSBURGH   (United States)

^e CHILDREN S HOSPITAL OF PITTSBURGH   (United States)

^f MEDICAL UNIVERSITY OF SOUTH CAROLINA   (United States)

^g VETERANS AFFAIRS MEDICAL CENTER   (United States)

Author keywords

Becker muscular dystrophy; Duchenne muscular dystrophy; Newborn screening; Parental attitudes; Public health policy; Spinal muscular atrophy

Indexed keywords

ADULT; ARTICLE; ASSISTED VENTILATION; BECKER MUSCULAR DYSTROPHY; DRIED BLOOD SPOT TESTING; DUCHENNE MUSCULAR DYSTROPHY; EARLY DIAGNOSIS; EXPECTANT PARENT; FAMILY HISTORY; FAMILY SIZE; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; NEWBORN SCREENING; PARENTAL AGE; PARENTAL ATTITUDE; PARENTAL CONSENT; PRIORITY JOURNAL; PUBLIC FIGURE; SPINAL MUSCULAR ATROPHY;

BECKER MUSCULAR DYSTROPHY; DUCHENNE MUSCULAR DYSTROPHY; NEWBORN SCREENING; PARENTAL ATTITUDES; PUBLIC HEALTH POLICY; SPINAL MUSCULAR ATROPHY;

ADULT; ANXIETY; ATTITUDE TO HEALTH; COHORT STUDIES; EARLY DIAGNOSIS; EMOTIONS; FEMALE; HEALTH SURVEYS; HUMANS; INFANT, NEWBORN; MALE; MUSCULAR DYSTROPHY, DUCHENNE; NEONATAL SCREENING; PARENTS; QUESTIONNAIRES; SPINAL MUSCULAR ATROPHIES OF CHILDHOOD;

EID: 84900494729     PISSN: 0148639X     EISSN: 10974598     Source Type: Journal    
DOI: 10.1002/mus.24100     Document Type: Article

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