-
1
-
-
0042736613
-
Life with a rare chronic disease: The scleroderma experience
-
DOI 10.1046/j.1365-2648.2003.02663.x
-
Joachim G, Acorn S,. Life with a rare chronic disease: the scleroderma experience. J Adv Nurs 2003; 42: 598-606. (Pubitemid 37255895)
-
(2003)
Journal of Advanced Nursing
, vol.42
, Issue.6
, pp. 598-606
-
-
Joachim, G.1
Acorn, S.2
-
2
-
-
34648820029
-
Become your own advocate: Advice from women living with scleroderma
-
DOI 10.1080/09638280601029480, PII 773211887
-
Mendelson C, Poole JL,. Become your own advocate: advice from women living with scleroderma. Disabil Rehabil 2007; 29: 1492-501. (Pubitemid 47456955)
-
(2007)
Disability and Rehabilitation
, vol.29
, Issue.19
, pp. 1492-1501
-
-
Mendelson, C.1
Poole, J.L.2
-
3
-
-
67649700449
-
Unmet patient needs in systemic sclerosis
-
Rubenzik TT, Derk CT,. Unmet patient needs in systemic sclerosis. J Clin Rheumatol 2007; 15: 106-10.
-
(2007)
J Clin Rheumatol
, vol.15
, pp. 106-110
-
-
Rubenzik, T.T.1
Derk, C.T.2
-
4
-
-
0033772821
-
Development and evaluation of a patient education program for persons with systemic sclerosis (scleroderma)
-
Samuelson UK, Ahlmen EM,. Development and evaluation of a patient education program for persons with systemic sclerosis (scleroderma). Arthritis Care Res 2000; 13: 141-8.
-
(2000)
Arthritis Care Res
, vol.13
, pp. 141-148
-
-
Samuelson, U.K.1
Ahlmen, E.M.2
-
5
-
-
33646248193
-
The impact of group education on participants' management of their disease in lupus and scleroderma
-
Brown SJ, Somerset ME, McCabe CS, McHugh NJ,. The impact of group education on participants' management of their disease in lupus and scleroderma. Musculoskeletal Care 2004; 2: 207-17.
-
(2004)
Musculoskeletal Care
, vol.2
, pp. 207-217
-
-
Brown, S.J.1
Somerset, M.E.2
McCabe, C.S.3
McHugh, N.J.4
-
6
-
-
79960421274
-
Addressing patient health care demands in systemic sclerosis: Pre-post assessment of a psycho-educational group programme
-
Kwakkenbos L, Bluyssen SJ, Vonk MC, van Helmond AF, van den Ende CH, van den Hoogen FH, et al. Addressing patient health care demands in systemic sclerosis: pre-post assessment of a psycho-educational group programme. Clin Exp Rheumatol 2011; 29 Suppl: S60-5.
-
(2011)
Clin Exp Rheumatol
, vol.29
, Issue.SUPPL.
-
-
Kwakkenbos, L.1
Bluyssen, S.J.2
Vonk, M.C.3
Van Helmond, A.F.4
Van Den Ende, C.H.5
Van Den Hoogen, F.H.6
-
7
-
-
0030844981
-
Patient education in arthritis: Randomized controlled trial of a mail- delivered program
-
Fries JF, Carey C, McShane DJ,. Patient education in arthritis: randomized controlled trial of a mail-delivered program. J Rheumatol 1997; 24: 1378-83. (Pubitemid 27353384)
-
(1997)
Journal of Rheumatology
, vol.24
, Issue.7
, pp. 1378-1383
-
-
Fries, J.F.1
Carey, C.2
Mcshane, D.J.3
-
8
-
-
47249158638
-
The internet-based arthritis self-management program: A one-year randomized trial for patients with arthritis or fibromyalgia
-
DOI 10.1002/art.23817
-
Lorig KR, Ritter PL, Laurent DD, Plant K,. The internet-based Arthritis Self-Management Program: a one-year randomized trial for patients with arthritis or fibromyalgia. Arthritis Rheum 2008; 59: 1009-17. (Pubitemid 351990999)
-
(2008)
Arthritis Care and Research
, vol.59
, Issue.7
, pp. 1009-1017
-
-
Lorig, K.R.1
Ritter, P.L.2
Laurent, D.D.3
Plant, K.4
-
9
-
-
84883245712
-
Evaluation of a mail-delivered, print-format self-management program for persons with systemic sclerosis
-
Poole JL, Skipper B, Mendelson C,. Evaluation of a mail-delivered, print-format self-management program for persons with systemic sclerosis. Clin Rheumatol 2013; 32: 1393-8.
-
(2013)
Clin Rheumatol
, vol.32
, pp. 1393-1398
-
-
Poole, J.L.1
Skipper, B.2
Mendelson, C.3
-
10
-
-
0003878445
-
-
Thousand Oaks (CA): Sage Publications.
-
Lorig K, Stewart A, Ritter P, Gonzalez V, Laurent D, Lynch J,. Outcome measures for health education and other health care interventions. Thousand Oaks (CA): Sage Publications; 1996.
-
(1996)
Outcome Measures for Health Education and Other Health Care Interventions
-
-
Lorig, K.1
Stewart, A.2
Ritter, P.3
Gonzalez, V.4
Laurent, D.5
Lynch, J.6
-
11
-
-
34147179564
-
The Health Education Impact Questionnaire (heiQ): An outcomes and evaluation measure for patient education and self-management interventions for people with chronic conditions
-
DOI 10.1016/j.pec.2006.12.002, PII S0738399106004216
-
Osborne RH, Elsworth GR, Whitfield K,. The Health Education Impact Questionnaire (heiQ): an outcomes and evaluation measure for patient education and self-management interventions for people with chronic conditions. Patient Educ Couns 2007; 66: 192-201. (Pubitemid 46575176)
-
(2007)
Patient Education and Counseling
, vol.66
, Issue.2
, pp. 192-201
-
-
Osborne, R.H.1
Elsworth, G.R.2
Whitfield, K.3
-
12
-
-
3142668984
-
Development of the patient activation measure (PAM): Conceptualizing and measuring activation in patients and consumers
-
Hibbard JH, Stockard J, Mahoney ER, Tusler M,. Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv Res 2004; 39: 1005-26. (Pubitemid 38924690)
-
(2004)
Health Services Research
, vol.39
, Issue.4
, pp. 1005-1026
-
-
Hibbard, J.H.1
Stockard, J.2
Mahoney, E.R.3
Tusler, M.4
-
13
-
-
84965520932
-
The CES-D scale: A self-report depression scale for research in the general population
-
Radloff LS,. The CES-D scale: a self-report depression scale for research in the general population. Appl Psychol Meas 1977; 1: 385-401.
-
(1977)
Appl Psychol Meas
, vol.1
, pp. 385-401
-
-
Radloff, L.S.1
-
14
-
-
0018882143
-
Measurement of patient outcome in arthritis
-
DOI 10.1002/art.1780230202
-
Fries JF, Spitz P, Kraines RG, Holman HR,. Measurement of patient outcome in arthritis. Arthritis Rheum 1980; 23: 137-45. (Pubitemid 10164318)
-
(1980)
Arthritis and Rheumatism
, vol.23
, Issue.2
, pp. 137-145
-
-
Fries, J.F.1
Spitz, P.2
Kraines, R.G.3
Holman, H.R.4
-
15
-
-
84875746213
-
Needs for online information and support of patients with systemic sclerosis
-
Van der Vaart R, Repping-Wuts H, Drossaert CH, Taal E, Knaapen-Hans HK, van de Laar MA,. Needs for online information and support of patients with systemic sclerosis. Arthritis Care Res (Hoboken) 2013; 65: 594-600.
-
(2013)
Arthritis Care Res (Hoboken)
, vol.65
, pp. 594-600
-
-
Van Der Vaart, R.1
Repping-Wuts, H.2
Drossaert, C.H.3
Taal, E.4
Knaapen-Hans, H.K.5
Van De Laar, M.A.6
-
16
-
-
79952786895
-
Frequency and impact of symptoms experienced by patients with systemic sclerosis: Results from a Canadian national study
-
Bassel M, Hudson M, Taillefer SS, Schieir O, Baron M, Thombs BD,. Frequency and impact of symptoms experienced by patients with systemic sclerosis: results from a Canadian national study. Rheumatology (Oxford) 2011; 50: 762-7.
-
(2011)
Rheumatology (Oxford)
, vol.50
, pp. 762-767
-
-
Bassel, M.1
Hudson, M.2
Taillefer, S.S.3
Schieir, O.4
Baron, M.5
Thombs, B.D.6
-
17
-
-
34547954776
-
Disease and symptom burden in systemic sclerosis: A patient perspective
-
Suarez-Almazon ME, Kallen MA, Roundtree AK, Mayes M,. Disease burden and symptom burden in systemic sclerosis: a patient perspective. J Rheumatol 2007; 34: 1718-26. (Pubitemid 47267616)
-
(2007)
Journal of Rheumatology
, vol.34
, Issue.8
, pp. 1718-1726
-
-
Suarez-Almazor, M.E.1
Kallen, M.A.2
Roundtree, A.K.3
Mayes, M.4
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