Patient-reported hereditary breast and ovarian cancer in a primary care practice

Journal of Community Genetics

Volumn 5, Issue 2, 2014, Pages 179-183

  Quillin, John M ^a   Krist, Alexander H ^a   Gyure, Maria ^a   Corona, Rosalie ^a   Rodriguez, Vivian ^a   Borzelleca, Joseph ^a   Bodurtha, Joann N ^b  

^a VIRGINIA COMMONWEALTH UNIVERSITY   (United States)

^b JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Genetic counseling; Hereditary breast and ovarian cancer syndrome; Primary health care; Women's health

Indexed keywords

ADULT; AFRICAN AMERICAN; AGE DISTRIBUTION; ARTICLE; ATTITUDE TO ILLNESS; BREAST CANCER; CANCER RISK; CAUCASIAN; CONTROLLED STUDY; DISEASE ASSOCIATION; FAMILIAL CANCER; FAMILY; FAMILY STRUCTURE; FEMALE; GENETIC COUNSELING; GENETIC RISK; GENETIC SCREENING; HIGH RISK PATIENT; HUMAN; MAJOR CLINICAL STUDY; MEDICAL PRACTICE; OVARY CANCER; PATIENT ATTITUDE; PATIENT REFERRAL; PATIENT WORRY; PRACTICE GUIDELINE; PREVALENCE; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; RACE DIFFERENCE; RANDOMIZED CONTROLLED TRIAL (TOPIC); SELF REPORT; TUMOR SUPPRESSOR GENE;

EID: 84899083262     PISSN: 1868310X     EISSN: 18686001     Source Type: Journal    
DOI: 10.1007/s12687-013-0161-1     Document Type: Article

References (22)

1. Acheson LS, Wiesner GL, Zyzanski SJ, Goodwin MA, Stange KC (2000) Family history-taking in community family practice: implications for genetic screening. Genet Med : J Am Coll Med Genet 2(3):180-185 (Pubitemid 32010820)
2. ASHG Statement (1998) Professional disclosure of familial genetic information. the American society of human genetics social issues subcommittee on familial disclosure. Am J Hum Genet 62(2):474-483
3. Bellcross CA, Leadbetter SD,Hensley AS, Peipins LA (2013) Prevalence of healthcare actions of women in a large health system with a family history meeting the 2005 USPSTF recommendation for BRCA genetic counseling referral. Cancer Epidemiol Biomarkers Prev 22(4):728-735
4. Brandt R, Ali Z, Sabel A, McHugh T, Gilman P (2008) Cancer genetics evaluation: barriers to and improvements for referral. Genet Test 12:9-12 (Pubitemid 351457780)
5. Erby LH, Roter D, Larson S, Cho J (2008) The rapid estimate of adult literacy in genetics (REAL-G): a means to assess literacy deficits in the context of genetics. Am J Med Genet A 146A(2):174-181
6. Flynn BS, Wood ME, Ashikaga T, Stockdale A, Dana GS, Naud S (2010) Primary care physicians' use of family history for cancer risk assessment. BMC Fam Pract 11:45
7. Gramling R, Anthony D, Frierson G, Bowen D (2007) The cancer worry chart: a single-item screening measure of worry about developing breast cancer. Psycho-Oncology 16(6):593-597 (Pubitemid 47039561)
8. Lerman C, Trock B, Rimer BK, Jepson C, Brody D, Boyce A (1991) Psychological side effects of breast cancer screening. Health Psychol : J Div Health Psychol Am Psychol Assoc 10(4):259-267
9. Mai PL, Garceau AO, Graubard BI, Dunn M, McNeel TS, Gonsalves L et al (2011) Confirmation of family cancer history reported in a population-based survey. J Natl Cancer Inst 103:788-797
10. Murff HJ, Spigel DR, Syngal S (2004) Does this patient have a family history of cancer? An evidence-based analysis of the accuracy of family cancer history. JAMA : J Am Med Assoc 292(12):1480-1489 (Pubitemid 39258342)
11. Murff HJ, Greevy RA, Syngal S (2007) The comprehensiveness of family cancer history assessments in primary care. Community Genet 10:174-180 (Pubitemid 46944293)
12. Office of Disease Prevention and Health Promotion, Department of Health andHuman Services. Healthy People 2020 progress review: Cancer and genomics. Retrieved 02/06, 2013, from https://hhs-faca.webex.com/hhs-faca/onstage/g.php?d= 990350602&t=a&EA=jquillin%40mcvh-vcu.edu&ET= f4bd639857c7c594da6028ba7d57c860&ORT=MiMxMQ%3D%3D
13. Qureshi N, Wilson B, Santaguida P, Carroll J, Allanson J, Culebro CR et al (2007) Collection and use of cancer family history in primary care. Evid Rep Technol Assess (Full Rep) 1-84
14. Qureshi N, Carroll JC, Wilson B, Santaguida P, Allanson J, Brouwers M et al (2009) The current state of cancer family history collection tools in primary care: a systematic review. Genet Med 11:495-506
15. Sifri RD, Wender R, Paynter N (2002) Cancer risk assessment from family history: gaps in primary care practice. J Fam Pract 51:856
16. Thompson HS, Sussner K, Schwartz MD, Edwards T, Forman A, Jandorf L, Brown K, Bovbjerg DH, Valdimarsdottir HB (2012) Receipt of genetic counseling recommendations among black women at high-risk for BRCA mutations. Genet Test Mol Biomark 16(11):1257-1262
17. U.S. Department of Health and Human Services. Office of Disease Prevention and Health Promotion. Healthy people 2020. Retrieved 02/05, 2013, from www.healthypeople.gov/2020
18. U.S. Preventive Services Task Force (2005) Genetic risk assessment and BRCA mutation testing for breast and ovarian cancer susceptibility: recommendation statement. Ann Intern Med 143(5):355-361
19. Wood ME, Stockdale A, Flynn BS (2008) Interviews with primary care physicians regarding taking and interpreting the cancer family history. Fam Pract 25:334-340
20. Yoon PW, Scheuner MT, Gwinn M, Khoury MJ, Jorgensen C, Hariri S et al (2004) Awareness of family health history as a risk factor for disease - United States, 2004. MMWR Morb Mortal Wkly Rep 53(44):1044-1047
21. Ziogas A, Anton-Culver H (2003) Validation of family history data in cancer family registries. Am J Prev Med 24(2):190-198 (Pubitemid 36144098)
22. Ziogas A, Horick NK, Kinney AY, Lowery JT, Domchek SM, Isaacs C et al (2011) Clinically relevant changes in family history over time. JAMA 306:172-178