"It's alright to ask for help": Findings from a qualitative study exploring the information and support needs of family carers at the end of life

BMC Palliative Care

Volumn 13, Issue 1, 2014, Pages

  Harrop, Emily ^a   Byrne, Anthony ^a   Nelson, Annmarie ^a  

^a CARDIFF UNIVERSITY SCHOOL OF MEDICINE   (United Kingdom)

Author keywords

Education; Family caregiver; Palliative care; Qualitative research

Indexed keywords

ADULT; ARTICLE; CAREGIVER; CLINICAL ARTICLE; COMPETENCE; FAMILY COUNSELING; FEMALE; HEALTH CARE PERSONNEL; HELP SEEKING BEHAVIOR; HUMAN; MEDICAL INFORMATION; QUALITATIVE RESEARCH; TERMINAL CARE; UNITED KINGDOM;

EID: 84899586476     PISSN: None     EISSN: 1472684X     Source Type: Journal    
DOI: 10.1186/1472-684X-13-22     Document Type: Article

References (25)

1. A systematic review of informal caregivers' needs in providing home-based end-of-life care to people with cancer. Bee PE, Barnes P, Luker KA, J Clin Nurs 2009 18 1379 1393 10.1111/j.1365-2702.2008.02405.x 18624779
2. Support requirements for caregivers of patients with palliative cancer. Jansma FF, Schure LM, Meyboom de Jong B, Patient Counsell Health Educ 2004 58 182 186
3. National Institute for Clinical Excellence, Improving supportive and palliative care for adults with cancer London: National Institute for Clinical Excellence (NICE) 2004
4. Working with ambivalence: informal caregivers at the end of life. Harding R, Higginson I, Support Care Canc 2001 9 642 645 10.1007/s005200100286 (Pubitemid 33063725)
5. A Multi-Professional short term group intervention for informal caregivers of patients using a home palliative care service. Harding R, Leam C, Pearce A, Taylor E, Higginson IJ, J Palliat Care 2002 18 275 281 12611318
6. Evaluation of a short-term group intervention for informal carers of patients attending a home palliative care service. Harding R, Higginson IJ, Leam C, Donaldson N, Pearce A, George R, Robinson V, Taylor L, J Pain Symptom Manag 2004 27 296 408
7. Evaluation of a psycho-educational group programme for family caregivers in home based palliative care. Hudson P, Quinn K, Kristjianson L, Thomas T, Braithwaite M, Fisher J, Cockayne M, Palliat Med 2008 22 270 280 10.1177/0269216307088187 18477722 (Pubitemid 351795932)
8. Dying at home: community nurses' views on the impact of informal carers on cancer patients' place of death. Jack B, O'Brien M, Eur J Canc Care 2010 19 636 642 10.1111/j.1365-2354.2009.01103.x
9. The role of social and psychologic resources in caregiving of cancer patients. Nijboer C, Tempelaar R, Triemstra M, Van den Bos G, Sanderman R, Cancer 2001 91 1029 1039 10.1002/1097-0142(20010301)91:5<1029::AID- CNCR1094>3.0.CO;2-1 11251956
10. The health impact of health care on families: a matched cohort study of hospice use by decedents and mortality outcomes in surviving, widowed spouses. Christakis NA, Iwashyna TJ, Soc Sci Med 2003 57 465 475 10.1016/S0277-9536(02) 00370-2 12791489 (Pubitemid 36677507)
11. A conceptual model and key variables for guiding supportive interventions for family caregivers of people receiving palliative care. Hudson P, Palliat Support Care 2003 1 353 365 10.1017/S1478951503030426 16594225
12. Lazarus RS, Folkman S, Stress, Appraisal and Coping New York: Springer 1984
13. Intervention development for enhanced lay palliative caregiver support-the use of focus groups. Hudson P, Aranda S, McMurray N, Eur J Canc Care 2002 11 262 270 10.1046/j.1365-2354.2002.00314.x
14. Teaching family carers about home-based palliative care: final results from a group education program. Hudson P, Thomas T, Quinn K, Cockayne M, Braithwaite M, J Pain Symptom Manag 2009 38 299 307 10.1016/j.jpainsymman.2008. 08.010
15. Development of a Carer Support Needs Assessment Tool (CSNAT) for end of life care practice at home: a qualitative study. Ewing G, Grande GE, Palliat Med 2013 27 244 256 10.1177/0269216312440607 22450160
16. Strategizing a game plan: Family caregivers of palliative cancer patients at home engage in the process of pain management. Mehta A, Cohen SR, Carnevale FA, Ezer H, Ducharme F, Cancer Nurs 2010 33 461 469 10.1097/NCC.0b013e3181de72cc 20562615
17. Part 2: Home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998-2008). Funk L, Stajduhar K, Toye C, Aoun S, Grande G, Todd C, Palliat Med 2010 24 594 607 10.1177/ 0269216310371411 20576673
18. Qualitative Research. Introducing Focus Groups. Kitzinger J, BMG: Br Med J 1996 29 36 45
19. Using thematic analysis in psychology. Braun V, Clark V, Qual Res Psychol 2006 3 77 101 10.1191/1478088706qp063oa
20. The relevance of ontological commitments in social services: Realistic and pragmatist viewpoints. Kivinen O, Piiroinen T, J Theory Soc Behav 2004 34 231 248 10.1111/j.0021-8308.2004.00246.x (Pubitemid 39234281)
21. Rorty R, Philosophy and Social Hope Harmondsworth: Penguin Books 1999
22. Marie Curie, Referring Patients FAQS http://www.mariecurie.org.uk/en-GB/ Commissioners-and-referrers/Referring-patients/FAQs/
23. Glaser B, Strauss A, The Discovery of Grounded Theory Chicago: Aldine 1967
24. What is the best way to give caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Harding R, Higginson IJ, Palliat Med 2003 17 63 74 10.1191/0269216303pm667oa 12597468 (Pubitemid 36193223)
25. Medical Research Council, Developing and Evaluating Complex Interventions 2008 http://www.mrc.ac.uk/Utilities/Documentrecord/index.htm?d=MRC004871