Variation in the spillover effects of illness on parents, spouses, and children of the chronically ill

Applied Health Economics and Health Policy

Volumn 12, Issue 2, 2014, Pages 117-124

  Lavelle, Tara A ^a,b   Wittenberg, Eve ^c   Lamarand, Kara ^a   Prosser, Lisa A ^a  

^a UNIVERSITY OF MICHIGAN MEDICAL SCHOOL   (United States)

^b RAND CORPORATION   (United States)

^c HARVARD SCHOOL OF PUBLIC HEALTH   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADULT; AGE DISTRIBUTION; ALZHEIMER DISEASE; ARTHRITIS; ARTICLE; CAREGIVER SUPPORT; CHRONIC PATIENT; DEMENTIA; DEPRESSION; DISEASE SEVERITY; ECONOMIC EVALUATION; FEMALE; HEALTH ECONOMICS; HEALTH STATUS; HUMAN; MAJOR CLINICAL STUDY; MALE; MIDDLE AGED; NEOPLASM; QUALITY OF LIFE; RATING SCALE; SPILLOVER EFFECT; SPOUSE; YOUNG ADULT; AGED; CAUSALITY; CHILD; CHRONIC DISEASE; COST OF ILLNESS; FAMILY RELATION; HEALTH SURVEY; INDIGENOUS HEALTH CARE; MENTAL STRESS; PARENT; PSYCHOLOGY; SOCIOECONOMICS; STATISTICS AND NUMERICAL DATA; UNITED STATES; VERY ELDERLY;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CAUSALITY; CHILD; CHRONIC DISEASE; COST OF ILLNESS; DEPRESSION; FAMILY RELATIONS; FEMALE; HEALTH SERVICES, INDIGENOUS; HUMANS; MALE; MIDDLE AGED; PARENTS; POPULATION SURVEILLANCE; QUALITY OF LIFE; SOCIOECONOMIC FACTORS; SPOUSES; STRESS, PSYCHOLOGICAL; UNITED STATES; YOUNG ADULT;

EID: 84899067151     PISSN: 11755652     EISSN: 11791896     Source Type: Journal    
DOI: 10.1007/s40258-014-0079-8     Document Type: Article

References (35)

1. Wittenberg E, Prosser LA. Disutility of illness for caregivers and families: a systematic review of the literature. Pharmacoeconomics. 2013;31(6):489-500.
2. Bobinac A, van Exel NJ, Rutten FF, Brouwer WB. Caring for and caring about: disentangling the caregiver effect and the family effect. J Health Econ. 2010;29(4):549-56.
3. Bobinac A, van Exel NJ, Rutten FF, Brouwer WB. Health effects in significant others: separating family and care-giving effects. Med Decis Mak. 2011;31(2):292-8.
4. Brouwer WB. Too important to ignore: informal caregivers and other significant others. Pharmacoeconomics. 2006;24(1):39-41. (Pubitemid 43197229)
5. Brouwer WBF. Incorporating caregiver and family effects in economic evaluations of child health. In: Ungar WJ, editor. Economic evaluation in child health. Oxford: Oxford University Press; 2010. p. 55-76.
6. Wittenberg E, Ritter GA, Prosser LA. Evidence of spillover of illness among household members: EQ-5D scores from a US sample. Med Decis Mak. 2013;33(2):235-43.
7. Basu A, Dale W, Elstein A, Meltzer D. A time tradeoff method for eliciting partner's quality of life due to patient's health states in prostate cancer. Med Decis Mak. 2010;30(3):355-65.
8. Basu A, Meltzer D. Implications of spillover effects within the family for medical cost-effectiveness analysis. J Health Econ. 2005;24(4):751-73. (Pubitemid 40800157)
9. Poley MJ, Brouwer WBF, van Exel NJA, Tibboel D. Assessing health-related quality-of-life changes in informal caregivers: an evaluation in parents of children with major congenital anomalies. Qual Life Res. 2012;21(5):849-61.
10. Brouwer WBF, van Exel NJ, Van De Berg B, Dinant HJ, Koopmanschap MA, van den Bos GAM. Burden of caregiving: evidence of objective burden, subjective burden, and quality of life impacts on informal caregivers of patients with rheumatoid arthritis. Arthritis Rheum. 2004;51(4):570-7. (Pubitemid 39056244)
11. Neumann PJ, Kuntz KM, Leon J, Araki SS, Hermann RC, Hsu MA, et al. Health utilities in Alzheimer's disease: a cross-sectional study of patients and caregivers. Med Care. 1999;37(1):27-32.
12. Davidson T, Krevers B, Levin LA. In pursuit of QALY weights for relatives: empirical estimates in relatives caring for older people. Eur J Health Econ. 2008;9(3):285-92. (Pubitemid 351962401)
13. Argyriou AA, Karanasios P, Ifanti AA, Iconomou G, Assimakopoulos K, Makridou A, et al. Quality of life and emotional burden of primary caregivers: a case-control study of multiple sclerosis patients in Greece. Qual Life Res. 2011;20(10):1663-8.
14. Brisson M, Senecal M, Drolet M, Mansi JA. Health-related quality of life lost to rotavirus-associated gastroenteritis in children and their parents: a Canadian prospective study. Pediatr Infect Dis J. 2010;29(1):73-5.
15. Dixon S, Walker M, Salek S. Incorporating carer effects into economic evaluation. Pharmacoeconomics. 2006;24(1):43-53. (Pubitemid 43197230)
16. Kuhlthau K, Kahn R, Hill KS, Gnanasekaran S, Ettner SL. The well-being of parental caregivers of children with activity limitations. Matern Child Health J. 2010;14(2):155-63.
17. Mohide EA, Torrance GW, Streiner DL, Pringle DM, Gilbert R. Measuring the wellbeing of family caregivers using the time trade-off technique. J Clin Epidemiol. 1988;41(5):475-82.
18. Serrano-Aguilar PG, Lopez-Bastida J, Yanes-Lopez V. Impact on health-related quality of life and perceived burden of informal caregivers of individuals with Alzheimer's disease. Neuroepidemiology. 2006;27(3):136-42. (Pubitemid 44651433)
19. Tilford JM, Grosse SD, Robbins JM, Pyne JM, Cleves MA, Hobbs CA. Health state preference scores of children with spina bifida and their caregivers. Qual Life Res. 2005;14(4):1087-98. (Pubitemid 40685231)
20. van Exel NJ, Koopmanschap MA, van den Berg B, Brouwer WB, van den Bos GA. Burden of informal caregiving for stroke patients: identification of caregivers at risk of adverse health effects. Cerebrovasc Dis. 2005;19(1):11-7. (Pubitemid 40082253)
21. Lieberman MA, Fisher L. The impact of chronic illness on the health and well-being of family members. Gerontologist. 1995;35(1):94-102.
22. Bell CM, Araki SS, Neumann PJ. The association between caregiver burden and caregiver health-related quality of life in Alzheimer disease. Alzheimer Dis Assoc Disord. 2001;15(3):129-36. (Pubitemid 32807937)
23. KnowledgePanel® Design Summary 2012 [cited 2013 August 27]. http://www.knowledgenetworks.com/knpanel/docs/knowledgePanel(R) -design-summary-description.pdf.
24. Respondent Incentives for Knowledge Panel®. 2009 [cited 2013 July 1]. http://www.knowledgenetworks.com/ganp/irbsupport/docs/KNIRBDoc-Section4- RespondentIncentives.doc.
25. Efron B. Better bootstrap confidence-intervals. J Am Stat Assoc. 1987;82(397):171-85.
26. Akaike H. New look at statistical-model identification. IEEE Trans Automat Contr. 1974;19(6):716-23.
27. Gold MR. Cost-effectiveness in health and medicine. New York: Oxford University Press; 1996.
28. Robinson A, Dolan P, Williams A. Valuing health status using VAS and TTO: what lies behind the numbers? Soc Sci Med. 1997;45(8):1289-97. (Pubitemid 27387166)
29. Glick H. Assessing quality-adjusted life years: economic evaluation in clinical trials. Oxford: Oxford University Press; 2007. p. 59-87.
30. Wittenberg E, Saada A, Prosser LA. How illness affects family members: a qualitative interview survey. Patient. 2013;6(4):257-68.
31. Eisenberg D, Freed GL, Davis MM, Singer D, Prosser LA. Valuing health at different ages: evidence from a nationally representative survey in the US. Appl Health Econ Health Policy. 2011;9(3):149-56.
32. Lavelle TA, Meltzer MI, Gebremariam A, Lamarand K, Fiore AE, Prosser LA. Community-based values for 2009 pandemic influenza A H1N1 illnesses and vaccination-related adverse events. PLoS One. 2011;6(12):e27777.
33. Pullenayegum EM, Tarride JE, Xie F, O'Reilly D. Calculating utility decrements associated with an adverse event: marginal Tobit and CLAD coefficients should be used with caution. Med Decis Mak. 2011;31(6):790-9.
34. Pullenayegum EM, Tarride JE, Xie F, Goeree R, Gerstein HC, O'Reilly D. Analysis of health utility data when some subjects attain the upper bound of 1: are Tobit and CLAD models appropriate? Value Health. 2010;13(4):487-94.
35. Brazier J, Ratcliffe J, Salomon JA, Tsuchiya A. Valuing health: measuring and valuing health benefits for economic evaluation. Oxford: Oxford University Press; 2007. p. 83-138.