Sudden unexpected death in epilepsy: Knowledge and experience among U.S. and Canadian neurologists

Epilepsy and Behavior

Volumn 35, Issue , 2014, Pages 13-18

  Friedman, Daniel ^a   Donner, Elizabeth J ^b   Stephens, Derek ^b   Wright, Cyndi ^c   Devinsky, Orrin ^a  

^a NEW YORK UNIVERSITY MEDICAL CENTER   (United States)

^b HOSPITAL FOR SICK CHILDREN   (Canada)

^c Stormlabs Consulting   (United States)

Author keywords

Counseling; Disclosure; Education; SUDEP

Indexed keywords

ADULT; ARTICLE; CANADA; CAREGIVER; CHILD; EPILEPSY; EXPERIENCE; HUMAN; KNOWLEDGE; MEDICAL PRACTICE; MULTIVARIATE LOGISTIC REGRESSION ANALYSIS; NEUROLOGIST; PATIENT CARE; POSTGRADUATE EDUCATION; SUDDEN DEATH; UNITED STATES; ATTITUDE TO HEALTH; COMPLICATION; EPIDEMIOLOGY; ETIOLOGY; FEMALE; HEALTH SURVEY; INTERNET; MALE; NEUROLOGY; PHYSICIAN; PSYCHOLOGY; STATISTICS AND NUMERICAL DATA;

ADULT; CANADA; CAREGIVERS; DEATH, SUDDEN; EPILEPSY; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SURVEYS; HUMANS; INTERNET; MALE; NEUROLOGY; PHYSICIANS; UNITED STATES;

EID: 84899688472     PISSN: 15255050     EISSN: 15255069     Source Type: Journal    
DOI: 10.1016/j.yebeh.2014.03.022     Document Type: Article

References (15)

1. Devinsky O. Sudden, unexpected death in epilepsy. N Engl J Med 2011, 365:1801-1811.
2. Nashef L. Sudden unexpected death in epilepsy: terminology and definitions. Epilepsia 1997, 38:S6-S8.
3. Tomson T., Nashef L., Ryvlin P. Sudden unexpected death in epilepsy: current knowledge and future directions. Lancet Neurol 2008, 7:1021-1031.
4. Hesdorffer D.C., Tomson T., Benn E., Sander J.W., Nilsson L., Langan Y., et al. Combined analysis of risk factors for SUDEP. Epilepsia 2011, 52:1150-1159.
5. National Institute for Health and Clinical Excellence The diagnosis and management of the epilepsies in adults and children in primary and secondary care [CG20] 2007.
6. Scottish Intercollegiate Guidelines Network Diagnosis and management of epilepsy in adults: guideline 2001, 70.
7. Brodie M.J., Holmes G.L. Should all patients be told about sudden unexpected death in epilepsy (SUDEP)? Pros and cons. Epilepsia 2008, 49(Suppl. 9):99-101.
8. So E.L., Bainbridge J., Buchhalter J.R., Donalty J., Donner E.J., Finucane A., et al. Report of the American Epilepsy Society and the Epilepsy Foundation joint task force on sudden unexplained death in epilepsy. Epilepsia 2009, 50:917-922.
9. Morton B., Richardson A., Duncan S. Sudden unexpected death in epilepsy (SUDEP): don't ask, don't tell?. J Neurol Neurosurg Psychiatry 2006, 77:199-202.
10. Gayatri N.A., Morrall M.C.H.J., Jain V., Kashyape P., Pysden K., Ferrie C. Parental and physician beliefs regarding the provision and content of written sudden unexpected death in epilepsy (SUDEP) information. Epilepsia 2010, 51:777-782.
11. Vegni E., Leone D., Canevini M.P., Tinuper P., Moja E.A. Sudden unexpected death in epilepsy (SUDEP): a pilot study on truth telling among Italian epileptologists. Neurol Sci 2011, 32:331-335.
12. England M.J., Liverman C.T., Schultz A.M., Strawbridge L.M. Epilepsy across the spectrum: promoting health and understanding: a summary of the Institute of Medicine report. Epilepsy Behav 2012, 25:266-276.
13. Langan Y., Nashef L., Sander J.W. Case-control study of SUDEP. Neurology 2005, 64:1131-1133.
14. Ryvlin P., Cucherat M., Rheims S. Risk of sudden unexpected death in epilepsy in patients given adjunctive antiepileptic treatment for refractory seizures: a meta-analysis of placebo-controlled randomised trials. Lancet Neurol 2011, 10:961-968.
15. RamachandranNair R., Jack S.M., Meaney B.F., Ronen G.M. SUDEP: what do parents want to know?. Epilepsy Behav 2013, 29:560-564.