How do researchers manage genetic results in practice? The experience of the multinational Colon Cancer Family Registry

Journal of Community Genetics

Volumn 5, Issue 2, 2014, Pages 99-108

  Keogh, Louise A ^a   Fisher, Douglass ^b   Sheinfeld Gorin, Sherri ^c,d   Schully, Sheri D ^d   Lowery, Jan T ^e   Ahnen, Dennis J ^f   Maskiell, Judith A ^a   Lindor, Noralane M ^g   Hopper, John L ^a   Burnett, Terrilea ^h   Holter, Spring ⁱ   Arnold, Julie L ^j   Gallinger, Steven ⁱ   Laurino, Mercy ^b   Esplen, Mary Jane ^i,k   Sinicrope, Pamela S ^l  

^a UNIVERSITY OF MELBOURNE   (Australia)

^b Fred Hutchinson Cancer Research Center   (United States)

^c Och Spine at New York Presbyterian Hospitals   (United States)

^d NATIONAL CANCER INSTITUTE   (United States)

^e Food Science and Human Nutrition   (United States)

^f UNIVERSITY OF COLORADO SCHOOL OF MEDICINE   (United States)

^g MAYO CLINIC   (United States)

^h UNIVERSITY OF HAWAII CANCER CENTER   (United States)

ⁱ MOUNT SINAI HOSPITAL   (Canada)

^j AUCKLAND CITY HOSPITAL   (New Zealand)

^k UNIVERSITY OF TORONTO   (Canada)

^l MAYO CLINIC   (United States)

more..

Author keywords

Colorectal neoplasms; Disclosure of research results; Genetic predisposition testing; Hereditary nonpolyposis

Indexed keywords

ADULT; ARTICLE; AUSTRALIA; CANADA; CANCER REGISTRY; CLINICAL PRACTICE; CLINICAL PROTOCOL; COLON CANCER; GENE MUTATION; GENETIC RESULT; GENETIC SCREENING; HUMAN; INCIDENTAL FINDING; LABORATORY DIAGNOSIS; MAJOR CLINICAL STUDY; MISMATCH REPAIR; MUTYH GENE; NEW ZEALAND; ONCOGENE; PATIENT AUTONOMY; PATIENT MONITORING; PRIORITY JOURNAL; UNITED STATES;

EID: 84899088488     PISSN: 1868310X     EISSN: 18686001     Source Type: Journal    
DOI: 10.1007/s12687-013-0148-y     Document Type: Article

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