"There won't' be anything else. . .it's over": Perceptions of women referred to palliative care only

European Journal of Oncology Nursing

Volumn 18, Issue 3, 2014, Pages 261-266

  Rugno, Fernanda Capella ^a   Paiva, Bianca Sakamoto Ribeiro ^a   Nunes, João Soares ^a   Paiva, Carlos Eduardo ^a  

^a BARRETOS CANCER HOSPITAL   (Brazil)

Author keywords

Advanced cancer; Content analysis; Palliative care; Qualitative research

Indexed keywords

BREAST NEOPLASMS; FEMALE; GENITAL NEOPLASMS, FEMALE; HUMAN; INTERPERSONAL COMMUNICATION; MIDDLE AGED; PALLIATIVE THERAPY; PSYCHOLOGY; QUALITATIVE RESEARCH; TREATMENT WITHDRAWAL;

BREAST NEOPLASMS; COMMUNICATION; FEMALE; GENITAL NEOPLASMS, FEMALE; HUMANS; MIDDLE AGED; PALLIATIVE CARE; QUALITATIVE RESEARCH; WITHHOLDING TREATMENT;

EID: 84899901303     PISSN: 14623889     EISSN: 15322122     Source Type: Journal    
DOI: 10.1016/j.ejon.2014.01.003     Document Type: Article

References (39)

1. Back A.L., Arnold R.M., Baile W.F., Tulsky J.A., Fryer-Edwards K. Approaching difficult communication tasks in oncology. CA: A Cancer Journal for Clinicians 2005, 55:164-177.
2. Baile W.F., Buckman R., Lenzi R., Glober G., Beale E.A., Kudelka A.P. SPIKES-A six-step protocol for delivering bad news: application to the patient with cancer. Oncologist 2000, 5:302-311.
3. Bakitas M., Lyons K.D., Hegel M.T., Balan S., Brokaw F.C., Seville J., et al. Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial. Journal of the American Medical Association 2009, 302:741-749.
4. Bardin L. Aanálise de conteúdo 1994, (Rio de Janeiro). Edições 70.
5. Bouleuc C., Chvetzoff G. End of chemotherapy decision for metastatic breast cancer patients. Bulletin du Cancer 2009, 96(Suppl.2):81-89.
6. Bruera E., Kuehn N., Miller M.J., Selmser P., Macmillan K. The Edmonton Symptom Assessment System (ESAS): a simple method for the assessment of palliative care patients. Journal of Palliative Care 1991, 7:6-9.
7. Butow P.N., Dowsett S., Hagerty R., Tattersall M.H. Communicating prognosis to patients with metastatic disease: what do they really want to know?. Supportive Care in Cancer 2002, 10:161-168.
8. Cassileth B.R., Lusk E.J., Brown L.L., Cross P.A., Walsh W.P., Hurwitz S. Factors associated with psychological distress in cancer patients. Medical and Pediatric Oncology 1986, 14:251-254.
9. Cho D., Park C.L., Blank T.O. Emotional approach coping: gender differences on psychological adjustment in young to middle-aged cancer survivors. Psychology and Health 2013, 28:874-894.
10. Dalal S., Palla S., Hui D., Nguyen L., Chacko R., Li Z., et al. Association between a name change from palliative to supportive care and the timing of patient referrals at a comprehensive cancer center. Oncologist 2011, 16:105-111.
11. de Haes H., Koedoot N. Patient centered decision making in palliative cancer treatment: a world of paradoxes. Patient Education and Counselling 2003, 50:43-49.
12. Dunn S.M., Butow P.N., Tattersall M.H., Jones Q.J., Sheldon J.S., Taylor J.J., et al. General information tapes inhibit recall of the cancer consultation. Journal of Clinical Oncology 1993, 11:2279-2285.
13. Fadul N., Elsayem A., Palmer J.L., Del Fabbro E., Swint K., Li Z., et al. Supportive versus palliative care: what's in a name?: a survey of medical oncologists and midlevel providers at a comprehensive cancer center. Cancer 2009, 115:2013-2021.
14. Gaertner J., Wolf J., Voltz R. Early palliative care for patients with metastatic cancer. Current Opinion in Oncology 2012, 24:357-362.
15. Gattellari M., Voigt K.J., Butow P.N., Tattersall M.H. When the treatment goal is not cure: are cancer patients equipped to make informed decisions?. Journal of Clinical Oncology 2002, 20:503-513.
16. Gil F., Costa G., Hilker I., Benito L. First anxiety, afterwards depression: psychological distress in cancer patients at diagnosis and after medical treatment. Stress and Health 2012, 28:362-367.
17. Girgis A., Sanson-Fisher R.W. Breaking bad news: consensus guidelines for medical practitioners. Journal of Clinical Oncology 1995, 13:2449-2456.
18. Grunfeld E.A., Maher E.J., Browne S., Ward P., Young T., Vivat B., et al. Advanced breast cancer patients' perceptions of decision making for palliative chemotherapy. Journal of Clinical Oncology 2006, 24:1090-1098.
19. Hanks G. Palliative care: careless use of language undermines our identity. Palliative Medicine 2008, 22:109-110.
20. Hui D., De La Cruz M., Mori M., Parsons H.A., Kwon J.H., Torres-Vigil I., et al. Concepts and definitions for "supportive care," "best supportive care," "palliative care," and "hospice care" in the published literature, dictionaries, and textbooks. Supportive Care in Cancer 2013, 21:659-685.
21. Hui D., Kim S.H., Kwon J.H., Tanco K.C., Zhang T., Kang J.H., et al. Access to palliative care among patients treated at a comprehensive cancer center. Oncologist 2012, 17:1574-1580.
22. Jacobs-Lawson J.M., Schumacher M.M., Hughes T., Arnold S. Gender differences in psychosocial responses to lung cancer. Gender Medicine 2010, 7:137-148.
23. Jansen J., Butow P.N., van Weert J.C., van Dulmen S., Devine R.J., Heeren T.J., et al. Does age really matter? Recall of information presented to newly referred patients with cancer. Journal of Clinical Oncology 2008, 26:5450-5457.
24. Keller M., Henrich G. Illness-related distress: does it mean the same for men and women? Gender aspects in cancer patients' distress and adjustment. Acta Oncologica 1999, 38:747-755.
25. Kubler-Ross E. On Death and Dying 1969, MacMillan, NY.
26. Lutz S. The history of hospice and palliative care. Current Problems in Cancer 2011, 35:304-309.
27. Meyers F.J., Linder J., Beckett L., Christensen S., Blais J., Gandara D.R. Simultaneous care: a model approach to the perceived conflict between investigational therapy and palliative care. Journal of Pain and Symptom Management 2004, 28:548-556.
28. Miyashita M., Hirai K., Morita T., Sanjo M., Uchitomi Y. Barriers to referral to inpatient palliative care units in Japan: a qualitative survey with content analysis. Supportive Care in Cancer 2008, 16:217-222.
29. NCCN NCCN clinical practice guidelines in oncology. Palliative Care 2013, http://www.nccn.org/professionals/physician_gls/pdf/palliative.pdf (accessed 20.09.13.).
30. Paiva C.E., Faria C.B., Nascimento M.S., Dos Santos R., Scapulatempo H.H., Costa E., et al. Effectiveness of a palliative care outpatient programme in improving cancer-related symptoms among ambulatory Brazilian patients. European Journal of Cancer Care (Engl) 2012, 21:124-130.
31. Peleg-Oren N., Sherer M., Soskolne V. Effect of gender on the social and psychological adjustment of cancer patients. Social Work in Health Care 2003, 37:17-34.
32. Rabinowitz T., Peirson R. "Nothing is wrong, doctor": understanding and managing denial in patients with cancer. Cancer Investigation 2006, 24:68-76.
33. Siminoff L.A., Graham G.C., Gordon N.H. Cancer communication patterns and the influence of patient characteristics: disparities in information-giving and affective behaviors. Patient Education and Counselling 2006, 62:355-360.
34. Smith T.J., Hillner B.E. Explaining marginal benefits to patients, when "marginal" means additional but not necessarily small. Clinical Cancer Research 2010, 16:5981-5986.
35. Strasser F., Sweeney C., Willey J., Benisch-Tolley S., Palmer J.L., Bruera E. Impact of a half-day multidisciplinary symptom control and palliative care outpatient clinic in a comprehensive cancer center on recommendations, symptom intensity, and patient satisfaction: a retrospective descriptive study. Journal of Pain and Symptom Management 2004, 27:481-491.
36. Temel J.S., Greer J.A., Muzikansky A., Gallagher E.R., Admane S., Jackson V.A., et al. Early palliative care for patients with metastatic non-small-cell lung cancer. The New England Journal of Medicine 2010, 363:733-742.
37. Thomas B.C., NandaMohan V., Nair M.K., Pandey M. Gender, age and surgery as a treatment modality leads to higher distress in patients with cancer. Supportive Care in Cancer 2010, 19:239-250.
38. van Vliet L., Francke A., Tomson S., Plum N., van der Wall E., Bensing J. When cure is no option: how explicit and hopeful can information be given? A qualitative study in breast cancer. Patient Education and Counselling 2013, 90:315-322.
39. Vos M.S., de Haes J.C. Denial in cancer patients, an explorative review. Psychooncology 2007, 16:12-25.