The Burden of Narcolepsy Disease (BOND) study: Health-care utilization and cost findings

Sleep Medicine

Volumn 15, Issue 5, 2014, Pages 522-529

  Black, Jed ^a   Reaven, Nancy L ^b   Funk, Susan E ^b   McGaughey, Karen ^c   Ohayon, Maurice ^a   Guilleminault, Christian ^a   Ruoff, Chad ^a   Mignot, Emmanuel ^a  

^a STANFORD UNIVERSITY   (United States)

^b Strategic Health Resources   (United States)

^c CALIFORNIA POLYTECHNIC STATE UNIVERSITY   (United States)

Author keywords

Burden of illness; Cataplexy; Cost of illness; Health care utilization; Narcolepsy; Socioeconomic impact

Indexed keywords

ADULT; AGED; ARTICLE; CATAPLEXY; CONTROLLED STUDY; EMERGENCY CARE; FEMALE; HEALTH CARE COST; HEALTH CARE UTILIZATION; HOSPITAL ADMISSION; HUMAN; MAJOR CLINICAL STUDY; MALE; NARCOLEPSY; OBSERVATIONAL STUDY; OUTPATIENT CARE; PRIORITY JOURNAL; PRODUCTIVITY; PROFESSIONAL PRACTICE; RETROSPECTIVE STUDY; SEX DIFFERENCE; UNITED STATES; ADOLESCENT; CASE CONTROL STUDY; COST OF ILLNESS; DRUG COST; ECONOMICS; EMERGENCY HEALTH SERVICE; EPIDEMIOLOGY; HEALTH CARE DELIVERY; HOSPITALIZATION; MEDICAL LEAVE; MIDDLE AGED; STATISTICS AND NUMERICAL DATA; UTILIZATION; VERY ELDERLY; YOUNG ADULT;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CASE-CONTROL STUDIES; COST OF ILLNESS; DELIVERY OF HEALTH CARE; DRUG COSTS; EMERGENCY SERVICE, HOSPITAL; FEMALE; HEALTH CARE COSTS; HOSPITALIZATION; HUMANS; MALE; MIDDLE AGED; NARCOLEPSY; RETROSPECTIVE STUDIES; SICK LEAVE; UNITED STATES; YOUNG ADULT;

EID: 84900013087     PISSN: 13899457     EISSN: 18785506     Source Type: Journal    
DOI: 10.1016/j.sleep.2014.02.001     Document Type: Article

References (19)

1. Jennum P., Ibsen R., Petersen E.R., Knudsen S., Kjellberg J. Health, social, and economic consequences of narcolepsy: a controlled national study evaluating the societal effect on patients and their partners. Sleep Med 2012, 13:1086-1093.
2. Dauvilliers Y., Arnulf I., Mignot E. Narcolepsy with cataplexy. Lancet 2007, 369:499-511.
3. Longstreth W.T., Koepsell T.D., Ton T.G., Hendrickson A.J., van Belle G. The epidemiology of narcolepsy. Sleep 2007, 30:13-26.
4. Ohayon M.M., Ferini-Strambi L., Plazzi G., Smirne S., Castronova V. How age influences the expression of narcolepsy. J Psychom Res 2005, 59:399-405.
5. Broughton R., Ghanem Q., Hishikawa Y., Sugita Y., Nevsimalova S., Roth B. Life effects of narcolepsy in 180 patients from North America, Asia and Europe compared to matched controls. Can J Neurol Sci 1981, 8:299-304.
6. Goswami M. The influence of clinical symptoms on quality of life in patients with narcolepsy. Neurology 1998, 50(Suppl. 1):S31-S36.
7. Daniels E., King M.A., Smith I.E., Shneerson J.M. Health-related quality of life in narcolepsy. J Sleep Res 2001, 10:75-81.
8. Dodel R., Peter H., Walbert T., Spottke A., Noekler C., Berger K., et al. The socioeconomic impact of narcolepsy. Sleep 2004, 27:1123-1128.
9. Godbout R., Montplaisir J. All-day performance variations in normal and narcoleptic subjects. Sleep 1986, 9:200-204.
10. Broughton W.A., Broughton R.J. Psychosocial impact of narcolepsy. Sleep 1994, 17(8 Suppl.):S45-S49.
11. Aldrich M.S. Automobile accidents in patients with sleep disorders. Sleep 1989, 12:487-494.
12. Smolensky M.H., Di Milia L., Ohayon M.M., Philip P. Sleep disorders, medical conditions, and road accident risk. Acciden Anal Prev 2011, 43:533-548.
13. Philip P., Sagaspe P., Lagarde E., Leger D., Ohayon M.M., Bioulac B., et al. Sleep disorders and accidental risk in a large group of regular registered highway drivers. Sleep Med 2010, 11:973-979.
14. Billiard M., Bassetti C., Dauvilliers Y., Dolenc-Groselj L., Lammers G.J., Mayer G., et al. EFNS guidelines on management of narcolepsy. Eur J Neurol 2006, 13:1035-1048.
15. Morganthaler T.I., Kapur V.K., Brown T.M., Swick T.J., Alessi C., Aurora R.N., et al. Practice parameters for the treatment of narcolepsy and other hypersomnias of central origin. Sleep 2007, 30:1705-1711.
16. Andlauer O., Moore H., Jouhier L., Drake C., Peppard P.E., Han F., et al. Nocturnal rapid eye movement sleep latency for identifying patients with narcolepsy/hypocretin deficiency. JAMA Neurol 2013, 70:891-902.
17. Ingravallo F., Gnucci V., Pizza F., Vignatelli L., Govi A., Dormi A., et al. The burden of narcolepsy with cataplexy: how disease history and clinical features influence socio-economic outcomes. Sleep Med 2012, 13:1293-1300.
18. Bertakis K.D., Azari R., Helms L.J., Callahan E.J., Robbins J.A. Gender differences in the utilization of health care services. J Fam Pract 2000, 49:147-152.
19. Ohayon M.M., Priest R.G., Zulley J., Smirne S., Paiva T. Prevalence of narcolepsy symptomatology and diagnosis in the European general population. Neurology 2002, 58:1826-1833.