Pfizer-sponsored satellite symposium at the European Haemophilia Consortium (EHC) Congress: Changing the policy landscape: Haemophilia patient involvement in healthcare decision-making Pfizer-sponsored satellite symposium at the European Haemophilia Consortium (EHC) Congress : Changing the policy landscape: Haemophilia patient involvement in healthcare decision-making

European Journal of Haematology

Volumn 92, Issue S74, 2014, Pages 1-8

  O'Mahony, Brian ^a   Kent, Alastair ^b   Aymé, Ségolène ^c  

^a IRISH HAEMOPHILIA SOCIETY   (Ireland)

^b GENETIC ALLIANCE UK   (United Kingdom)

^c INSERM   (France)

Author keywords

Advocacy; European Haemophilia Consortium; Genetic Alliance UK; Healthcare; Orphanet; Patient organisations; Policy; Rare disease

Indexed keywords

ARTICLE; BUDGET; CLINICAL TRIAL (TOPIC); COMMUNITY; COST EFFECTIVENESS ANALYSIS; EUROPE; EUROPEAN HAEMOPHILIA CONSORTIUM; FAMILY; GROSS NATIONAL PRODUCT; HEALTH CARE; HEALTH CARE PERSONNEL; HEALTH CARE POLICY; HEMOPHILIA; HUMAN; LANDSCAPE; MEDICAL ASSESSMENT; MEDICAL HISTORY; MEDICAL SOCIETY; MOTIVATION; PATIENT ADVOCACY; PATIENT ATTITUDE; PATIENT DECISION MAKING; PATIENT PARTICIPATION; PRESSURE; PRIORITY JOURNAL; RARE DISEASE; SYMPOSIUM; HEMOPHILIA A;

HEALTH POLICY; HEMOPHILIA A; HUMANS; PATIENT PARTICIPATION;

EID: 84899769319     PISSN: 09024441     EISSN: 16000609     Source Type: Journal    
DOI: 10.1111/ejh.12316     Document Type: Article

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